Julie Rogers-Owen

Pulling Myself Together

I have been a little out of sorts over the past week or so, thanks to a chest infection. Thankfully, I have come out the other side and am feeling stronger with every passing day.

It is always scary to be inflicted with a chest infection, as I am only too aware that such infections usually finish off my brothers and sisters who live with Ataxia. I didn’t want to join those unlucky few at this time. There is an election to win before I go anywhere…

The article I have put together below, just sums up some of my moods and feelings over the past few days, while the madness continues with my valued members of staff also being stricken down by illness.

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FACEBOOK STATUS 1:

I will probably have to stay offline for the next few days as I have just seen the doctor who said I have a chest infection. Bloody hell, this is all I need. I have to take this seriously as living with Ataxia is enough on it’s own without the added complications of a chest infection. I am now on antibiotics so hopefully they will do the trick as I do not fancy a stint in the Maelor. Thankfully, I have some excellent PA’s who will help me get over this and I will be back to full strength in no time.

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FACEBOOK STATUS 2:

I have just had another home visit by a GP who has put me on a stronger set of antibiotics. Hopefully, these will calm me down and stop me from having regular panic attacks. If I can get a good night sleep, I am sure that will help me loads.

I have also had a letter from ICS detailing the protest for them to make a decision. Basically, I think they were just playing for time. I am too exhausted to think of the ramifications of this. That is a battle for another day…

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FACEBOOK STATUS 3:

A third out of hours doctor visited me last night and provided me with the super strength antibiotics that I need to shift this infection off my chest. It seems to be doing the trick and I am regaining my appetite while breathing has become easier.

I am disappointed that I still do not have the strength needed to attend the Nick Whitehead Theatre this evening to vote for Helen Grout as Wrexham’s Labour Party candidate for the forthcoming General Election. I am totally pleased to openly back Helen as the only candidate capable of making a real difference to the community of Wrexham as a whole.

I am also pleased that my good friend, Julie Rogers-Owen, will be attending the Hustings and voting in the only sensible way. If the people of Wrexham, really want to see positive politics in action then it is crucial that Labour Party members vote for Helen Grout tonight.

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All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

All work and no play makes Nathan a dull boy.

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I have two piles of books in my living room. They need shifting if only to quieten the taunting voices in my head. You know it makes sense…

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Please read the following article: Dancing on Thin Ice: Available Now

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There is still much work to be done on the #SaveWILG campaign. It seems as if recipients from several Local Authority areas are still waiting on the results of their assessments. I want to emphasise that this is not because of any failing from ICS Services – the independent assessment company who have been put in charge of carrying out the reassessments – but because we are still waiting on the Local Authorities that let us down in the first place. This appears to be a totally ludicrous situation, as it was because we had no confidence in the Councils in the first place, that we launched the campaign. They are still making us wait by holding up discussions with ICS Services. I want to make sure that this situation is sorted out way before the upcoming festive period, as all WILG recipients deserve this after the torrid time they have been put through.

WALESPOSTCARDFRONT001


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Please watch the following video before deciding what to do at the Ballot Box on December 12th:

 

Colour Chart

Haiku is a genre of classical Japanese poetry and one of the major genres of Japanese literature. A Haiku consists of 3 lines and 17 syllables. Each line has a set number of syllables see below:

Line 1 – 5 syllables
Line 2 – 7 syllables
Line 3 – 5 syllables

Regular readers of this blog will know that I have put together a collection of poems to reflect the struggles of disabled people in 21st century Britain. I will publish these poems in a book to be released in 2018, utilising the team of illustrators I have assembled to help me add images to my words and create the type of book that I envisage.  I am speaking with students from Glyndwr University who are collaborating with me on this exciting project. Two of the talented artists who have agreed to illustrate my work are Julie Rogers-Owen and Heather Wilson.

I am aware that John Cooper-Clarke is performing at the Live Rooms in Chester next month. Unfortunately I was unable to get tickets for this event due to my lack of dexterity and lack of support. By the time I had the assistance that I needed to complete the online purchase form, the tickets had all sold out. I was planning on hanging around outside the venue to meet John Cooper-Clarke and get his advice on performing poetry, however I have just realised that I will be in Cardiff on the date in question as I have been invited to a cross-party meeting to give a talk on the Welsh Independent Living Grant, buggerations. I suppose this is what happens when you become a celebrity 🙂

Roses can be red

Violets considered blue

Envy is dark green

#SaveWILG Art Exhibition

The #SaveWILG art exhibition took place at Theatr Clwyd in Mold between January 24th and February 12th. I have included photographs of the art below although these pictures do not give the overall effect of the exhibition, as the Gallery space we were provided with includes large windows which caused sunlight to reflect on the framed artwork. This made capturing perfect photos very difficult.

I also include a YouTube video that illustrates the wealth of support that we received for our postcard campaign. This was shown on a large screen in the Gallery.

Following a conversation with Ted Eames, I have approached Lesley Griffiths, AM for Wrexham, to ask if she could arrange for the exhibition to be shown in the Senedd. She agreed in principle and I hope we can come to some arrangement quickly as time is of the essence.

Overall, the exhibition at Theatr Clwyd was a great success. Thanks are due to Disability Arts Cymru – especially Lowri-Mair Owen – Theatr Clwyd and everyone who visited the show. In particular, I want to thank Julie Rogers-Owen and Heather Wilson for their outstanding contributions in helping me create such a production. The input of David Nulty, Amy Lockhurst, Sophie Morris, Ted Eames, Grace Currie, Sophia Leadill and Georgina Gittins was also crucial to the success of this project.

 

 

 

 

 

 

 

 

YouTube Link – SaveWILG Film

Obviously these photographs do not do our exhibition any credit at all, but I have included them to give you a taste of what we have achieved. I am very proud of the exhibition and hope we can show it to all Assembly Members in the Senedd to help educate and inform them about the importance of maintaining WILG in the first place, before establishing a fairer system that will enable all disabled people to benefit from the right to independent living.

I have not added the artist names alongside these photographs as I would encourage you to try to attend this exhibition wherever it may appear next to get a full flavour of what has been achieved. Thanks to Julie Rogers-Owen for providing the photographs used above.

Switch Off Your TV Set

Haiku is a genre of classical Japanese poetry and one of the major genres of Japanese literature. A Haiku consists of 3 lines and 17 syllables. Each line has a set number of syllables see below:

Line 1 – 5 syllables
Line 2 – 7 syllables
Line 3 – 5 syllables

Regular readers of this blog will know that I have put together a collection of poems to reflect the struggles of disabled people in 21st century Britain. I will publish these poems in a book to be released in 2018, utilising the team of illustrators I have assembled to help me add images to my words and create the type of book that I envisage.  I am speaking with students from Glyndwr University who are collaborating with me on this exciting project. Two of the talented artists who have agreed to illustrate my work are Julie Rogers-Owen and Heather Wilson.

As well as the book, we are also planning an exhibition of my poetry in April in addition to the #SaveWILG exhibition – a collection of visual art, poetry and photographs produced by a number of artists across the UK, focusing on independent living as a whole. The exhibition will open on January 24th at 3pm in the Education Gallery at Theatr Clwyd in Mold, north Wales. It will continue until February 12th. Please come to show your support for this campaign and enjoy the powerful and emotive art created by people with passion and determination that are united in the belief that disabled lives matter. Everyone is welcome to the official media launch of the event on February 2nd at 3pm at Theatr Clwyd.

​Both of these events are being organised with the support of Disability Arts Cymru.

Locked in struggle

While you mindless idiots

Feed on distractions

How to Lose Friends and Alienate People

According to Wikipedia, Tanka (短歌, “short poem”) is a genre of classical Japanese poetry and one of the major genres of Japanese literature.

A Tanka consists of 5 lines and 31 syllables. Each line has a set number of syllables see below:

Line 1 – 5 syllables
Line 2 – 7 syllables
Line 3 – 5 syllables
Line 4 – 7 syllables
Line 5 – 7 syllables

Regular readers of this blog will know that I have put together a collection of poems to reflect the struggles of disabled people in 21st century Britain. I will publish these poems in a book to be released in 2018, utilising the team of illustrators I have assembled to help me add images to my words and create the type of book that I envisage.  I am speaking with students from Glyndwr University who are collaborating with me on this exciting project. Two of the talented artists who have agreed to illustrate my work are Julie Rogers-Owen and Heather Wilson.

As well as the book, we are also planning an exhibition of my poetry in April in addition to the #SaveWILG exhibition – a collection of visual art, poetry and photographs produced by a number of artists across the UK, focusing on independent living as a whole. The exhibition will open on January 17th at 3pm in the Education Gallery at Theatr Clwyd in Mold, north Wales. It will continue until January 29th. Please come to show your support for this campaign and enjoy the powerful and emotive art created by people with passion and determination that are united in the belief that disabled lives matter.

​Both of these events are being organised with the support of Disability Arts Cymru.


Use your silver spoon

To stir up old prejudice

Spread lies and divide

Power and fortune is yours

Eternal damnation waits…

The Independent: Toby Young’s appointment to board of higher education watchdog sparks criticism

You’re Never Going to Keep Me Down

According to Wikipedia, Tanka (短歌, “short poem”) is a genre of classical Japanese poetry and one of the major genres of Japanese literature.

A Tanka consists of 5 lines and 31 syllables. Each line has a set number of syllables see below:

Line 1 – 5 syllables
Line 2 – 7 syllables
Line 3 – 5 syllables
Line 4 – 7 syllables
Line 5 – 7 syllables

This is my 150th poem of 2017 and I have now put together a collection of poems to reflect the struggles of disabled people in 21st century Britain. I will publish these poems in a book to be released in 2018, utilising the team of illustrators I have assembled to help me add images to my words and create the type of book that I envisage.  I am speaking with students from Glyndwr University who are collaborating with me on this exciting project. Two of the talented artists who have agreed to illustrate my work are Julie Rogers-Owen and Heather Wilson.

As well as the book, we are also planning an exhibition of my poetry in April in addition to the #SaveWILG exhibition – a collection of visual art, poetry and photographs produced by a number of artists across the UK, focusing on independent living as a whole. The exhibition will open on January 17th at 3pm in the Education Gallery at Theatr Clwyd in Mold, north Wales. It will continue until January 29th. Please come to show your support for this campaign and enjoy the powerful and emotive art created by people with passion and determination that are united in the belief that disabled lives matter.

​Both of these events are being organised with the support of Disability Arts Cymru.

Looks like you made it

Limping in at the finish

With your pride intact

Battered, betrayed and broken

Set to fight another day

Follow the Script

According to Wikipedia, Tanka (短歌, “short poem”) is a genre of classical Japanese poetry and one of the major genres of Japanese literature.

A Tanka consists of 5 lines and 31 syllables. Each line has a set number of syllables see below:

Line 1 – 5 syllables
Line 2 – 7 syllables
Line 3 – 5 syllables
Line 4 – 7 syllables
Line 5 – 7 syllables

This is my 149th poem of 2017 and I am well on my way to putting together a collection of poems to reflect the struggles of disabled people in 21st century Britain. I would like to publish these poems in a book to be released in 2018, and I am close to finding a team of illustrators to help me add images to my words and create the type of book that I envisage.  I am speaking with students from Glyndwr University who are collaborating with me on this exciting project. Two of the talented artists who have agreed to illustrate my work are Julie Rogers-Owen and Heather Wilson.

As well as the book, we are also planning an exhibition of my poetry in April in addition to the #SaveWILG exhibition – a collection of visual art, poetry and photographs produced by a number of artists across the UK, focusing on independent living as a whole. The exhibition will open on January 17th at 3pm in the Education Gallery at Theatr Clwyd. It will continue until January 29th. Please come to show your support for this campaign and enjoy the powerful and emotive art created by people with passion and determination that are united in the belief that disabled lives matter.

​Both of these events are being organised with the support of Disability Arts Cymru.

I, Nathan Davies

Can relate to your story

Of pure frustration

Held back by the damn system

Until the end credits roll