WILG

Must-See TV #SaveWILG

Dear Petitioner 

Your petition will be considered at our next meeting on Tuesday 3 October; starting at 9.15am.

I enclose a link to the Agenda and Public Papers for your consideration:

http://www.senedd.assembly.wales/ieListDocuments.aspx?CId=430&MId=4365&Ver=4

A live broadcast of the meeting will be available on Senedd TV at:

http://www.senedd.tv/

Kind regards,

Petitions Committee

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Letter from Minister for Social Services and Public Health to the Chair of the Petitions Committee

David J Rowlands AM

Chair

Petitions Committee National Assembly for Wales

SeneddPetitions@assembly.wales

21 August 2017

Dear David,

Thank you for your letter seeking my views on a petition submitted to the Petitions Committee by Nathan Lee Davies in relation to the closure of the Welsh Independent Living Grant.

As Mr Davies outlines in his petition, the Welsh Government put in place in 2015 the Welsh Independent Living Grant (WILG) with local authorities to enable them to maintain payments to recipients in Wales of the Independent Living Fund (ILF). This was following the closure at that time of the ILF by the UK Government. We introduced this grant to ensure continuity of support in the short-term for recipients. This was to help them meet the additional costs of living independently in the community in a similar manner to the financial support they received from the ILF. This arrangement was to provide time for us to consider the most appropriate way to provide support to recipients in the longer-term, so as continue their ability to live independently.

As Mr Davies indicates, to assist with our consideration of what that longer-term support should be a stakeholder advisory group had been established. This had representation from the organisations which represent and act for disabled people in Wales (such as Disability Wales and the Dewis Centre for Independent Living), representation from local authorities and some recipients themselves. The majority of the representatives on the advisory group were, as Mr Davies says, from the third sector or had themselves received payments from the ILF. This was because we wanted advice from those who fully appreciated the outcomes disabled people seek and what they required from the arrangements we were to put in place to support their independent living.

The advisory group considered a number of potential options to provide support in future to those who used to receive payments from the ILF. These ranged from perpetuating the WILG indefinitely, or for a set period of time, to establishing similar arrangements in Wales to that of the ILF outside of local authorities’ provision, to having support provided in future through local authorities’ social care. The advisory group considered the advantages and disadvantages of each option in terms of its effectiveness to support former recipients and its fit with supporting the larger group of disabled people in Wales who had been excluded by the UK Government from receiving support from the ILF (as it had in 2010 closed the ILF to new entrants).

I am not sure why Mr Davies thinks the advisory group wished to keep the WILG. On the contrary, overall it accepted that the arrangements we had put in place through the WILG could only ever be temporary while a longer-term solution was found. After considering the potential options in the light of the issues I set out above, the advisory group on balance favoured the option of future support being provided by local authorities as part of their social care provision. None of the members of the advisory group opposed this recommendation.

The advisory group favoured this option as it matched the future support former recipients would receive with that being provided generally to disabled and older people in Wales. This is through our new person-centred ethos for social care being delivered through the Social Services and Well-being (Wales) Act 2014. The Act came into effect from April last year and changes the way people’s needs are assessed and the way support is delivered. People now have more of a say in the well-being outcomes they wish to achieve and the care and support they require to deliver those outcomes. This is similar to the ethos behind the original establishment of the ILF. The Act also contains stronger powers to keep people safe from abuse and neglect.

The advisory group also saw this option as the way forward as it removed the inequitable two-tier approach which currently exists to supporting disabled people in Wales, with some receiving only support from their local authority, while others can receive this as well as dedicated payments from the WILG.

It is also important to note that prior to the advisory group’s considerations we undertook a public consultation on a number of possible options to provide support in future. While it is true that the majority of those who responded favoured arrangements in Wales similar to those of the ILF, this was not the option favoured by all recipients who responded. Indeed the vast majority of recipients did not respond to the consultation at all. Nevertheless, my officials did contact those in the Scottish Government to establish the basis of the dedicated support arrangements for former ILF recipients in Scotland and the possibility of those arrangements being extended to Wales.

While ILF Scotland could administer and make payments on behalf of the Welsh Government, it became clear it would not be in a position to do this for a considerable period of time. In addition, it required significant set-up and operating funding to administer our payments, totalling in the first year of operation well over £1 million with annual operating funding in excess of £0.750 million. Such funding would have needed to be top-sliced from the overall funding available to support former recipients in Wales, thereby substantially reducing the funding available for their support itself. On this basis we did not believe that these arrangements would be acceptable given the reduction in support to which it would lead, or that they provided good value for money. Overall the advisory group shared this view and was keen that already limited funds were not used disproportionately on establishing and maintaining separate arrangements to provide support.

Consequently, I accepted the stakeholder advisory group’s advice to have support to former ILF recipients in Wales provided in future by local authorities as part of their social care provision. To put this into place the advisory group also recommended that there should be a two year transitional period, whereby in the first year authorities establish all recipients’ desired well-being outcomes and agree with them the support they require to achieve these. In the second year recipients would transfer over to receiving all of their support from their local authority, with their payments under the WILG ceasing at the point at which this occurred. I also accepted this recommendation in full, with as a result the transitional period commencing from 1 April this year and due to conclude on 31 March 2019.

Clearly those who wished to see a different option chosen will be disappointed with the decision taken. However, that decision did not ignore the advice of the representatives of disabled people in Wales on the stakeholder advisory group but was fully in accordance with it.

Yours sincerely,

Rebecca Evans AC/AM

Gweinidog Iechyd y Cyhoedd a Gwasanaethau Cymdeithasol

Minister for Social Services and Public Health

 

Disabled activist ‘is fighting for his life’ as he hands petition to Welsh government

THIS ARTICLE ORIGINALLY APPEARED ON THE DISABILITY NEWS SERVICE WEBSITE AND WAS WRITTEN BY JOHN PRING.

A disabled activist has handed in a petition of hundreds of signatures that calls on the Welsh government to reverse its decision to close its version of the Independent Living Fund (ILF).

Nathan Lee Davies (pictured) says he is fighting the decision to scrap the Welsh Independent Living Grant (WILG) because he is terrified of the prospect of his cash-strapped local authority taking over full responsibility for providing his care package.

He has been told that without WILG his own care package would be reduced from 86.5 hours to just 31 hours a week.

He says that such a cut would put an end to all his current community activities, including his involvement with Wrexham Glyndwr University, Wrexham football club, Disabled People Against Cuts, FDF Centre for Independent Living, and the Care and Social Services Inspectorate Wales.

He is also writing two books, and a blog, and is working with Disability Arts Cymru to create a performance and exhibition of his poetry.

He told Disability News Service (DNS): “I cannot cope with such a limited number of hours per week. This is why I am fighting with every fibre of my being.

“It really is a case of life or death. I have no interests in merely existing. I want to live.

“Without help and support I would be unable to do any of this work that involves me in the community.”

The Labour-run Welsh government announced last November that, after a two-year transition period, it would transfer all of the £27 million-a-year provided by the UK government to support former ILF-users in Wales directly to councils.

There will be no new Welsh ILF – even though such a scheme has been set up in Scotland – and no continuation of the interim WILG scheme the Welsh government has been running as a stopgap to “ensure continuity of payments to recipients” since the Department for Work and Pensions closed ILF in June 2015.

Funding for WILG will now transfer to local authorities during 2018-19, with all former ILF-recipients in Wales having their support needs met solely by their local authority by 31 March 2019.

Since the Welsh government’s announcement, Davies has been campaigning to persuade it to reverse the decision, including setting up the petition – which has now been signed by more than 500 people online and in person – and collecting photographs of supporters holding one of his campaign postcards.

He said: “The current system allows users the security of depending on receiving their funding from three different ‘pots’ – WILG, local authorities and our own personal contribution.

“This gives us a sense of security and ensures that we cannot be dictated to as mere passive recipients.

“Instead, all parties have to be in agreement about what will benefit the individual the most.

“This is something worth fighting for.”

But instead of this three-tier system, he said, the Welsh government had now “sold disabled people down the river.

“They are washing their hands of all responsibility for social care to former ILF recipients and transferring the pressure onto local authorities.”

A Welsh government spokeswoman told DNS in a statement: “Organisations that represent disabled people who have been recipients of the Independent Living Fund, recommended that their future support would be best provided through local authority social care provision, with consistent arrangements in place to support disabled people in Wales.”

But Disability Wales, which was part of the stakeholder advisory group the Welsh government consulted, has made it clear to DNS that it did not support passing funding to local authorities.

The Welsh government added: “We would be surprised if Disability Wales were suggesting that certain disabled people in Wales should have their support needs met in a different way to other disabled people.”

Davies said he believed the Welsh government had listened only to the local authorities on the advisory group.

He has been supported by the north-east branch of the Labour left-wing grassroots campaign Momentum and the Unite union in Wales.

But he said he was disappointed that Disability Wales – the national association of disabled people’s organisations in Wales – had not supported his campaign.

Miranda Evans, policy and programmes manager for Disability Wales (DW), said they were not able to support the petition – which is critical of the Labour party in Wales – because it was too party political.

But she stressed that DW’s preferred option was for a new Welsh independent living scheme – a Welsh version of ILF – that would protect those currently receiving WILG funding and would also be open to new members.

DNS has seen DW’s response to an early consultation on the Welsh government’s plans, and it makes it clear that none of DW’s members or the other disabled people it had consulted about the future of WILG were in favour of handing the funding directly to local authorities, and had instead “expressed strong opposition” to this.

It also stressed that such an option was “totally unacceptable to existing ILF recipients, their carers and other disabled people”.

Trip to the Senedd

Earlier this week, I travelled to Cardiff to handover my #SaveWILG petition to the petitions committee at the Senedd. It was a productive day in which I garnered many new contacts across the political spectrum and I received much support that gives me the energy I need to continue this fight now that I am actually getting somewhere.

 

 

The petition will now be considered at the next meeting of the petitions committee on October 3rd. As I understand it, Ministers will be asked for their opinions and views on the subject and I then have the right to reply. It is great to be involved in this democratic process and I am very proud of the work that my comrades and I are doing towards our aim for a equal and inclusive society for all.

Please excuse me for cutting this blog short, but I have much to do and very little time in which to do it. When your week is only 86.5 hours long, there really isn’t enough hours in the day…

Help needed on Twitter #SaveWILG

I am requesting help on Twitter to get the message across to Assembly Members across Wales that there is still time to reverse the awful decision to close WILG and transfer all responsibilities for Independent Living to local authorities.

A list of AM Twitter handles can be found below along with a suggested Tweet and electronic postcards and memes that can be attached to Tweets for greater impact. Even if you only manage to Tweet a handful of AMs, this could make a real difference to disabled people across Wales.

Thanks for your support.

***

SUGGESTED TWEETS:

Disabled ppl with high care and support needs are in search of your support to maintain Independent Living for all. #SaveWILG

On Wednesday, @nathanleedavies will be in Cardiff to handover the petition to #SaveWILG https://www.assembly.wales/en/gethome/e-petitions/Pages/petitiondetail.aspx?PetitionID=1216

These Tweets should be accompanied by some of the many postcard photographs, electronic postcards and memes.

***

David Melding @DavidMeldingAM

Lynne Neagle @lynne_neagle

Gareth Bennett AC/AM @GarethBennettAM

David Rowlands AC/AMVerified account @DavidRowlandsAM

Hefin David AC/AM @hef4caerphilly

Caroline Jones AC/AM @carolineUKIP

Dr Dai Lloyd AC/AM @DaiLloydAM

Carl Sargeant AM @Carl4AandD Michelle Brown AM @MishBrownAM

Carwyn Jones AM/ACVerified account @AMCarwyn

Joyce Watson AM @JoyceWatsonam

Nathan GillVerified account @NathanGillMEP

Neil Hamilton AC/AMVerified account @NeilUKIP

John Griffiths AM @JGriffithsLab

Vikki Howells AM @VikkiHowells

Ann Jones AM @ann_jonesam

David Rees @DavidReesAM

Neil McEvoy AM @neiljmcevoy

Ken Skates AMVerified account @KenSkatesAM

Dafydd Elis-Thomas @ElisThomasD

MickAntoniw AM @MickAntoniw1

Jayne Bryant AM @JBryantWales

Mike Hedges @MikeHedgesAM

Julie James AMVerified account @JulieJamesAM

Rebecca Evans AMVerified account @RebeccaEvansAM

Eluned Morgan @Eluned_Morgan

JaneHutt AMVerified account @JaneHutt

Rhianon Passmore @rhi4islwyn

Elin Jones @ElinCeredigion

Vaughan Gething AMVerified account @vaughangething

Mark Drakeford AMVerified account @MarkDrakeford

Mark Isherwood AMVerified account @MarkIsherwoodAM

Angela Burns @AngelaBurnsAM

Mohammad Asghar AMVerified account @MohammadAsghar

Lesley GriffithsVerified account @lesley4wrexham

Nick RamsayVerified account @NickRamsayAM

Andrew RT DaviesVerified account @AndrewRTDavies

Simon ThomasVerified account @SimonThomasAC

Huw Irranca-DaviesAMVerified account @huw4ogmore

Russell George AMVerified account @russ_george

Rhun ap IorwerthVerified account @RhunapIorwerth

Julie MorganVerified account @JulieMorganLAB

Sian Gwenllian AC/AM @siangwenfelin

Janet Finch-SaundersVerified account @JFinchSaunders

Lee Waters AMVerified account @Amanwy

Alun DaviesVerified account @AlunDaviesAM

Jeremy Miles AC/AMVerified account @Jeremy_Miles

Jenny Rathbone AMVerified account @JennyRathbone

Mark Reckless AMVerified account @MarkReckless

Dawn Bowden AM @Dawn_Bowden

Llyr Gruffydd AC/AM @LlyrGruffydd

suzy daviesVerified account @suzydaviesam

Darren Millar AMVerified account @DarrenMillarAM

Steffan LewisVerified account @steffanlewis

Adam PriceVerified account @Adamprice

Hannah Blythyn AM @hannahblythyn

Kirsty WilliamsVerified account @Kirsty_Williams

LeanneWoodVerified account @LeanneWood

Bethan Maeve AM/ACVerified account @bethanjenkins

 

 

Twitter Handles

Below is a list of the Twitter Handles for all 60 members of the Welsh Assembly. I am urging all Twitter users to use these addresses to contact all AMs to let them know the strength of feeling against the decision to close WILG.

It would be good to send photographs with the WILG postcard, links to the  successful online petition, links to the various media articles that can be found on the #SaveWILG campaign page, memes – also found on the #SaveWILG page – or a personal tweet about the unfairness of this hugely unpopular decision.

We can make a difference. Happy Tweeting 🙂

 

David Melding @DavidMeldingAM

Lynne Neagle @lynne_neagle

Gareth Bennett AC/AM @GarethBennettAM

David Rowlands AC/AMVerified account @DavidRowlandsAM

Hefin David AC/AM @hef4caerphilly

Caroline Jones AC/AM @carolineUKIP

Dr Dai Lloyd AC/AM @DaiLloydAM

Carl Sargeant AM @Carl4AandD Michelle Brown AM @MishBrownAM

Carwyn Jones AM/ACVerified account @AMCarwyn

Joyce Watson AM @JoyceWatsonam

Nathan GillVerified account @NathanGillMEP

Neil Hamilton AC/AMVerified account @NeilUKIP

John Griffiths AM @JGriffithsLab

Vikki Howells AM @VikkiHowells

Ann Jones AM @ann_jonesam

David Rees @DavidReesAM

Neil McEvoy AM @neiljmcevoy

Ken Skates AMVerified account @KenSkatesAM

Dafydd Elis-Thomas @ElisThomasD

MickAntoniw AM @MickAntoniw1

Jayne Bryant AM @JBryantWales

Mike Hedges @MikeHedgesAM

Julie James AMVerified account @JulieJamesAM

Rebecca Evans AMVerified account @RebeccaEvansAM

Eluned Morgan @Eluned_Morgan

JaneHutt AMVerified account @JaneHutt

Rhianon Passmore @rhi4islwyn

Elin Jones @ElinCeredigion

Vaughan Gething AMVerified account @vaughangething

Mark Drakeford AMVerified account @MarkDrakeford

Mark Isherwood AMVerified account @MarkIsherwoodAM

Angela Burns @AngelaBurnsAM

Mohammad Asghar AMVerified account @MohammadAsghar

Lesley GriffithsVerified account @lesley4wrexham

Nick RamsayVerified account @NickRamsayAM

Andrew RT DaviesVerified account @AndrewRTDavies

Simon ThomasVerified account @SimonThomasAC

Huw Irranca-DaviesAMVerified account @huw4ogmore

Russell George AMVerified account @russ_george

Rhun ap IorwerthVerified account @RhunapIorwerth

Julie MorganVerified account @JulieMorganLAB

Sian Gwenllian AC/AM @siangwenfelin

Janet Finch-SaundersVerified account @JFinchSaunders

Lee Waters AMVerified account @Amanwy

Alun DaviesVerified account @AlunDaviesAM

Jeremy Miles AC/AMVerified account @Jeremy_Miles

Jenny Rathbone AMVerified account @JennyRathbone

Mark Reckless AMVerified account @MarkReckless

Dawn Bowden AM @Dawn_Bowden

Llyr Gruffydd AC/AM @LlyrGruffydd

suzy daviesVerified account @suzydaviesam

Darren Millar AMVerified account @DarrenMillarAM

Steffan LewisVerified account @steffanlewis

Adam PriceVerified account @Adamprice

Hannah Blythyn AM @hannahblythyn

Kirsty WilliamsVerified account @Kirsty_Williams

LeanneWoodVerified account @LeanneWood

Bethan Maeve AM/ACVerified account @bethanjenkins

 

Letter from Rebecca Evans AM

Yesterday I received an email from Ian Lucas MP who shared the response to his letter to Rebecca Evans AM about my WILG campaign.  His letter can be read here.  The response he received can be read below and it is most disappointing.

Instead of being disheartened by this response, it has given me and my comrades extra impetus for the fight ahead.  There are so many points that Evans has made here that are just quite simply unfair and discriminatory.  It is time to ramp up the pressure on Evans and her cronies in Cardiff.  We can not stand by and let this happen in 21st century Britain.

I am overwhelmed with the support I am getting from the north Wales public and this is really appreciated as it gives me the strength to carry on with the fight for all WILG recipients – the majority of who I are not even aware that this fight is going on.

I could write pages in response to this letter, but I do not have the time at the moment.  My time is better spent on the struggle to achieve liberty and justice for the disabled community.

Here is the letter from Rebecca Evans AM:

25 August 2017

Dear Ian,

Thank you for your letter on behalf of your constituent, Nathan Lee Davies regarding the decision to provide support in future to former recipients of the Independent Living Fund (ILF) through local authorities’ social care.

Following the closure of the ILF in 2015 by the UK Government, we put in place interim arrangements with local authorities to ensure continuity of support for former recipients in Wales through our Welsh Independent Living Grant (WILG). This has worked well and I understand Mr Davies has been receiving payments from Wrexham County Borough Council under this to continue to help him meet the costs of living independently.

These arrangements were put in place while we considered how support in the longer term should be provided. To assist with that consideration a stakeholder advisory group was established. This had representation from the organisations which represent and act for disabled people in Wales (such as Disability Wales and the Dewis Centre for Independent Living), representation from local authorities and some recipients themselves.

The advisory group considered a number of potential options to provide future support. These ranged from perpetuating the WILG indefinitely or for a set period of time, to establishing similar arrangements in Wales to that of the ILF outside of local authorities’ provision. The advisory group considered the advantages and disadvantages of each option in terms of its effectiveness to support former recipients and its fit with supporting the larger group of disabled people in Wales who had been excluded by the UK Government from receiving support from the ILF following its closure to new entrants in 2010.

In light of these issues the advisory group on balance favoured the option of future support being provided by local authorities as part of their social care provision. It did so because this option matched the future support former recipients would receive with that being provided generally to disabled and older people in Wales. This is in keeping with our person-centred ethos for social care being delivered through the Social Services and Well-being (Wales) Act 2014. This is similar to the ethos behind the original establishment of the ILF.

The advisory group also saw this option as the way forward as it removed the inequitable two-tier approach which currently exists to supporting disabled people in Wales, with some receiving only support from their local authority while others can receive this as well as dedicated payments from the WILG.

I accepted the stakeholder advisory group’s advice in full. I appreciate that Mr Davies and others who wished to see a different option chosen will be disappointed with the decision taken and will be apprehensive about the future. However, to ensure a smooth transition in recipients’ support, all local authorities were issued with detailed guidance. This covered how authorities were to prepare and undertake the care assessments necessary to identify what recipients need to continue to live independently. It also covered the resultant agreement of the future care package a person required and provided clear advice that a person’s payments under the WILG should not cease until that care package was in place.

As part of our monitoring of local authorities’ preparations for this transition, all authorities have recently confirmed that they have plans in place to implement this change, with the majority having commenced their care assessments. In a small number of cases recipients have already had these, agreed a future care package and have transferred to receiving their support from their local authority. Most authorities are, therefore, confident of completing the care assessments they need to undertake in 2017-18.

In the case of Wrexham I understand it has a plan in place to implement this change and that care assessments have begun. I am aware, however, that completion of this to time is dependent on the authority creating additional social worker capacity. I understand the authority has secured funding but has yet to fill vacancies. In view of this, officials are maintaining a watching brief on the situation.

In view of Mr Davies’ and your concerns I am happy to meet with both of you, and one or two other recipients, to discuss the implementation of this change further, although I do not intend to revisit the decision for the reasons outlined above. Would you please arrange for your office to contact my Diary Secretary, to agree a mutually convenient date for this. His contact details are:

Tel No. 03000 259461

E-mail: DS.MinSSandPH@gov.wales

Rebecca Evans AC/AM

Gweinidog Iechyd y Cyhoedd a Gwasanaethau Cymdeithasol

Minister for Social Services and Public Health