Welsh Government

Motion – National Independent Living Support Service #NILSS

The following article was taken from the Disabled People Against Cuts (DPAC) website and is certainly something #SaveWILG campaigners will be supporting as we continue to work with the Welsh Government to formulate an independent living scheme.

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Disabled People Against Cuts and our allies in the Reclaiming Our Futures Alliance are campaigning for a National Independent Living Support Service capable of upholding disabled people’s rights to independent living and building on what was so effective about the Independent Living Fund before it was closed in spite of enormous opposition in June 2015.

Please call on your union branches and CLPs to pass motions supporting the campaign. Thanks to Sean McGovern for the wording of a suggested motion as below. If you would like someone to speak at your branch meeting please send details to mail@dpac.uk.net.

For information about our vision of a National Independent Living Support Service, download this document: NILS-summary-doc-2

 

National Independent Living Support Service Motion

There is no doubt that social care is in crisis. A crisis brought about by years of Conservative governments’ ideological austerity policies. Today we have a failing system unable to meet current need; and certainly, unfit to respond to predicted future growth.

Bringing social care under a struggling NHS umbrella is not the answer. Indeed, the overwhelming majority of disabled people with social care packages do not receive healthcare interventions through support packages. No, healthcare and social care serve very different kinds of need.

Therefore, this Conference calls upon a newly elected Labour government to establish a National Independent Living Support Service (NILSS). A Service:

  • that gives new universal right to independent living
  • enshrined in law and delivered through a new national independent living service co-created between government and Disabled people,
  • funded through general taxation and managed by central government,
  • led by Disabled people and delivered locally in co-production with Disabled people.

Marrying social care to the NHS further medicalises disability in addition to denying the very things that disabled people are crying for…Independence, Choice and Control – things only deliverable by the establishment of a National Independent Living Support Service.

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Wrexham man’s disability campaign will lead to thousands of lives being improved

The following article was taken from the Leader Live website. I am claiming no credit for writing this article which also appears in the Leader newspaper. 

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Improvements have been made to the way care is delivered for more than 1,000 disabled people in Wales to help ensure they get the support they need to live independent lives.

Local Assembly Member, Lesley Griffiths, has welcomed the Welsh Government’s latest announcement and congratulated Wrexham resident, Nathan Lee Davies, who headed a strong campaign and made representations to the Deputy Minister for Health & Social Services, Julie Morgan AM, on the matter.

Concerns regarding the Welsh Independent Living Grant (WILG) were initially raised when it was announced the responsibility for the scheme, which had been introduced after the abolition of the Independent Living Fund (ILF), was to be passed onto local authorities to manage from April this year. Nathan feared the changes would have a detrimental effect on his wellbeing and initiated the ‘Save WILG’ campaign.

The hard work has paid off as under the latest proposals, additional measures have been put in place to ensure nobody who was once in receipt of WILF, and its predecessor ILF, misses out as a result of the changes. An independent social work assessment will be offered to all former ILF recipients who are unhappy with their new care and support package and would like a second opinion.

The Welsh Government will provide additional funding to local authorities for the cost of the workers to carry out these independent assessments and additional care hours that may result from the assessments.

Lesley Griffiths AM said: “It was vitally important that people who previously received payments from the Welsh Independent Living Grant were not negatively affected by the transition. These latest measures will help ensure the new system is implemented properly, assuring levels of care and support throughout Wales are delivered consistently.”

“There’s no doubt the Save WILG campaign made a real difference. Having met with Nathan a number of times, it was always clear to see the extra stress and anxiety this was causing him. I am pleased to have helped facilitate the Minister’s meeting with Nathan in Wrexham and I hope all the individuals who feared they were going to be adversely affected are happy with the outcome.”

The £27m Welsh Independent Living Grant (WILG) was originally set up in 2015 following a decision by the UK coalition Government to close the Independent Living Fund.

Welsh Government consulted with partners to develop a long term strategy. A two-year transition period began in April 2017 in which all former ILF recipients in Wales who were now in receipt of payments under WILG would have their care needs assessed by their local authority to ensure a care plan was agreed and support package put in place.

While the transition period resulted in the majority of recipients being satisfied with the new arrangements, some former ILF recipients, who had not been subject to a care assessment since 2015, were concerned by the change in approach, with the reassessment causing tension in some cases.

The announcement by the Welsh Government aims to address the inconsistencies, with evidence suggesting the variation between local authorities warrants a change in direction and the Welsh Government has written to local government leaders to request a pause of the transition with immediate effect in order to bring in revised arrangements.

U-turn on disabled living grant welcomed by Plaid

The following article was taken from the Plaid Wrecsam blog. I take no credit for the article and thank everyone at Plaid for their support.

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Today sees a Plaid Cymru-initiated debate on the Welsh Independent Living Grant in the Senedd. 

Coincidentally, the Welsh Government yesterday announced it was pausing its controversial plans to axe the grant, which enables disabled people in Wales to live independently and manage their own affairs. The pause comes after relentless pressure coordinated by Wrexham campaigner Nathan Lee Davies and many others. The debate was intended to maintain the pressure on the Labour Government, which had decided to follow the Tory line in Westminster and axe the grant.

Responding to the decision by the Welsh Government to bring in revised arrangements for the Welsh Independent Living Grant, Leanne Wood AM, Plaid Cymru shadow minister for social justice said:

 

“The Welsh Government should just have the guts to admit it got this wrong from the very beginning. After the proposed changes are filtered through, we should have a situation where no disabled person has lost out on care. However, we will be spending considerably more money on administration and reviews to get to this point than if the Welsh Government had just adopted the Scottish and Northern Ireland approach of retaining the fund – as we argued for at the time. 

“The problems identified that have led to this suspension of the transition were entirely predictable and have caused disabled people a great deal of anxiety and stress. All because Welsh Labour have been too stubborn to listen to disabled people and their own party activists over the bureaucrats in local authorities.”

Llyr Gruffydd, Plaid Cymru AM for North Wales, has campaigned on behalf of WILG recipients for the past year and said:

“Without the tireless campaign of disability activists such as my constituent Nathan Lee Davies, it’s unlikely this U-turn would have happened. Disabled people would have faced yet another significant cut to the support they have and a loss to their independence. 

“Questions have to be asked about why the Welsh Government made the wrong decision in the first place and what it really says about how much it listens to disabled people. Where has the government been before now in acknowledging its proposals wouldn’t work?

“Coming twenty-four hours before Plaid Cymru’s debate to save the Welsh Independent Living Grant, they clearly did not relish defending their failed policy.”

 

Wales disability support cuts: ‘Second opinion’ offered by ministers

The following article is taken from BBC News online. I am not taking any credit for the article and the original piece can be accessed by clicking on this link. 

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Severely disabled people unhappy with their care package will be offered independent assessments, say ministers.

The Welsh Independent Living Grant (WILG) is being scrapped with councils taking over funding care for the more than 1,000 people receiving it.

Previous social care minister Huw Irranca Davies had insisted there would be “no losers” due to the changes.

But, in October, BBC Wales discovered around 100 of the 600 recipients reassessed had lost some support.

The research was conducted by the Wales Live programme.

On Tuesday, the Welsh Government said anyone wanting a “second opinion” could have an “independent social work assessment” and the move to the new system would be put on hold while new arrangements are put in place.

Plaid Cymru said the Welsh Government should “admit it has got this one wrong from the very beginning”.

Announcing the change in policy, Deputy Health and Social Services Minister Julie Morgan said: “It is paramount that people’s ability to live independently is not compromised by changes the care and support provided for people previously in receipt of the Welsh Independent Living Grant.

“These changes will ensure that is the case and deliver a consistent level of care and support across Wales.

The WILG was introduced in Wales to replace the UK-wide Independent Living Fund (ILF), which was closed down by the UK government in 2015.

“While the majority of former ILF [Independent Living Fund] recipients are receiving the same or more care as they were previously, a significant number have experienced a reduction in hours of support,” said Mrs Morgan.

“There is also considerable variation in the reductions in support.

“I have therefore written to local government leaders to request a pause of the transition with immediate effect in order to bring in the revised arrangements.

“This is a significant change of approach that ensures that the needs of former WILG recipients will be fully met, and that resources are no barrier to a full package of care and support.”

Julie Morgan
Image captionJulie Morgan campaigned for a change in the system as a backbencher

Mrs Morgan also announced that the Welsh Government would provide additional funding to councils for the cost of the workers to carry out these independent assessments and additional care hours that may result from the assessments.

The independent assessments will be consistent with people’s agreed “wellbeing outcome” and acknowledge the historical entitlement of former ILF recipients, she added.

Plaid Cymru’s Leanne Wood said the Welsh Government should “admit it has got this one wrong from the very beginning”.

“After the proposed changes are filtered through, we should thankfully have a situation where no disabled person has lost out on care.

“However, we will be spending considerably more money on administration and reviews to get to this point than if the Welsh Government had just adopted the Scottish and Northern Ireland approach of retaining the fund – as we argued for at the time.”

Huw David, Welsh Local Government Association social services spokesman, said: “In a time of austerity, any additional funding for social care is to be welcomed and I am pleased to see a commitment of extra investment from Welsh Government that will help to ensure the needs of former WILG recipients are fully met.

Local authorities would continue to work with ministers to address any concerns about the new system, he added.

Presentational grey line

Analysis

By Wales Live reporter Paul Martin

With an acknowledgement a “significant number” of people have had support cut, a guarantee of independent re-assessments, and extra cash for any increased care packages, this adds up to a pretty big shift.

It puts new Social Services Deputy Minister Julie Morgan at odds with her predecessor Huw Irranca Davies who had said the new council-run system would be fairer and that there would be “no losers.”

There are questions now about how easy this change will be, and how much it will cost.

But “Save WILG” campaigner Nathan Lee Davies – who won significant support at Welsh Labour conference – described it as “the perfect 42nd birthday present”.

Tweet #SaveWILG

Tired of Waiting… #SaveWILG

I’m too tired to write creatively today, but it is important that I let people know how I am after my blood clot scare.

I had woken on two consecutive  mornings with a badly swollen lower leg.  See pictures below:

I just thought this was a case of my sock being too tight, but after calling a Community Nurse to seek reassurance I was warned that this could in fact be a blood clot. I suddenly started to panic. My main concern was making sure I would be able to attend a crucial meeting for the #SaveWILG Campaign that we have lined up for Tuesday [12th of February].

I was rightly made to phone the Out Of Hours Doctor. I explained the situation and I was told that a doctor would be out to see me during the afternoon. The hours passed and I eventually received a telephone call  at 18.30. The doctor explained  that there was no point in him coming out to see me as he would need me to go to A&E to have a blood test and scan on suspect area. I did not want to go because I knew that this would mean hours of waiting while pointlessly staring into space…

The doctor insisted that I needed to go because if it was a clot it could have travelled to my lung. Suitably scared I spent my Saturday evening playing I Spy in A&E reception. This was good fun for the first couple of hours but as we entered our fifth hour of waiting I had lost the will to live.

I spy with my short sighted little fucking eye, something beginning with…

I had entered the hospital at 19.30 and I was being hoisted into bed at 03.00. The doctor finally examined me at 02.15 and then said there would be a further wait for the results of my latest blood test. I politely told him that I was unable to wait any longer and was going home to bed. I made sure that he had plenty of contact numbers for me and my family and wished him a good night. [TO BE CLEAR, I AM NOT HAVING A GO AT ANY OF THE NHS STAFF THAT WERE ON DUTY. AS ALWAYS THIS DEDICATED TEAM OF PROFESSIONALS WERE EXTREMELY HELPFUL IN THE FACE OF UNRELENTING PRESSURE AND STRETCHED RESOURCES].

After a solid 6 hours sleep, my PA phoned the hospital to try to discover the results of my blood test. She was given short shrift and told that it was highly unlikely that a doctor would promise to give out test results over the telephone. I was looking at a return to A&E as my leg had swollen yet again, as can be seen in the pictures above. After a morning of worry, I decided to phone A&E again myself. This time I spoke to another member of staff who had no problem in telling me that the blood test had come back negative. He reassured me that the test was 99% reliable.

I will still visit my GP in the morning as a matter of urgency. I need to have my circulation assessed and find out what exactly has been causing the swelling if it is not a clot. I will ask for the Occupational Therapist to be alerted to the problem in the hope that they might recommend something to stop this happening again.

This is just another piece of valuable evidence that shows that I cannot cope without 24/7 support in my own home. I know it, you know it, the Welsh Government know it, but Wrexham County Borough Council continue to bury their heads in the sand and deny me my human right to independent living.

I will continue to fight against the scrapping of the Welsh Independent Living Grant by the Welsh Government and carry on my crusade to achieve justice for all disabled people with high care and support needs across Wales.

 

Petitions Committee to discuss WILG #SaveWILG

I received this email about the Petitions Committee discussing the imminent closure of the Welsh Independent Living Grant and our efforts to save it on Tuesday morning (12th February). This day also marks an important meeting which I will keep under wraps for now and then I am off to Kimnel Bay to feature on Sound Radio to talk about the Campaign. Nowadays, I hardly complete a sentence without uttering the words Welsh Independent Living Grant.

The 12th of February also happens to be my birthday. Let’s hope the Committee can finally move towards writing a report on the future of WILG to put pressure on the  Welsh Government to protect disabled people and their families. The only way to do this is by maintaining and improving the Welsh Independent Living Grant and reinforcing the tripartite system. 

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Dear Petitioner

Your petition will be considered at our next meeting on Tuesday 12 February at 9.00.

I enclose a link to the Agenda and Public Papers for your consideration:

http://senedd.assembly.wales/ieListDocuments.aspx?CId=430&MId=5287&Ver=4 

A live broadcast of the meeting will be available on Senedd TV at:

http://www.senedd.tv/

Kind regards,

Petitions Committee

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