UK

BBC Report: Wales disability support cuts: People experiencing ‘real distress’ – #SaveWILG

Journalist Paul Martin really has played an important part in the #SaveWILG campaign by increasing awareness of the issue with the general public. He has always delivered well balanced articles that clearly show the failings of Welsh Government policy and Local Authorities.

His latest article on WILG can be read below or by clicking this link He has also produced a feature that will appear on BBC Wales Live this evening (23/01/19).

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A woman who cares for her severely disabled brother has said funding cuts have negatively affected her life, as pressure to change the system grows.

Jayne Newman, from Newport, said she was given “no reason” for a loss of support, which saw 15 hours of care for her brother Tommy cut.

MP Ian Lucas said changes to support for people who used to get a special grant were causing “real distress”.

Newport council said Mr Newman received a “generous” support package.

The Welsh Independent Living Grant (WILG) was introduced in Wales to replace the UK-wide Independent Living Fund (ILF), which was closed down by the UK government in 2015.

But WILG is being scrapped and the funding and responsibility for more than 1,000 people who received it transferred to Wales’ 22 local authorities, leading to fears of cuts to support.

More than 100 of the first 600 people who were assessed by their councils had their support reduced.

Jayne Newman
Image caption Jayne Newman said the level of care her brother needs was akin to looking after a baby 

Ms Newman, whose brother lives with her, said she was given “no reason” for the cuts of 15 hours per week, which equates to paying a carer for an overnight stay and five hours of day care.

“He needs total care, so he needs to be washed, dressed, shaved,” she said.

“He is now on a liquid diet which means it’s a bit like having a baby, we’ve got to give him hourly feeds to maintain his weight and wellbeing.

“As long as somebody is there he doesn’t really understand whether it’s me or one of the carers, so he doesn’t understand that the cuts have made a difference to my life.

“It’s like I have to be in every night by nine o’clock. I still want to have a life as well as look after my brother.

“They said they would work with you and not have it done to you and that’s not what happened.”

 

 

But Newport council said Mr Newman’s care package was “over and above” what he would have been allocated as a new case.

A spokesman said: “Although certain elements of the original package of care have been removed, they have been replaced with a more flexible package.

“There has been no significant reduction in the overall level of care that has been provided to the extent that it no longer meets his eligible needs.”

The minster responsible for overseeing the transition from WILG to council-run support, Huw Irranca-Davies, left government in December in new First Minister Mark Drakeford’s reshuffle.

Julie Morgan
Image caption Julie Morgan campaigned for a change in the system as a backbencher 

His replacement as deputy minister for health and social services, Julie Morgan, called for a review of the policy while on the backbenches, and Mr Drakeford said during his leadership campaign changes would be made if people were losing out.

Mr Lucas, the Labour MP for Wrexham, suggested a possible solution could be for those who have lost out to apply for a top-up from Welsh Government.

“I don’t think we’re going to have the same scheme that we had previously but I do expect a big improvement in the scheme as it exists at the moment,” he said.

“I think this is causing real distress for people who need help.

“We know that local authorities are under a lot of pressure and I don’t think they’re the right people to be administering those schemes.”

Welsh Government emails seen by BBC Wales Live show government officials were told by a “number” of councils “the overall cost of the support provided to people who have transitioned (to council funding) is more than the WILG funding transferred (from the Welsh Government to councils)”.

The Welsh Government said it was “reviewing progress rigorously to achieve a fair outcome” for all.

“It is paramount that a person’s ability to live independently is not compromised by the change in the way care and support is arranged for people previously in receipt of the WILG,” it said.

It added all money had been passed on to councils, and none had been reclaimed despite the number of eligible recipients falling.

Wales Live is on BBC One Wales at 22:35 on Wednesday.

UK Web Archive

I received the following email through the Contact page of this blog.  It sounds positive news to be archived by the National Library of Wales though I am unsure of how much credibility such an achievement holds? Are any old sites given this honour?  I prefer to think not and would like to think I can be proud that my blog has come to the attention of such an esteemed organisation.

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 The National Library of Wales would like your permission to provide public access to copies of your website held within the UK Web Archive.

The Library, working with our legal deposit partners, archives UK websites under the terms of the Legal Deposit Libraries (Non-Print Works) Regulations 2013. This content is collected at least once a year, building up an archive of UK websites as they change over time. Under legal deposit legislation, access to the archived content is restricted to the premises of the legal deposit libraries.

To highlight the importance of the archive, and to widen access to the archived content, we seek permission from selected website owners to provide public access to their content within the archive. Where permission is granted, access to the archived websites is made available freely across the web. The public archive can be seen at http://www.webarchive.org.uk.

If you are happy for your site to be made publicly accessible via the archive, please send an email to alb@llgc.org.uk in order for us to send you an online licence form.

Once your permission is granted, this will require no further effort on your part.

Information about legal deposit, copyright and how your archived website will be made available can be found in our FAQ pages at http://www.webarchive.org.uk/ukwa/info/faq.
Should you require any additional information, please do not hesitate to contact us.
We look forward to your hearing from you.

Kind regards

Aled Betts
Llyfrgellydd Cynorthwyol/Assistant Librarian
Datblygu Casgliadau/ Collection Development
Llyfrgell Genedlaethol Cymru/National Library of Wales Aberystwyth Ceredigion
SY23 3BU

(Something Inside) So Strong #SaveWILG

Dedicated to #SaveWILG campaigners everywhere.

To be fair to new First Minister Mark Drakeford, he is listening and making positive changes in the right direction. Solidarity to him and we look forward to working with the new look Welsh Labour in our quest to #SaveWILG.

The following song is about Apartheid in South Africa. Although I am not, in any way, trying to disrespect this, I do feel that this song has excellent lyrics that can also apply to the plight that disabled people find themselves in 21st Century Britain. I just feel it is a good rallying call to the 1,300 WILG recipients in the calamitous countdown to the end of the Welsh Independent Living Grant.

Things may look bleak at the moment, but the campaign is still going strong and we have some crucial irons with which to stoke the fire in the weeks ahead. Do not lose hope as things are certainly happening behind the scenes.

Please do not hesitate to contact me via the contact page above, or via Facebook or Twitter if you feel you can add to the campaign or would just like to find out more information.

 

According to Wikipedia, “(Something Inside) So Strong” is a 1987 single written and recorded by British singer-songwriter Labi Siffre. The song was one of the biggest successes of his career, and peaked at number four on the UK Singles Chart.[1]

The song was written in 1984, inspired by a television documentary on Apartheid South Africa seen by Siffre in which white soldiers were filmed shooting at black civilians in the street.[2] He told the BBC’s Soul Music programme in 2014 that the song was also influenced by his experience as a homosexual child, adolescent, and adult and his inner Chi.[3] Siffre originally intended to give the song to another artist to sing, but could find no one suitable and was convinced to release it himself.[2]

The song has remained enduringly popular and is an example of the political and sociological thread running through much of Siffre’s lyrics and poetry. It won the Ivor Novello Award for “Best Song Musically and Lyrically”, and has been used in Amnesty International campaigns, a television advertisement and Alice Walker‘s film against female genital mutilationWarrior Marks.

The song has been covered by many artists, including country singer Kenny Rogers who featured it on his 1989 best selling album of the same name, and also by Pop Idol contestant Rik Waller who reached #25 in the UK Single Charts with it in 2002.

The song was featured in an advertisement for the Peugeot 307 in 2001.

“(Something Inside) So Strong”

The higher you build your barriers
The taller I become
The farther you take my rights away
The faster I will run
You can deny me
You can decide to turn your face away
No matter, cos there’s….Something inside so strong
I know that I can make it
Tho’ you’re doing me wrong, so wrong
You thought that my pride was gone
Oh no, something inside so strong
Oh oh oh oh oh something inside so strong

The more you refuse to hear my voice
The louder I will sing
You hide behind walls of Jericho
Your lies will come tumbling
Deny my place in time
You squander wealth that’s mine
My light will shine so brightly
It will blind you
Cos there’s……

Something inside so strong
I know that I can make it
Tho’ you’re doing me wrong, so wrong
You thought that my pride was gone
Oh no, something inside so strong
Oh oh oh oh oh something inside so strong

Brothers and sisters
When they insist we’re just not good enough
When we know better
Just look ’em in the eyes and say
I’m gonna do it anyway [x4]

Something inside so strong
And I know that I can make it
Tho’ you’re doing me wrong, so wrong
You thought that my pride was gone
Oh no, something inside so strong
Oh oh oh oh oh something inside so strong

Brothers and sisters
When they insist we’re just not enough
When we know better
Just look ’em in the eyes and say
I’m gonna do it anyway [x4]

Because there’s something inside so strong
And I know that I can make it
Tho’ you’re doing me, so wrong
Oh no, something inside so strong
Oh oh oh oh oh something inside so strong

WALESPOSTCARDFRONT001

Pete Shelley Tribute: Day 2

On my Facebook page I am posting a week long tribute to the late, great Pete Shelley and I thought I would post these on my Blog as well so that as many people as possible can enjoy his music.

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Day 2 of my tribute to the late, great Pete Shelley features the first Buzzcocks album I ever bought. It signalled the start of my love affair with the band and specifically the bittersweet lyrics of Shelley. This album was the soundtrack to my teenage years and I seemed to be able to relate to every song…

According to WikipediaSingles Going Steady is a compilation album by English punk rock band Buzzcocks, first released on I.R.S. Records in the US on 25 September 1979.[2] It was the first Buzzcocks album to be released in North America and intended as an introduction to the band for the American public, coinciding with a US tour. After healthy sales on import in the UK over the next two years, and following the group’s split in early 1981, the album was belatedly released in the band’s home country on United Artists Records on 16 November 1981[3] as a ‘greatest hits’ album. However, as in the US, the album failed to chart.

Side one of the original release of the album featured their eight UK single releases from 1977 up to the time of Singles Going Steady‘s release in 1979 in chronological order, while side two featured their corresponding B-sides, also in chronological order. The album was reissued in expanded form on compact disc in 2001 with an extra eight tracks, featuring the A-sides and B-sides of Buzzcocks’ four singles released between Singles Going Steady and the group’s break-up.

Disability News Service: Ministers ‘failing to uphold a UN disability convention they do not understand’

The following article was taken from the excellent Disability News Service website, written by John Pring.  This blogger takes no credit for the article below:

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Government ministers are failing to uphold the rights of disabled people, ignoring the need to engage with disabled people’s organisations, and do not understand the UN’s disability convention, according to a new report.

The highly-critical report has been compiled by disabled people’s organisations (DPOs) across the UK and submitted to the UN’s committee on the rights of persons with disabilities.

It analyses how the UK and devolved governments have responded to key parts of last year’s highly-critical report by the committee on the UK’s progress in implementing the UN Convention on the Rights of Persons with Disabilities (UNCRPD).

The new report includes some criticism of the devolved governments of Scotland and Wales – and raises concerns about the impact of the continuing political impasse over the Northern Ireland Executive – but most of its concerns are directed at the UK government in Westminster.

The UK government, the report says, is responsible for “continuing retrogression and re-institutionalisation” of disabled people and continues to disagree with the UN committee’s findings and recommendations.

It adds: “We have concerns that the UNCRPD is not embedded within government and is poorly understood at all levels, including ministerial.”

It provides the example of international development secretary Penny Mordaunt, who appeared to try to redefine the meaning of inclusive education at the government’s Global Disability Summit in July, telling the international audience that inclusive education meant “that everyone has an education and it is done in a way to reach their full potential”.

The report says that many of the concerns raised by DPOs last year in their evidence to the UN committee remained a “significant problem”, with disabled people still subject to “tightening eligibility” for support, the removal and sanctioning of benefits and the bedroom tax.

It also raises concerns about the continuing rollout of universal credit (UC) and says DPOs are “gravely concerned” at the failure to assess the access needs of disabled people due to be moved onto UC and the lack of the necessary data to monitor its impact.

It warns that the social care funding crisis has led to the removal of further essential independent living support for disabled people and the closure of community services for people with mental distress, while increasing social care charges are leaving thousands of disabled people in debt or choosing to pull out of receiving support completely.

The DPOs also point to the chronic shortage of accessible housing in England, with new housing for disabled people often limited to segregated supported housing complexes.

And the report says that the number of disabled children being forced into special schools is rising, while budget cuts are reducing the quality of inclusive education, and the number of disabled pupils left without any educational placement at all has risen, as has the number of disabled pupils excluded from school.

Among the DPOs that contributed to the report are the Alliance for Inclusive EducationDisability Action (Northern Ireland)Disabled People Against CutsDisability WalesInclusion LondonInclusion Scotland, the Reclaiming Our Futures Alliance and Sisters of Frida.

They make 22 recommendations of their own that are aimed at the UK government, including calling for: a new legal right to independent living; the abolition of charging for social care; an end to the practice of placing disabled children and young people in long-stay hospitals; and a new social security system that is based on “an accurate analysis of need” and is “consistent with a human rights approach to disability”.

There are also four recommendations for the Welsh government – including a call to incorporate the UNCRPD into Welsh law – and six for the Scottish government, including the need for a national strategy on the provision of accessible housing.

The DPOs conclude that examples of “progressive” policy-making have been restricted to the devolved governments of Scotland and Wales, although the two executives are “not without room for improvement” themselves.

There is also repeated criticism in the report of the UK government’s “inadequate engagement” with DPOs and its failure to recognise the importance of consulting disabled people.

The report says that “engagement with non-user-led charities is continuously prioritised over engagement with DPOs”, while requests by DPOs to meet ministers “are frequently turned down”.

It also says that engagement with the UK government is “undermined by an increasing lack of trust”, and warns that “without trust, consultation and engagement cannot take place in ‘good faith’”.

The report does welcome one measure taken by the UK government, the increased funding for disabled facilities grants, although it warns that “delays in processing applications can still be a problem for under-resourced local authorities”.

This week’s report follows the publication of the government’s own progress report last month.

The DPO report is highly critical of the government’s progress report, accusing it of effectively ignoring many of the UN committee’s recommendations.

One of the recommendations ignored, it says, was to carry out a cumulative impact assessment (CIA) of its cuts and reforms on disabled people, with the UK government continuing to insist that this is not possible.

It points out that the Equality and Human Rights Commission (EHRC) published a CIA earlier this year, while the Greater London Assembly is conducting its own CIA for London “using the same methodology as the EHRC”, and both the Scottish and Welsh governments are “exploring carrying out their own”.

There is also frustration at the government’s failure to follow up the UN committee’s recommendation that it should devise a “comprehensive” plan aimed at the “deinstitutionalisation” of disabled people, in “close collaboration” with DPOs.

Meeting in Parliament #SaveWILG

I am enjoying this politics lark and on October 25th I shall be attending a crucial meeting in The Houses of Parliament as we continue to fight for the rights of disabled people across the UK.

Working together to implementing the United Nations Convention of the Rights of Persons with Disabilities (UNCRPD)
Committee Room 4, Houses of Parliament
3.30 – 5pm Thursday 25th October 2018
Hosted by Lord Colin Low
 
 Speakers to include representatives from the Reclaiming Our Futures Alliance, Disability Wales, Inclusion Scotland, Disability Action (Northern Ireland), Marsha de Cordova (Shadow Minister for Disabled People) and Stephen Lloyd (Liberal Democrat Spokesperson Work and Pensions) and others to be announced.
 
 In July 2018 the UK government co-hosted a global disability summit in London with the aim of securing international commitments to upholding the rights of Disabled people under the UNCRPD.  Meanwhile Deaf and Disabled people and our organisations remain concerned about retrogression under the UNCRPD within the UK.
 
Twelve months on from the Concluding Observations in the routine public examination of the UK under the UNCRPD, Government, equality commissions and civil society have been required to report back to the UN disability committee. This meeting will launch the alternative reports by UK Deaf and Disabled People’s Organisations and be an opportunity to discuss how government, Parliamentary allies, and civil society can work together to implement the UNCRPD within the UK.
 
BSL interpretation and a palantypist will be provided. For more information or to book a place please contact ellen.clifford@inclusionlondon.org.uk.
 
 

Disability Wales Conference 2018 – #SaveWILG

I am likely to have a busy schedule for the next few months – indeed it has been busy for the last 3 years, but we are coming to the zenith of the campaign – and the #SaveWILG campaign was represented by myself at the Disability Wales Conference and AGM at the Ramada Plaza, Wrexham on Friday 12th October.

Please find below the press release for the conference. I feel I spoke well and got my points across to Paul Deer of the Welsh Government who was sitting on the panel of experts.  I was then given the opportunity to address the conference after lunch.

An enjoyable and constructive day was rounded off with drinks in the pub with a close comrade. I only hope all this hard work is being listened to by those who can make a difference…

 

PRESS RELEASE

Equal Before the Law?

Making Legislation Work for Disabled People

 Today at the Ramada Plaza in Wrexham, Disability Wales is hosting a national conference themed on equality and human rights legislation; and whether disabled people are actually experiencing their rights along with everyone else.

Rhian Davies, Chief Executive Disability Wales states:

“In the wake of UK Government austerity measures, disabled people in Wales and across the UK continue to face serious regression of many of their hard-won rights. Disability Wales Annual Conference will provide a timely opportunity to hear from expert speakers about how disabled people can utilise equality and human rights laws to tackle barriers to independent living”

The facts:

Disabled people make up 26% of the population in Wales, which has a higher proportion of disabled people than other nations and most regions of the UK.  (Papworth Trust 2016)

Disabled people face a higher cost of living than non-disabled people, a cost which is rising year on year.b

Around a third of disabled people experience difficulties accessing public, commercial and leisure goods and services.

(ONS and Stats Wales)

Lesley Griffiths AM Cabinet Secretary for Energy, Planning and Rural Affairs will provide a key note address and outline the Welsh Government’s Draft Framework for Action on Disability: the Right to Independent Living.

“Cabinet Secretary for Energy, Planning and Rural Affairs Lesley Griffiths said: “We want to make sure disabled people have access to the same opportunities as everyone else. Next month we will be publishing our new Framework which sets out how we are addressing social barriers to equality and inclusion.

“It will be accompanied by an action plan to tackle some of the key barriers identified by disabled people themselves, including transport, employment, housing and access to buildings and places.

 “This is a result of a great deal of engagement over nearly two years with disabled people and the organisations that represent them and I want to thank everybody who has helped in this process.”

Conference delegates will also hear from Simon Hoffman Associate Professor at the College of Law and Criminology at Swansea University.  Simon will talk about Progress made on the incorporation of Human Rights in Wales.

Disabled activist and campaigner Doug Paulley will enlighten the conference on how he has challenged the discrimination he’s encountered using legislation.  Doug has brought more than 40 legal cases against organisations that discriminated against him including bus and train companies.

Doug said:

“Fighting disability discrimination takes its toll on you.  The constant battle with service providers to get what I am lawfully entitled to has affected my mental and physical health”

“So, the enforcement mechanism of the Equality Act is fundamentally broken, for me and for all disabled people. Despite this, I’ve produced a guide showing how I have occasionally managed to enforce my rights through the courts, and hopefully to help a few other disabled people do so too.”

Ellen Clifford, Campaigns and Policy Manager for Inclusion London will share her vast experience of campaigning for the rights of disabled people.

The event will be chaired and facilitated by Rhian Davies, Chief Executive of Disability Wales. Questions to the panel and round-table discussions will provide an opportunity for lively debate.

The audience includes disabled people and their allies, representatives of Disabled People’s Organisations, third sector and both local and national government bodies.

 *ENDS*