Welsh Labour

A Day of Mixed Emotions

Gained a First Minister, but lost a hero. Congratulations Mark. RIP Pete.

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The following Blog is taken from Skwawkbox. To view the original article, please click here. 

Left-wing candidate Mark Drakeford has just been elected as leader of the Welsh Labour Party – and therefore as First Minister – with a 53.9% share of the vote.

Wales at last has a leader from the left – and the UK-wide party benefits as well, a Drakeford will be eligible either to sit on the National Executive Committee in place of Carwyn Jones, or to appoint a trusted representative.

As the SKWAWKBOX showed in an exclusive two-part interview, Drakeford is a long-standing supporter of party leader Jeremy Corbyn.

The SKWAWKBOX congratulates him on a resounding victory – and Welsh Labour left on an excellent result.

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The following article originally appeared on the BBC online. To view the original article, please click here.

Buzzcocks lead singer Pete Shelley has died at 63 of a suspected heart attack.

The punk band are best known for their hit, Ever Fallen in Love (With Someone You Shouldn’t’ve).

Their management told the BBC that Shelley died on Thursday in Estonia where he was living.

BBC music correspondent Lizo Mzimba said Buzzcocks, who formed in Bolton in the 1970s, were regarded as more polished, but musically no less influential, than the Sex Pistols.

The band have tweeted saying Shelley was “one of the UK’s most influential and prolific songwriters and co-founder of the seminal original punk band Buzzcocks”.

His music inspired generations of musicians over a five-decade career with his band and as a solo artist, they said.

The Charlatans’ singer Tim Burgess said Shelley’s “perfect three-minute pop songs” were “the soundtrack to being a teenager”.

Music critic Stephen Thomas Erlewine said Buzzcocks were one of the most influential bands to emerge in the initial wave of punk rock, with echoes of their music in everyone from Hüsker Dü to Nirvana.

“The Buzzcocks were inspired by the Sex Pistols’ energy, yet they didn’t copy the Pistols’ angry political stance,” he wrote in AllMusic.

“Instead, they brought that intense, brilliant energy to the three-minute pop song. Shelley’s alternately funny and anguished lyrics about adolescence and love were some of the best and smartest of his era.”

 

Vital Twitter Thread #SaveWILG

This morning I published a vitally important Tweet thread that I hope will capture the attention of those with the power to provide security to the 1,300 disabled people with high support needs throughout Wales who receive the Welsh Independent Living Grant.

I publish memes and photographs alongside these Tweets. If you want to follow me on Twitter and perhaps Retweet my epic thread, my handle is @nathanleedavies

I am currently extremely busy as we head into a crucial month for the #SaveWILG campaign.

The fight continues…

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The following Tweet thread is VERY IMPORTANT. I trust that ALL Assembly Members and those in the Media with the power to spread awareness of the struggles of disabled people with high support needs will READ THIS in full and take the appropriate action to help us

There can be no denying that the WILG transition process is highlighting some major problems in the social care system throughout Wales. Local authorities cannot be trusted to provide adequate support for disabled people on their own.

The evidence is overwhelming as displayed in the Freedom of Information requests gathered from all 22 LAs, first-hand stories from WILG recipients and clear evidence that the same system is failing people in England.

 The amount of support for #SaveWILG has been incredible. Jeremy Corbyn, John McDonnell, MPs, AMs and celebrities such as Ken Loach have all backed our campaign while Welsh Labour members passed a motion at conference to protect the grant.

 A similar motion was also passed by Disability Labour, our friends in Scotland and Northern Ireland also show that there is clearly another way of doing things to protect those with high support needs.

I haven’t even mentioned the UN report which found ‘grave and systematic violations of disabled ppls human rights’, saying it was a ‘human catastrophe’. This was partly based on concerns at the closure of the ILF. @WelshLabour are moving in the same direction. https://www.independent.co.uk/news/uk/politics/government-spending-cuts-human-catastrophe-un-committee-rights-persons-with-disabilities-disabled-a7911556.html …

 I am receiving emails on a daily basis from WILG recipients across Wales telling me about the difficulties they are facing with the transition process. These people are too afraid to speak out due to the fear of reprisals.

 Other recipients are also in the process of taking their LA’s to court and cannot speak out for fear of compromising their case. WILG will not or cannot raise their voice at all – for many reasons such as cognitive impairment, exhaustion or fear of further cuts to their hours.

 The absurd two-tier argument that Welsh Labour are using is absolutely ridiculous. It is to all intents and purposes an equalisation downward, however subtle and however long it takes to materialise. 

The ‘two-tier’ system is entirely the choice of WAG. Not us or recipients. Again, using this as a reason to stop providing what is needed as a basic starting point, is not a reason!!!

The effect being that money (saving) is at the root of this and the standard of life/living for recipients is not likely to be maintained in a way that allows them to have a really fulsome, fulfilled and rewarding life, rather than merely existing….

 I have spent all day writing this thread of Tweets and have sacrificed three years of my life to this campaign for common justice. I will not stop fighting for the rights of disabled people but it is a disgrace that I have to in 21st Century Wales. 

WALESPOSTCARDFRONT001

 

QUESTIONS OVER GETHING CAMPAIGN AS ‘RESEARCH COMPANY’ GATHERING WELSH MEMBER DATA

The following article appears on the excellent Skwawkbox blog.

Questions have been raised about the campaign of Welsh Labour leadership candidate Vaughan Gething after the activities of a ‘research company’ came to light.

The company has been calling Welsh Labour members and identifying itself as Vaughan Gethin’s ‘team’ and would not identify itself, but when challenged has admitted it is an ‘independent company’ ‘gathering research’ for him.

When asked where the call is coming from, one caller told a member he was in the north-east, but the call showed a Cardiff ‘029’ prefix.

The company is asking members whether they have voted, intend to vote or have decided which candidate they will vote for – and is then asking members for their email addresses, claiming – if challenged – that it needs an address to ‘cross-match’ with Labour’s records and to keep in touch but will be passing the data, along with its ‘research’, to Gething and not retaining it.

The SKWAWKBOX contacted Vaughan Gething early yesterday to ask:

You have apparently employed a company to call Welsh Labour members about their voting intentions in the leadership ballot. The company has been telling members that it’s calling from the north-east, even though calling from a Cardiff number and has been asking members for their email addresses, claiming that this is for ‘cross-matching’, and has said such data will not be retained by the company but passed onto you.

Please provide the following by return:

– which company is involved?
– why are they asking for members’ email addresses when the Labour Party will already have them?
– why do you intend to retain the data?
– who is funding the company’s activities on your behalf and what is the cost?
– how confident are you that their activities will not spill over into paid canvassing?

The spending limit in the Welsh leadership contest is £1 per member – a little over £24,000 in total, including donations in kind and any type of resource:

welsh spend limit

The Tories were at the centre of controversy when they used a Welsh-based company for ‘research’, which the Information Commissioner ruled had in fact been paid marketing or canvassing.

Gething has also set up a company to retain data gathered during the campaign:

gething data.png

One Welsh Labour member who had been contacted told the SKWAWKBOX:

I already had concerns about the campaign and the candidate. Vaughan’s campaign manager is a Progress supporter, he’s supported by Owen Smith and has accepted campaign contributions from a company convicted for illegal dumping, which his register of interests confirms. But it’s extremely worrying that he’s now paying a company that won’t identify itself to gather data he intends to keep even after the election.

There are serious questions to answer but will he answer them? How is this allowed and who is paying?

Vaughan Gething had not responded to the SKWAWKBOX’s request for comment by the time of publication.

The following article appears on the excellent Skwawkbox blog.

Get Involved: Send an Email to Leadership Candidates #SaveWILG

I am asking all my loyal readers and comrades to spare 3 minutes of their time and send the following postcard picture and message to the 3 Welsh Labour leadership candidates, plus other important figures who will be able to influence Welsh Government thinking with regard to the Welsh Independent Living Grant.

The email can be copied and pasted from below. It should include an inline image of the postcard to maximise impact. The end of WILG is imminent and we MUST keep up the pressure and show those in power that we are not going anywhere. We will continue to protest and defend the rights of disabled people with high care and support needs across Wales.

Help us do this by sending the email below. Thanks, as ever, for your support.

***

SUBJECT: Save the Welsh Independent Living Grant (#SaveWILG) 
 
Message to Mark Drakeford AM, Eluned Morgan AM, Vaughan Gething AM (Delete as appropriate
 
This is a crucial time for the future of Social Care in Wales. The SSWBA is an excellent piece of legislation, but it will take many years to come to fruition. 
 
In the meantime, WILG recipients will be at the mercy of local authorities who are unprepared for this Act and are already threatening substantial cuts in the care and support services that recipients need to function as a part of their local communities.
 
We are calling on the Welsh Government to reconsider the decision to end WILG as of April 2019 and fully explore the alternative options while listening to recipients and party members who voted overwhelmingly for a motion to save WILG  at the Welsh Labour conference in April 2018.
 
Our campaign to save WILG  has won cross party support, two motions have been passed, a number of MP’s and AM’s have lent their support including Jeremy Corbyn and John McDonnell. We have also had the backing of Unions and celebrities such as Ken Loach who all agree that the Freedom of Information work that we have done provides glaring evidence that disabled people with high care and support needs require and are entitled to third party support from an independent body.

The 3 candidates can be emailed at the following addresses:

Mark Drakeford AM: Mark.Drakeford@assembly.wales

Eluned Morgan AM: Eluned.Morgan@assembly.wales

Vaughan Gething AM: Vaughan.Gething@gov.wales

While you are at it the same message could also be sent to the Minister for Older People, Children and Social Care Huw Irranca-Davies who is currently responsible for WILG. He can be contacted at Huw.Irranca-Davies@assembly.wales

It is also important that we continue to put pressure on the Petitions Committee who need to realise that NOW is the time to write a report on WILG to help preserve disabled peoples rights in Wales and force the Welsh Government to take the necessary steps and #SaveWILG.

David Rowlands: DavidJ.Rowlands@assembly.wales

Janet Finch Saunders: Janet.Finch-Saunders@Assembly.Wales

Mike Hedges: Mike.Hedges@assembly.wales

Rhun Ap Iopwerth: rhun.apiorwerth@assembly.wales

Neil McEvoy: Neil.McEvoy@assembly.wales

Any help and support you can give would be much appreciated. Together we can make a difference…

Welsh government’s ‘ludicrous’ failure on independent living framework

The following article was taken from the excellent Disability News Service website, written by John Pring.  This blogger takes no credit for the article below:

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The Welsh government has been criticised for a “ludicrous” and “insulting” failure to address the adult social care funding crisis in a new draft framework on independent living.

Action on Disability, its new draft framework and action plan, was put out to consultation this week, and aims to “develop and improve access to help, advice and services for disabled people in Wales”.

The plan will eventually replace the Welsh government’s 2013 framework for action on independent living and follows a series of meetings and engagement events with disabled people, disability organisations and other stakeholders.

The report says that this public engagement process saw concerns raised about “cuts to social care provision” which had led to “lower allocations” of direct payments, leaving disabled people “increasingly isolated, and the impacts to their wellbeing compromised”.

But despite these concerns, the action plan refers only to previous strategies on services for visually-impaired people, Deaf and autistic people and those with learning difficulties, and fails to include any measures to address the cuts to support and the social care funding crisis.

This contrasts with its 2013 framework, which included lengthy sections on access to social care, direct payments and personalised support.

Of 44 actions supposedly aimed at improving the right to independent living in the new action plan, not one of them explicitly addresses the need to improve the overall access to care and support, although it does promise a review of the aids and adaptations system that supports disabled and older people to live independently in their own homes.

Instead, the action plan covers areas including disability employment, higher education – including a planned review of policy on disabled students’ allowance – public appointments, and access to public transport.

There is also no mention of social care in the section describing the Welsh government’s “commitments” on independent living, even though it promises to “work for continuous improvement” on how it fulfils its obligations under the UN Convention on the Rights of Persons with Disabilities (UNCRPD).

The failure of the action plan to suggest any measures to address the funding crisis and cuts to support suggests the Welsh government is in breach of the convention’s article 19, which says that governments signed up to UNCRPD should take “effective and appropriate measures” to enable disabled people to live in the community with “full inclusion and participation”.

There is also no mention in the document of the Independent Living Fund (ILF), and the Welsh government’s decision to close its interim Welsh Independent Living Grant (WILG) scheme, which it has been running as a stopgap with UK government transition funding since ILF closed in June 2015.

Because of the WILG closure, Welsh local authorities will be solely responsible for meeting the support needs of all former ILF-recipients by 31 March 2019.

Nathan Lee Davies (pictured), who is leading the campaign to persuade the Welsh government to overturn its decision to scrap WILG, said the failure to address social care in the action plan was “ludicrous” and “insulting”.

He said: “They seem like a load of ostriches burying their heads in the sand. It’s just really worrying.

“I am disillusioned but far from surprised. It just seems like they are copying what the Tories have done in Westminster, with the same devaluing of disabled people.”

He suggested that the Welsh Labour government had simply published a “flimsy” framework document in order to “placate the UN, and to be able to say, ‘look, we are doing something to support disabled people’”.

He said that ministers – by closing the WILG – were “washing their hands” of responsibility for social care and handing it to local councils, which could not afford to meet their responsibilities promised under the Social Services and Well-being (Wales) Act 2014, which Davies said should be renamed the Pie in the Sky Act.

Responding to criticisms of the document, a Welsh government official said: “Our ‘Action on Disability: the Right to Independent Living’ framework is a high-level plan covering a wide range of issues in line with our national strategy, Prosperity for All.

“A number of the actions in this draft action plan relate to social care; nevertheless we are open to suggestions on how the plan could be strengthened.

“We encourage everyone to contribute to the consultation – which we launched this week – to influence our future work to support disabled people as best we can.”

Davies has contrasted the actions of the Welsh Labour government with those of the UK Labour party, whose leader, Jeremy Corbyn, has publicly supported his campaign to save the WILG, as did members of Welsh Labour at their annual conference earlier this year.

Davies is determined to persuade the Welsh government to keep the current system, which allows former ILF-recipients some security by receiving funding from three different “pots”: WILG, local authorities and their own personal contributions.

He said that this “tripartite” system had provided the support he needed that led to him being recognised with an honorary degree by Wrexham Glyndwr University for his services to disability rights.

He has also been involved with Wrexham football club, Disabled People Against Cuts, and the Care and Social Services Inspectorate Wales, as well as writing a new book, and running his campaign and a blog.

He also worked with Disability Arts Cymru on a #SaveWILG exhibition of visual art and poetry earlier this year.

Davies is now waiting to hear what will happen to his support package when WILG closes.

BBC Report: Mark Drakeford may overturn Independent Living Fund changes

The following article was published on BBC Wales News Online  and this blogger takes no credit or responsibility for anything written below.

Welsh Labour leadership candidate Mark Drakeford has told supporters he is willing to reverse changes to funding for disabled people if there is evidence they are losing out.

Councils have been put in charge of support for 1,300 former recipients of the Independent Living Fund (ILF).

But research by BBC Wales found that about 100 people had care packages cut.

Mr Drakeford blamed the UK government for breaking up “that part of the welfare state”.

The money was protected until earlier this year when the Welsh Government scrapped its Welsh Independent Living Grant (WILG), and passed the responsibility to councils.

The ILF was provided by the UK government until 2015, when it was transferred to English councils and devolved governments.

Research by the BBC Wales Live programme showed about 100 of the 600 recipients who have been reassessed have had care packages cut.

In response on Wednesday, the minister in charge, Huw Irranca-Davies, said he did not believe there would be any “losers” as a result of changes.

Mr Irranca-Davies has previously said he will not “rethink the policy in its entirety.”

But at a leadership campaign event in Blackwood on Thursday, Mr Drakeford said if an independent evaluation “shows the new system is not working as well as the old one then I would be prepared to reverse it because this is money intended for a very specific number of people for a very specific purpose”.

He blamed the UK government for “breaking up that part of the welfare state”, saying the ILF had “more or less disappeared” in England.

 

“I do understand that people who rely on the Independent Living Fund say to me when it was in a special grant we knew it was there and we had confidence that money would come to us,” Mr Drakeford said.

“The money is the same as it always was and most local authorities I believe are doing a decent job of continuing to hand the money on.

“But we are beginning to pick up information that in some places that is not happening and the money isn’t going to ILF recipients in the way that it would have been last year.”

Huw Irranca-Davies

 

Mr Irranca-Davies had agreed to the evaluation, he said, adding that it would be carried out by someone “who is nothing at all to do with local authorities or the Welsh Government”.

If evidence shows the payments work as well as before “then I think we should carry on with what we are doing now”, Mr Drakeford said.

“But if the evidence is the opposite – that the money isn’t reaching people for whom it is intended – then I think I will be prepared to look again and go back to the system that the recipients of ILF have had confidence in up until now.”

The promise drew applause from a small audience of supporters at the event in Blackwood where Mr Drakeford laid out plans to help the least well-off in society.

He said he would be prepared to set targets to reduce the number of children taken into care and promised he would appoint a cabinet minister responsible for housing.

Campaigner Nathan Lee Davies with Jeremy Corbyn

 

Welsh Labour’s Spring conference passed a motion supporting a campaign to reinstate the Welsh Independent Living Grant.

‘Save WILG’ has been run by Labour member Nathan Lee Davies and has had backing from Welsh Labour politicians and Welsh Labour Grassroots – the Welsh arm of the left-wing Momentum campaign group.

But the Welsh Government has pressed ahead with the transfer of the money and the responsibility to local authorities.

More on this story

 

Progress on Disability Rights in the United Kingdom #SaveWILG

Yesterday, I was alerted to the publication of UK Independent mechanism update report to the UN Committee on the Rights of Persons with Disabilities.

This is a very illuminating document that shows just how far behind the United Kingdom is slipping in terms of Disability Rights. The sections about Independent Living is of particular interest to me and my comrades as it is critical of the current arrangements that we are having to put up with. It provides yet more evidence of the need to save WILG as well as some worrying news that the Welsh Government are rushing through a new framework on Independent Living for disabled people that is bound to be a huge disappointment to those with high care and support needs. Welsh Labour have proved time and again that they do not want to listen to party members, unions, Labour MP’s, supporters from across the political spectrum or some of their own politicians and are determined to stop WILG.

I am doing everything I can but I am not being listened to at all.  I have been robbed of three years of my life and the effect of this campaign has taken a huge toll on my health.

I will carry on the fight until the bitter end because I believe in what I am fighting for and have no confidence in the Welsh Government – as it stands – to produce a suitable alternative.

The fight continues…

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The section on Wales, reads as follows:

Wales –

The EHRC is concerned that disabled people’s right to independent living may be harmed by the Welsh Government’s decision to potentially merge the Supporting People programme with other budget lines from 2020. Concerns have been raised that disabled people’s rights have been negatively affected when equivalent funding programmes elsewhere in the UK have been lost. 

The report goes on to say the following:

Wales

The Welsh Government has prioritised social care in budget allocations to local
authorities since 2010, most recently through a local government settlement to
maintain the assumed Welsh Government share of core spending at 2017/18 levels
until 2020. The Welsh Government also provides funding that supports social care
duties through the Supporting People programme. This support helps people to live
independently in their own home. The programme has been retained for a further
two years as part of the budget for 2018/19. The programme’s future post-2019 is
unclear, with the Welsh Government potentially merging it with nine other budget
lines, with no ring fencing, causing concern for disabled people. A £60 million
integrated care fund has been introduced, which aims to support people to maintain their independence and remain in their own home. However, there has been a real terms reduction in budgets for social care services of over 12% due to increasing need.

The Welsh Government is currently reviewing its Framework for Action on
Independent Living. After a delay, it is anticipated that the new framework, provisionally entitled ‘Action on disability: The right to independent living’, will now be published in autumn 2018. The new framework will be accompanied by an action plan that will set out a range of actions aimed at tackling some of the key barriers identified by disabled people, including in transport, employment and housing, and access to buildings and public spaces.

I am looking forward to seeing what this new framework for action actually entails. I am preparing to be disappointed as  I always am with shambolic Welsh Labour.

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The full report on the Right to Independent Living can be seen below:

2. The right to live independently in the community (article 19)

CRPD Committee concluding observations 2017, paragraph 45:

‘The Committee recommends that the State party … : recognise the right to living
independently and being included in the community as a subjective right,
recognise the enforce ability of all its elements, and adopt rights-based policies,
regulations and guidelines to ensure implementation; conduct periodic
assessments in close consultation with organisations of persons with disabilities
to address and prevent the negative effects of policy reforms through sufficiently
funded and appropriate strategies in the area of social support and living
independently; … [and] allocate sufficient resources to ensure that support
services are available, accessible, affordable, acceptable, adaptable and are
sensitive to different living conditions for all persons with disabilities in urban and
rural areas.’

Summary of progress

There has been limited progress on the UK governments’ implementation of the
CRPD Committee’s recommendations concerning disabled people’s right to live
independently in the community. Appropriate social care packages and accessible
housing are two of the cornerstones of independent living. There have been some
promising developments in Scotland and Wales in relation to certain funding streams
to support independent living. However, as set out below, there is also evidence that
social care, particularly adult social care, is at crisis point across the UK and there is
a chronic shortage of accessible homes.

Progress on disability rights in the United Kingdom 

Key concerns

UK

The right to live independently in the community is not recognised as a statutory right
in the UK and there do not appear to be any plans to change this.
The increasing demand, along with reduced funding, for social care, particularly adult
social care, may be leading to a regression in disabled people’s article 19 rights to
live independently in the community. The shortage of accessible and adaptable
homes, and long delays in making existing homes accessible, also has a detrimental
effect on the right to live independently.

England

The EHRC is concerned that, in England, the closure of the Independent Living Fund
and the devolution of this function to local authorities, without ring-fencing finance for
this purpose, has resulted in a postcode lottery for support.

Wales

The EHRC is concerned that disabled people’s right to independent living may be
harmed by the Welsh Government’s decision to potentially merge the Supporting
People programme with other budget lines from 2020.
Concerns have been raised that disabled people’s rights have been negatively
affected when equivalent funding programmes elsewhere in the UK have been lost.

Northern Ireland

The Mental Capacity Act (Northern Ireland) 2016, while enacted, continues to have
no clear time frame for its commencement.

In Northern Ireland, the Independent Living Fund is administered by the Independent
Living Fund Scotland, but restricted to existing users leading to its eventual defacto
closure, and with no clear indication of future arrangements.

Scotland

Despite positive policy intentions, significant questions remain regarding the
implementation of Self-directed Support and access to adult social care.

New evidence

Great Britain

The EHRC’s inquiry into housing for disabled people across Great Britain (GB),
published in May 2018, found that disabled people face a shortage of accessible and
adaptable homes and long delays in making existing homes accessible. Disabled
people are not getting the support they need to live independently as the provision of
advice, support and advocacy is patchy, and people report that they have nowhere
to turn when their housing is unsuitable. The EHRC’s survey of local authorities
found that just over a quarter (28%) of local authorities in GB set a percentage target
for accessible housing.

 In England, only 7% of homes offer minimal accessibility features.

 In Scotland, 55% of councils said a lack of funding for adaptations was a
challenge, and only 24% said the data they hold about disabled people’s
housing requirements were ‘good’ or ‘very good’.

 In Wales, only 5% of local authorities have a target in place for accessible
housing, and only 15% said that disabled people’s housing needs are subject
to specific discussion or scrutiny when conducting a local housing market
assessment.

Progress on disability rights in the United Kingdom

England
Spending for adult social care in England was budgeted to be 3% lower in 2017/18
than in 2009/10. As the population has grown over this period, this is equivalent to
9% lower per person, according to the Association of Directors of Adult Social
Services (ADASS). This means ‘fewer older and disabled people with more complex
care and support needs getting less long-term care’.

In March 2018, the EHRC started legal action against 13 clinical commissioning
groups because their NHS Continuing Healthcare policies restricted funding and
failed to account for individual circumstances. This may force disabled people into
residential care when their preference is to remain at home.

Research by the Care Quality Commission (CQC) found that nearly two-thirds of placements in residential-based mental health rehabilitation services are ‘out of area’, and very lengthy. This means that individuals are usually placed far away both from home and from the local support services that should care for them once they have been discharged. The CQC has also reported that some patients who are subject to the Mental Health Act (MHA) 1983 continue to experience care that does not fully protect their rights or ensure their well-being. For example, there have been no improvements in involving patients in developing their care plans, and in making sure their views are considered in care decisions.

Northern Ireland
There is an absence of information on the extent to which disabled people with
substantive needs, who are not existing Independent Living Fund users, are having their needs met through the Self-directed Support and direct payment provisions. Furthermore, direct payments do not fund many of the activities funded by the
Independent Living Fund, leading to less support and control.

Indicator 42 of the draft ‘programme for government’ considers the average life
satisfaction score of disabled people. The Department for Communities has
acknowledged that the comprehensive dis-aggregated data required to support
indicator 42 is lacking. The department has conducted a scoping study to identify
existing data, which recommended that a new Northern Ireland disability survey is
required. The department is exploring options for such a survey, but, due to the
additional resources required to conduct the survey, ministerial approval is required.
With the continued suspension of the Northern Ireland devolved government, it is
currently not possible to obtain the required approval.

Relevant steps taken by UK governments

England

Since 2015, the UK Government has allocated additional funding to local authorities
for adult social care through the adult social care precept, the Better Care Fund
and a commitment to fund an adult social care support grant. However,
stakeholders, including ADASS, conclude that even these recent increases may not
be enough to address the funding crisis in adult social care.

In March 2017, the Conservative Government announced a green paper on social
care in England, and a public consultation. The publication of the green paper, which
will focus on older people, has been delayed until the end of 2018. It is unclear whether it will address issues that are faced by working-age disabled people in
relation to social care, and whether disabled people will be explicitly consulted.

England and Wales

The independent review of the MHA 1983 published its interim report in May 2018,
providing details of the issues the review is examining.These include the rising
rates of people being detained under the act and inappropriate and/or long-term
placement of people with learning disabilities and/or autism in psychiatric hospitals
because community support services are unable to meet their needs. The EHRC
hopes that the review will make recommendations that result in fewer people facing
compulsory detention and more people living independently in places or with people
of their choosing.

Wales

The Welsh Government has prioritised social care in budget allocations to local
authorities since 2010, most recently through a local government settlement to
maintain the assumed Welsh Government share of core spending at 2017/18 levels
until 2020. The Welsh Government also provides funding that supports social care
duties through the Supporting People programme. This support helps people to live
independently in their own home. The programme has been retained for a further
two years as part of the budget for 2018/19. The programme’s future post-2019 is
unclear, with the Welsh Government potentially merging it with nine other budget
lines, with no ring fencing, causing concern for disabled people. A £60 million
integrated care fund has been introduced, which aims to support people to maintain
their independence and remain in their own home. However, there has been a real
terms reduction in budgets for social care services of over 12% due to increasing
need.

The Welsh Government is currently reviewing its Framework for Action on
Independent Living. After a delay, it is anticipated that the new framework provisionally entitled ‘Action on disability: The right to independent living’, will now be
published in autumn 2018. The new framework will be accompanied by an action
plan that will set out a range of actions aimed at tackling some of the key barriers
identified by disabled people, including in transport, employment and housing, and
access to buildings and public spaces.

Northern Ireland

The draft programme for government indicator 42 includes a commitment to
increase take-up of Self-directed Support and direct payments. However, a final plan
has yet to be approved in the absence of a functioning Northern Ireland Executive.
Concerns have been raised that Self-directed Support does not suit everyone, that
too much control is given to the health trusts, and that the support given is not
enough to be used for more than the individual recipient’s basic needs.

In the absence of an approved programme for government, the Northern Ireland
Executive Office has developed a 2018/19 outcomes delivery plan that reflects the
responsibilities placed on departments by the previous NI Assembly and Northern
Ireland Executive, and sets out actions that the departments can take without further
ministerial approval. Outcomes 8 (care and help for those in need) and 9 (a shared,
welcoming and confident society that respects diversity) include a commitment to
improve quality of life for disabled people. The identified actions for fulfilling these
outcomes include ensuring that 8% of new social homes are wheelchair accessible,
introducing opportunities for 200 new NI athletes in the Special Olympics, and
improving understanding of British Sign Language and Irish Sign Language.
Progress will be measured every six months, using a number of indicators set out in
the draft programme for government, including indicator 42. Questions have been
raised in particular regarding the plans for new accessible social homes and whether
an 8% target for new accessible social homes is reflective of demand. It has also
been questioned whether the new accessible social homes will be provided in a way
that addresses the demand in rural and urban areas.

Scotland

The Scottish Government has announced funding for 31 projects delivering direct
and local independent support across 31 local authority areas, through the Support
in the Right Direction 2021 programme. Funding will be provided between October
2018 and March 2021, with the aim of ensuring that more people across Scotland
who require social care are empowered to make choices about their support.

The Scottish Government has confirmed that by 1 April 2019 it will extend free
personal care to all those under the age of 65 who require it, regardless of their
condition.