Wrexham

BBC Report: Wales disability support cuts: Care to be re-assessed in July #SaveWILG

Elderly man in wheelchair

Re-assessments of severely disabled people unhappy with their care packages will not begin before July.

The Welsh Independent Living Grant has ended with councils funding care for more than 1,000 people receiving it.

In February, the Welsh Government announced anyone unhappy with their new council care package would be offered independent re-assessments.

Plaid Cymru said the wait was “way too long”. The Welsh Government has been asked to respond to the criticism.

In response to a Freedom of Information request, the Welsh Government told BBC Wales it has set aside up to £60,000 to pay an independent organisation to do the reassessments.

It anticipates the contract will be awarded by the end of June and re-assessments will begin in July.

£2.4m per year has also been budgeted, “for planning purposes”, to cover the potential costs of any increased packages.

157 people out of 1,174 assessed by their councils by the end of last year had had their support reduced.

There have been big regional variations, with cuts most common in Wrexham, Newport and Ceredigion.

Julie Morgan

The WILG was introduced in Wales to replace the UK-wide Independent Living Fund (ILF), which was closed down by the UK government in 2015.

In a letter to ex-WILG recipients, Deputy Minister for Social Services Julie Morgan said their “patience” would be appreciated.

“I do not want people to be waiting for an independent assessment,” she said.

“However, it is important to organise these independent assessments properly, so that they meet the required standards.”

Plaid Cymru’s social justice spokeswoman Leanne Wood questioned whether the reassessments were necessary.

“Initially many of these people were given an award for life and going through a reassessment process is extremely stressful,” she said.

“Particularly if you have a condition that everybody knows is not going to improve, it’s only going to deteriorate.

“So putting people through those reassessments is potentially problematic but at the same time this does need to be resolved quickly.”

‘Irresponsible’

Nathan Davies, a Labour member and founder of the Save WILG campaign, said the wait was “inconvenient” but criticised the previous Welsh Labour Government, led by Carwyn Jones, which made the initial decision to transfer the responsibility to councils.

“The fact that they [the current Welsh Government] are having to do this work now is because the previous neo-liberal regime did not listen to our campaign team and disregarded the evidence that we presented.

“The fact that we are having to endure an uncomfortable few months is totally down to them and a number of irresponsible local authorities.”

You can see more on this story on the BBC Wales Live programme at 22:30 BST on Wednesday BBC One Wales, and then on BBC iPlayer

Desperately Seeking Staff

I am in search of new staff to work alongside me as a personal assistant. This is a fulfilling role that gives you the chance to make a difference to someone else’s life. I am looking for someone who is punctual, reliable, a team player and can be flexible. Word processing skills and a full driving licence are also essential.

Hours can be negotiated at interview.

Drop me a line via the Contact page, Facebook or Twitter. Good luck.

***

Rate of Pay: Flat Rate: £9.50 per hour  – Weekly Hours: To be discussed at interview.

About the employer:

This post is to support a sociable 42-year-old man living in the Wrexham area. He uses a wheelchair and lives with Friedreich’s Ataxia. Subsequently he requires support to remain independent. An intelligent author and disabled activist with a good sense of humour, he remains ambitious and adventurous. He enjoys company and likes to go out socialising.

Summary of duties:

To provide support to access various social and recreational activities. You must therefore have a clean driving license. You will need to support with his personal care, including toileting, washing, dressing and preparing meals. He is a very creative individual and requires support to develop his ideas. Due to his poor dexterity he struggles to type quickly – as a writer this is most frustrating – therefore you should have good word-processing skills.

A full driving license is also required as he often attends meetings throughout the North Wales and North West area.

Support with gardening and household tasks.

The post will include 5.6 weeks paid annual leave (pro-rata)

Police records check funded by the employer will be required.

The person they are looking for:

The ideal person will have a good sense of humour and should also display plenty of energy, initiative and enthusiasm. In addition, applicants should be patient and trustworthy with a flexible and empathetic attitude. A positive attitude and clear understanding of confidentiality is essential. Promoting the independence of the client will be the main focus for any support.

You must be reliable, friendly, flexible and punctual.

Times Required:

A variety of hours are available to cover Mornings, Evenings, Sleep-Ins and Weekends. To be discussed at interview. 

Holiday and Sickness Cover is also available.

 

Wrexham man’s disability campaign will lead to thousands of lives being improved

The following article was taken from the Leader Live website. I am claiming no credit for writing this article which also appears in the Leader newspaper. 

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Improvements have been made to the way care is delivered for more than 1,000 disabled people in Wales to help ensure they get the support they need to live independent lives.

Local Assembly Member, Lesley Griffiths, has welcomed the Welsh Government’s latest announcement and congratulated Wrexham resident, Nathan Lee Davies, who headed a strong campaign and made representations to the Deputy Minister for Health & Social Services, Julie Morgan AM, on the matter.

Concerns regarding the Welsh Independent Living Grant (WILG) were initially raised when it was announced the responsibility for the scheme, which had been introduced after the abolition of the Independent Living Fund (ILF), was to be passed onto local authorities to manage from April this year. Nathan feared the changes would have a detrimental effect on his wellbeing and initiated the ‘Save WILG’ campaign.

The hard work has paid off as under the latest proposals, additional measures have been put in place to ensure nobody who was once in receipt of WILF, and its predecessor ILF, misses out as a result of the changes. An independent social work assessment will be offered to all former ILF recipients who are unhappy with their new care and support package and would like a second opinion.

The Welsh Government will provide additional funding to local authorities for the cost of the workers to carry out these independent assessments and additional care hours that may result from the assessments.

Lesley Griffiths AM said: “It was vitally important that people who previously received payments from the Welsh Independent Living Grant were not negatively affected by the transition. These latest measures will help ensure the new system is implemented properly, assuring levels of care and support throughout Wales are delivered consistently.”

“There’s no doubt the Save WILG campaign made a real difference. Having met with Nathan a number of times, it was always clear to see the extra stress and anxiety this was causing him. I am pleased to have helped facilitate the Minister’s meeting with Nathan in Wrexham and I hope all the individuals who feared they were going to be adversely affected are happy with the outcome.”

The £27m Welsh Independent Living Grant (WILG) was originally set up in 2015 following a decision by the UK coalition Government to close the Independent Living Fund.

Welsh Government consulted with partners to develop a long term strategy. A two-year transition period began in April 2017 in which all former ILF recipients in Wales who were now in receipt of payments under WILG would have their care needs assessed by their local authority to ensure a care plan was agreed and support package put in place.

While the transition period resulted in the majority of recipients being satisfied with the new arrangements, some former ILF recipients, who had not been subject to a care assessment since 2015, were concerned by the change in approach, with the reassessment causing tension in some cases.

The announcement by the Welsh Government aims to address the inconsistencies, with evidence suggesting the variation between local authorities warrants a change in direction and the Welsh Government has written to local government leaders to request a pause of the transition with immediate effect in order to bring in revised arrangements.

Essential Viewing: Wales Live

PLEASE WATCH THIS. APOLOGIES FOR THE LENGTH OF TEXT, BUT PLEASE READ & SHARE THIS (via copying and pasting or going to Clwyd South Labour Party Facebook page if you can’t share from here. Thank you).

Video is from approx 8mins 35 secs in.

Another superb report about the Save the Welsh Independent Living Grant – WILG campaign by the BBC’s Paul Martin, who again puts his UK-level colleagues to shame by showing how journalism should be done.

With Plaid securing a debate on WILG on Wednesday in the Assembly, we at Clwyd South Labour Party & Labour for Wrexham join our MPs Susan Elan Jones MP & Ian Lucas in calling on the Welsh government, OUR party, to finally make the change that absolutely NOBODY (apart from seemingly some Cabinet Ministers), ANYWHERE-inside or outside Labour-is against!

Both Mark Drakeford AM & Julie Morgan, Assembly Member for Cardiff North are good people, who we campaigned, phonebanked, door-knocked & supported passionately during their respective campaigns; both have been openly supportive of what we are trying to do.

So, if anyone is in doubt as to how important this is, or why it is ESSENTIAL that the Welsh Independent Living Grant with a confirmed TRIPARTITE (recipient, Local Authority, WAG-with WAG controlling admin & money) system is saved, then let us present evidence in addition to expert opinion:

-via FOI, VERY clearly, without a shred of doubt, the evidence in black & white shows that the current system implemented last year is failing lots of people. Demonstrably so. We have pages and pages of evidence and reports that prove that, putting all emotional pleas to one side, NOT keeping WILG with Tripartite is demonstrably worsening the lives of many, while as Dame Tani Grey-Thompson says, the inevitability of it costing MORE by NOT doing this!

Add to this we have plenty of evidence of what happens when the WILG equivalent is kept as in Scotland & Northern Ireland (very successful) V when it is scrapped, hence WILG to begin with, in England-i.e. Terrible results for the most vulnerable. Not surprising given this is, no matter how it is dressed up & accepting it was not the original intention, very clearly a Neo Liberal policy-the antithesis of what we stand for in Labour.

-NONE of the recipients are creating a two-tier system. WAG is. Both at the initial stage-their choice, but also now with the wildly differing results from Local Authorities. THAT is a two-tier system! Also, the number of recipients is only going DOWN, so if WAG do not think it is obvious that THE most vulnerable people in Wales deserve their direct protection (Tripartite), then we would love to know why.

-Democracy: We are very pleased to see Mark Drakeford re-emphasizing how we are a democratic, member-led party in Wales. Therefore, we expect, obviously, that the vote at Welsh Labour conference 2018 is upheld and that we keep WILG with a Tripartite system. Otherwise, as one of the first acts of the new administration, it’s not exactly a good look if the largest ever defeat for WL is ignored given the committed stance on democracy!!! Many would question what the point of conference motions are if this is ignored.

-Total unanimous support to Save the Welsh Independent Living Grant – WILG from the following:

The Labour Party membership inside & outside Wales

Labour MPs inside & outside Wales and AMs, Councillors etc in Wales

The Leader of the Labour Party at UK level Jeremy Corbyn

The Shadow Chancellor John McDonnell

Welsh Labour Grassroots- The Home for Momentum in Wales

Unite the union

Baroness Tani Grey-Thompson

The UN

The Official UK-wide Disability Group for Labour who also passed our motion

ALL other political parties in Wales. ALL!

Every single Constituency Labour Party (CLP) in Wales that we have had direct contact with, and many we haven’t

Wrexham FC, Ken Loach, Mark Thomas, Atilla The Stockbroker, Joe Solo & MANY other cultural icons

Do we need to go on? We repeat, we have faith in both Mark Drakeford & Julie Morgan to do the right thing as they are good Socialist people. IF, and we say IF, this is a failure of consensus politics, then annoy those objecting in your cabinet. Not the most vulnerable people in Wales. IF this is being stopped by the egos of others, because OBVIOUSLY it is not based in evidence, is it?!, then I am afraid WE, because WE are Labour, MUST stand up to anyone wishing to block what is an ABSOLUTE NO-BRAINER!!!

To be clear-our campaign will only heap praise on Mark Drakeford, Julie Morgan & Welsh Labour if they secure what is ethically, economically, politically & procedurally the right thing to do. We will praise them for listening and PROVING this new administration is a listening one, that it is very much a Socialist one, and very much an administration that respects democracy. It will be a statement of intent. It will, to quote Rhodri Morgan, show “Clear red water” between the Tories in Westminster & Labour in Wales. Nathan & the campaign has done everything by the book, jumping EVERY admin/democratic hurdle.

Now with this democracy-centred, inclusive, Socialist administration in addition to all the glaring, factual evidence, NO OPPOSITION either internally or externally, the UK Leader & Shadow Chancellor, the UN, Welsh MPs & AMs, THE CONFERENCE VOTE etc etc…This really is VERY easy to do from every conceivable angle-morally, politically, economically, PR-wise etc. It should be like shooting fish in a barrel.

We want to be proud to continue the fight to oppose social injustice. The average life expectancy of someone with lead campaigner Nathan Lee Davies‘s condition, is 35 years old. Tomorrow-Tuesday 12th February 2019-is Nathan’s 42nd birthday. To quote Nathan himself:

“I do not want to be using what precious time I have left fighting against the hierarchy of the party I love and campaign for. But I will if I have to. Please don’t make me.”

On behalf of the campaign, please do not make us have to, either. Do the right thing. You are good, decent people who we are proud to campaign for & defend daily. Yes, no one says your job is easy-far from it. But this decision is. PLEASE, before the party we love gets exposed in the Assembly on Wednesday, PLEASE LISTEN. THANK YOU!

WALESPOSTCARDFRONT001

Minutes of the Cross Party Group on Disability #SaveWILG

Minutes of the Cross Party Group on Disability

Friday, 11th January 2019, Wrexham Glyndŵr University,

Mold Road, Wrexham, LL11 2AW

Present: Carol Gardener, Jo Woodward, Tom Hall, Mark Davies, Eric Owen, Sorrel Taylor, Maureen Lee, Sharon O’Connor, Chris Roberts, Jayne Goodrick, Paul Johnson, Lynne Jones, Lynne Davies, Nathan Davies, Sandra Morgan, Bill Fawcett, Vince West, Laura Seddon, Lisa Pollard, Simon Green, Michelle Brown AM, Eluned Plack, Eluned’s carer, Jacqui Hurst, Kathryn Shaw, Brian Harrison, Rhian Davies, Martyn Jones, Zoe Richards, Mark Isherwood AM, Gareth Davies, Rebecca Phillips.

Apologies: Llyr Grufydd AM, Jan Thomas, Helen Mary Jones AM, Rob Williams, Kathryn Jellings, Andrea Wayman, Stephen Ben Morris, Louise (WCD), Owen Williams, Glenn Page.

1. Welcome and introductions

Mark Isherwood AM welcomed everyone to the meeting.

2. Minutes of the last meeting.

The minutes were approved as an accurate record.

3. Presentations:

Rhian Davies – Draft Framework for Action on Disability

Rhian provided an overview of the Welsh Government’s Draft Framework for Action on Disability. The document was created following a review of the Framework for Action on Independent Living, produced in 2013 to provide a strategic approach to independent living across Wales and to promote the social model of disability.

Disability Wales strongly believe that the Framework for Action on Disability should be under-pinned by the UN Convention on the Rights of Disabled People. Disability Wales worked with its partners in Scotland and Northern Ireland to produce a Manifesto for independent living and identified six calls to action:

1. Improved access to information, advice, independent advocacy and peer support services.

2. Availability of accessible and supported housing to meet individual requirements.

3. A comprehensive range of options and genuine choice and control in how social care and support is delivered.

4. Improved access to person-centered technology.

5. Barrier-free transport system that includes all forms of transport.

6. Enabling access, involvement and social economic and cultural inclusion of all disabled people.

There was a ministerial agreement to review the Framework for Action on Independent Living, three years on. This resulted in the Independent Living Steering group, comprising representatives from disability organisations across Wales, chaired by Rhian, to re-convene. The group reflected on what had been achieved since 2013. They recognised that whilst the introduction of the Framework was ground-breaking, progress on the ground was very slow and that national policy set by Welsh Government had not translated into local action. There was limited evidence in the change in culture, particularly by local authorities and local health boards in terms of taking on board a more rights-based approach to disabled people and to tackling barriers to independent living.

This was endorsed in 2017 during a Welsh Government consultation. The general feedback was that very little had changed in the lives of many disabled people and has even got worse which was also a key finding from the UN Convention on the Rights of Disabled People. The UN Committee in Geneva was very critical of the UK Government in that they had regressed in their local policies.

The steering group’s aspirations for the revised version is that it should be much stronger in terms of the UN Convention of the Rights of Disabled People. The Convention should be at the heart of the new Framework with a stronger commitment to implementation of the social model of disability and more robust action in terms of how that is understood by people.

Rhian reported that the steering group took a strategic decision to align it with Welsh Government’s own strategic plan, ‘Prosperity for All’ which has four key themes:

1. Prosperous and secure

2. Healthy and active

3. Ambitious and learning

4. United and connected

The steering group was of the opinion that there should be two documents. The main document, to set out the key commitments and principles for Welsh Government to abide by, plus a separate action plan that could be regularly updated and monitored with more specific detail about what different the Welsh Government departments would do in terms of delivery.

The action plan, which is currently out for consultation, links more closely to the articles of the UN Convention. In order to produce a response to the consultation, Disability Wales ran two events along with an online survey to gather the views of disabled people. The deadline for responses is Friday 18th January but there could be an extension. Rhian added that Alison Tarrant from Cardiff University has produced an interesting paper looking at independent living policy. The paper was circulated to members prior to the meeting. The paper critiques the Framework for Action on Disability and a number of issues were identified.

Disability Wales and other members of the steering group have been calling for incorporation into the UN Convention for the Rights of Disabled People (UCRDP), giving it similar status to that of the UN Convention on the Rights of the Child. Helen Mary-Jones AM is looking at how human rights can be incorporated in Wales.

Rhian noted that there is a disconnect between Welsh Government’s principles and aspirations in relation to improving independent living for disabled people and the actual reality of accessing services and achieving their rights.

Rhian highlighted the importance of the CPGD submitting a robust response to the consultation with the aim of strengthening the new Framework to ensure it takes forward the rights of disabled people in Wales.

MI highlighted some of the findings from the study based on the Draft Framework for Action on Disability produced by Alison Tarrant of Cardiff University. These included the absence of ‘Advocacy’, which was previously identified in the 2013 Framework as one of the highest priorities. In addition, the 2013 Framework was constructed around a series of priorities identified by disabled people. The foregrounding of the priorities and expertise of disabled people has been removed. MI suggested these be considered when submitting a response.

Nathan Davies – Wales Independent Living Grant

Nathan shared a video with the group, titled ‘Save WILG Campaign’. The video highlighted the issues faced by more than 1300 recipients of the grant. On March 31st, Welsh Government plan to close the Welsh Independent Living Grant (WILG) and transfer the funds to the Local Authorities. The funds will not be ring-fenced. The video, features an insight into Nathan’s condition, Friedreich Ataxia, a progressive disease of the nervous system. Nathan states that in order to be a productive member of society, he requires the help and support from personal assistants, funded by WILG. Without the grant, his care will be reduced from 86.5 hours per week to 31 hours per week. Back in April 2018, at the Welsh Labour Conference, a motion was passed to save WILG. However, this has not been acted upon yet. The Campaign has gathered political support from across the spectrum and still Welsh Ministers and some civil servants refuse to listen to the evidence collected. Nathan is particularly concerned that the money being given to Local Authorities has not been ring-fenced.

Nathan’s strength and campaigning has been recognised by the Wrexham Glyndwr University who have made him an honorary fellow.

To highlight the issues surrounding WILG, Nathan is running a series of campaigns across social media to influence a positive decision.

Mark Isherwood AM invited questions and comments.

Questions / Comments:

In relation to WILG, Rhian informed the group that Nathan and the BBC made a Freedom of Information request. It emerged that only two-thirds of people have been assessed and although some had their packages maintained and some increased, a significant number had their hours cut. There were circa 17 instances of clients taking legal action against their local authority. In response to the Freedom of Information outcome, Huw Irranca-Davies AM agreed to examine this further to establish whether the issues solely related to Wrexham or whether the problem was more widespread. Rhian suggested the CPGD write to the new Minister, Julie Morgan AM for an update.

The importance of disabled people needed better access to lawyers was raised.

Mark Isherwood AM stated that the Equality and Human Rights Commission will occasionally fight a trial case to establish a precedent. The CPGD could submit a request if there was a particular matter that needed to be tested in court. He added that Welsh Government do not have control over Legal Aid but it is still worth highlighting any concerns and to ask what support they can offer to better access legal advice.

Various sources of legal services were identified and will be circulated following the meeting. Disability Wales also have a guide on their website offering advice and information called ‘Know Your Rights, Use Your Rights, Live Your Rights’.

Concerns were raised around the lack of proper planning and services available for the increasing number of children with disabilities which will result in their needs not being met.

A member asked why Welsh Government has decided not to follow Scotland or Northern Ireland in terms of how they manage the Welsh Independent Living Grant if there is evidence to prove the system is working well in those areas.

Mark Isherwood AM suggested Disability Wales seek data from Disability Scotland to identifying the positive impact the grant has had on recipients of the grant.

The Chair welcomed further comments from the floor. Learning Disability Wales gave an update their work. In December Learning Disability Wales held its first ministerial advisory group meeting, chaired by Gwenda Thomas AM. The main focus was the Children’s Commissioner’s ‘Dont Hold Back’ report, investigating children and young people’s experience of transition across various policy areas. Martyn also informed members that Welsh Local Government Association (WLGA) has been consulting on a document around commissioning services and are looking to hold a national conference around it. Public Health Wales are working with LDW on a conference on reducing restrictive practice with the Education Minister. The Equality and Human Rights Committee are about to start a piece of work around access to courts to support disabled people to fully engage in the system.

Rhian added that Disability Wales are working with Women’s Aid to establish the accessibility of refuges. A survey has been produced and will be circulated. The results will be compiled soon and asked whether it would be an opportunity hold a joint meeting with the Party Group on Violence against Women and Children to share the findings.

Mark Isherwood AM welcomed a joint meeting with the Cross Party Group on Domestic Violence.

Date of the next meeting:

Zoe Richards will circulate the date of the next meeting, to be held in Cardiff.

Actions:

1. CPGD to produce a response to the Framework for Action on Disability consultation document and seek an extension to the deadline of the 31st January.

2. Zoe to share the link to Nathan Davies’ campaign video to members.

3. CPGD to write to Julie Morgan to summarise concerns and seek an update in relation to the issues identified following the Freedom of Information request.

4. Disability Wales to seek data from Disability Scotland to support the evidence around the positive impact of WILG on Scottish recipients.

5. Circulate an email requesting responses to the consultation.

6. Circulate Women’s Aid and Disability Wales’ survey

Open Letter to First Minister Mark Drakeford #SaveWILG

Dear Mark

This is an incredibly worrying time for all disabled people and their families across Wales.  There are only 63 days left before the Welsh Independent Living Grant is due to end, leaving individuals at the mercy of cash-strapped Local Authorities  who seem intent on cutting vital support packages across the board with no guarantee that further cuts will not follow.

The fact that this neo-liberal policy is still being forced through by a Welsh Labour Government is unbelievable: frankly, it makes it even worse. I always thought that I would be protected from the brutality shown by the Tories in Westminster, because I live in a land governed by a social, democratic party. Unfortunately, the Party that I know and love seem to have lost their way under the previous leadership, which is why I was overjoyed by your election victory to become our new First Minister.

I am confident that Welsh Labour is now travelling in the right direction towards a socialist future which you championed during the Leadership Hustings. In an interview with the BBC you also said the following about the future of the Welsh Independent Living Grant:

…”if an independent evaluation “shows the new system is not working as well as the old one then I would be prepared to reverse it because this is money intended for a very specific number of people for a very specific purpose”.

The deep-dive that was recently undertaken by the Welsh Government, to analyse the performance of Local Authorities relating to the WILG transition, is full of errors and quite frankly not worth the paper it is written on. How can an investigation into the circumstances surrounding the end of WILG be conclusive without having consulted disabled people who will be affected? My comrades dismantled the deep-dive results in our recent meeting with Deputy Health Minister, Julie Morgan AM.

The closure of the Welsh Independent Living Grant is such a destructive move to disabled people’s rights and I do not believe that a progressive Party such as ours should be going down such an avenue.

#SaveWILG campaigners have presented the Deputy Health Minister with an 80 page dossier of evidence against the closure of WILG. In addition, we have the backing of Welsh Labour members who overwhelmingly voted in favour of the Clwyd South motion to save WILG at Conference in April 2018. I believe you pledged to listen to the voices of members during the Hustings and they have certainly been vocal on this subject. We have also had support from Jeremy Corbyn, Shadow Chancellor John McDonnell, MP’s such as Chris Williamson, Ian Lucas and Chris Ruane. Film Director Ken Loach also supports our campaign.

Criticism of Welsh Government policy on Independent Living has also been made by the United Nations Convention on the Rights of People with Disabilities (UNCRPD):

However, various disability organisations in Wales had advocated setting up a national independent living scheme in Wales as aligning with a citizen directed system of support rather than the approach now adopted by the Welsh Government.

We recommend that the CRPD Committee asks:

Can the Welsh Government explain:

How it reached a decision to move all ILF recipients to normal social care provision from 31 March 2019, rather than setting up a national independent living scheme?

How it will ensure protection for article 19 rights of those formerly eligible for the Independent Living Fund after 31 March 2019?

I do not believe Welsh Labour should be having to defend themselves against the UN as I know your personal intentions are to ensure universal equality throughout Wales, but now is the time to take positive action and start listening to Welsh Labour members and disabled people and their families.

Personally, I have been treated abysmally by my Local Authority. I find myself in the position of having to teach my social worker about the Social Services and Well being Act. I am not being allowed to use my Direct Payments to meet my Personal Outcomes as described in the SSWBA and feel this vindicates my insistence on the need to maintain the tripartite system when deciding on and funding future care provision.

The reassessment process – which was originally due to end by September 30th 2018 and shows no sign of being completed soon – is really having a negative impact on my physical and mental health. When I first met with my social worker at the end of November 2018, she laughed when I suggested that I would need 24/7 support. She declared that no one in Wrexham gets such a thorough level of support [whether they require it or not?]. She said that even if we applied for such levels of care and support, that the panel would not accept such a request. This is a total departure from what the SSWBA promises. There is definitely no co-production going on and Local Authorities seem to be treating disabled people as a burden.

Without the overnight support I need to fully function in society, I have to stop drinking at 8pm at night, get ready for bed at 10pm and cannot wear my hand splints or use my leg supports during long and uncomfortable nights. I often find myself having to call on my 68-year-old father to assist me in the night, even though he lives a 10 minute drive away and has arthritis in both hands.

As Tanni Grey-Thompson said on Wales Live (23/01/19), it will cost the Welsh Government more in the long term to push ahead with this strategy of devolving funding to Local Authorities. It just makes no sense whatever way you look at it. Disabled people and their families never wanted such a situation to develop as was indicated in the original consultation that took place during 2015/16. I have been asking to see the consultation documents since October 2017, but I keep being directed towards a summary document. We all know that a summary can be manipulated and edited to suit the publishers. If the summary is accurate why can I not access original consultation responses?

It is often claimed by the Welsh Government that the original stakeholder group were united in agreement with the closure of WILG and the transferring of funds to local authorities.This is quite simply untrue. The members of the stakeholder group that I have spoken to have stated their frustrations with the whole process: “I disagreed with one side of the room almost continuously,“ and “I would be amazed to see minutes of a meeting where all participants agreed that passing this WILG over to the local authority beyond the ring-fenced period was the way forward.”  Others have said “I used to go home from all these stakeholder groups thinking we had agreed certain things to discover that was not what had been recorded.” and other activists argue that many officials and civil servants do not actually “know what Independent Living means – they still think ‘independent’ means managing without support”.

It would greatly assist me in understanding Welsh Government’s decision making process on this issue if the minutes of all of the meetings of the stakeholder advisory group can be provided, and I will submit a Freedom of Information Act request if necessary.

I could go on and on, but time is against me and I would merely be repeating much of what can be read in my attached dossier of evidence. At over 80 pages long, I believe it is a comprehensive guide as to why the Welsh Independent Living Grant should be maintained indefinitely. The dossier includes information of the success of the Independent Living Schemes set up in Scotland and Northern Ireland that shows the lack of imagination shown by the Welsh Government compared to our neighbours.

Please note that this letter is written with the deepest respect towards yourself and your cabinet members. I am a loyal Welsh Labour supporter and I have belief in the 21st Century socialism that you intend on developing. The problem is that we cannot wait any longer and the changes need to be made immediately. There is no sense in a proud socialist Government copying the exact same model rolled out by the Conservative Party in Westminster.  Moreover, if the original decision was wrong then your team needs to have the courage to simply reverse it.  Tinkering with the detail in a bid to spare the blushes of your predecessors is just not acceptable: in fact it’s morally dishonest.

I know that you are extremely busy with Brexit and other pressing concerns, but disabled people with high care and support needs across Wales are in need of your leadership now. I look forward to meeting you again in the near future and should you require any more information from the #SaveWILG campaign, please do not hesitate to contact me.

Wishing you strength and solidarity

In hope…

Nathan Lee Davies
#SaveWILG campaign

WALESPOSTCARDFRONT001

MINISTER URGED TO RESPOND TO DISABLED PEOPLE’S CONCERNS OVER SCRAPPING OF WELSH INDEPENDENT LIVING GRANT #SaveWILG

Below is a press release sent to me by Mark Isherwood AM who has been very supportive of the #SaveWILG campaign over the last three years. We would like to thank Mark for his continued support which will hopefully benefit all disabled people across  Wales.

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 Shadow Communities and Local Government Secretary, Mark Isherwood AM, has called on the Welsh Government to respond to concerns regarding the scrapping of the Welsh Independent Living Grant which were raised at a meeting in North Wales earlier this month.

The Welsh Government are transferring the Welsh Independent Living Grant to local authorities and many of the estimated 1,300 disabled people in Wales who received the Grant are reporting that their personal care packages have been greatly reduced.

 Mr Isherwood has previously described the move as “a betrayal of  the right of disabled people to live independently and make their own decisions”.

 In yesterday’s Business Statement, he called for an Oral Statement on the grant, stating that he had been asked by attendees of the packed meeting of the Assembly Cross Party Group on Disability, which took place in  Wrexham 12 days ago,  “to get answers, because time is running out”.

Speaking in the Chamber, Mr Isherwood, who is Chair of the Cross Party Group, said:  

 “We know that when the Independent Living Fund (ILF) was devolved by the UK Government in England to Local Authorities, and in Wales and Scotland and Northern Ireland to the respective Governments, that Scotland launched ILF Scotland to ensure recipients have choice and control. Northern Ireland chose to join the Scottish scheme, and disabled people and disabled groups in Wales said they wanted to join it too, but instead the Welsh Government gave the money to local authorities.

 “In May last year, we were told in a Written Statement by the Welsh Government that Local Authorities were reporting that most people were receiving similar support to that they’d had with their ILF payments, with no significant issues being raised, but we know, since, there has been extensive coverage of disabled people suffering because of the decisions made.

 “A particular point I was asked to raise at the meeting in Wrexham by a packed room of people, many of whom were disabled themselves, was to emphasise this is about the difference between staying in bed or getting out of bed, about having dinner or not having dinner, about having control or being controlled. They said, ‘They just don’t understand the importance of one word to disabled people – independence – and the impact on mental health and well-being, and the ability to interact with society’.

 “That’s lived experience, articulated again by Nathan Lee Davies at the meeting in North Wales, who has led the (Save the) Welsh Independent Living Grant Campaign on behalf of recipients of the grant – including himself, but also very many others.

 “As we approach the final point on this, when nobody will be left in receipt of Independent Living Grant, will you as a Government, for once, in this case, deliver an oral statement and answer the questions that disabled people across Wales who were in receipt of the ILF are increasingly asking?”

 Replying, the Minister for Finance, Rebecca Evans, said the First Minister has asked the Deputy Minister for Health and Social Services to review the progress that there’s been to date in terms of moving across to the new system of receiving care and support, to decide what further action might be necessary to ensure that there is a fair outcome for everybody concerned.

 She added: “You’ll be aware, of course, of the Deep-Dive Review, which took place to ensure that where there were changes to people’s support it was appropriate and not compromising, in any way, that person’s ability to live independently. I understand that work has been completed, and the review will be shared with the Petitions Committee, and I know that there’ll be opportunities to question the Deputy Minister for Health and Social Services on her approach in due course.”

 ENDS