Welsh Government

War #SaveWILG

I don’t want to have to write the following, but it needs saying as Wrexham Council and the Welsh Government are failing in their duties of care to disabled residents such as myself. I am not continuing to struggle while local councillors vote to give themselves a pay rise and Government officials just will not listen to reason.

Yesterday, was an average day which began productively thanks to the help of my Personal Assistant. I visited the supermarket to replenish empty cupboards and powered through some housework and admin. Unfortunately, my PA is only contracted until 14:00 and I am alone all afternoon until a second PA returns at 19:00. This used to suit me fine as I had full use of my hands, but living with a progressive disability such as Friedrich’s Ataxia means that I am having to consider changes to my deteriorating body and the need for more support. Believe me, this is not something that I want to have to accept, but I just cant function on my own without the help of another human being. Extra care is something that I NEED.

Yesterday afternoon, I was drinking water while watching Final Score on television. After finishing a bottle I thought I had better go to powder my nose before the urge really hit me. I was being responsible. Unfortunately, once I got to the bathroom my dexterity failed me and I was unable to produce my crown jewels from my boxer shorts in time.

Fast forward five minutes and I was sitting in a freezing cold pair of sodden jeans with tears of frustration and exasperation running down my face. My only option was to call my 67- year old father who came to help. By the time he had helped me to sort everything out it was 18.00 and a relaxing afternoon, after a busy week, had disappeared.

The rest of the evening was spent in agony as my Dad had to remove my wheelchair  cushion cover to give it a good wash. This is a padded cushion cover so I was forced to sit on an uncomfortable surface for the rest of the evening. It was a relief to get into bed.

However, at 03.30 I woke again in discomfort. I have been going attending a Podiatry clinic at Wrexham Maelor hospital. Last week the Podiatrist discovered an ulcer on the side of my left foot by my little toe. She dressed it and it has been fine all week but last night it was really causing me a lot of pain and I could not move my foot into a more suitable position. I did not want to bother my dad again but in the end I had no option but to text him. He did not receive the text until a lot later after I had been in agony for 2 hours.

If I was able to have the 24 hour care that disabled people with high care and support needs deserve then I would not have had the humiliation of having to write this. With adequate support I would have had the assistance needed to avoid an accident and been able to move my foot into a more comfortable position.

It seems that Wrexham Council and the Welsh Government see me as something of a nuisance. They have clearly got their priorities all wrong as they are putting profit and greed before people. The bad news for them is that I am not planning on going anywhere soon and they have legal responsibilities that I will ensure they meet with me and other disabled people in the Wrexham area and beyond. Things have got to change and I will make sure that I will do what I can to force these changes in the time I have left before I am consumed by life with Ataxia.

Support from Plaid Cymru #SaveWILG

Over the past few weeks I have been speaking with the good folk at Plaid Cymru, who have now been selected to ask a question about WILG to the First Minister at the Senedd on Tuesday at 13:30. The question has been tabled by Llyr Gruffydd AM and is composed as follows:

Will the First Minister make a statement on support for claimants of the Welsh independent living grant following its cessation?

I look forward to seeing how the First Minister responds to this question and any follow up questions that Llyr Gruffydd AM has prepared. While I don’t like talking about the end of WILG, I think that Plaid’s tactics are spot on here and the question should lead to an interesting series of responses.

I have received a link where you will be able to view the questions being put to the First Minister. You can access the link here.

This is brilliant news as it keeps the #SaveWILG campaign firmly in the spotlight and we are currently working on other ways that we can protest as we enter Spring. If you have any ideas of ways we can urge the Welsh Government to reconsider the appalling decision to close the Welsh Independent Living Grant, please get in touch.


Help Needed on Social Media #SaveWILG

I am requesting help on Social Media to get the message across to Assembly Members across Wales that there is still time to reverse the awful decision to close WILG and transfer all responsibilities for Independent Living to local authorities.

A list of AM Twitter handles can be found below along with a suggested Tweet and electronic postcards and memes that can be attached to Tweets for greater impact. Those of you who are not on Twitter can use Facebook to send messages, postcards and memes to AMs or you can email them using their addresses that can be found on this mailing list. 

It is also still not too late to show your support for the #SaveWILG postcard campaign. You can download and print postcards below or get in touch with me and I will send you a few hard copies.

Even if you only manage to contact a handful of AMs, this could make a real difference to disabled people across Wales.

Thanks for your support.



Disabled people with high care and support needs are in search of your support to maintain Independent Living for all. #SaveWILG

Wales voted Labour. Don’t copy Tory policy and damage independent living 4 disabled people #SaveWILG

This is the impact of closing the ILF in England  https://www.gov.uk/government/publications/independent-living-fund-post-closure-review #SaveWILG

Welsh Labour: Don’t copy Tories in Westminster. Protect independent living 4 disabled people #SaveWILG

These Tweets should be accompanied by some of the many postcard photographs, electronic postcards and memes.


David Melding @DavidMeldingAM

Lynne Neagle @lynne_neagle

Gareth Bennett AC/AM @GarethBennettAM

David Rowlands AC/AMVerified account @DavidRowlandsAM

Hefin David AC/AM @hef4caerphilly

Caroline Jones AC/AM @carolineUKIP

Dr Dai Lloyd AC/AM @DaiLloydAM

Carl Sargeant AM @Carl4AandD Michelle Brown AM @MishBrownAM

Carwyn Jones AM/ACVerified account @AMCarwyn

Joyce Watson AM @JoyceWatsonam

Nathan GillVerified account @NathanGillMEP

Neil Hamilton AC/AMVerified account @NeilUKIP

John Griffiths AM @JGriffithsLab

Vikki Howells AM @VikkiHowells

Ann Jones AM @ann_jonesam

David Rees @DavidReesAM

Neil McEvoy AM @neiljmcevoy

Ken Skates AMVerified account @KenSkatesAM

Dafydd Elis-Thomas @ElisThomasD

MickAntoniw AM @MickAntoniw1

Jayne Bryant AM @JBryantWales

Mike Hedges @MikeHedgesAM

Julie James AMVerified account @JulieJamesAM

Rebecca Evans AMVerified account @RebeccaEvansAM

Eluned Morgan @Eluned_Morgan

JaneHutt AMVerified account @JaneHutt

Rhianon Passmore @rhi4islwyn

Elin Jones @ElinCeredigion

Vaughan Gething AMVerified account @vaughangething

Mark Drakeford AMVerified account @MarkDrakeford

Mark Isherwood AMVerified account @MarkIsherwoodAM

Angela Burns @AngelaBurnsAM

Mohammad Asghar AMVerified account @MohammadAsghar

Lesley GriffithsVerified account @lesley4wrexham

Nick RamsayVerified account @NickRamsayAM

Andrew RT DaviesVerified account @AndrewRTDavies

Simon ThomasVerified account @SimonThomasAC

Huw Irranca-DaviesAMVerified account @huw4ogmore

Russell George AMVerified account @russ_george

Rhun ap IorwerthVerified account @RhunapIorwerth

Julie MorganVerified account @JulieMorganLAB

Sian Gwenllian AC/AM @siangwenfelin

Janet Finch-SaundersVerified account @JFinchSaunders

Lee Waters AMVerified account @Amanwy

Alun DaviesVerified account @AlunDaviesAM

Jeremy Miles AC/AMVerified account @Jeremy_Miles

Jenny Rathbone AMVerified account @JennyRathbone

Mark Reckless AMVerified account @MarkReckless

Dawn Bowden AM @Dawn_Bowden

Llyr Gruffydd AC/AM @LlyrGruffydd

suzy daviesVerified account @suzydaviesam

Darren Millar AMVerified account @DarrenMillarAM

Steffan LewisVerified account @steffanlewis

Adam PriceVerified account @Adamprice

Hannah Blythyn AM @hannahblythyn

Kirsty WilliamsVerified account @Kirsty_Williams

LeanneWoodVerified account @LeanneWood

Bethan Maeve AM/ACVerified account @bethanjenkins





Don’t forget there are still plenty of badges available for you to wear with pride to help to spread awareness. Simply get in touch if you would be interested in showing your support by purchasing a badge.




Letter from Huw Irranca-Davies AM

I am sharing this letter from Huw Irranca-Davies  AM to Lesley Griffiths AM concerning my #SaveWILG campaign. There are many, many issues that I would like to pick up from this email, but I am biting my lip until we can arrange a meeting with my MP and Huw Irranca-Davies himself.

I hope this can be in one of the 24 days before Christmas, so that I can discuss my concerns and enjoy the festive break but I am not holding my breath and am preparing for my 8th consecutive Christmas of concern and worry over the future of Independent Living for disabled people in 21st century Britain.

Seasons Greetings…


Lesley Griffiths AM
Assembly Member for Wrexham


14- November 2017

Dear Lesley

Thank you for your letter to Rebecca Evans AM on behalf of your constituent, Mr Nathan Davies, outlining his ongoing concerns regarding the Welsh Independent Living Grant (WILG). I am replying as policy on social care in Wales now forms part of my Ministerial portfolio.

I have agreed to meet Mr Davies and his MP, Ian Lucas, and my Diary Secretary is arranging for this to take place as soon as is possible.

In relation to Mr Davies’ comments about Wrexham County Borough Council, my officials have been in contact with the authority to ascertain the latest position. I am aware that Wrexham initially had social worker vacancies which impacted upon its ability to undertake future support reviews of WILG recipients and reviews of those receiving social care more generally. This seems to have occurred in Mr Davies’ case.

Wrexham County Borough Council now informs us that it has recently recruited additional social workers to undertake reviews of those receiving social care from the authority, thereby releasing more experienced officers to undertake future support reviews of its WILG recipients. Recipients will be contacted individually by the authority to enter into a dialogue as to the wellbeing outcomes they wish to achieve to live independently and to agree the future support they require to achieve these. The authority intends to complete as many of these support reviews as possible within this financial year, with those not able to be completed by then as soon as possible in next financial year. Whenever a WILG recipient’s support review is completed, their payments under the WILG will not cease until a package of care to deliver the future support they require is in place.

One public consultation on the way in which former recipients of the Independent Living Fund should be supported in the future was held. This ran from October to December 2014 and asked for views on the principle of four potential options to provide support. A summary of the responses received and the conclusions reached was published in March 2015. Stakeholders, including recipients, were informed of this at the time and until recently this summary appeared on the Welsh Government’s website (only being removed as part of a wider updating of our website). I attach a copy of the consultation summary published in 2015 together with a copy of the information letter on this which officials sent to local authorities at the time for them to provide to recipients. I would be grateful if you would provide these to Mr Davies as part of your response to him.

As regards Direct Payments, I understand Wrexham County Borough Council currently operates around 200 such payments to adults to enable them to have control over the care and support they obtain to meet their wellbeing outcomes. The authority is not aware of any operational issues affecting the delivery of these, although accepts that some individuals experience difficulties with recruiting appropriate staff or with securing the care they need from support providers. To ensure their practice is current and appropriate, it has held discussions with officers from Flintshire County Council relating to a collaborative approach to delivering Direct Payments in the region.

If Mr Davies has specific concerns regarding his care package or his Direct Payments from the authority, I understand that Sheila Finnigan-Jones, Service Manager for Disability Services, is happy to meet him to discuss these. Her contact details are:

Tel: Wrexham (01978) XXXXXX E-mail: Sheila.finnigan-jones@wrexham.gov.uk

Huw lrranca-Davies AC/AM

Y Gweinidog Gofal Cymdeithasol a Phlant Minister for Children and Social Care

Cabinet Reshuffle #SaveWILG

Interesting news from Cardiff today as there has been a cabinet reshuffle at the Senedd. This means Rebecca Evans is no longer the Minister for Social Services and Public Health. The person we now need to lobby with regard to the #SaveWILG campaign is Huw Irranca-Davies who has been made Minister for Children and Social Care. I congratulate him on his appointment and look forward to working with him to help support and salvage Independent Living for disabled people across Wales.

The BBC published a full account of the cabinet reshuffle, which can be read below:

Independent AM and former Plaid Cymru leader Dafydd Elis-Thomas is to join the Welsh Government as a minister.

Labour First Minister Carwyn Jones has announced a wide-ranging cabinet reshuffle – promoting five AMs.

Lord Elis-Thomas will be minister for culture, tourism and sport – a deputy to economy secretary Ken Skates.

He left the party in October last year following a series of disputes with Leanne Wood, and has been voting with the Welsh Government.

The reshuffle came as Alyn and Deeside AM Carl Sargeant was removed from the cabinet amid allegations about his behaviour.

Other promotions include Neath AM Jeremy Miles becoming Counsel General, replacing Pontypridd AM Mick Antoniw, and Alun Davies, the AM for Blaenau Gwent, joining as cabinet secretary for local government and public services.

The latter appointment marks the return of Mr Davies to the cabinet since he was sacked from it in 2014.

Swansea West AM Julie James replaces Vale of Glamorgan AM Jane Hutt – a minister since 1999 and the longest-serving Labour minister of all time in the UK – as leader of the house and chief whip.

Below cabinet level, Delyn AM Hannah Blythyn, Eluned Morgan, the AM for mid and west Wales, and Huw Irranca-Davies, Ogmore AM, join the government in junior jobs.

Ms Blythyn will be minister for the environment, Ms Morgan is minister for Welsh language and life-long learning, and Mr Davies becomes minister for children and social care.

All three – and Mr Miles – were newly elected to the Senedd in 2016.

Mark Drakeford remains cabinet secretary for finance, but his responsibility for local government has been given to Alun Davies.

Meanwhile social services minister Rebecca Evans moves to become minister for housing and regeneration.

‘Experience and stability’

First Minister Carwyn Jones said: “I am proud to announce my new ministerial team, which provides a balance of experience and stability, with new drive and energy.

“This strong team will drive forward our ambitious plans for Wales – focusing on growing the Welsh economy, creating jobs, supporting our public services and improving the day-to-day lives of the people of Wales.”

But Plaid Cymru Group Chair Dai Lloyd AM said his party was “unimpressed”.

“Wales as a nation is crying out for new ideas and a change of direction. Wales still does not have a government that will lift the country up the league tables and inspires people with its agenda,” he said.

Andrew RT Davies, leader of the Welsh Conservatives, praised Ms Hutt’s contribution but added: “New names and new faces count for very little – positive outcomes are all that matter to the people of Wales. We need a change in ideology”.

Disabled activist ‘is fighting for his life’ as he hands petition to Welsh government


A disabled activist has handed in a petition of hundreds of signatures that calls on the Welsh government to reverse its decision to close its version of the Independent Living Fund (ILF).

Nathan Lee Davies (pictured) says he is fighting the decision to scrap the Welsh Independent Living Grant (WILG) because he is terrified of the prospect of his cash-strapped local authority taking over full responsibility for providing his care package.

He has been told that without WILG his own care package would be reduced from 86.5 hours to just 31 hours a week.

He says that such a cut would put an end to all his current community activities, including his involvement with Wrexham Glyndwr University, Wrexham football club, Disabled People Against Cuts, FDF Centre for Independent Living, and the Care and Social Services Inspectorate Wales.

He is also writing two books, and a blog, and is working with Disability Arts Cymru to create a performance and exhibition of his poetry.

He told Disability News Service (DNS): “I cannot cope with such a limited number of hours per week. This is why I am fighting with every fibre of my being.

“It really is a case of life or death. I have no interests in merely existing. I want to live.

“Without help and support I would be unable to do any of this work that involves me in the community.”

The Labour-run Welsh government announced last November that, after a two-year transition period, it would transfer all of the £27 million-a-year provided by the UK government to support former ILF-users in Wales directly to councils.

There will be no new Welsh ILF – even though such a scheme has been set up in Scotland – and no continuation of the interim WILG scheme the Welsh government has been running as a stopgap to “ensure continuity of payments to recipients” since the Department for Work and Pensions closed ILF in June 2015.

Funding for WILG will now transfer to local authorities during 2018-19, with all former ILF-recipients in Wales having their support needs met solely by their local authority by 31 March 2019.

Since the Welsh government’s announcement, Davies has been campaigning to persuade it to reverse the decision, including setting up the petition – which has now been signed by more than 500 people online and in person – and collecting photographs of supporters holding one of his campaign postcards.

He said: “The current system allows users the security of depending on receiving their funding from three different ‘pots’ – WILG, local authorities and our own personal contribution.

“This gives us a sense of security and ensures that we cannot be dictated to as mere passive recipients.

“Instead, all parties have to be in agreement about what will benefit the individual the most.

“This is something worth fighting for.”

But instead of this three-tier system, he said, the Welsh government had now “sold disabled people down the river.

“They are washing their hands of all responsibility for social care to former ILF recipients and transferring the pressure onto local authorities.”

A Welsh government spokeswoman told DNS in a statement: “Organisations that represent disabled people who have been recipients of the Independent Living Fund, recommended that their future support would be best provided through local authority social care provision, with consistent arrangements in place to support disabled people in Wales.”

But Disability Wales, which was part of the stakeholder advisory group the Welsh government consulted, has made it clear to DNS that it did not support passing funding to local authorities.

The Welsh government added: “We would be surprised if Disability Wales were suggesting that certain disabled people in Wales should have their support needs met in a different way to other disabled people.”

Davies said he believed the Welsh government had listened only to the local authorities on the advisory group.

He has been supported by the north-east branch of the Labour left-wing grassroots campaign Momentum and the Unite union in Wales.

But he said he was disappointed that Disability Wales – the national association of disabled people’s organisations in Wales – had not supported his campaign.

Miranda Evans, policy and programmes manager for Disability Wales (DW), said they were not able to support the petition – which is critical of the Labour party in Wales – because it was too party political.

But she stressed that DW’s preferred option was for a new Welsh independent living scheme – a Welsh version of ILF – that would protect those currently receiving WILG funding and would also be open to new members.

DNS has seen DW’s response to an early consultation on the Welsh government’s plans, and it makes it clear that none of DW’s members or the other disabled people it had consulted about the future of WILG were in favour of handing the funding directly to local authorities, and had instead “expressed strong opposition” to this.

It also stressed that such an option was “totally unacceptable to existing ILF recipients, their carers and other disabled people”.

Austerity policies have created a “human catastrophe” – UN Committee Chair condemns the UK’s record on human rights.

Deaf and Disabled People’s Organisations welcome the public unity of the UN Committee on the Rights of Persons with Disabilities in their clear criticism of the UK Government’s ‘grave and systematic violations’ of disabled people’s human rights.

Chairperson Theresia Degener in her closing questions stated, “Evidence before us now and in our Inquiry procedure as published in our 2016 report reveals that social cut policies has led to human catastrophe in your country, totally neglecting the vulnerable situation people with disabilities find themselves in.”

The Committee condemned the UK’s attempts to misrepresent the impact of policies through unanswered questions, misused statistics and a smoke screen of statements on policies and legislation which fail to implement the rights of disabled people in reality.

Committee member Coomaraval Pyaneandee said “[I] Want to see you come back as a world leader which at the moment, I’m afraid you are not, but DPOs I congratulate. [They] are in fact, the world leaders in your country.”

The UK Independent Mechanism further reinforced the concerns of DDPOs in their concluding statement which called for:

  • Gaps and inconsistencies in disability discrimination legislation to be addressed including the legal basis for British Sign Language
  • Steps to be taken to embed the CRPD in domestic law, maintaining the protections in the Human Rights Act
  • A coordinated approach to implementing the Convention and the Committee’s recommendations across the UK, with fully resourced and meaningful involvement of disabled people.

Tara Flood, Alliance for Inclusive Education and Reclaiming Our Futures Alliance said, “The UK’s track record on article 24 is not acceptable. The Chairperson made it clear and unequivocal that inclusive education is not a choice, it is a right. We are not surprised but always disappointed by UK Government’s lack of commitment to inclusive education for disabled children and their efforts to mask segregation.”

Devolved Nations also had the opportunity to address questions put to them by the Committee.

Patrick Malone, Disability Action Northern Ireland said, “It is not acceptable for the UK Government to hide behind lack of an Executive or Ministers for NI for the disparity of equality in legal protection for disabled people in Northern Ireland as compared to the rest of the UK. The Government must ensure that all of the disability provisions of the Equality Act 2010 are fully implemented in Northern Ireland as a matter of urgency.”

Rhian Davies, Disability Wales said, “We welcome Welsh Government’s commitment to a strengthened Framework for Action on Independent Living since much of the implementation of the UNCRPD is devolved to Welsh Government. However, as with the rest of the UK there is much more to be done in Wales in safeguarding disabled people’s human rights. This has been a historical week for the disabled people’s movement and one that we are proud to have played our part in.”

Sally Witcher, Inclusion Scotland said, “We wholeheartedly welcome the Committee’s comments on the UK. The government has not been allowed to get away with evasive responses which disregard the lived experiences of Deaf and Disabled people throughout the UK. We were disappointed that the opportunity was not available for Scottish Government to reply to all of the questions directed towards it, such as its plans to implement supported decision making for people with learning disabilities and how it will address the failings of the social care system. However, we anticipate opportunities to address these issues in response to the Committee’s concluding observations.”