Senedd

Seconds Out: Petitions Committee Round Five #SaveWILG

We are hoping that the Petitions Committee will reach a positive conclusion over our petition to save the Welsh Independent Living Grant when they meet next Tuesday (23 October).

My petition was first heard over a year ago and I have since been locked in correspondence with the committee, compiled and even visited the Senedd to give evidence on why we need to #SaveWILG.

Once again, I have provided extensive evidence and have been backed up by fellow activists and even – to a point –  Local Authorities.

Fingers crossed for a positive outcome on Tuesday.

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Dear Petitioner

Your petition will be considered at our next meeting on Tuesday 23 October at 9.30am.

I enclose a link to the Agenda and Public Papers for your consideration:

http://senedd.assembly.wales/ieListDocuments.aspx?CId=430&MId=5067&Ver=4

A live broadcast of the meeting will be available on Senedd TV at:

http://www.senedd.tv/

Kind regards,

Petitions Committee

Letter from David J Rowlands, AM #SaveWILG

Below I have copied a letter from David J Rowlands, AM, Chair of the Petitions Committee. That should be of interest to all WILG recipients and their families. 
 

 8 August 2018 

 

Dear colleague, 

 Petition P-05-771 Reconsider the closure of the Welsh Independent Living Grant and support disabled people to live independently  

The Petitions Committee is considering the following petition, which was received from Nathan Lee Davies having collected 631 signatures: 

 I am a recipient of the Welsh Independent Living Grant (WILG) and a disability activist who intends on asking Welsh Government to reconsider their decision to close WILG as of April 2019.  

The WILG was introduced to help people who previously claimed from the UK government’s Independent Living Fund (ILF), which closed in 2015. More  than 1,500 people are helped by the scheme across Wales. Recipients all  have high degree of care and support needs. 

It was due to run until the end of March 2017, but Social Services Minister Rebecca Evans said in November that funding would continue for another year. 

 The annual £27m fund will then transfer directly to local authorities during 2018-19 so they can meet the support needs of all former ILF recipients by 31 March 2019. 

 Additional information: 

Why we oppose this decision: 

 The Welsh Government said the decision was taken on stakeholder advice. The majority of representatives on the stakeholder group were third sector or citizens. But they didn’t want WILG scrapped and the key point is that our advice was not accepted. 

 It should also be remembered that closure of WILG is not inevitable as is proved through the formation and success of the Scottish Independent Living Fund; which also works to support the Northern Ireland ILF. 

 Furthermore, the hugely popular Labour Party Manifesto outlined plans to set up a national care system to exist independently of local authorities. 

 This is exactly the time that the Labour Party should be united on such issues against the Tories. We must question why Welsh Labour are not playing their part in the changing political landscape? 

 Indeed, eventually it should be our aim to set up an Independent Living Fund for Wales so that no disabled person should have to suffer the same uncertainty and isolation as WILG recipients are now experiencing. We can only begin to believe that true social justice and equality for all is possible if Welsh Labour revisit their WILG decision. 

 Welsh Labour will no doubt argue that we should give the Social Services and Well-being (Wales) Act a chance to succeed. However, this idealistic act needs hefty investment and resources to ensure it is a success – with no sign of any of the necessary improvements to our infrastructure that the success of the Act depends on. This may indeed be the time for a revolutionary change in the way social care is delivered, but such a transformation could take a decade or more and WILG recipients do not deserve to be treated like guinea pigs when their high care and support needs require long-term stability and structure. 

 Most recently, the Committee held evidence sessions with the petitioner and the Minister for Children, Older People and Social Care. Details of all the evidence received to date can be found here: http://www.senedd.assembly.wales/ieIssueDetails.aspx?IId=19785&Opt=3 

 The Committee has agreed to seek the views of others who may have a perspective on the petition and the decision to close the Welsh Independent Living Grant from March 2019. 

 We would therefore be extremely grateful to receive any views you have in relation to the following issues (or any other matters which you feel are relevant): 

  • The Welsh Government’s decision to transfer funding for the Welsh Independent Living Grant to local authorities. 
  • The potential benefits or problems which may arise from supporting WILG recipients through local authority social care provision in the future. 
  • The current transition process, including assessment by local authorities, and any feedback from WILG recipients. 
  • If you (or your organisation) was involved in the work of the ILF stakeholder advisory group, your experience of this process and the extent to which the group’s deliberations and final recommendation reflected the views of members. 
  • Any alternative approaches that you believe should have been taken by the Welsh Government, or any changes which should be made at this stage. 
  • Any other views or comments that you have in relation to the petition. 

I would be grateful if you could provide any response which you wish to make by e-mail to the clerking team at SeneddPetitions@assembly.walesif possible by Friday 14 September 2018. 

Please feel free to share this letter with others who you feel would have views to share on any of the above. 

Responses are typically published as part of our Committee papers and will be discussed at a future Committee meeting. 

 Yours sincerely 

 David J Rowlands AM Chair 

 

 

Petitions Committee Minutes #SaveWILG

I just discovered the Senedd Petitions Committee Minutes hiding in my junk mail folder. We have been waiting with baited breath for the verdict of the committee and now it seams they want to hold more talks with various stakeholders before reaching their final verdict.

The full minutes from the meeting can be viewed here. 

The crucial information regarding the #SaveWILG Campaign can be seen below.

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Evidence session – P-05-771 Reconsider the closure of the Welsh Independent Living Grant and support disabled people to live independently

Huw Irranca-Davies, Minister for Children, Older People and Social Care

Gareth Griffiths, Head of Paying for Care, Welsh Government

Supporting documents:

Minutes:

The Committee heard evidence from Minister for Children, Older People and Social Care

Discussion of Previous Evidence Session – P-05-771 Reconsider the closure of the Welsh Independent Living Grant and support disabled people to live independently

Minutes:

Members discussed the evidence session and agreed to seek additional evidence from a range of stakeholders in relation to the subject of the petition.

Watch Petitions Committee grill Huw Irancca-Davies #SaveWILG

Dear Petitioner

 Your petition will be considered at our next meeting on Tuesday 19 June at 9.00am.

 I enclose a link to the Agenda and Public Papers for your consideration:

 http://senedd.assembly.wales/ieListDocuments.aspx?CId=430&MId=4758&Ver=4

 A live broadcast of the meeting will be available on Senedd TV at:

 http://www.senedd.tv/

 Kind regards,

Petitions Committee

We need people power to save the Welsh Independent Living Grant #SaveWILG

ARTICLE TAKEN FROM MORNING STAR

CAMPAIGN OF THE WEEK

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CARE for disabled people who live on their own was jeopardised by the Tories in 2015 when they scrapped the Independent Living Fund (ILF).

The scheme helped people who had both day and night care needs and who were getting the high rate care component of Disability Living Allowance.

In England, the funds were given directly to local authorities, but in Wales, Scotland and Northern Ireland the money was transferred to the devolved governments.

Scotland and Northern Ireland set up their own ILF systems and Wales created the Welsh Independent Living Grant (WILG) as an interim measure while a consultation took place.

In November 2016, the Welsh government announced that it would be closing WILG and giving the money directly to local authorities through the Revenue Support Grant.

Save the Welsh Independent Living Grant’s (SaveWILG) Nathan Lee Davies says it means the money will not be “ring-fenced” and is concerned that councils can spend the money “in whatever way they choose,” meaning disabled people’s needs could be overlooked.

“As a recipient, I do not believe that all the options were seriously considered,” he says.

“Disabled people and their families have been let down by the Welsh government who cannot be allowed to wash their hands of their responsibility to some of the most vulnerable people in our society.

“WILG is a grant that needs improvement, but we are hoping to save it in order to preserve the remnants of the ILF.”

The campaign group, as titled, aims to save the WILG and allow disabled people with high care and support needs to live the lives that they choose with adequate support.

Davies says: “It is important that we keep hold of the triangular system that was so successful during the ILF years when packages of care were designed in between recipients, local authorities and independent organisations.

“The final care package could be only be agreed and finalised when all three parties were in agreement.

“Disabled people cannot afford to depend on cash-cutting local authorities. Once we have ensured the future of WILG our next steps would be to improve it.”

SaveWILG began with a petition and by handing out postcards to members of the public to pose with.

“We managed to get a postcard photo with Ken Loach and comedian Mark Thomas,” says Davies.

“I have been writing letters to the petitions committee at the Welsh Assembly and we recently won a motion at the Welsh Labour conference in Llandudno to save WILG.

Unfortunately, AM Huw Irranca-Davies announced that the Welsh government would not be changing its policy following the conference, which Davies says “ignores the will” of members and unions.

The original motion started off at the Wrexham branch of Unite and soon SaveWILG also won the support of Unison.

“The fact that we won the vote so convincingly suggests that other unions also supported us, despite the Welsh executive committee asking Clwyd South to retract the motion,” Davies says.

Davies is working closely with Welsh Labour Grassroots and receives support from the People’s Assembly and Left Unity.

“It was a great day, but we must guard against complacency and finish the job we have started,” he adds.

“The fact that we managed to meet Jeremy Corbyn at conference and get a photograph of him holding a ‘Where there’s a WILG, there’s a way T-shirt’ was also a highlight.”

The campaign is still ongoing and Davies says that he has learnt that “people power” can really make a difference.

He says: “We have a wealth of future events planned, such as protests and marches, and on June 5 we are going to the Senedd to give evidence to the petitions committee.

“We will continue to put pressure on the Welsh government until there is independent living and disability rights.”

There’s No Other Way #SaveWILG

I have thought long and hard about posting this blog after an exhausting trip to Cardiff on Tuesday [June 5th] to meet with Ministers and discuss the future of the Welsh Independent Living Grant (WILG).

It was a very productive day, but one that resulted in much work still to be done along with a conscious effort on my behalf to review, renew and strengthen my aims and objectives for this campaign.

I had to start the day at 03:00 to venture down to Cardiff and meet the Petitions Committee at 10:00 in the Senedd. The committee are very much onside with the objective to save WILG , and Huw Irranca-Davies AM is due to give evidence in response on June 19th. Every minister on the committee is very supportive, and spent some time chatting to me, Adam and Angie following this meeting. A video of our meeting with the Petitions Committee can be viewed here. Our section on the meeting can be viewed after 1Hr 17Min.

We were full of positivity for our next meeting with the Minister for Children, Older People and Social Care, Huw Irranca-Davies AM, but he spent the first fifteen minutes on the defensive and stated why the Welsh Government would be “standing firm” on their commitment to scrap WILG, and pass all responsibility for social care to local authorities. We all chipped in, but Adam Samuels was particularly effective in getting his point across, leading to HID asking Adam to ” calm down”. I don’t think Huw liked being spoken to by a confident person who was in possession of some convincing arguments about money and neo-liberalism.

HID had to leave early to support Carwyn Jones answering First Minister questions. You would have thought Carwyn was big enough to face these questions alone, #justsaying.

We were then left speaking to Gareth Griffiths, the Special Policy Advisor to HID. This was a positive and constructive conversation. We appreciated his points and vice versa. There could be areas to work towards a special compromise here, as Mr Griffiths struck a pragmatic and concilliatory tone. He advised me to send him all of the information that we have at our disposal, which shows that local authorities do not have a clear grasp on the transition process. We will also be submitting evidence of individuals who have suffered dramatic cuts in their levels of care, and the success of other schemes such as the Scottish ILF.

This was followed by positive meetings with both Mark Drakeford AM and Julie Morgan AM. Now is the time to let the information gleaned from these meetings sink in, and wait to see what happens at the Petitions Committee meeting in a couple of weeks. However, anyone who knows me will realise that I am not built to remain silent, and action must be taken immediately, in an appropriate and decisive manner.

I have been lying awake most of the night, since returning from Cardiff and it was during these frustrating hours that I discovered what we must do. All talk of compromise should be rejected. We have been running a hugely successful campaign, that has gained much momentum. Now is the time to use the soft power we have collected, in a positive manner, and keep on campaigning. It is essential that we do so, because the fight to save WILG is vital to disability rights across the UK. We owe it to our friends in England and the 1,300 recipients [though this has gone down to 1,250 according to the latest figures quoted by the Welsh Government].

The fact that i qualify for extra hours of care and support is not something that i am particularly happy about, but it is a fact that i require extra help to get the most out of my limited life. My desire for extra care is not motivated by greed at all, simply NEED. I do not need or expect to see “every penny piece” of the £27 million given to the Welsh Government to provide full Social Care to former ILF recipients. I would gladly see a fraction of this money being spent on administration so that we had a independent social worker to turn to rather than complete reliance on local authorities.

Former ILF recipients who currently receive WILG, have already been through an assessment process to prove that they have a certain level of care and support needs to be eligible for special treatment. Why should this certainty be pulled from underneath them in a cruel and callous manner? 

HID keeps saying that 400 WILG recipients have already made the transfer to direct payment, and some of these have received more hours of care. They are still at the mercy of underfunded local authorities and even though the Welsh Government promised to keep an eye on this, I cannot see this happening once the transition period has ended.

I was worrying about all of this last night. At 3.00 I woke up needing the loo. I use a bottle beside my bed that I had already filled with urine before waking up again. I struggled for 30 minutes to pick up  my full urinal, with my spasticated hands, through fear of spillage. When I finally managed to move the urinal in to position, I had already lost some of the contents of my bladder  on to the mattress. I had to remain on my wet mattress until help arrived at 9.00am. Try telling me that I don’t deserve 24 hour care, something that my own social worker told me that I would have “no chance” of getting from Wrexham Council, as “no one in Wrexham gets that amount of care”.

I should also note that I do not believe that I am in a good mental place to be going through the stresses and strains of another social care reassessment. It is totally needless and uncalled for, but it could save Wrexham Council a few pennies and we must remember that they need to find some spare cash to give the councillors another pay rise, and the latest iPads. I shouldn’t really complain.

I don’t see why we can’t protect people with high care and support needs, by noting all of the problems in this transition period and extending it indefinitely for at least 1,250 people. We should also allow this scheme to be open to others with high care and support needs, who need the guarantee of adequate support that local authorities alone just cannot provide. After bringing the campaign so far, I have certainly got no intention of cosying up to Wrexham Council. Someone has got to put their neck on the line for the sake of disabled rights in the UK, it may as well be me. I want to show the authorities up for what they really are.

I would also ask, yet again, for full access again to the consultation papers that were sent out to recipients. The Welsh Government have previously tried to fob us off with a mere summary that they have produced. This is not what we are asking for as we are only to aware that a summary document can be edited to suit the views of the Government. It does appear that the consultation was not adequately considered and that a decision to scrap WILG had been made before the consultation process even started. It also seems highly unusual that no minutes exist from the stakeholder group meetings.

I am not asking for the moon on a stick, just the chance to play the game of life on a level playing field. In turn, this would give Welsh Labour the opportunity to create some positive PR [at a time when they need it], and show that politicians can show some humility and humanity.

The fight continues …

Thunderclap Latest #SaveWILG

https://www.thunderclap.it/projects/70260-savewilg

Thank you everyone for your continued support. This morning I am pleased to note that we have reached 107 supporters with a total social media reach of 66,869. Your support means the world to me and the other 1,300 recipients of the Welsh Independent Living Grant. Let us use this Sunday to build on the momentum we have created and pushed our impressive figures even higher. Please badger family and friends to get involved in the Thunderclap as it will really make a difference if I am able to say to Ministers at our meetings on Tuesday that our message to #SaveWILG is having a total Social Media reach of over 100K 🙂 The Welsh Government do not like any adverse publicity but it is our job to keep them in check. If anyone has any ideas about how to increase the popularity of this Thunderclap further still please get in touch. Once again many thanks and I hope everyone has a nice Sunday xx

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According to Wikipedia, Thunderclap is a platform that lets individuals and companies rally people together to spread a message. The site uses a model similar to crowdfunding sites such as Kickstarter, in that if the campaign does not meet its desired number of supporters in the given time frame, the organizer receives none of the donations. This is referred to as “crowdspeaking”, as Thunderclap and its rival site Daycause use the same terminology. [2][3] Backers are required to copy the original message in tweets or social media posts.[4]

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Please find below an important Thunderclap that we should all get involved in to help #SaveWILG.

This is a vital and easy way for  people to get involved with the campaign. Please encourage everyone you know, to take part and spread the message that we all want to save WILG, and deserve to have our voices heard.

The more pressure we can put on the Welsh Government, the better. On June 5th, when the thunderclap is activated, I will  be in Cardiff  at the Senedd, meeting with the Petitions Committee, Minister for Children, Older People and Social Care, Huw Irranca-Davies, Mark Drakeford AM and Julie Morgan AM.

We want to flood social media, and hope you will be able to spare one minute to help us achieve this aim. If this action succeeds, there will be future thunderclaps held.

Unfortunately, Thunderclap no longer allows targeted messages to prevent individual accounts being bombarded unfairly.

The message that will be shared across Twitter and Facebook reads as follows:

Welsh Labour need  to listen to their members and Save WILG for those with high care and support needs across Wales.

Anyone wishing to add memes or postcard photos to their social media accounts, can find plenty via my website or by simply contacting me via the contact page or on social media. I can’t make it much easier for you 😊

Many thanks for your support, and please do not hesitate to click on the following link:

https://www.thunderclap.it/projects/70260-savewilg