Reclaiming Our Futures Alliance

A National Independent Living Support Service #Right2IL

The following article was taken from the Disabled People Against Cuts (DPAC) website and can be read in full by clicking here. 

The Reclaiming Our Futures Alliance, a network of  disabled people and our organisations in England, is asking for support for a bold new vision for independent living* for the future. (* The phrase ‘independent living’ is not about disabled people doing things on our own, it means having choice and control over our own lives, being included in the community and having the same chances to take part as other people.)

The social care and mental health systems are currently in crisis and as a result disabled people’s rights to an adequate standard of living, to dignity and inclusion and to equal participation in society are being taken backwards.

In its present state, the system is not fit to respond to current needs, let alone predicted greater needs in the future. Disabled people’s experiences of support are subject to a post code lottery and differ considerably depending upon impairment.

Disabled people and our organisations are calling for a better system guaranteeing consistent levels of adequate support. This will not only benefit us and our families but will strengthen wider society, save costs in other areas and produce social and economic benefits.

Our vision of a national independent living support system is set out in the position paper “Independent Living for the Future” which you can download above or below for the easy read version.

Please sign up in support using the form at the end of this page and help us reclaim disabled people’s futures by making our vision a reality. [The form is published on the DPAC website and can be found by clicking here]

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Download report here: NILSS_final

Sadly, I couldn’t attend Thursday’s meeting at the Houses of Parliament, but Ellen Clifford of DPAC kindly read out the following message on my behalf:

“Good afternoon to everyone and apologies that I cannot be present today. As a disability activist who has spent the last 4 years campaigning for the protection of independent living for former ILF recipients in Wales, I feel that it is important to contribute to the meeting. I believe that it is essential that disabled people in Wales are also represented in the creation of any independent living scheme that we campaigned for.
 

The Welsh Independent Living Grant was given to former ILF recipients as a temporary measure while future arrangements were discussed. In November 2016, the Welsh Government announced they would be scrapping the grant and transferring all funds to local authorities. This could not be allowed to happen and we have campaigned tirelessly and imaginatively to push the Welsh Government into making a u-turn. Independent Social Workers and extra funds have been promised by the Welsh Government to ensure former ILF recipients can remain in their local communities.

Even though the #SaveWILG campaign has been a success in protecting the rights of former ILF recipients, the Welsh Government are not planning to extend these rights to disabled people who missed out on the ILF. Our campaign has produced a positive result for approximately 1,300 of us, but this does not mean we can forget about those who never received the Welsh Independent Living Grant. We do not believe any disabled people with high support needs should be purely at the mercy of cash strapped local authorities. 

 

The tripartite system that the ILF established – between recipient, local authority and independent social worker – should be something that we all receive. I would welcome the opportunity to be part of the ROFA campaign and share the skills and tactics that we have built up during our successful campaign. Please do keep in touch and let me know  how the people of Wales can get involved. There may be a different legal system in Wales to contend with, but I believe that any Welsh Political Party would welcome the opportunity to work with the UK Government to protect disabled people with high support needs.

Many thanks for allowing me to be part of your discussion and let us hope that this is the beginning of a new campaign that will result in justice for disabled people and their families. 

 
 Solidarity to you all. 
 
Nathan”

Motion – National Independent Living Support Service #NILSS

The following article was taken from the Disabled People Against Cuts (DPAC) website and is certainly something #SaveWILG campaigners will be supporting as we continue to work with the Welsh Government to formulate an independent living scheme.

***

Disabled People Against Cuts and our allies in the Reclaiming Our Futures Alliance are campaigning for a National Independent Living Support Service capable of upholding disabled people’s rights to independent living and building on what was so effective about the Independent Living Fund before it was closed in spite of enormous opposition in June 2015.

Please call on your union branches and CLPs to pass motions supporting the campaign. Thanks to Sean McGovern for the wording of a suggested motion as below. If you would like someone to speak at your branch meeting please send details to mail@dpac.uk.net.

For information about our vision of a National Independent Living Support Service, download this document: NILS-summary-doc-2

 

National Independent Living Support Service Motion

There is no doubt that social care is in crisis. A crisis brought about by years of Conservative governments’ ideological austerity policies. Today we have a failing system unable to meet current need; and certainly, unfit to respond to predicted future growth.

Bringing social care under a struggling NHS umbrella is not the answer. Indeed, the overwhelming majority of disabled people with social care packages do not receive healthcare interventions through support packages. No, healthcare and social care serve very different kinds of need.

Therefore, this Conference calls upon a newly elected Labour government to establish a National Independent Living Support Service (NILSS). A Service:

  • that gives new universal right to independent living
  • enshrined in law and delivered through a new national independent living service co-created between government and Disabled people,
  • funded through general taxation and managed by central government,
  • led by Disabled people and delivered locally in co-production with Disabled people.

Marrying social care to the NHS further medicalises disability in addition to denying the very things that disabled people are crying for…Independence, Choice and Control – things only deliverable by the establishment of a National Independent Living Support Service.

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Meeting in Parliament #SaveWILG

I am enjoying this politics lark and on October 25th I shall be attending a crucial meeting in The Houses of Parliament as we continue to fight for the rights of disabled people across the UK.

Working together to implementing the United Nations Convention of the Rights of Persons with Disabilities (UNCRPD)
Committee Room 4, Houses of Parliament
3.30 – 5pm Thursday 25th October 2018
Hosted by Lord Colin Low
 
 Speakers to include representatives from the Reclaiming Our Futures Alliance, Disability Wales, Inclusion Scotland, Disability Action (Northern Ireland), Marsha de Cordova (Shadow Minister for Disabled People) and Stephen Lloyd (Liberal Democrat Spokesperson Work and Pensions) and others to be announced.
 
 In July 2018 the UK government co-hosted a global disability summit in London with the aim of securing international commitments to upholding the rights of Disabled people under the UNCRPD.  Meanwhile Deaf and Disabled people and our organisations remain concerned about retrogression under the UNCRPD within the UK.
 
Twelve months on from the Concluding Observations in the routine public examination of the UK under the UNCRPD, Government, equality commissions and civil society have been required to report back to the UN disability committee. This meeting will launch the alternative reports by UK Deaf and Disabled People’s Organisations and be an opportunity to discuss how government, Parliamentary allies, and civil society can work together to implement the UNCRPD within the UK.
 
BSL interpretation and a palantypist will be provided. For more information or to book a place please contact ellen.clifford@inclusionlondon.org.uk.
 
 

Disabled people and their concerns can no longer be ignored

Reblogged from the Morning Star: http://www.morningstaronline.co.uk/a-761f-Disabled-people-and-their-concerns-can-no-longer-be-ignored#.WZ9EjD595dg

Thursday 24th Aug 2017

ELLEN CLIFFORD and ANITA BELLOWS report on how disability rights activists brought evidence of the Tories’ savage policies to the United Nations

DEAF and disabled people’s organisations from across Britain have come together this week to give evidence about Westminster’s continuing violations of disabled people’s rights under the Convention on the Rights of Disabled people (UNCRPD), with a delegation that includes representatives from Disabled People Against Cuts (DPAC) and the Reclaiming Our Futures Alliance, as well as Disability Wales, Inclusion Scotland and Disability Action Northern Ireland.

There are two parallel processes. The UNCRPD committee will simultaneously hear about British progress in implementing the UN Convention on the Rights of Disabled People, as part of a periodic review of all nations that are signed up to the convention, as well as a presentation following up on the initial complaint made by DPAC under the optional protocol of the CRPD, which triggered the first inquiry against a state under this process.

The periodic review is wide-ranging and covers detentions under mental health legislation, employment, education, transport, housing, social care and independent living, specific discrimination against women, black people, intersex people, people with learning difficulties and so on.

On Monday August 21, deaf and disabled people’s organisations from across Britain gave a presentation in front of the committee in a closed session.

We highlighted the gaps in state provisions which undermine the government’s claim that the Westminster government’s public spending on disability and incapacity is higher than all other G7 countries bar Germany.

The issue is complicated by devolution and the different laws and arrangements which exist in the four nations.

What came out of the meeting was that not only has the Westminster government failed to progress CRPD implementation, but that rights hard fought for by disabled people have been dramatically eroded since 2010 by cuts. This has led us to today’s state of crisis where high numbers of people with learning difficulties and autism are trapped in institutions, there has been a rise in disabled children educated in special schools and the destruction of community support is leading to greater marginalisation and isolation of disabled people.

Following the closed session, deaf and disabled people’s organisations will have the chance to arrange meetings with individual committee members on specific matters such as access to justice, before the committee quizzes the Westminster government representatives on August 23-24. These examination sessions will be open to the public and livestreamed.

Also this week, the CRPD committee heard a follow-up presentation on the specific issues which triggered its inquiry in 2015 which found evidence of grave and systematic violations of disabled people’s rights by the Westminster government due to welfare reform.

These violations were closely related to welfare reform and the devastating and disproportionate impact on disabled people. The investigation carried out by the committee was indepth, involving reading thousands of pages of evidence and reports and a visit to Britain where disability committee members spoke to over 200 disabled people and organisations.

However, the government rejected the findings and dismissed the inquiry report as “patronising and offensive,” questioning the competence of the committee members.

The CRPD committee’s report was leaked to the Daily Mail the day before the US election. The response from the government was dismissive and totally ignored the committee’s conclusions.

One specific demand was for the government to undertake a cumulative impact assessment of the cuts, something that it has consistently refused to do.

This week disabled people had the chance to give a presentation on the worsening of the situation since that inquiry took place and the new cuts and measures that have been introduced withouBrit consultation or by bypassing Parliament and scrutiny — including the cut to personal independence payments brought in at the start of the year that will affect 164,000 people, predominantly those who experience psychological distress.

One major concern that disabled people have is around proposals outlined in the government green paper Work, Health and Disability: Improving Lives.

Its purported aim is to reduce the disability employment gap, but key measures it introduces will extend conditionalities and sanctions to more disabled people, ignoring calls from the National Audit Office to follow up on its initial examination of the impact of sanctions on disabled people, which suggests they actually lower chances for disabled people of finding employment.

For the government, the default position is that all disabled people are able to work, or able to do some work, if given the right incentives and motivation to do.

Using the flawed argument that work is the best way out of poverty, when more and more people in work are getting poorer, the government has devised a regime even more coercive than the previous one, for which impairments are something temporary which can be overcome with willpower and the right mindset. This government is a step away from denying the existence of disability.

Reflecting on the long journey, which has taken disability activists to the United Nations, there is some grounds for optimism.

The inquiry and its outcome mean that disabled people and disability issues can no longer be ignored. Their experiences have been validated by the inquiry’s findings, and the CRPD provides a framework for expressing our grievances and holding the government to account that is missing from domestic legislation. The fight is far from being over, but disabled people have become a vocal and powerful force in Britain.

  • Ellen Clifford is campaigns and policy manager for Inclusion London and Anita Bellows is a Disabled People Against Cuts activist.