Local Authorities

PLAID CYMRU PRESS RELEASE: Leanne Wood AM Shows Support #SaveWILG

Pressure is mounting on the Welsh Government to maintain an essential grant for disabled people after 20% of AMs backed a statement of opinion.

Plaid Cymru has tabled a Statement of Opinion in the National Assembly calling for the Welsh Independent Living Grant, which allows severely disabled people to continue to live independently, to be retained. The Welsh Government plans to scrap the grant next year, transferring the responsibilities over to Local Authorities.

Nathan Lee Davies, of Wrexham, has been campaigning to keep the grant for several years, and managed to pass a motion of support for maintain the grant at this year’s Welsh Labour Spring Conference.

Plaid Cymru leader Leanne Wood AM said:

“Those in receipt of the Welsh Independent Grant tell me how vitally important it is to them. Not only financially, but more importantly it gives them that independence to control their own lives. We all have our dignity, and having that ability to make our own decisions over our own lives is important for all of us. This is why recipients of the WILG wish to keep it, and given the chance to roll it out to other disabled people as well.

“Scotland have managed to keep their Independent Living Fund, ensuring that they have a national criteria. They’ve also invested more into it, meaning that more people can benefit from it. Evidence from London shows that former Independent Living Fund Recipients there have suffered as a consequence of the Tories cutting the grant and passporting the programme onto local authorities. Labour in Wales should follow the Scottish lead rather than the Tories in England, and ensure that our most seriously disabled people are shown respect and can live their lives as independently as possible. Recipients of WILG are seriously concerned about the future when they should be enjoying what is left of their lives.”

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Plaid Cymru Assembly Member for North Wales, Llyr Gruffydd said:

“Recipients of the Welsh Independent Living Grant tell me that the system as it is now works well, and they fear that transferring the responsibility over to councils would compromise their independence. Maintaining their independence is paramount. Their dignity and right to independence should be respected.

“Scotland’s Government has maintained its Independent Living Grant and indeed invested in the scheme. It’s widely supported by disabled people, and it provides a national criteria instead of forcing a prescribed criteria locally that would result in a post code lottery for the most severely disabled people. This is what will happen in Wales under the proposals.

“I’m calling for each Assembly member to sign up to my Statement of Opinion, and urging as many people to contact their Assembly Member asking them to support it. So far 20% of Assembly Members have signed up. I would hope that Labour Assembly Members would support it, as it chimes with their own party policy that was only passed earlier this year following a strong grassroots campaign.”

Disability campaigner Nathan Lee Davies, of Wrexham, gave his backing for the Statement of Opinion:

“This is a very frightening time for disabled people with high care and support needs across Wales as they are being asked to rely solely on cash-strapped local authorities to meet their daily living requirements. The Welsh Government is quite simply washing its hands of all responsibility towards this section of society.

“Care packages were originally agreed upon by the disabled individual, local authorities and a third-party social worker who was entirely independent. Under the new system, who would disabled people be able to turn to if they did not agree with the local authority? The existing tripartite system for deciding care packages MUST be maintained.

“I should also underline the fact that I am an employer who provides work for five other people. The loss of WILG could mean that my personal assistants will be losing significant amounts of work.”

The Statement of Opinion says:

This Assembly:
1. Notes the cuts suffered by local authorities over recent years, and the squeeze on social services budgets across Wales.
2. Further notes that article 19 of the United Nations Convention on the Rights of Persons with Disabilities states how people with disabilities should have “choices equal to others”.
3. Commends the Scottish Government on introducing a successful Independent Living Fund that is trusted and has a national criteria.
4. Believes that the Welsh Independent Living Grant should be retained as a national funding package with a national criteria, ensuring the recipients independence, along the lines of ILF Scotland.
Anybody wanting to urge their AM to sign the Statement of Opinion should ask them to support OPIN-2018-0094 The future of the Welsh Independent Living Grant

SOP and signatories here: http://record.assembly.wales/StatementOfOpinion/94

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Pressure grows to keep disability living grant #SaveWILG

Taken from the Plaid Wrecsam blog with sincere thanks.  

Pressure is mounting on the Welsh Government to maintain an essential grant for disabled people after 20% of AMs backed a statement of opinion.

Plaid Cymru AM Llyr Gruffydd has tabled a Statement of Opinion in the National Assembly calling for the Welsh Independent Living Grant, which allows severely disabled people to continue to live independently, to be retained. The Welsh Government plans to scrap the grant next year, transferring the responsibilities over to Local Authorities.

Nathan Lee Davies, of Wrexham, has been campaigning to keep the grant for several years, and managed to pass a motion of support for maintain the grant at this year’s Welsh Labour Spring Conference.

Llyr Gruffydd, Plaid Cymru’s North Wales AM, said:

“Recipients of the Welsh Independent Living Grant tell me that the system as it is now works well, and they fear that transferring the responsibility over to councils would compromise their independence. Maintaining their independence is paramount. Their dignity and right to independence should be respected.

“Scotland’s Government has maintained its Independent Living Grant and indeed invested in the scheme. It’s widely supported by disabled people, and it provides a national criteria instead of forcing a prescribed criteria locally that would result in a post code lottery for the most severely disabled people. This is what will happen in Wales under the proposals.

“I’m calling for each Assembly member to sign up to my Statement of Opinion, and urging as many people to contact their Assembly Member asking them to support it. So far 20% of Assembly Members have signed up. I would hope that Labour Assembly Members would support it, as it chimes with their own party policy that was only passed earlier this year following a strong grassroots campaign.”

Disability campaigner Nathan Lee Davies, of Wrexham, gave his backing for the Statement of Opinion:

“This is a very frightening time for disabled people with high care and support needs across Wales as they are being asked to rely solely on cash-strapped local authorities to meet their daily living requirements. The Welsh Government is quite simply washing its hands of all responsibility towards this section of society.

“Care packages were originally agreed upon by the disabled individual, local authorities and a third-party social worker who was entirely independent. Under the new system, who would disabled people be able to turn to if they did not agree with the local authority? The existing tripartite system for deciding care packages MUST be maintained.

“I should also underline the fact that I am an employer who provides work for five other people. The loss of WILG could mean that my personal assistants will be losing significant amounts of work.”

The Statement of Opinion says:

This Assembly:
1. Notes the cuts suffered by local authorities over recent years, and the squeeze on social services budgets across Wales.
2. Further notes that article 19 of the United Nations Convention on the Rights of Persons with Disabilities states how people with disabilities should have “choices equal to others”.
3. Commends the Scottish Government on introducing a successful Independent Living Fund that is trusted and has a national criteria.
4. Believes that the Welsh Independent Living Grant should be retained as a national funding package with a national criteria, ensuring the recipients independence, along the lines of ILF Scotland.
Anybody wanting to urge their AM to sign the Statement of Opinion should ask them to support OPIN-2018-0094 The future of the Welsh Independent Living Grant

SOP and signatories here: http://record.assembly.wales/StatementOfOpinion/94

Closure of the Welsh Independent Living Grant: In the cause of equality of provision for disabled people? #SaveWILG

The following article was written by Ann James and Luke Clements. It appears on their superbly informative website which can be viewed here.

We would like to thank Ann and Luke for their research and work in putting together such a comprehensive report.

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Local authorities in Wales are rushing to meet the new September deadline, set by the
Minister for Health, for the re-assessment of the 1,300 or more recipients of the Welsh
Independent Living Grant (WILG). In November 2016 the Welsh Government (following in the footsteps of the English Government) announced the closure of the WILG.

The transfer of care and support of all recipients to local authority provision has been
contentious and has left many recipients anxious and fearful that their right to Independent Living will be eroded by this decision. A strident campaign has been launched by recipients of the WILG (and the previous Independent Living Fund (ILF)) and their families and supporters under the campaign banner of #SWILG.

Closure of the Wales Independent Living Grant

The Independent Living Fund (ILF) was established by the Department of Health and
Social Security in 1988 as an independent trust to provide a weekly payment to a
small number of severely disabled people who would have suffered very significant
financial loss as a result of the abolition of supplementary benefits ‘additional
requirements’ payments in that year.4 It is however thought that about one million
disabled people experienced considerable losses as a result of the 1988 changes.

The ILF existed in various forms until it was closed by the Department for Works and
Pensions to new applications in December 2010,  at which time it was providing support
to 46,000 people with complex needs to live in the in the community.7 At that time the UK
Government argued that it was an unsustainable cost; that it perpetuated an unfair funding of services to disabled people; that distribution of ILF was inconsistent across the four nations and within the four nations; and that the advent of direct payments and individual budgets in England obviated the need for ILF.8 The ILF closed in June 2015 and the funding was devolved to English local authorities and the Scottish, Welsh and Northern Irish Governments

The WILG was set up in 2015 following a consultation exercise and gave the Welsh
Government a period of moratorium to decide on how to proceed
.
The options before the Minister were:

• the extension of current arrangements;
• an arrangement with a third party to continue to provide payments to recipients in
Wales, and;
• to transfer the responsibility and funding to local authorities in Wales over a two-year
transitional period so as to eventually provide support through nIn November 2016, it was announced that the WILG would close in March 2019 and that all recipients would be assessed by their Local Authority for care and support under the Social Services and Well-being (Wales) Act (SSWBA) 2014 by March 2018. The March deadline was extended to–September 2018 to enable local authorities to complete their assessments of WILG recipients.

The #SaveWILG campaigning group led by Nathan Davies continue to fight a vigorous campaign to persuade Welsh Government to retain the WILG and grow the provision in a similar fashion to Scotland.

The Equality Impact Assessment (EIA) carried out in advance of the closure decision in Wales conveys a Panglossian view, that is to say an overly optimistic view of what the 2014 Act will deliver following the closure of the WILG in 2019.  It also fails to acknowledge and consider the potential adverse effect on individuals who may have significant changes to provision and how this will be addressed to ensure the recipients right to Independent Living.

The rational for the closure of the WILG is in keeping with the UK Government’s arguments for the closure of the ILF. Welsh Government argues that:

  • the continuation of the WILG will perpetuate a ‘two tier’ system of provision and that this is unfair on those who receive care and support solely through their local authority.
  • the cost of maintaining a Welsh version of the Independent Living Fund is financially unsustainable as money devolved to Wales from the UK Government’s closure does not have the capacity to respond to future need of recipients nor allow for the opening of the WILG to new applicants.
  • the SSWBA 2014 and Direct Payment provision will enable and support independent living and that the need for a discrete fund is not required.

 

Transition from the WILG to local authority provision: are there messages from England?

The analysis and studies of the impact of the closure on ILF in England are bound to give concern to WILG recipients in Wales. The Shakespeare and Porter 2016 study, which focused on the impact of the transition from ILF to local authority support, found high levels of concern and anxiety about Local Authority processes and provision during this period. The Department of Work and Pensions Post-Closure Review,found both positive and negative experiences of the transition. Those who had retained their provision or had an increase in provision or a slight reduction reported satisfaction without any loss to their independence. For those who had experienced a significant reduction there was a loss of independence, greater restrictions to their independence and an increased reliance on unpaid carers. There was also a concomitant impact on the emotional and physical health of these participants.

An emerging theme from the research and reviews is the post-code lottery faced by previous recipients of ILF. The finding in Inclusion London’s  review confirmed this factor and found in addition inconsistent practice in relation to NHS Continuing Health Care (NHS CHC) referrals for funding and failings in the implementation of the Care Act 2014 which left services users without essential provision.

Many disabled people who will be transiting from the WILG will be legally eligible for NHS CHC funding or at least NHS joint funding. In addition to the well-documented procedural hurdles they encounter in obtaining this support, in Wales a more troubling challenge exists.  The Welsh Government has made it clear that it will not permit direct payments to be made for people eligible for NHS CHC (unlike in England such payments can be made.  Many LHBs appear reluctant to facilitate direct payments via a trust arrangement (often referred to as an Independent User Trust (IUT)) even though the High Court has held this to be lawful (indeed necessary in certain situations).

Anecdotally it is also reported that LHBs are placing obstacles in direct payments being made where there is a joint funding arrangement even though the Framework guidance makes it clear that where ‘an individual has existing Direct Payment arrangements, these should continue wherever and for as long as possible within a tailored joint package of care’.

 

Concluding Comments

About 1,300 people will transfer from the WILG to local authority care and support under the SSWBA 2014 by March 2019. Many of the recipients and their carers are concerned that their right to Independent Living will be compromised as local authorities re-assess and establish their eligibility to services.

The R (CWR) v Flintshire County Council (2018) Case Note illustrates the challenges that a disabled person and his/her family can face in Wales as they seek to access care and support. This case note does however, highlight the statutory requirements for a comprehensive assessment of disabled people in need of care and support and their carers. It demonstrates too, that assessments undertaken in a cavalier manner can be challenged and local authorities held accountable for their assessment, determination of eligibility and care provision. This may provide some reassurance to WILG recipients although it is perhaps questionable how many will have the energy, knowledge and courage to pursue this option.

While the term ‘well-being’ may be used in a perfunctory manner in discussion about social care, the definition in section 2 SSWBA 2014 is comprehensive and includes control over day to day life (s.2(4) (a)) and participation in work (s.2(4)(b)).

Clements notes that section 6(3)(b) stresses ‘the importance of promoting the adult’s independence where possible’ and argues that this is amplified and bolstered by para 56 of the Part 2 Code of Practice (General Function) which states that the well-being duty ‘includes key aspects of independent living as expressed in the UN Convention on the Rights of Disabled People in particular Article 19 which recognizes the right of disabled people to ‘full inclusion and participation in the community’; to choose where they live and with whom they live; and to have access to a range of community support services ‘to support living and inclusion in the community, and to prevent isolation or segregation from the community’. Assessment, eligibility determinations and decisions on how to meet need will need to be infused by these principles.

R (JF) v. Merton LBC highlighted the requirement for an assessment to have regard to the dimensions of well-being set out in stature.

A comprehensive overview of assessment, eligibility and meeting needs can be found at www.lukeclements.co.uk/wp-content/uploads/2017/11/Wales-SS-Well-being-Act-26.pdf page 9.

This ‘post’, written by Ann James and Luke Clements, appears in Rhydian: Wales Social Welfare Law on-line (2018) 23-26: to access this click here.

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Question Time in Caernarfon #SaveWILG

I am requesting help on Twitter to spread awareness of our #SaveWILG campaign during Thursday evening’s Question Time, which is taking place in Caernarfon. We have fellow campaigners in the audience to ask questions, though we recognise that it is very unlikely that any question on the future of WILG will be aired on the BBC.

If you are busy on Thursday evening, don’t worry. You can also get the message across to Assembly Members throughout Wales at any time. We must make it clear that there is still time to reverse the awful decision to close WILG and transfer all responsibilities for Independent Living to local authorities.

A list of AM Twitter handles can be found below along with a suggested Tweet and electronic postcards and memes that can be attached to Tweets for greater impact. Even if you only manage to Tweet a handful of AMs, this could make a real difference to disabled people across Wales.

You should also look out for some BRAND NEW MEMES that will be coming your way very soon.

Thanks for your support.

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SUGGESTED TWEETS:

Please be advised that these Tweets should be modified and adapted slightly to prevent Twitter from assuming they are spam messages. To help prevent this, the Tweets can also be individualised by using some of the many postcard photographs, electronic postcards and memes. 

Key addresses to include for tonight’s programme and over the coming months are as follows:

First Minister Carwyn Jones – @fmwales 

Minister for Children, Older People and Social Care, Huw Irranca-Davies  -@huw4ogmore

Disabled ppl with high care and support needs are in search of your support to maintain Independent Living for all. Are Welsh Labour planning on listening to the democratic wishes of their members #bbcqt

Disabled ppl with high care and support needs are in search of your support to maintain Independent Living for all. #SaveWILG #bbcqt

Wales voted Labour. Don’t copy Tory policy and damage independent living 4 disabled ppl. WHAT USE IS A TRANSITION PERIOD IF OVERWHELMING EVIDENCE AND A DEMOCRATIC VOTE IS NOT ENOUGH FOR A GOVERNMENTAL RE-THINK? #bbcqt

Wales voted Labour. Don’t copy Tory policy and damage independent living 4 disabled ppl #SaveWILG #bbcqt

This is the impact of closing the ILF in England  https://www.gov.uk/government/publications/independent-living-fund-post-closure-review #SaveWILG #bbcqt

Welsh Labour: Don’t copy Tories in Westminster. Protect independent living 4 disabled ppl #SaveWILG #bbcqt

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David Melding @DavidMeldingAM

Lynne Neagle @lynne_neagle

Gareth Bennett AC/AM @GarethBennettAM

David Rowlands AC/AMVerified account @DavidRowlandsAM

Hefin David AC/AM @hef4caerphilly

Caroline Jones AC/AM @carolineUKIP

Dr Dai Lloyd AC/AM @DaiLloydAM

Carl Sargeant AM @Carl4AandD Michelle Brown AM @MishBrownAM

Carwyn Jones AM/ACVerified account @AMCarwyn

Joyce Watson AM @JoyceWatsonam

Nathan GillVerified account @NathanGillMEP

Neil Hamilton AC/AMVerified account @NeilUKIP

John Griffiths AM @JGriffithsLab

Vikki Howells AM @VikkiHowells

Ann Jones AM @ann_jonesam

David Rees @DavidReesAM

Neil McEvoy AM @neiljmcevoy

Ken Skates AMVerified account @KenSkatesAM

Dafydd Elis-Thomas @ElisThomasD

MickAntoniw AM @MickAntoniw1

Jayne Bryant AM @JBryantWales

Mike Hedges @MikeHedgesAM

Julie James AMVerified account @JulieJamesAM

Rebecca Evans AMVerified account @RebeccaEvansAM

Eluned Morgan @Eluned_Morgan

JaneHutt AMVerified account @JaneHutt

Rhianon Passmore @rhi4islwyn

Elin Jones @ElinCeredigion

Vaughan Gething AMVerified account @vaughangething

Mark Drakeford AMVerified account @MarkDrakeford

Mark Isherwood AMVerified account @MarkIsherwoodAM

Angela Burns @AngelaBurnsAM

Mohammad Asghar AMVerified account @MohammadAsghar

Lesley GriffithsVerified account @lesley4wrexham

Nick RamsayVerified account @NickRamsayAM

Andrew RT DaviesVerified account @AndrewRTDavies

Simon ThomasVerified account @SimonThomasAC

Huw Irranca-DaviesAMVerified account @huw4ogmore

Russell George AMVerified account @russ_george

Rhun ap IorwerthVerified account @RhunapIorwerth

Julie MorganVerified account @JulieMorganLAB

Sian Gwenllian AC/AM @siangwenfelin

Janet Finch-SaundersVerified account @JFinchSaunders

Lee Waters AMVerified account @Amanwy

Alun DaviesVerified account @AlunDaviesAM

Jeremy Miles AC/AMVerified account @Jeremy_Miles

Jenny Rathbone AMVerified account @JennyRathbone

Mark Reckless AMVerified account @MarkReckless

Dawn Bowden AM @Dawn_Bowden

Llyr Gruffydd AC/AM @LlyrGruffydd

suzy daviesVerified account @suzydaviesam

Darren Millar AMVerified account @DarrenMillarAM

Steffan LewisVerified account @steffanlewis

Adam PriceVerified account @Adamprice

Hannah Blythyn AM @hannahblythyn

Kirsty WilliamsVerified account @Kirsty_Williams

LeanneWoodVerified account @LeanneWood

Bethan Maeve AM/ACVerified account @bethanjenkins

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There’s No Other Way #SaveWILG

I have thought long and hard about posting this blog after an exhausting trip to Cardiff on Tuesday [June 5th] to meet with Ministers and discuss the future of the Welsh Independent Living Grant (WILG).

It was a very productive day, but one that resulted in much work still to be done along with a conscious effort on my behalf to review, renew and strengthen my aims and objectives for this campaign.

I had to start the day at 03:00 to venture down to Cardiff and meet the Petitions Committee at 10:00 in the Senedd. The committee are very much onside with the objective to save WILG , and Huw Irranca-Davies AM is due to give evidence in response on June 19th. Every minister on the committee is very supportive, and spent some time chatting to me, Adam and Angie following this meeting. A video of our meeting with the Petitions Committee can be viewed here. Our section on the meeting can be viewed after 1Hr 17Min.

We were full of positivity for our next meeting with the Minister for Children, Older People and Social Care, Huw Irranca-Davies AM, but he spent the first fifteen minutes on the defensive and stated why the Welsh Government would be “standing firm” on their commitment to scrap WILG, and pass all responsibility for social care to local authorities. We all chipped in, but Adam Samuels was particularly effective in getting his point across, leading to HID asking Adam to ” calm down”. I don’t think Huw liked being spoken to by a confident person who was in possession of some convincing arguments about money and neo-liberalism.

HID had to leave early to support Carwyn Jones answering First Minister questions. You would have thought Carwyn was big enough to face these questions alone, #justsaying.

We were then left speaking to Gareth Griffiths, the Special Policy Advisor to HID. This was a positive and constructive conversation. We appreciated his points and vice versa. There could be areas to work towards a special compromise here, as Mr Griffiths struck a pragmatic and concilliatory tone. He advised me to send him all of the information that we have at our disposal, which shows that local authorities do not have a clear grasp on the transition process. We will also be submitting evidence of individuals who have suffered dramatic cuts in their levels of care, and the success of other schemes such as the Scottish ILF.

This was followed by positive meetings with both Mark Drakeford AM and Julie Morgan AM. Now is the time to let the information gleaned from these meetings sink in, and wait to see what happens at the Petitions Committee meeting in a couple of weeks. However, anyone who knows me will realise that I am not built to remain silent, and action must be taken immediately, in an appropriate and decisive manner.

I have been lying awake most of the night, since returning from Cardiff and it was during these frustrating hours that I discovered what we must do. All talk of compromise should be rejected. We have been running a hugely successful campaign, that has gained much momentum. Now is the time to use the soft power we have collected, in a positive manner, and keep on campaigning. It is essential that we do so, because the fight to save WILG is vital to disability rights across the UK. We owe it to our friends in England and the 1,300 recipients [though this has gone down to 1,250 according to the latest figures quoted by the Welsh Government].

The fact that i qualify for extra hours of care and support is not something that i am particularly happy about, but it is a fact that i require extra help to get the most out of my limited life. My desire for extra care is not motivated by greed at all, simply NEED. I do not need or expect to see “every penny piece” of the £27 million given to the Welsh Government to provide full Social Care to former ILF recipients. I would gladly see a fraction of this money being spent on administration so that we had a independent social worker to turn to rather than complete reliance on local authorities.

Former ILF recipients who currently receive WILG, have already been through an assessment process to prove that they have a certain level of care and support needs to be eligible for special treatment. Why should this certainty be pulled from underneath them in a cruel and callous manner? 

HID keeps saying that 400 WILG recipients have already made the transfer to direct payment, and some of these have received more hours of care. They are still at the mercy of underfunded local authorities and even though the Welsh Government promised to keep an eye on this, I cannot see this happening once the transition period has ended.

I was worrying about all of this last night. At 3.00 I woke up needing the loo. I use a bottle beside my bed that I had already filled with urine before waking up again. I struggled for 30 minutes to pick up  my full urinal, with my spasticated hands, through fear of spillage. When I finally managed to move the urinal in to position, I had already lost some of the contents of my bladder  on to the mattress. I had to remain on my wet mattress until help arrived at 9.00am. Try telling me that I don’t deserve 24 hour care, something that my own social worker told me that I would have “no chance” of getting from Wrexham Council, as “no one in Wrexham gets that amount of care”.

I should also note that I do not believe that I am in a good mental place to be going through the stresses and strains of another social care reassessment. It is totally needless and uncalled for, but it could save Wrexham Council a few pennies and we must remember that they need to find some spare cash to give the councillors another pay rise, and the latest iPads. I shouldn’t really complain.

I don’t see why we can’t protect people with high care and support needs, by noting all of the problems in this transition period and extending it indefinitely for at least 1,250 people. We should also allow this scheme to be open to others with high care and support needs, who need the guarantee of adequate support that local authorities alone just cannot provide. After bringing the campaign so far, I have certainly got no intention of cosying up to Wrexham Council. Someone has got to put their neck on the line for the sake of disabled rights in the UK, it may as well be me. I want to show the authorities up for what they really are.

I would also ask, yet again, for full access again to the consultation papers that were sent out to recipients. The Welsh Government have previously tried to fob us off with a mere summary that they have produced. This is not what we are asking for as we are only to aware that a summary document can be edited to suit the views of the Government. It does appear that the consultation was not adequately considered and that a decision to scrap WILG had been made before the consultation process even started. It also seems highly unusual that no minutes exist from the stakeholder group meetings.

I am not asking for the moon on a stick, just the chance to play the game of life on a level playing field. In turn, this would give Welsh Labour the opportunity to create some positive PR [at a time when they need it], and show that politicians can show some humility and humanity.

The fight continues …

Evidence From England #SaveWILG

The following article was published in September 2016 by our friends at Inclusion London and  seeks to evidence the impact of the Independent Living Fund closure with a focus on the situation in London.

This is clearly a VERY IMPORTANT REPORT FOR ALL ASSEMBLY MEMBERS TO READ IN FULL as the Welsh Government intend to close the Welsh Independent Living Grant (WILG) despite clear evidence of flaws during the transition period that the Minister for Children, Older People and Social Care constantly tries to hide behind.

WHAT USE IS A TRANSITION PERIOD IF OVERWHELMING EVIDENCE AND A DEMOCRATIC VOTE IS NOT ENOUGH FOR A GOVERNMENTAL RE-THINK?

Beneath the Inclusion London article, I have added a link to a PDF report written by the DWP reporting on the effects of the closure of the ILF. This is also essential reading for all Assembly Members.

As our elected Assembly Members you have the opportunity to make a telling intervention in the lives  of disabled people with high care and support needs. You cannot let this opportunity slip through your fingers as the potential of this group of people deserves to be tapped into as we can all make a difference to the communities in which we live.

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One year on: Evaluating the impact of the closure of the Independent Living Fund

This report seeks to evidence the impact of the closure with a focus on the situation in London.

The Independent Living Fund (ILF) was shut permanently on 30 June 2015. One week before, wheelchair users tried to storm the House of Commons chamber during Prime Minister’s Question time in a last ditch attempt to prevent closure. Disabled people receiving support through the ILF who are all too familiar with the day to day realities of the mainstream care and support system, were concerned that closing the ILF would mean a removal of essential support.

This report seeks to evidence the impact of the closure with a focus on the situation in London. It brings together statistical analysis from Freedom Of Information (FOI) requests sent to all 33 London boroughs with findings from a survey sent out to London Deaf and Disabled People’s Organisations (DDPOs) as well as qualitative evidence provided by former ILF recipients concerning their experiences of transfer to Local Authority (LA) support.

Comparison of evidence gathered through comparison of the Freedom Of Information (FOI) responses, Deaf and Disabled People’s Organisations (DDPO) survey, and examples of lived experience submitted by former ILF recipients has led to a number of themes emerging:

  • Post-code lottery for former ILF recipients across Local Authorities.
  • The detrimental impacts of the ILF closure on former ILF recipients, ranging from distress and anxiety to removal of essential daily support.
  • The lack of consistent practice across different Local Authorities regarding referrals for CHC funding.
  • Limitations of the mainstream care and support system and failings in the implementation of the Care Act.
  • The value of the model of support provided by the Independent Living Fund.
  • The importance of Deaf and Disabled People’s Organisations for making Deaf and Disabled people aware of and supported to exercise their rights.

There is an urgent need for a radical rethink of how Disabled people are supported to live independently. Disabled people who use independent living support must be at the forefront of developing ideas and with adequate resources for meaningful engagement.

This also needs to happen quickly, before the memories of what effective independent living support looks like and how much Disabled people can contribute when our support needs are met fade into the distance.

Download the full report below including the Executive Summary and Easy Read version 

Watch the video of the meeting. 

Watch the video at: http://bambuser.com/v/6445226?v=m 

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More essential reading from the DWP:

Report by the DWP: independent-living-fund-post-closure-review

 

 

Written Statement by the Welsh Government #SaveWILG

The following statement has been issued by the Welsh Government, regarding the Welsh Independent Living Grant.

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TITLE Welsh Independent Living Grant – Update

DATE 23 May 2018

BY Huw Irranca-Davies, Minister for Children, Older People and Social Care

As the first year of the two year Welsh Independent Living Grant (WILG) transition period has just ended, I thought it would be an opportune time to update Members on progress.

The Welsh Government is committed to independent living so that disabled people, wherever they live in Wales, are appropriately supported to achieve their wellbeing outcomes within their communities. As a result the majority of disabled people are supported to do this by their local authority who, under our social services legislation, have a legal duty to help them achieve their wellbeing outcomes. This will include their desire to live as independently as possible. Local authorities are funded in part to do this through the Revenue Support Grant we provide to local government.

This has been the case since 2010 when the UK Government closed the Independent Living Fund (ILF) to new applicants. Consequently, disabled people were no longer able to receive payments from the ILF to help with the cost of independent living in addition to receiving separate support from their local authority, which was a condition of receiving ILF payments. As a result a two tier system was created where some disabled people in Wales were still being able to access both avenues of support, while the majority of disabled people could now only receive this from their local authority.

In 2015 the UK Government closed the ILF altogether believing disabled people’s needs were best met locally by support provided by their local authority and as a result, in England the responsibility for providing this transferred to local authorities. In Wales, responsibility was transferred to the Welsh Government, with fixed funding of £27 million a year. There were around 1,600 people in Wales in receipt of payments from the ILF at that time. This compares with the 60,000 or so who now receive community based care and support from their local authority.

There was clearly a need at this time to make sure people in Wales who had received payments from the ILF were not left without support as a consequence of this decision. In response the Welsh Government introduced, as an interim measure, the WILG for local authorities. This was to provide the funding authorities would need to make payments uninterrupted to people who had been in receipt of ILF payments whilst we considered the most appropriate way to support this discreet group in future.

Prior to this a public consultation was held in 2014 on the principle of four alternative options to provide future support to this group. This was followed by detailed consideration by an ILF stakeholder advisory group of the viability of implementing a refined set of options based on the comments received. This stakeholder advisory group included organisations which represent disabled people in Wales, including Disability Wales and the All Wales Forum of Parents and Carers of People with Learning Disabilities.

I understand that on balance the stakeholder advisory group recommended providing future support through local authorities so that all disabled people in Wales, both those who were able to receive ILF payments and those who were not, were provided with support in an equal, consistent manner. It was also to ensure the fixed funding transferred from the UK Government was used to maximum effect by being used directly for that purpose and not on the administration costs of separate arrangements for those who used to receive payments from the ILF. The Minister at the time, Rebecca Evans AM, confirmed this in her Written Statement of 3 November 2016.

Unlike in England, where the responsibility for support was passed immediately to local authorities without guidance, we have been careful to undertake this in a managed approach. As a result we introduced in April last year a two year transition period during which local authorities will agree with people who used to receive ILF payments the wellbeing outcomes they wish to achieve, how they will be delivered and what support they require. This can be by received direct from their local authority, or direct payments can be made by the authority to enable people to arrange support themselves. We have provided local authorities with clear guidance on how to undertake this process, stressing the need for this to be done in partnership with people who need care and support.

In the second year of this period people have been transferring over to receive their future support from their authority, with the WILG ceasing in March this year and the full funding of £27 million a year transferring into the RSG from this financial year onwards to enable authorities to provide that support. Since the start of the transition period we have carefully monitored local authorities’ performance and will continue to do so throughout. The latest data, which covers the first year of this period, shows over 75% of people who used to receive ILF payments have now either completed the review of their future support with their local authority, or are in the process of doing so. Consequently over a third of all people who received payments (around 400 of the current total of 1,300) are now receiving their support from their local authority, in the same way as the majority of disabled people in Wales. In addition, authorities are reporting that most people are receiving support similar to that they received using their ILF payments, with no significant issues being raised. The remaining people are to have completed the review of their future support by the end of September and to be receiving support from their local authority by the end of March next year.

This position reaffirms that our decision to introduce this change in a phased approach was the right one, with the two year transition period providing the much needed time people affected and local authorities alike require to agree the correct level and form of support people require to maintain their ability to live independently. It is understandable, however, some people affected will be apprehensive about this change and I have previously met the

leaders of a campaign to retain the WILG to explain the reasons for the change taking place. That said I am not complacent and have recently commissioned the All Wales Forum, working with Disability Wales, to produce a questionnaire for people going through this process to let us have their views on their experiences and where any improvements in the process may be made. In addition, I am writing to local authorities to reinforce the importance of this transition and of the conversations they are holding with people in ensuring they receive the future support particular to them to deliver their wellbeing outcome of living independently in the community.