Welsh Independent Living Grant

Wrexham council proposal must be scrapped

I am stressed beyond compare. Yesterday, I was stuck in a waste-of-time meeting all morning and I missed an important request from ITV Wales to be interviewed today for my opinions on the scandalous proposal by Wrexham council to introduce charges for Blue Badge car parking in the town centre.

More on this story can be read here:

BBC NEWS: Wrexham council planning charges for disabled parking

Unfortunately, ITV Wales missed the chance to speak to me, but they are not going to stop me from having my say on this blog and in letters to the local and national press.

Disabled people have been unfairly targeted by penny pinching local authorities and government for too long now. Wrexham council stand to make £25,000 per annum by introducing such charges to Blue Badge holders. This is a miniscule amount in the grand scheme of things, as it is not even as much as a weekly salary for a decent Premier League football player.

It will only serve to increase isolation and segregation. Many disabled people are already struggling to make ends meet and will be unable to afford extra parking charges. As far as I know, parking charges do not apply to the Chief Executive or his official minions at the council. Equality is a distant dream…

I would also like to remind the council of their legal duties under the Equality Act to avoid disproportionate impact through equality impact assessments. There are also numerous sources of information which tell us that disabled people are being hit disproportionately through ideological austerity, including reports from the European Human Rights Commission.

I, for one, would refuse on principle to pay for Blue Badge parking for the same reason I refuse to pay for the Care Call System that I used to have in my home. I needed this system due to my progressive, genetic disability, but I can no longer access this service as Wrexham Council unfairly decided to charge for a service that they know I need. Since having Care Call uninstalled I have had no option but to call the costly ambulance service on two occasions during the night time when I receive zero care or support.

Wrexham council have also threatened me with a reduction in my care hours should we lose the Welsh Independent Living Grant (WILG). This grant pays for my package of care along with Direct Payments from the council. Back in 2015, I was told that without WILG my hours of care and support would reduce from an already inadequate 86.5 hours per week to a totally useless 31 hours.

The actions of our Tory/Independent council deserve to be shared. You need to know what a repressive shower you’ve unwittingly elected and should not be distracted by new developments such as the soon-to-be-opened Arts Hub, while the homes and hungry freeze on our streets.

In the meantime, we can only keep fighting because at the end of the day, this is our multicultural town and community…

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Button Badges, Welsh Language Postcard and Memes #SaveWILG

Save WILG button badges – Only £1

Wear one with pride to help raise awareness and raise much-needed funds to propel the campaign forward. Contact me to make a purchase and I will make sure the badge gets to you quickly and safely.

Introducing our new Welsh Language Postcard for those of you who speak the lingo:

 

You can help #SaveWILG in so many ways such as buying a Save WILG and sharing these fantastic memes – created by my legendary comrade Brian Hilton – on social media or email. Make a difference this Xmas and help my crusade…

I have also updated the #SaveWILG Campaign page and the Shop. Postcard

Solidarity.

Letter from Huw Irranca-Davies AM

I am sharing this letter from Huw Irranca-Davies  AM to Lesley Griffiths AM concerning my #SaveWILG campaign. There are many, many issues that I would like to pick up from this email, but I am biting my lip until we can arrange a meeting with my MP and Huw Irranca-Davies himself.

I hope this can be in one of the 24 days before Christmas, so that I can discuss my concerns and enjoy the festive break but I am not holding my breath and am preparing for my 8th consecutive Christmas of concern and worry over the future of Independent Living for disabled people in 21st century Britain.

Seasons Greetings…

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Lesley Griffiths AM
Assembly Member for Wrexham
Lesley.Griffiths@assembly.wales

 

14- November 2017

Dear Lesley

Thank you for your letter to Rebecca Evans AM on behalf of your constituent, Mr Nathan Davies, outlining his ongoing concerns regarding the Welsh Independent Living Grant (WILG). I am replying as policy on social care in Wales now forms part of my Ministerial portfolio.

I have agreed to meet Mr Davies and his MP, Ian Lucas, and my Diary Secretary is arranging for this to take place as soon as is possible.

In relation to Mr Davies’ comments about Wrexham County Borough Council, my officials have been in contact with the authority to ascertain the latest position. I am aware that Wrexham initially had social worker vacancies which impacted upon its ability to undertake future support reviews of WILG recipients and reviews of those receiving social care more generally. This seems to have occurred in Mr Davies’ case.

Wrexham County Borough Council now informs us that it has recently recruited additional social workers to undertake reviews of those receiving social care from the authority, thereby releasing more experienced officers to undertake future support reviews of its WILG recipients. Recipients will be contacted individually by the authority to enter into a dialogue as to the wellbeing outcomes they wish to achieve to live independently and to agree the future support they require to achieve these. The authority intends to complete as many of these support reviews as possible within this financial year, with those not able to be completed by then as soon as possible in next financial year. Whenever a WILG recipient’s support review is completed, their payments under the WILG will not cease until a package of care to deliver the future support they require is in place.

One public consultation on the way in which former recipients of the Independent Living Fund should be supported in the future was held. This ran from October to December 2014 and asked for views on the principle of four potential options to provide support. A summary of the responses received and the conclusions reached was published in March 2015. Stakeholders, including recipients, were informed of this at the time and until recently this summary appeared on the Welsh Government’s website (only being removed as part of a wider updating of our website). I attach a copy of the consultation summary published in 2015 together with a copy of the information letter on this which officials sent to local authorities at the time for them to provide to recipients. I would be grateful if you would provide these to Mr Davies as part of your response to him.

As regards Direct Payments, I understand Wrexham County Borough Council currently operates around 200 such payments to adults to enable them to have control over the care and support they obtain to meet their wellbeing outcomes. The authority is not aware of any operational issues affecting the delivery of these, although accepts that some individuals experience difficulties with recruiting appropriate staff or with securing the care they need from support providers. To ensure their practice is current and appropriate, it has held discussions with officers from Flintshire County Council relating to a collaborative approach to delivering Direct Payments in the region.

If Mr Davies has specific concerns regarding his care package or his Direct Payments from the authority, I understand that Sheila Finnigan-Jones, Service Manager for Disability Services, is happy to meet him to discuss these. Her contact details are:

Tel: Wrexham (01978) XXXXXX E-mail: Sheila.finnigan-jones@wrexham.gov.uk

Huw lrranca-Davies AC/AM

Y Gweinidog Gofal Cymdeithasol a Phlant Minister for Children and Social Care

Badges and an update #SaveWILG

Its all go with the #SaveWILG campaign. I now have Save WILG badges available at £1 each to help fundraise for the cause. There are many costs involved with running such a campaign as we are planning to stage fundraising events, print leaflets and stage an art exhibition about the importance of independent living for disabled people.

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If anyone would like to support the campaign by purchasing and wearing a badge please get in touch with me via the contact page or on Twitter or Facebook.

I would like to ask my friends at Disabled People Against Cuts if they would like to create any submissions of artwork, in any form, for the planned exhibition  at  Theatr Clwyd in Mold, North Wales during the week beginning January 16th, 2018.

I am hoping to frame many of my postcard photographs for the exhibition so I am also asking as many of you as possible to post with one of my Save WILG postcards and agree to take part in the exhibition. If you have already posed for a picture then you can ask your friends or family members to do the same. I really want to push this and show the depth of support for this campaign that is out there.

There will be more updates in the near future with plenty of exciting events in the pipeline as we attend to salvage independent living for all disabled people.

Thanks for your support.

 

 

Letter from Ken Skates AM #SaveWILG

This letter has been sent to a number of #SaveWILG  campaigners from Cabinet Secretary for Economy and Infrastructure Ken Skates who has represented the constituency of Clwyd South since the National Assembly for Wales election of 2011. I don’t know why I am bothering sharing this nonsense, but if you don’t read it yourself then you wont believe the inaccuracies that are being pedalled by the Welsh Government.

It is an interesting aside that this is the man who I worked with at the Evening Leader In the late nineties. I would read and sub edit his work and we both went on a jolly to Legoland, Windsor when I was asked to review the theme park. I drove there while he slept in the passenger seat, now he is defending Welsh Labour for copying the Tories of Westminster and basically selling me down the river. What ever he says, the same will happening Wales as is happening in England. Maybe he actually believes that Welsh Labour are doing the right thing by closing WILG, but I am actually living with the consequences of the end of a three way triangular structure to care and support and I can assure him that it is a living nightmare.

Before you read the letter, which I will reply to if I ever get the chance, I must try to express my frustrations with life at the moment. I am really struggling to type at all, at a time when I need to write so many emails and letters. My diary is jam packed but I don’t have enough care and support to attend all the appointments that I have. I am stressed and worried about the future while I sit in loneliness and desperation with a puddle of piss on the bathroom floor after dropping my urinal. I have to wait for support to arrive to clear this up.

I want to assure Ali Granger, Andrew Ranger, Paul Swann and Liz Lefroy that I will respond to their emails ASAP.

I will finish this blog with a humorous observation. I was incredulous when I received an email from Welsh Labour who where offering signed Jeremy Corbyn bags as a prize in a fundraising drive. You couldn’t make it up. Welsh Labour have a track record of distancing themselves from JC, but here they are exploiting an opportunity to profit from the popularity of the Labour leader. The Labour manifesto actually proposes a return to a three tiered care system, which the powers that be in Cardiff are doing their best to destroy.

Bedtime now, but here is the letter from Ken Skates. I wonder who sub-edited it…

 

Dear XXXX
 
Thank you for taking the time to contact me recently on this important issue.
 
The Conservative UK Government closed the Independent Living Fund (ILF) in June 2015 and the Welsh Labour Government subsequently established the Welsh Independent Living Grant (WILG) as an interim scheme administered by local councils to ensure people receiving payments through the ILF continued to do so. The Minister for Social Service and Public Health, Rebecca Evans, extended the transitional scheme last year until March 31 this year in order to develop longer-term arrangements in consultation with organisations representing people with disabilities.
 
WILG was only ever meant to be a short-term measure to provide continuity of support for former recipients of ILF. The UK Government provided a transfer of £27m a year to meet the cost of providing this interim support, but this leaves no scope to fund a change in people’s needs, any changes in the cost of the support they require or for operating any scheme to support them. Such costs, therefore, need to be taken out of this funding at the expense of care for all.
 
The Minister looked at a range of options for long-term support that ensures people with disabilities in receipt of WILG continue to receive support to meet the additional costs of living independently in the community. In doing so, it became clear that continuing with a separate scheme outside of normal social services provision would not be appropriate. This is because it would continue the inequity of some disabled people receiving their support from their local authority, while others receive specific WILG payments in addition to the support they receive from their council. It was also felt that continuing with a separate scheme had the potential of becoming unsustainable in the longer-term as the money provided for it by the UK Government was fixed at £27m a year so the value of payments through the scheme would gradually diminish. In addition, this fixed sum does not take into account costs associated with changes in a person’s needs and would not be enough to meet the needs of those who receive it.
 
Rebecca Evans concluded that future support through normal social care provision via local authorities would be the most effective approach as it ensures that funding is used to provide support to recipients rather than being used disproportionately towards operating costs of a separate scheme as is currently the case. This approach addresses the issue of equality for all people with disabilities in receipt of social care support in Wales while making the best use of finite resources.
 
The Welsh Government recognises that some recipients would have preferred a different decision and is aware of concerns about the way in which a transfer to local authorities has worked in England. The Welsh Government has looked closely at developments in England and has learned lessons about what not to do. Funding for the WILG will continue in its current format until 2018-19, when it will transfer to councils. During this time, local authorities will meet with recipients of WILG and their representatives to identify the outcomes they are seeking to achieve and agree a package of support with them. Once this support is available, it will be provided to help people live independently instead of the payments previously received and the expectation is that by March 31, 2019 all WILG recipients will receive their support in this way. Recipients of WILG will only move into the new arrangements when the support they require is available.
 
Once again, thank you for contacting me on this issue. I fully understand why some of my constituents want the scheme to continue, but hope that the information provided will reassure you that the Welsh Government is not simply copying what the UK Government did in England and is putting in place a long-term solution which is fair to all disabled people who receive support from their local authority. This will ensure that they continue to live as independently as possible in their own homes. Please be assured that I will continue to raise your views with the Minister for Social Services and Public Health in all relevant discussions.
 
 
Please don’t hesitate to get in touch if there is anything I can help with in the future.
 
 
Best wishes,
 
 
Ken

Letter from Rebecca Evans AM #SaveWILG

I have just received the following letter from Rebecca Evans AM in response to the many #SaveWILG postcards she has received. I guess it shows that we have got her attention but it also underlines that we have a fight on our hands to educate the Minister on the impact of her changes.

There are so many points that I would like to bring up with the Minister after reading her letter and I am currently compiling a dossier in response, but due to limited care and support this will have to wait until later in the week. If anyone could copy this letter into a Word document to make it easier to share amongst comrades that would be great.

The fight for justice continues…

Help needed on Twitter #SaveWILG

I am requesting help on Twitter to get the message across to Assembly Members across Wales that there is still time to reverse the awful decision to close WILG and transfer all responsibilities for Independent Living to local authorities.

A list of AM Twitter handles can be found below along with a suggested Tweet and electronic postcards and memes that can be attached to Tweets for greater impact. Even if you only manage to Tweet a handful of AMs, this could make a real difference to disabled people across Wales.

Thanks for your support.

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SUGGESTED TWEETS:

Disabled ppl with high care and support needs are in search of your support to maintain Independent Living for all. #SaveWILG

Wales voted Labour. Don’t copy Tory policy and damage independent living 4 disabled ppl #SaveWILG

This is the impact of closing the ILF in England  https://www.gov.uk/government/publications/independent-living-fund-post-closure-review #SaveWILG

Welsh Labour: Don’t copy Tories in Westminster. Protect independent living 4 disabled ppl #SaveWILG

These Tweets should be accompanied by some of the many postcard photographs, electronic postcards and memes.

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David Melding @DavidMeldingAM

Lynne Neagle @lynne_neagle

Gareth Bennett AC/AM @GarethBennettAM

David Rowlands AC/AMVerified account @DavidRowlandsAM

Hefin David AC/AM @hef4caerphilly

Caroline Jones AC/AM @carolineUKIP

Dr Dai Lloyd AC/AM @DaiLloydAM

Carl Sargeant AM @Carl4AandD Michelle Brown AM @MishBrownAM

Carwyn Jones AM/ACVerified account @AMCarwyn

Joyce Watson AM @JoyceWatsonam

Nathan GillVerified account @NathanGillMEP

Neil Hamilton AC/AMVerified account @NeilUKIP

John Griffiths AM @JGriffithsLab

Vikki Howells AM @VikkiHowells

Ann Jones AM @ann_jonesam

David Rees @DavidReesAM

Neil McEvoy AM @neiljmcevoy

Ken Skates AMVerified account @KenSkatesAM

Dafydd Elis-Thomas @ElisThomasD

MickAntoniw AM @MickAntoniw1

Jayne Bryant AM @JBryantWales

Mike Hedges @MikeHedgesAM

Julie James AMVerified account @JulieJamesAM

Rebecca Evans AMVerified account @RebeccaEvansAM

Eluned Morgan @Eluned_Morgan

JaneHutt AMVerified account @JaneHutt

Rhianon Passmore @rhi4islwyn

Elin Jones @ElinCeredigion

Vaughan Gething AMVerified account @vaughangething

Mark Drakeford AMVerified account @MarkDrakeford

Mark Isherwood AMVerified account @MarkIsherwoodAM

Angela Burns @AngelaBurnsAM

Mohammad Asghar AMVerified account @MohammadAsghar

Lesley GriffithsVerified account @lesley4wrexham

Nick RamsayVerified account @NickRamsayAM

Andrew RT DaviesVerified account @AndrewRTDavies

Simon ThomasVerified account @SimonThomasAC

Huw Irranca-DaviesAMVerified account @huw4ogmore

Russell George AMVerified account @russ_george

Rhun ap IorwerthVerified account @RhunapIorwerth

Julie MorganVerified account @JulieMorganLAB

Sian Gwenllian AC/AM @siangwenfelin

Janet Finch-SaundersVerified account @JFinchSaunders

Lee Waters AMVerified account @Amanwy

Alun DaviesVerified account @AlunDaviesAM

Jeremy Miles AC/AMVerified account @Jeremy_Miles

Jenny Rathbone AMVerified account @JennyRathbone

Mark Reckless AMVerified account @MarkReckless

Dawn Bowden AM @Dawn_Bowden

Llyr Gruffydd AC/AM @LlyrGruffydd

suzy daviesVerified account @suzydaviesam

Darren Millar AMVerified account @DarrenMillarAM

Steffan LewisVerified account @steffanlewis

Adam PriceVerified account @Adamprice

Hannah Blythyn AM @hannahblythyn

Kirsty WilliamsVerified account @Kirsty_Williams

LeanneWoodVerified account @LeanneWood

Bethan Maeve AM/ACVerified account @bethanjenkins