Social Services and Well-being (Wales) Act

Writing to local newspapers…

I have written the following letter to a number of local newspapers across Wales, urging the Welsh Government to reconsider their decision to close the Welsh Independent Living Grant (WILG).The campaign for justice continues…

If you wish to write a letter in support of this campaign, use the following emails:

This is the email that I fired off in the hope that people will read it and take notice of what is going on. It is worth a go.

 

I am writing as a recipient of the Welsh Independent Living Grant (WILG) and a disability activist who intends on asking Welsh Labour to reconsider their decision to close WILG as of April 2019. This payment was introduced to help people who previously claimed from the UK government’s Independent Living Fund (ILF), which closed in 2015.

WILG was due to run until the end of March 2017, but Social Services Minister Rebecca Evans said in November that funding would continue for another year.

The annual £27m fund will then transfer directly to local authorities during 2018-19 so they can meet the support needs of all former ILF recipients by 31 March 2019.

Something needs to be done as our disabled friends in England have suffered under a similar system that has seen local authorities being solely responsible for their care and support since 2015. This cannot be allowed to happen in Wales as well. Disabled people must organise themselves and demand to be listened to.

The Welsh Government said the decision was taken on stakeholder advice. The majority of representatives on the stakeholder group were third sector or citizens who didn’t want WILG scrapped. The key point is that the advice of disabled people was ignored.

This is the time to fight back as Welsh Labour are basking in the glory of Jeremy Corbyn’s success in the recent General Election. The prevailing mood has changed and Welsh Labour have apparently made a significant shift to the left. Surely, Welsh Labour will want to distance themselves from a decision that mirrors the one made by the Tory Government in 2010?

It should also be remembered that closure of WILG is not inevitable as is proved through the formation and success of the Scottish Independent Living Fund; which also works to support the Northern Ireland ILF.

Furthermore, the hugely popular Labour Party Manifesto outlined plans to set up a national care system to exist independently of local authorities. This is exactly the time that the Labour Party should be united on such issues against the Tories. We must question why Welsh Labour are not playing their part in the changing political landscape?

They will no doubt argue that we should give the Social Services and Well-being (Wales) Act a chance to succeed. However, this idealistic act needs hefty investment and resources to ensure it is a success – with no sign of any of the necessary improvements to our infrastructure that the success of the Act depends on. This may indeed be the time for a revolutionary change in the way social care is delivered, but such a transformation could take a decade or more and WILG recipients do not deserve to be treated like guinea pigs when their high care and support needs require long-term stability and structure. 

Indeed, eventually it should be our aim to set up an Independent Living Fund for Wales so that no disabled person should have to suffer the same uncertainty and isolation as WILG recipients are now experiencing. We can only begin to believe that true social justice and equality for all is possible if Welsh Labour revisit their WILG decision…

There are a number of ways that WILG recipients, family members and personal assistants can help to make a difference. Those concerned can sign the petition that has currently received almost 250 signatures, take part in the postcard campaign that is being orchestrated across social media and put pen to paper to their local AM. To find out more about these projects, please contact Nathan Lee Davies at nathandavies01@hotmail.com or search Facebook for the Save the Welsh Independent Living Grant (WILG) page. Twitter users can find me on @nathanleedavies or you can find all the information about this campaign on my blog at https://nathanleedavies.wordpress.com/

Thank you for your time.

Nathan Lee Davies, Wrexham

Briefing on the Welsh Independent Living Grant (WILG)

Briefing on the Welsh Independent Living Grant (WILG)

Background:

The Welsh Independent Living Grant (WILG) was introduced by Minister for Health and Social Services, Mark Drakeford AM to help people with high care and support needs who previously claimed from the UK government’s Independent Living Fund (ILF), which closed in June 2015. More than 1,500 people are helped by the scheme across Wales.

The grant was only ever meant to be a short-term measure as Mark Drakeford wanted to give further thought to three longer-term options to identify which one might best deliver effective support, despite the difficult financial position.”

These options included the possible extension of current arrangements, a potential arrangement with the body set up in Scotland to provide payments to former ILF recipients there to do the same for Welsh recipients and, as in England, to transfer the funding to local authorities in Wales to bring ILF recipients within the arrangements for providing care and support set out under the Social Services and Well-being (Wales) Act 2014 for disabled people more generally.

Substantial time and money was spent on a consultation that overwhelmingly showed support for either a partnership with the Scottish ILF or a continuation of WILG – anything rather than distribute the funds solely to local authorities and end the reliability of three-way funding between government, local authority and personal contribution…

 

November 2016:

The new Minister for Health and Social Services, Rebecca Evans AM, decided that the £27 million-a-year provided by the UK government to support former ILF-users in Wales will be passed directly to councils.

There will be no new Welsh ILF – even though such a scheme has been set up in Scotland – and no continuation of the Welsh Independent Living Grant (WILG) scheme the Welsh government has been running as a stopgap since the fund closed in June 2015.

Instead, Evans said that funding for WILG would continue in its current form through 2017-18, but would transfer to local authorities during 2018-19. All former ILF-recipients will have their support needs met solely by their local authority by 31 March 2019.

In addition, the Welsh government has not yet made it clear whether the funding it will transfer to local authorities during 2018-19 will be ring-fenced for former ILF-recipients, or even for social care spending.

 

Why we oppose this decision: 

The Welsh Government said the decision was taken on stakeholder advice. The majority of representatives on the stakeholder group were third sector or citizens. Disabled people, their families and support workers didn’t want WILG scrapped and the key point is that our advice was not accepted.​

It should also be remembered that closure of WILG is not inevitable, as is proved through the formation and success of the Scottish Independent Living Fund; which also works to support the Northern Ireland ILF.

Furthermore, the hugely popular Labour Party Manifesto outlined plans to set up a national care system to exist independently of local authorities.

This is exactly the time that the Labour Party should be united on such issues against the Tories. We must question why Welsh Labour are not playing their part in the changing political landscape?

Indeed, eventually it should be our aim to set up an Independent Living Fund for Wales so that no disabled person should have to suffer the same uncertainty and isolation as WILG recipients are now experiencing. We can only begin to believe that true social justice and equality for all is possible if Welsh Labour revisit their WILG decision.

In a written statement in February 2016, Mark Drakeford AM said: “The level of recurrent funding being transferred to the Welsh Government from the UK Government to meet this responsibility is flat-lined at £27 million per year. This is sufficient to be able to maintain recipients’ payments at the same level as when the ILF was closed. There is, however, no scope to fund a change in a person’s needs or for any changes in the cost of the support they require. Neither does this transfer include any element for the administration or set-up costs associated with the arrangements to provide support we operate in Wales. Such costs would have to be top-sliced from the £27 million per year thereby reducing the level of the payments we were able to afford. As a result, this level of transfer greatly restricts the options we are able to consider for providing support to recipients in the longer term.”

To an extent, we sympathise with this situation and recognise that funding difficulties have their roots in Westminster. However, a strong government should provide for and protect those they represent, instead of washing their hands of responsibility of those in need while passing the buck to over-stretched local authorities and frittering millions on harebrained schemes such as north Wales metro. People should be prioritised over profit.

Welsh Labour will no doubt argue that we should give the Social Services and Well-being (Wales) Act a chance to succeed. However, this idealistic act needs hefty investment and resources to ensure it is a success. At the moment, there is no sign of any of the necessary improvements to our infrastructure that the success of the Act depends on. This may indeed be the time for a revolutionary change in the way social care is delivered, but such a transformation could take a decade or more and WILG recipients do not deserve to be treated like guinea pigs when their high care and support needs require long-term stability and structure.​

 

Call Out To Welsh Independent Living Grant (WILG) Recipients

I am writing as a recipient of the Welsh Independent Living Grant (WILG) and a disability activist who intends on asking Welsh Labour to reconsider their decision to close WILG as of April 2019. I would like to hear from other WILG recipients in the hope of holding a series of public/virtual meetings to discuss how we can best oppose this closure and create a pressure group to support each other through this worrying time.

The WILG was introduced to help people who previously claimed from the UK government’s Independent Living Fund (ILF), which closed in 2015.

More than 1,500 people are helped by the scheme.

It was due to run until the end of March 2017, but Social Services Minister Rebecca Evans said in November that funding would continue for another year.

The annual £27m fund will then transfer directly to local authorities during 2018-19 so they can meet the support needs of all former ILF recipients by 31 March 2019.

Something needs to be done as our disabled friends in England have suffered under a similar system that has seen local authorities being solely responsible for their care and support since 2015. This cannot be allowed to happen in Wales as well. We must organise ourselves and demand to be listened to.

The Welsh Government said the decision was taken on stakeholder advice. The majority of representatives on the stakeholder group were third sector or citizens. But they didn’t want WILG scrapped and the key point is that our advice was not accepted.​

This is the time to fight back as Welsh Labour are basking in the glory of Jeremy Corbyn’s success in the recent General Election. The prevailing mood has changed, Teresa May has ended austerity and Welsh Labour have made a significant shift to the left. Surely, Welsh Labour will want to distance themselves from a decision that mirrors that made by the Tory Government?

It should also be remembered that closure of WILG is not inevitable as is proved through the formation and success of the Scottish Independent Living Fund; which also works to support the Northern Ireland ILF.

Furthermore, the hugely popular Labour Party Manifesto outlined plans to set up a national care system to exist independently of local authorities. This is exactly the time that the Labour Party should be united on such issues against the Tories. We must question why Welsh Labour are not playing their part in the changing political landscape?

They will no doubt argue that we should give the Social Services and Well-being (Wales) Act a chance to succeed. However, this idealistic act needs hefty investment and resources to ensure it is a success – with no sign of any of the necessary improvements to our infrastructure that the success of the Act depends on. This may indeed be the time for a revolutionary change in the way social care is delivered, but such a transformation could take a decade or more and WILG recipients do not deserve to be treated like guinea pigs when their high care and support needs require long-term stability and structure.​ 

Indeed, eventually it should be our aim to set up an Independent Living Fund for Wales so that no disabled person should have to suffer the same uncertainty and isolation as WILG recipients are now experiencing. We can only begin to believe that true social justice and equality for all is possible if Welsh Labour revisit their WILG decision…

WILG recipients who wish to help make a difference should contact nathandavies01@hotmail.com

Further reading is available below:

http://www.bbc.co.uk/news/uk-wales-politics-38385381?SThisFB

http://www.disabilitynewsservice.com/welsh-government-has-sold-disabled-people-down-the-river-on-post-ilf-plans/

Written statement by the Welsh Government

Future Arrangements in Wales to Support Former Independent Living Fund Recipients

By Mark Drakeford AM, Minister for Health and Social Services

Members will know from my Written Statement of 13 March last year that following the outcome of the UK Government’s spending review, I was to reconsider the options for providing long term support to those in Wales who used to receive payments from the Independent Living Fund (ILF). These payments were to help disabled people meet the additional costs of living independently in the community. This is to update Members on the arrangements to provide this support in 2016-17 and on the potential options for support in the longer term that are being developed further.

 
The UK Government closed the ILF on 30 June last year and transferred responsibility for providing support to ILF recipients in Wales to the Welsh Government. To provide continuity of support, I put in place for the short-term a grant scheme with local authorities – the Welsh Independent Living Grant (WILG) – to run until at least 31 March 2017. Under this, £20.4 million was provided to authorities in 2015-16 to enable them to maintain payments to former ILF recipients at the level they used to receive from the ILF. The WILG has worked well with disabled people who used to receive payments from the ILF receiving these from their local authority instead, with the minimum of issues raised. I must record my thanks to local authorities for achieving this.

 

Following the UK Government’s spending review, I can now confirm that the Welsh Government’s draft budget for 2016-17 contains £27 million to enable the WILG to continue until 31 March 2017 as planned. This is welcome news for recipients as local authorities will be able to continue to provide their payments next financial year at the level they used to receive from the ILF at the time it closed. This will continue to assist in their ability to live independently in the community. As soon as the Welsh Government’s final budget for 2016-17 is agreed, officials will issue grant allocations to authorities to enable payments to be made during 2016-17 on time.

 

Looking ahead the level of recurrent funding being transferred to the Welsh Government from the UK Government to meet this responsibility is flat-lined at £27 million per year. This is sufficient to be able to maintain recipients’ payments at the same level as when the ILF was closed. There is, however, no scope to fund a change in a person’s needs or for any changes in the cost of the support they require. Neither does this transfer include any element for the administration or set-up costs associated with the arrangements to provide support we operate in Wales. Such costs would have to be top-sliced from the £27 million per year thereby reducing the level of the payments we were able to afford. As a result, this level of transfer greatly restricts the options we are able to consider for providing support to recipients in the longer term.

 

In light of this, I have asked my officials to work with stakeholder representatives to develop detailed options for long term arrangements, beyond 31 March 2017. These will include the possible extension of current arrangements, a potential arrangement with the body set up in Scotland to provide payments to former ILF recipients there to do the same for Welsh recipients and, as in England, to transfer the funding to local authorities in Wales to bring ILF recipients within the arrangements for providing care and support set out under the Social Services and Well-being (Wales) Act 2014 for disabled people more generally. Further options can be considered as they arise in stakeholder discussions, but all would have to operate within the £27 million per year provided for this purpose by the Westminster Government. All would also have to pass the test of maximising the proportion of that £27 million which would go to support recipients, rather than the cost of administration. The work set out above will be carried out as quickly as is possible so that the incoming Welsh Government can make a decision early in its term as to which of these options to implement. This is to ensure that sufficient time is available later this year and next to consider and put in place future arrangements so that these are in place in good time for when the current WILG is due to end on 31 March 2017.

 

I will, of course, ensure Members are kept informed of progress.

Open letter to Debbie Abrahams – shadow minister for disabled people

Dear Ms Abrahams

I am writing to you in your role as shadow minister for disabled people about the on going struggles across the UK to protect Independent Living for all.

As a disabled activist I have been campaigning for the rights of disabled people to independent living in Wales.  Recently we have received promising news that we are moving towards a brighter future with the forthcoming Social Services and Wellbeing Act and the fact that the Welsh Independent Living Grant has been continued until March 2017.  Please visit my blog, using the link below, to find out more information.

https://nathanleedavies.wordpress.com/2015/12/19/in-response-first-minister-carwyn-jones-am/

Even though there is more work to be done I am fortunate that I live in Wales as Welsh Labour are providing hope for the future. Whether this hope is well-placed remains to be seen. Scotland and Northern Ireland have superb Independent Living Funds in place for disabled people, but this does not mean that we should forget about the struggles of our friends in England. I am not an expert on the situation in England though I believe local authorities have received a monetary transfer of the Independent Living Funds, but the amount of support provided varies from authority to authority. What once was an independent scheme to protect and enhance the lives of all disabled people has now become nothing short of a disgusting postcode lottery.

I am therefore writing to you to ask what is being done to fight back against Tory decimation of welfare and equality?  I feel that this is such a big issue as disabled people fought for years to be treated as a valuable part of their communities.  For this to be taken away under the guise of ideological austerity is no less than social cleansing.  Shouldn’t your party be standing up for the rights of disabled people in the face of such unsympathetic treatment by the Tories?

Since Jeremy Corbyn has been leader of your party much good has been done such as the victory on tax credits and the prevention of cuts to the police service.  Are you able to do more to help bring the plight of disabled people to the public attention and ensure their rights to control, dignity and equality are met?

Speaking at the time of the closure of the ILF, Jeremy is quoted as saying:

“Today will be a day of deep anguish for many disabled people and their carers, as the government closes the Independent Living Fund. I have supported the campaign to save the ILF from the start and pledge to support its reinstatement.”

I believe your party needs to reaffirm your position on ILF and provide reassurance that the ILF system will be re-introduced nationally under a Labour government.  Sure, we have made progress in Wales but we shouldn’t have to go through such stress and I don’t believe the right to live independently should depend on where you live.  A UK-wide national system is what is needed for disabled people to look to the future with unequivocal confidence and security – wherever they reside.

Many thanks for your time and I look forward to hearing from you soon.

Nathan Lee Davies
https://nathanleedavies.wordpress.com/

In Response: First Minister Carwyn Jones AM

I received the third response to my letter to the four main political party leaders in Wales from First Minister Carwyn Jones AM of Welsh Labour. I thank him for his reply to my concerns over the future of the Welsh Independent Living Grant (WILG), which I have shared below.

***

Dear Nathan

I am writing in response to your e-mail of 30 November in which you expressed your concern over the future support provided to disabled people in Wales. You asked about the continuation of the Welsh Independent Living Grant (WILG) which we put in place to replace the Independent Living Fund (ILF) which was closed this year by the UK Government.

The Welsh Government is committed to supporting disabled people in Wales to live as independently as possible. The new social services legislation we are introducing from April next year, the Social Services and Well-being (Wales) Act 2014, has at its core the requirement for local authorities to support people who require care and support in a way which maximises their ability to live independently. Such care and support should be delivered in a way which provides them with the voice and control over how this is achieved. Never is this more pronounced than with the provision of direct payments under the Act, where we have extended the circumstances where direct payments can be provided and the range of people who are able to receive these. Through the Act, and the regulations and codes of practice we are making under this, disabled people in Wales will receive care and support in future which enables them to live in the way they wish and to receive the care and support they require to achieve this in the way they also wish.

With the closure of the ILF on 30 June by the UK Government, the Minister for Health and Social Services, Mark Drakeford AM, announced earlier this year that he was putting in place a grant scheme with local authorities (the Welsh Independent Living Grant – WILG) to ensure that ILF recipients in Wales continued to receive the level of financial support they received from the ILF before its closure. This was to ensure that recipients could continue to live as independently as possible in the community.

As he confirmed at the time, subject to the outcome of the UK Government’s spending review, the grant will continue to at least until March 2017 while he considers the options for the longer term provision of support to recipients. As a result of that review, I can confirm that the Welsh Government’s draft budget for 2016-17 contains £27 million to enable the WILG to continue to March 2017 as planned.

I understand that the Minister for Health and Services will shortly be engaging with representatives of stakeholders to identify the best way of providing support in future. This will be in the light of the public consultation held earlier this year. This is to ensure that future arrangements are in place for when the current grant concludes in 2017.

Yours sincerely

CARWYN JONES 

Bae Caerdydd • Cardiff Bay English Enquiry Line 0300 0603300

***

This is WONDERFUL news. The best Christmas gift I could have asked for as now I have it in writing that WILG will continue to March 2017 as planned. Result 🙂

Cynics might see it as a simple stay of execution and fear that I’ll be in the same situation this time next year. It is correct that such concerns should be aired and I accept that there is still a lot of hard work to be done to ensure independent living for all, but I take great heart from the protection and control provided to disabled people in the forthcoming Social Services and Well-being (Wales) Act 2014. This Act “has at its core the requirement for local authorities to support people who require care and support in a way which maximises their ability to live independently”.

As I type the future seems a little brighter. I must keep my eye on the ball and continue to fight to secure long-term assurances for disabled people, but I  can now forge forward with hope in my heart.

I now have little option, but to simply observe developments in the run-up to the May 2016 elections and enter the purdah period – the time between an announced election and the final election results. The time period prevents central and local government from making announcements about any new or controversial government initiatives (such as modernisation initiatives or administrative and legislative changes) which could be seen to be advantageous to any candidates or parties in the forthcoming election.

This also brings me to the question of who I should vote for. I know that I won’t be backing the Welsh Conservatives or UKIP as I am not a fascist, racist, sexist moron, but Welsh Labour, Plaid Cymru and the Welsh Liberal Democrats all have strong appeal. Thank heavens for our complicated proportional representation voting system. Find out more about the voting system for National Assembly for Wales elections.

I can only have faith that Welsh voters are not as blinkered as their English counterparts and see through right-wing propaganda. Whoever I decide to back though, I have the opportunity to mull things over while living independently with dignity and contributing to society.

* I am not in the least bit surprised that the only party leader that hasn’t replied to my letter is the head of the Welsh Conservatives. I will stop typing now before I get myself in trouble…

Press Release: Disability Wales at risk of closure following funds shake-up

PRESS RELEASE
 
Disability Wales at risk of closure following funds shake-up
 
Following a Welsh Government funding change, as from the 1st of April 2016, DW will lose 68% of its income after its recent application to the Sustainable Social Services Third Sector Grant Scheme was turned down and risks closure in less than four months’ time.
 
Rhian Davies, Chief Executive of Disability Wales explains:
 
Since 1972 Disability Wales (DW) has received core funding from the Welsh Government’s Department for Health and Social Services to enable it to represent the voice of members with the aim of informing and influencing government policy. It has enabled DW to successfully influence priority issues for members such as Independent Living, Hate Crime and Access to the High Street as well as providing information and support to disabled people’s organisations around Wales.
 
Welsh Government decided to replace core funding arrangements to national third sector organisations with a new project based grant scheme called the Sustainable Social Services Third Sector Grant. The narrower focus of this grant aimed at delivery of social care services meant that DW as a rights and equality based umbrella organisation no longer fitted the funding criteria.”
 
Wendy Ashton, Chair of Disability Wales states:
 
“Losing the core grant from Welsh Government is a devastating blow particularly at a time when disabled people, who make up one fifth of the Welsh population, are experiencing cuts both to benefits and services.
 

In his speech to DW’s Annual Conference on 8 October, the Minister for Health and Social Services Prof Mark Drakeford AM paid tribute to the ‘impact’ which Disability Wales has had on the new Social Services and Well-being Act as well as the ‘exciting projects’ it is delivering including the development of citizen-led co-operatives to support people with managing their Direct Payments.
 

Disabled people form one fifth of the Welsh population and face higher levels of poverty than any other group of people with protected characteristics, a situation worsening by the day following continued UK government cuts in benefits and services.”
 
Simon Green Disabled Activist and Chair of Bridgend Coalition of Disabled People, a member of Disability Wales states:
 
Without Disability Wales there will be no national representative pan-impairment, barriers focussed body able to co-ordinate the views of disabled people and their organisations across Wales
 
“I think it will have a massive impact not just on Disability Wales but all the groups it represents including Bridgend Coalition of Disabled People.  Bridgend Coalition have benefited from being a member of Disability Wales for many years and if it wasn’t for Disability Wales we probably wouldn’t exist”
 
Rhian Davies:
 
“DW is in negotiation with Welsh Government regarding a short-term support package whilst a longer term solution is identified.  However, DW requires an urgent response and time is limited as we approach Christmas and the end of the financial year!  After more than 40 years as a national voice DW has less than four months to ensure its survival.  Who will fight for disabled people’s rights if DW is not there?!” 
  
Now the future looks uncertain for Caerphilly-based disability rights organisation.