#SaveWILG

Letter to WILG recipients from Deputy Minister for Health and Social Services, Julie Morgan AM #SaveWILG

All WILG recipients – and their families – should be alerted to the following letter, which explains what happens next in the WILG transition process. This is particularly important for those of us who are unhappy with the level of support we’re receiving from local authorities. I am happy that we have made further progress, but now is not the time to celebrate. We have to make sure that local authorities implement the instructions that they have received from the Welsh Government.

An official response from the #SaveWILG Campaign to this letter will follow after the Easter break.

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To: All former recipients of the Welsh Independent Living Grant

Welsh Independent Living Grant (WILG) – Update

As we reach the end of the two years where people who used to receive payments from the WILG have been transferring to local council support, I would like to share an important update with you.

Since 2017 local councils have met nearly all people who used to receive WILG payments and agreed with them what care and support they will receive in future to help them live independently. Some people will now be having all their support arranged by their local council and others will be receiving direct payments so they can purchase this support themselves.

For the vast majority of people their new care and support is similar to what they had using their WILG payments. In some cases it has increased, to support their ability to live independently.

For a small number of people, the new package of care and support is smaller than what they had previously received through WILG. This can be for a range of good reasons, for example where people’s needs are still being met but just in a different way. We know from our enquiries that many people are content with the new support they are receiving, even when that package of care is smaller than before.

However, some people disagree with the outcome of their local council’s assessment. Everyone in Wales deserves support to live independently. As a result I have concluded that people who used to receive the WILG and now disagree with their council’s assessment of their care needs should have the option of having their needs looked at again by an independent person.

If you agree with the package of care and support from your local council, then this update does not affect you and you do not need to respond in any way.

However, if you disagree with the outcome of your new care arrangement, please contact your local council to ask for an independent assessment. Or if you have not started or completed your assessment yet, and would prefer for this to be done independently rather than by your local council, please also let your local council know about that. In either case, if you would like an independent assessment please let your council know by Friday 14 June 2019, at the latest. Your current care will remain unchanged until after the independent assessment has been completed.

The Welsh Government will be paying for these independent assessments and meeting the cost of any additional care and support a person might need as a result of them. Because of this, for people who used to receive WILG, while care arrangements may change in order to better meet people’s needs, this should not be in order to make any savings.

I do not want people to be waiting for an independent assessment. However, it is important to organise these independent assessments properly, so that they meet the required standards. We plan to have the arrangements for the independent assessments in place by the end of June so as to begin these from July onwards. Your patience, therefore, will be appreciated, while the details are worked out.

Julie Morgan AC/AM
Y Dirprwy Weinidog Iechyd a Gwasanaethau Cymdeithasol
Deputy Minister for Health and Social Services

WALESPOSTCARDFRONT001

“Gimme Shelter” – #SaveWILG Version

What my #SaveWILG campaign is in need of right now is an updated theme tune. At the moment, WILG recipients find themselves in a state of limbo without any clear direction on the way forward. Local authorities are of little support and the onus seems to be upon the Welsh Government to push through their new policy – that will replace the Welsh Independent Living Grant – ASAP.

I have received several encouraging emails from the Deputy Minister for Health and Social Services and the civil servants who are responsible for creating a new policy from scratch. I am confident that the work is going on behind the scenes, but it is really frustrating that there has been little progress since the Welsh Government announced that they were listening and protecting WILG recipients, back in February.

Leanne Wood AM has been calling on the Welsh Government to publish a timetable for the WILG transition process. she asked the Welsh Government, when the warm words of support they have given will be matched by deeds?

It would help a number of us who are really struggling at the moment to have an opportunity to plan for the future. I have spent the last two Christmas periods chained to my laptop and unable to join in with family celebrations due to the pressures of this campaign. Will I have to spend a third Christmas in such a way?

I hit upon the idea for this blog while watching the Rolling Stones Story at Glyndwr University on Friday night. This was a really good gig and an excellent tribute act to the ageing rock band. All of the hits were played in familiar fashion with an energetic “Mick Jagger” giving an excellent performance which married supreme confidence with a camp as Christmas performance. One of the many highlights of the show was the performance of the classic Stones hit Gimme Shelter.

Without permission, I have took it upon myself to change the words to this popular hit, in order to make it fit with the campaign. Anyway, see for yourself with the video of the Rolling Stones posted below the lyrics, so you have no excuse not to sing along. I have also added a few paragraphs from Wikipedia about the Rolling Stones. I do hope there are no copyright issues over the use of this tune as I am giving the writers full credit and not claiming any credit for myself.

I hope you like my new version.

“Gimme Shelter”

Oh, a storm is threat’ning
My very life today
If I don’t get some shelter
Oh yeah, I’m gonna fade away

Hope, comrade, it’s just a WILG away
It’s just a WILG away
Hope, comrade, it’s just a WILG away
It’s just a WILG away

Ooh, see the clock is tickin’
On our rights today

Fighting for our futures
We will not fade away

Hope, comrade it’s just a WILG away
It’s just a WILG away
Hope, comrade, it’s just a WILG away
It’s just a WILG away

Peace, freedom!
It’s just a WILG away
It’s just a WILG away
Peace, freedom!
It’s just a WILG away
It’s just a WILG away
Peace, freedom!
It’s just a WILG away
It’s just a WILG away

The floods is threat’ning
My very life today
Gimme, gimme shelter
Or I’m gonna fade away

Hope, comrade, it’s just a WILG away
It’s just a WILG away
It’s just a WILG away
It’s just a WILG away
It’s just a WILG away

I tell you death, comrade, it’s just a tick away
It’s just a tick away
It’s just a tick away
It’s just a tick away
It’s just a tick away
Tick away, tick away

Gimme Shelter” is the opening track to the 1969 album Let It Bleed by the Rolling StonesGreil Marcus, writing in Rolling Stone magazine at the time of its release, praised the song, stating that the band has “never done anything better”.

Although the first word was spelled “Gimmie” on that album, subsequent recordings by the band and other musicians have made “Gimme” the customary spelling.

The recording features Richards playing in an open tuning on electric guitar. The recording also features vocals by Merry Clayton

 

Statement on the Welsh Independent Living Grant transition

Following the Welsh Government’s announcement on February 12th that they were pausing the WILG transition and allowing all WILG recipients to recruit an independent social worker to work alongside clueless local authorities, there has been little obvious progress.

There is much going on behind the scenes as the Welsh Government work around the clock to establish a new policy.  I have received several encouraging and reassuring emails from the Deputy Minister for Health and Social Services as well as the civil servants who are working flat out to assist disabled people with high support needs and their families.

Of course, it is going to take time to implement the new system.  This is something that many of us cannot afford, but now is not the time to be critical of the Welsh Government – who have listened and are making the appropriate changes.

WILG recipients should all be receiving a letter from Deputy Minister for Health and Social Services, Julie Morgan to explain the next steps in the reassessment process.  Let us hope that we receive this letter sooner rather than later as many of us are continuing to struggle.  We have won a huge battle, but there is little reason to celebrate at the moment and we have to remain patient while continuing to struggle for a few more weeks or months.

This is precious time we are wasting, but we cannot forget the huge strides we have made and have faith that the Welsh Government are doing what they can to help transform our lives under 21st Century Socialism.

We are so close to our goal and we must make sure such mistakes are never allowed to happen again…

The Dreams In Which I’m Dying…

The following blog includes songs by Gary Jules (Mad World) and John Farnham (You’re the Voice). I am not claiming any artistic influence on these songs at all.

I was watching Murder Made Me Famous on the Really Channel at some godforsaken hour last week as I tried to keep my eyes open and delay the uncomfortable hours that were sure to follow.

This particular episode concerned the crimes of Reverend Jim Jones –  an American religious cult leader who, along with his inner circle, initiated a mass suicide and mass murder in JonestownGuyana.

It really is a fascinating tragedy and I encourage everyone to read more about the Peoples Temple as only by learning lessons from the past can we hope to build a brighter future for everyone…

***

Things have changed a lot in the past forty years, but I still fear that mass murderers such as Reverend Jim Jones exist, albeit in different forms.

It has been a long weekend full of three draining panic attacks. The lack of support and information from Local Authorities in relation to Welsh Independent Living Grant recipients is really affecting both my mental and physical well-being. Two of the panic attacks were brought on by madly rushing to use the loo as the urge to relieve myself comes on all of a sudden. My body is unable to react quickly enough, so accidents do happen.

I also suffered an attack before going to bed on Friday night, as I can almost predict the hours of discomfort, pain and panic that lie ahead during lonely nights without support. I am a born fighter – and I do not have any plans to slow down – but the pressures being put upon me are becoming increasingly difficult to cope with,  as my progressive disability continues to eat away at my nervous system.

I require 24/7 support NOW if I am to continue living independently and contribute to my local community. This is not something that I want for selfish reasons, but simply something that I NEED.

I found the following article to be very illuminating and it is certainly something that I can relate to. It was written by Mike Sivier from Vox Political and can be read by following this link.

It seems that poor and vulnerable people are still being controlled and manipulated today, in a way that Reverend Jim Jones would be proud of.

Don’t get me wrong, I am proud that the Welsh Government have listened to #SaveWILG campaigners and are now acting accordingly. I have received encouraging emails from ministers and civil servants who are working on implementing a new policy to protect independent living for WILG recipients.

It is not the current Welsh Government that I have a problem with, but the previous neo-liberal regime, whose mistakes I am now paying the price for. Local Authorities also deserve to shoulder some of the blame for refusing to provide adequate support for those that need it, purely for selfish financial reasons.

I hope I am able to go on for many years, but if I were to pass away tomorrow I would guess that someone at some level would say that “lessons need to be learnt”. I am still breathing, so why can’t the relevant action be taken now to improve my quality of life? I understand and am happy that the Welsh Government are doing all they can to push through implementation as quickly as they can, but in the meantime I am going to use the extra money in my Direct Payments account to fund the extra support that I need.

I have since found out that I will be unable to offer a PA anything more than the minimum wage to stay with me overnight due to ludicrous pay rates set by Wrexham County Borough Council. I should be able to pay staff working through the night, the same as I pay a member of the staff throughout the day. How can WCBC justify paying different rates for day and night? It appears as if my next fight for justice has been earmarked.

The book that I am itching to write, along with the work of art that I have conjured in my head will just have to be put on hold again…

All I know is that I am not going to sit in silence or live with fear any longer as I believe  justice is on my side. I can see all the inadequacies of the current chaotic system of social care from my position on the moral high ground and I will continue to keep raising my voice until disabled people, in particular, are able to live on a level playing field with the rest of society.

 

Plaid Cymru Press Release – Set Out Clear Timetable to Support Disabled People #SaveWILG

Rhondda AM Leanne Wood has called upon the Labour Government to move fast to ensure that disabled people are not left out of pocket.

The Plaid Cymru Shadow Minister for Social Justice and Housing called upon Ministers to match words with deeds after they performed a U-turn on reinstating in all but name the Welsh Independent Living Fund last months after months of pressure.

Julie Morgan, the deputy minister for health and social services, wrote to local authorities to ask for a halt to the closure programme for the Welsh Independent Living Fund and its replacement with a system of council-funded support.

There will now be new assessments for former recipients with a view to new support packages allocated by their local council.

In a letter to Julie Morgan, Ms Wood called for a “clear timetable” to restore financial support for disabled people living at home.

Leanne wrote: “I am writing to you following last month’s announcement that an independent social work assessment will be offered to all former Independent Living Fund recipients who are unhappy with their new care and support package.

 “You also committed to providing additional funding for councils to fund independence assessments and any additional care hours that may result from these assessments.

 “I appreciate that we are only a month on from this welcome statement in the Welsh Parliament but the reality is that people are continuing to struggle without adequate support.

 “A clear timetable for carrying out these assessments and restoring the financial packages for disabled people is required as a matter of expediency to provide clarity and hope for people in need of extra support.

 “On behalf of disabled people and their families, can the Welsh Government provide that timetable as soon as possible please?”

ENDS

Petitions Committee on Senedd TV

I have written to the Deputy Minister for Health and Social Services in order to encourage her team to publish a timetable which will allow WILG recipients to plan their futures with certainty, and extricate themselves from limbo land. WILG recipients, such as myself, are still struggling after years of neglect from clueless local authorities. and everyone at the #SaveWILG campaign has faith that Welsh Government now fully understand these difficulties and will be implementing their proposals very soon.

On Tuesday, the Deputy Minister, Julie Morgan will be speaking with the Petitions Committee on Senedd.tv at about 10pm. The meeting will be available to view whenever you can on the website. I am looking forward to hearing constructive plans that can assist me out of the current predicament I find myself in – inadequate care and support is taking it’s toll on my physical and mental health…

***

Dear Petitioner

Your petition will be considered at our next meeting on Tuesday 05 March at 9.00.

I enclose a link to the Agenda and Public Papers for your consideration:

http://senedd.assembly.wales/ieListDocuments.aspx?CId=430&MId=5288&Ver=4

A live broadcast of the meeting will be available on Senedd TV at:

http://www.senedd.tv/

Kind regards,

Petitions Committee

D0jkv-0X4AA6G8c

 

More Questions than Answers…

It has been an exciting period for the #SaveWILG campaign after we made a huge breakthrough a couple of weeks ago. We are now in a position of working with Welsh Labour rather than campaigning against them, which is a position we are all happy with.

BREAKING NEWS… #SaveWILG

WREXHAM MAN’S DISABILITY CAMPAIGN WILL LEAD TO THOUSANDS OF LIVES BEING IMPROVED.

However, amidst all the congratulatory messages and kind words that I have received in the past few weeks, it has become clear that there is still much work to be done in order to protect independent living for WILG recipients.

While it is clearly a positive that the transition period has been paused and WILG recipients are now entitled to a independent social worker to help decide on their care package, there remains much uncertainty and confusion about the next steps. At the moment, WILG recipients – including myself – are stuck in limbo land between clueless local authorities and a Welsh Government that has to focus on Brexit. 

In the meantime, 1,300 or so disabled people with high care and support needs are suffering. We have every reason to be proud of what we have achieved, but there cannot be any celebration until each one of us are living the lives we deserve to be.

In the days since Deputy Health Minister Julie Morgan announced her new and exciting plans I have received many emails from confused recipients who want to know what happens now. People have been going through stress and worry about the loss of WILG since November 2016 and the confusion remains.

We need a clear timetable from the Welsh Government of when we can expect our reassessments to take place as people are continuing to struggle without adequate support. A timetable would allow people to plan their lives and provide them with tangible hope for the future.

Looking at the statement produced by the Deputy Minister for Health and Social Services on February 12, I personally think that every WILG recipient should have a firm offer of a reassessment under the ‘revised arrangements’ with an explanation as to why this is happening. The onus should not be on the recipient to request a reassessment. Those who have had a reduction or had their care provision frozen should all be reassessed under the tripartite system.

Mark Drakeford’s new Welsh Labour brand, should be proud of listening to the concerns of disabled people and their families and acting accordingly,  but they need to act urgently to put their promises into action and provide us all with answers to our questions. We are doing our best to understand that the wheels of politics do not tend to run quickly, but unfortunately patience is not a virtue that WILG recipients can afford. 

We have written to the Deputy Minister for Health and Social Services and await her response with anticipation. 

Thanks to Wikipedia for the following:

John Lester “Johnny” Nash, Jr. (born August 19, 1940) is an American reggae and pop music singer-songwriter, best known in the US for his 1972 hit, “I Can See Clearly Now“. He was also one of the first non-Jamaican singers to record reggae music in KingstonJamaica.[1]