Julie Morgan AM

Wrexham man’s disability campaign will lead to thousands of lives being improved

The following article was taken from the Leader Live website. I am claiming no credit for writing this article which also appears in the Leader newspaper. 

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Improvements have been made to the way care is delivered for more than 1,000 disabled people in Wales to help ensure they get the support they need to live independent lives.

Local Assembly Member, Lesley Griffiths, has welcomed the Welsh Government’s latest announcement and congratulated Wrexham resident, Nathan Lee Davies, who headed a strong campaign and made representations to the Deputy Minister for Health & Social Services, Julie Morgan AM, on the matter.

Concerns regarding the Welsh Independent Living Grant (WILG) were initially raised when it was announced the responsibility for the scheme, which had been introduced after the abolition of the Independent Living Fund (ILF), was to be passed onto local authorities to manage from April this year. Nathan feared the changes would have a detrimental effect on his wellbeing and initiated the ‘Save WILG’ campaign.

The hard work has paid off as under the latest proposals, additional measures have been put in place to ensure nobody who was once in receipt of WILF, and its predecessor ILF, misses out as a result of the changes. An independent social work assessment will be offered to all former ILF recipients who are unhappy with their new care and support package and would like a second opinion.

The Welsh Government will provide additional funding to local authorities for the cost of the workers to carry out these independent assessments and additional care hours that may result from the assessments.

Lesley Griffiths AM said: “It was vitally important that people who previously received payments from the Welsh Independent Living Grant were not negatively affected by the transition. These latest measures will help ensure the new system is implemented properly, assuring levels of care and support throughout Wales are delivered consistently.”

“There’s no doubt the Save WILG campaign made a real difference. Having met with Nathan a number of times, it was always clear to see the extra stress and anxiety this was causing him. I am pleased to have helped facilitate the Minister’s meeting with Nathan in Wrexham and I hope all the individuals who feared they were going to be adversely affected are happy with the outcome.”

The £27m Welsh Independent Living Grant (WILG) was originally set up in 2015 following a decision by the UK coalition Government to close the Independent Living Fund.

Welsh Government consulted with partners to develop a long term strategy. A two-year transition period began in April 2017 in which all former ILF recipients in Wales who were now in receipt of payments under WILG would have their care needs assessed by their local authority to ensure a care plan was agreed and support package put in place.

While the transition period resulted in the majority of recipients being satisfied with the new arrangements, some former ILF recipients, who had not been subject to a care assessment since 2015, were concerned by the change in approach, with the reassessment causing tension in some cases.

The announcement by the Welsh Government aims to address the inconsistencies, with evidence suggesting the variation between local authorities warrants a change in direction and the Welsh Government has written to local government leaders to request a pause of the transition with immediate effect in order to bring in revised arrangements.

Wales disability support cuts: ‘Second opinion’ offered by ministers

The following article is taken from BBC News online. I am not taking any credit for the article and the original piece can be accessed by clicking on this link. 

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Severely disabled people unhappy with their care package will be offered independent assessments, say ministers.

The Welsh Independent Living Grant (WILG) is being scrapped with councils taking over funding care for the more than 1,000 people receiving it.

Previous social care minister Huw Irranca Davies had insisted there would be “no losers” due to the changes.

But, in October, BBC Wales discovered around 100 of the 600 recipients reassessed had lost some support.

The research was conducted by the Wales Live programme.

On Tuesday, the Welsh Government said anyone wanting a “second opinion” could have an “independent social work assessment” and the move to the new system would be put on hold while new arrangements are put in place.

Plaid Cymru said the Welsh Government should “admit it has got this one wrong from the very beginning”.

Announcing the change in policy, Deputy Health and Social Services Minister Julie Morgan said: “It is paramount that people’s ability to live independently is not compromised by changes the care and support provided for people previously in receipt of the Welsh Independent Living Grant.

“These changes will ensure that is the case and deliver a consistent level of care and support across Wales.

The WILG was introduced in Wales to replace the UK-wide Independent Living Fund (ILF), which was closed down by the UK government in 2015.

“While the majority of former ILF [Independent Living Fund] recipients are receiving the same or more care as they were previously, a significant number have experienced a reduction in hours of support,” said Mrs Morgan.

“There is also considerable variation in the reductions in support.

“I have therefore written to local government leaders to request a pause of the transition with immediate effect in order to bring in the revised arrangements.

“This is a significant change of approach that ensures that the needs of former WILG recipients will be fully met, and that resources are no barrier to a full package of care and support.”

Julie Morgan
Image captionJulie Morgan campaigned for a change in the system as a backbencher

Mrs Morgan also announced that the Welsh Government would provide additional funding to councils for the cost of the workers to carry out these independent assessments and additional care hours that may result from the assessments.

The independent assessments will be consistent with people’s agreed “wellbeing outcome” and acknowledge the historical entitlement of former ILF recipients, she added.

Plaid Cymru’s Leanne Wood said the Welsh Government should “admit it has got this one wrong from the very beginning”.

“After the proposed changes are filtered through, we should thankfully have a situation where no disabled person has lost out on care.

“However, we will be spending considerably more money on administration and reviews to get to this point than if the Welsh Government had just adopted the Scottish and Northern Ireland approach of retaining the fund – as we argued for at the time.”

Huw David, Welsh Local Government Association social services spokesman, said: “In a time of austerity, any additional funding for social care is to be welcomed and I am pleased to see a commitment of extra investment from Welsh Government that will help to ensure the needs of former WILG recipients are fully met.

Local authorities would continue to work with ministers to address any concerns about the new system, he added.

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Analysis

By Wales Live reporter Paul Martin

With an acknowledgement a “significant number” of people have had support cut, a guarantee of independent re-assessments, and extra cash for any increased care packages, this adds up to a pretty big shift.

It puts new Social Services Deputy Minister Julie Morgan at odds with her predecessor Huw Irranca Davies who had said the new council-run system would be fairer and that there would be “no losers.”

There are questions now about how easy this change will be, and how much it will cost.

But “Save WILG” campaigner Nathan Lee Davies – who won significant support at Welsh Labour conference – described it as “the perfect 42nd birthday present”.

Essential Viewing: Wales Live

PLEASE WATCH THIS. APOLOGIES FOR THE LENGTH OF TEXT, BUT PLEASE READ & SHARE THIS (via copying and pasting or going to Clwyd South Labour Party Facebook page if you can’t share from here. Thank you).

Video is from approx 8mins 35 secs in.

Another superb report about the Save the Welsh Independent Living Grant – WILG campaign by the BBC’s Paul Martin, who again puts his UK-level colleagues to shame by showing how journalism should be done.

With Plaid securing a debate on WILG on Wednesday in the Assembly, we at Clwyd South Labour Party & Labour for Wrexham join our MPs Susan Elan Jones MP & Ian Lucas in calling on the Welsh government, OUR party, to finally make the change that absolutely NOBODY (apart from seemingly some Cabinet Ministers), ANYWHERE-inside or outside Labour-is against!

Both Mark Drakeford AM & Julie Morgan, Assembly Member for Cardiff North are good people, who we campaigned, phonebanked, door-knocked & supported passionately during their respective campaigns; both have been openly supportive of what we are trying to do.

So, if anyone is in doubt as to how important this is, or why it is ESSENTIAL that the Welsh Independent Living Grant with a confirmed TRIPARTITE (recipient, Local Authority, WAG-with WAG controlling admin & money) system is saved, then let us present evidence in addition to expert opinion:

-via FOI, VERY clearly, without a shred of doubt, the evidence in black & white shows that the current system implemented last year is failing lots of people. Demonstrably so. We have pages and pages of evidence and reports that prove that, putting all emotional pleas to one side, NOT keeping WILG with Tripartite is demonstrably worsening the lives of many, while as Dame Tani Grey-Thompson says, the inevitability of it costing MORE by NOT doing this!

Add to this we have plenty of evidence of what happens when the WILG equivalent is kept as in Scotland & Northern Ireland (very successful) V when it is scrapped, hence WILG to begin with, in England-i.e. Terrible results for the most vulnerable. Not surprising given this is, no matter how it is dressed up & accepting it was not the original intention, very clearly a Neo Liberal policy-the antithesis of what we stand for in Labour.

-NONE of the recipients are creating a two-tier system. WAG is. Both at the initial stage-their choice, but also now with the wildly differing results from Local Authorities. THAT is a two-tier system! Also, the number of recipients is only going DOWN, so if WAG do not think it is obvious that THE most vulnerable people in Wales deserve their direct protection (Tripartite), then we would love to know why.

-Democracy: We are very pleased to see Mark Drakeford re-emphasizing how we are a democratic, member-led party in Wales. Therefore, we expect, obviously, that the vote at Welsh Labour conference 2018 is upheld and that we keep WILG with a Tripartite system. Otherwise, as one of the first acts of the new administration, it’s not exactly a good look if the largest ever defeat for WL is ignored given the committed stance on democracy!!! Many would question what the point of conference motions are if this is ignored.

-Total unanimous support to Save the Welsh Independent Living Grant – WILG from the following:

The Labour Party membership inside & outside Wales

Labour MPs inside & outside Wales and AMs, Councillors etc in Wales

The Leader of the Labour Party at UK level Jeremy Corbyn

The Shadow Chancellor John McDonnell

Welsh Labour Grassroots- The Home for Momentum in Wales

Unite the union

Baroness Tani Grey-Thompson

The UN

The Official UK-wide Disability Group for Labour who also passed our motion

ALL other political parties in Wales. ALL!

Every single Constituency Labour Party (CLP) in Wales that we have had direct contact with, and many we haven’t

Wrexham FC, Ken Loach, Mark Thomas, Atilla The Stockbroker, Joe Solo & MANY other cultural icons

Do we need to go on? We repeat, we have faith in both Mark Drakeford & Julie Morgan to do the right thing as they are good Socialist people. IF, and we say IF, this is a failure of consensus politics, then annoy those objecting in your cabinet. Not the most vulnerable people in Wales. IF this is being stopped by the egos of others, because OBVIOUSLY it is not based in evidence, is it?!, then I am afraid WE, because WE are Labour, MUST stand up to anyone wishing to block what is an ABSOLUTE NO-BRAINER!!!

To be clear-our campaign will only heap praise on Mark Drakeford, Julie Morgan & Welsh Labour if they secure what is ethically, economically, politically & procedurally the right thing to do. We will praise them for listening and PROVING this new administration is a listening one, that it is very much a Socialist one, and very much an administration that respects democracy. It will be a statement of intent. It will, to quote Rhodri Morgan, show “Clear red water” between the Tories in Westminster & Labour in Wales. Nathan & the campaign has done everything by the book, jumping EVERY admin/democratic hurdle.

Now with this democracy-centred, inclusive, Socialist administration in addition to all the glaring, factual evidence, NO OPPOSITION either internally or externally, the UK Leader & Shadow Chancellor, the UN, Welsh MPs & AMs, THE CONFERENCE VOTE etc etc…This really is VERY easy to do from every conceivable angle-morally, politically, economically, PR-wise etc. It should be like shooting fish in a barrel.

We want to be proud to continue the fight to oppose social injustice. The average life expectancy of someone with lead campaigner Nathan Lee Davies‘s condition, is 35 years old. Tomorrow-Tuesday 12th February 2019-is Nathan’s 42nd birthday. To quote Nathan himself:

“I do not want to be using what precious time I have left fighting against the hierarchy of the party I love and campaign for. But I will if I have to. Please don’t make me.”

On behalf of the campaign, please do not make us have to, either. Do the right thing. You are good, decent people who we are proud to campaign for & defend daily. Yes, no one says your job is easy-far from it. But this decision is. PLEASE, before the party we love gets exposed in the Assembly on Wednesday, PLEASE LISTEN. THANK YOU!

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Open Letter to Deputy Health Minister, Julie Morgan AM #SaveWILG

FOR THE ATTENTION OF DEPUTY HEALTH AND SOCIAL SERVICES MINISTER JULIE MORGAN AM

Dear Julie

It was really good to meet you once again at my home on January 24th. I would like to thank you for listening intently to the evidence presented by myself, Sheila Meadows OBE and Vic Grout as to why the Welsh Government need to save the Welsh Independent Living Grant (WILG).

I am writing as a concerned WILG recipient to enquire when you will be able to reveal how the Welsh Government propose to rectify the situation caused by the imminent closure of WILG? I must push for a solution to the predicament I find myself in as time is running out and I still have not completed my reassessment thanks to the incompetence of my local authority. We were assured back in April 2018, that these reassessments would be completed by September 30, 2018. This deadline was then pushed back to November 30, 2018. The fact that this deadline has been missed should not be a surprise to anyone.  I am still struggling to cope with the inadequate levels of care and support that I currently receive, with no idea when this situation will improve. Last night I had to call my dad to assist me at 01:36. This is an untenable situation.

For your information I have included two links, at the foot of this letter, that will help you to build a clearer picture of what is going on. I have faith in Welsh Labour to do the right thing and act now before the situation gets any worse. The maintenance of the tripartite system is an absolute necessity. 

Please note that this letter is written with the deepest respect and understanding and I look forward to hearing from you soon.

Nathan Lee Davies

DISABILITY NEWS SERVICE: LAST-DITCH APPEAL TO NEW WELSH FIRST MINISTER OVER INDEPENDENT LIVING SCHEME 

OPEN LETTER TO FIRST MINISTER MARK DRAKEFORD

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Disability News Service: Last-ditch appeal to new Welsh First Minister over independent living scheme #SaveWILG

A disabled campaigner has sent an 80-page dossier of evidence to the new first minister of Wales in a last-ditch bid to persuade him to abandon plans to close the Welsh government’s independent living grant scheme.

Nathan Lee Davies has written to Mark Drakeford with just two months left until the planned closure of the Welsh Independent Living Grant (WILG), which was itself set up as an interim scheme following the UK government’s decision to close the Independent Living Fund in June 2015.

Davies, who has led the Save WILG Campaign, told Drakeford in an open letter this week that closing WILG would leave disabled people with high support needs “at the mercy of cash-strapped Local Authorities who seem intent on cutting vital support packages across the board with no guarantee that further cuts will not follow”.

He said that local authorities “seem to be treating disabled people as a burden”.

Davies points out in the letter that Drakeford had promised – during his successful campaign to lead the Welsh Labour party last year – that if an independent evaluation of the WILG closure showed the new system “not working as well as the old one” then he would be “prepared to reverse it”.

WILG was set up by the Welsh government – with UK government funding – as a short-term measure to support former ILF recipients when the fund was closed in June 2015.

But the Welsh government is now closing WILG and transferring the funding to local councils, and by April the 22 local authorities will be solely responsible for meeting the support needs of all former ILF-recipients in Wales.

Davies said the “deep dive review” of cases in which WILG recipients were having their support cut was “full of errors” and had failed to consult the disabled people who will be affected.

He pointed to his own experience at the hands of his local authority, Wrexham council, which he said had treated him “abysmally”.

Davies, who has a life-limiting condition, said that the process to reassess his support needs, due to end in September 2018, had still not been completed and was having “a negative impact” on both his physical and mental health.

He described how his social worker had laughed when he suggested he needed 24-hour support and told him that no-one in the borough received that level of support.

He said that the lack of overnight support in his current social care package meant he had to stop drinking at 8pm at night and get ready for bed at 10pm, and often had to call his 68-year-old father to assist him in the night, even though he lives a 10-minute drive away and has arthritis in both hands.

The dossier, which has already been shared with the deputy health and social services minister Julie Morgan, includes a description of a day in his life, from last January, showing the poor level of support he already receives – even before the closure of WILG – and the pain and indignity this exposes him to, as well as the lack of choice and control in his life.

Davies says: “It is 2018 and I am still being treated like a second class citizen.

“I have a progressive condition of the nervous system which is accelerating at quite a rate, yet I still have the same amount of inadequate care and support hours that I did in 2010 when I first began independent living.”

He updated this by posting a new blog yesterday, showing that little had changed in the last year.

In the dossier, he warns the Welsh Labour party: “I do not want to spend the last days of my life completely unnecessarily fighting against the party I have defended and campaigned for across many years.

“But I will if I have to. Please don’t make me.”

The dossier also includes a letter from a director of Disability Wales, Trevor Palmer, in which he says the planned WILG closure has “created serious disruptions” to his life, with local authority “incompetence and lack of understanding” that has led to his support package being “substantially” reduced.

A Welsh government spokesperson said: “We believe that disabled people’s ability to live independently should not be compromised by any changes to the way in which support is arranged for those people who previously received payments from the WILG.

“The first minister has just received Mr Davies’ open letter regarding the WILG and will carefully consider the detailed points it makes.

“He has asked the deputy minister for health and social services to consider what further action may be necessary to ensure disabled people in receipt of the WILG are not adversely affected by this change.

“The deputy minister has provided Mr Davies and the National Assembly’s petitions committee with details of the deep dive review.

“She also met Mr Davies at his home to hear his concerns and discuss the issues raised in his dossier.”

He said the deep dive review had seen the 22 Welsh local authorities audit all cases where they intended to cut the WILG element of people’s support.

This found planned reductions in about 157 cases, and increases in support in a similar number, out of 1,174 people.

He claimed that the cuts had taken place because “some people had developed a need for healthcare rather than social care while some, due to their support being provided in a different way or being of a different type, had a reduced need for care overall”.

He accepted that two questionnaires, commissioned from the All Wales Forum of Parents and Carers of People with Learning Disabilities, had had a low response rate, but he said that responses to it “have been positive about the way assessments have been undertaken and the outcomes people have received”.

Charlotte Walton, Wrexham council’s head of adult social care, said: “We cannot comment on any individual’s care and support needs.

“However we do not accept the allegations being made.

“We have carried out all of the WILG reviews in a person centred and inclusive manner and working with the individual recipients of the fund [has]enabled them to achieve positive outcomes from the reviews.”

Davies said he would now push for a meeting with the first minister.

He said: “I am not going anywhere and will continue to fight this until justice is served.”

Picture: Nathan Lee Davies with Labour leader Jeremy Corbyn

Closure  of the Welsh Independent Living Grant #SaveWILG

The following article was taken from the excellent blog by Luke Clements – a Professor of Law at Leeds University and a Solicitor. 

We really appreciate all the support from Luke Clements and the formidable Ann James in our bid to #SaveWILG. Let’s hope the Welsh Government actually listen to the mounting critics of their decision to close WILG.

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A case of Wales following in the footsteps of England?

While attention is focused on the countdown to leaving the European Union, one should not lose sight of the impending closure of the Welsh Independent Living Grant (WILG) which has been earmarked for the 31 March 2019.  The impact of the closure is already being felt by people who have transitioned from the WILG to Local Authority funded care and support.

A strenuous and valiant campaign to # SaveWILG has been led by Nathan Davies.

The sustained #SaveWILG campaign has gathered momentum in the final weeks before the proposed closure and has been given greater impetus by a letter from the Deputy Minister for Health and Social Services.  In this letter Julie Morgan, sets out the outcome of the Deep Dive Review that was put into place by the previous Minister to evaluate the process and outcomes of the re-assessment of WILG recipients who have been re-assessed for Local Authority Services. The letter notes that 157 disabled people (of the 1,174 people who have been re-assessed – i.e. 13%) have suffered a reduction in their care and support provision.

The Minister has since met with representatives of the #SaveWILG Campaign Group who have presented her with a dossier of evidence to reconsider her decision.

The BBC Wales Live news item https://www.bbc.co.uk/iplayer/episode/b0c0x936/bbc-wales-live-23012019(at 8 minutes 40 seconds) has highlighted the impact on disabled people who have been reassessed and the impact on carers. The long term costs of leaving disabled people with high level care needs with insufficient support was highlighted by Tanni Grey Thompson who supports the continuation of central government funding.

Nathan Davies on behalf of the #SaveWILG  has written an impassioned open  letter  to the First Minister for Wales https://nathanleedavies.wordpress.com/2019/01/28/open-letter-to-first-minister-mark-drakeford-savewilg/  in which he sets out the deep concerns of disabled people who have been moved to local authority care and support, reminding him that during the campaign for the office of First Minister, and in response to a question from the BBC he said,

“… if an independent evaluation shows the new system is not working as well as the old one then I would be prepared to reverse it because this is money intended for a very specific number of people for a very specific purpose”.

One must reluctantly come to the conclusion that the Welsh Government is following in the footsteps of England, albeit three years later.  The closure decision has given scant consideration to the evidence from England on the effect of closure on disabled people and their carers and Wales has been prepared to continue along a trajectory that risks destabilising the established care and support  of WILG recipients.  A critical analysis of the intended closure of the WILG can be found by clicking here.

The Deep Dive Review, referred to by the current Minister for Health and Social Services, was intended to be an independent audit of the process, impact and outcomes of assessing WILG recipients for transition to local authority services. Embedded in the review was the possibility of reversing the decision. If not it was merely a cosmetic exercise.

The detail of the Deep Dive Review has not been made public as yet. There is neither information as to whether local authorities provided each previous recipient of WILG with independent advocacy nor if they offered a carers assessment to relevant carers.

It is an indictment of a review which was supposed to give reassurance to disabled people about the veracity of the evaluation of the process of transition to local authority services, that disabled people were not consulted about their experience of the process  and their satisfaction with the outcomes.  Local Authorities representatives were however consulted and provided reassurance to the Minister that no major implementation issues had come to light.

The letter from the Minister to the #SaveWILG campaign notes that some of the previous recipients of WILG are no longer eligible for social care and have been moved to NHS Continuing Health Care.

Unlike in England, recipients of NHS Continuing Health Care are prevented by statute from having a Direct Payment to arrange care and support. This is a significant impediment to independent living and yet this has not been attended to in legislation (although in England this barrier has been removed).

It now rests with the Minister of Health and Social Services to reverse the decision to close the Welsh Independent Living Grant and to offer a clear view on how Wales will meet the needs of disabled people with complex needs.

The case note R (CWR) v Flintshire County Council(2018) is a salutary reminder of the experience of a disabled person in need of care and support in Wales under the Social Services and Wellbeing (Wales) Act 2014 and illustrates the understandable fears of disabled people when being assessed for care and support.

The case is also a clear reminder that it is possible to effectively challenge unfair, unlawful or irrational decisions by local authorities.

Open Letter to First Minister Mark Drakeford #SaveWILG

Dear Mark

This is an incredibly worrying time for all disabled people and their families across Wales.  There are only 63 days left before the Welsh Independent Living Grant is due to end, leaving individuals at the mercy of cash-strapped Local Authorities  who seem intent on cutting vital support packages across the board with no guarantee that further cuts will not follow.

The fact that this neo-liberal policy is still being forced through by a Welsh Labour Government is unbelievable: frankly, it makes it even worse. I always thought that I would be protected from the brutality shown by the Tories in Westminster, because I live in a land governed by a social, democratic party. Unfortunately, the Party that I know and love seem to have lost their way under the previous leadership, which is why I was overjoyed by your election victory to become our new First Minister.

I am confident that Welsh Labour is now travelling in the right direction towards a socialist future which you championed during the Leadership Hustings. In an interview with the BBC you also said the following about the future of the Welsh Independent Living Grant:

…”if an independent evaluation “shows the new system is not working as well as the old one then I would be prepared to reverse it because this is money intended for a very specific number of people for a very specific purpose”.

The deep-dive that was recently undertaken by the Welsh Government, to analyse the performance of Local Authorities relating to the WILG transition, is full of errors and quite frankly not worth the paper it is written on. How can an investigation into the circumstances surrounding the end of WILG be conclusive without having consulted disabled people who will be affected? My comrades dismantled the deep-dive results in our recent meeting with Deputy Health Minister, Julie Morgan AM.

The closure of the Welsh Independent Living Grant is such a destructive move to disabled people’s rights and I do not believe that a progressive Party such as ours should be going down such an avenue.

#SaveWILG campaigners have presented the Deputy Health Minister with an 80 page dossier of evidence against the closure of WILG. In addition, we have the backing of Welsh Labour members who overwhelmingly voted in favour of the Clwyd South motion to save WILG at Conference in April 2018. I believe you pledged to listen to the voices of members during the Hustings and they have certainly been vocal on this subject. We have also had support from Jeremy Corbyn, Shadow Chancellor John McDonnell, MP’s such as Chris Williamson, Ian Lucas and Chris Ruane. Film Director Ken Loach also supports our campaign.

Criticism of Welsh Government policy on Independent Living has also been made by the United Nations Convention on the Rights of People with Disabilities (UNCRPD):

However, various disability organisations in Wales had advocated setting up a national independent living scheme in Wales as aligning with a citizen directed system of support rather than the approach now adopted by the Welsh Government.

We recommend that the CRPD Committee asks:

Can the Welsh Government explain:

How it reached a decision to move all ILF recipients to normal social care provision from 31 March 2019, rather than setting up a national independent living scheme?

How it will ensure protection for article 19 rights of those formerly eligible for the Independent Living Fund after 31 March 2019?

I do not believe Welsh Labour should be having to defend themselves against the UN as I know your personal intentions are to ensure universal equality throughout Wales, but now is the time to take positive action and start listening to Welsh Labour members and disabled people and their families.

Personally, I have been treated abysmally by my Local Authority. I find myself in the position of having to teach my social worker about the Social Services and Well being Act. I am not being allowed to use my Direct Payments to meet my Personal Outcomes as described in the SSWBA and feel this vindicates my insistence on the need to maintain the tripartite system when deciding on and funding future care provision.

The reassessment process – which was originally due to end by September 30th 2018 and shows no sign of being completed soon – is really having a negative impact on my physical and mental health. When I first met with my social worker at the end of November 2018, she laughed when I suggested that I would need 24/7 support. She declared that no one in Wrexham gets such a thorough level of support [whether they require it or not?]. She said that even if we applied for such levels of care and support, that the panel would not accept such a request. This is a total departure from what the SSWBA promises. There is definitely no co-production going on and Local Authorities seem to be treating disabled people as a burden.

Without the overnight support I need to fully function in society, I have to stop drinking at 8pm at night, get ready for bed at 10pm and cannot wear my hand splints or use my leg supports during long and uncomfortable nights. I often find myself having to call on my 68-year-old father to assist me in the night, even though he lives a 10 minute drive away and has arthritis in both hands.

As Tanni Grey-Thompson said on Wales Live (23/01/19), it will cost the Welsh Government more in the long term to push ahead with this strategy of devolving funding to Local Authorities. It just makes no sense whatever way you look at it. Disabled people and their families never wanted such a situation to develop as was indicated in the original consultation that took place during 2015/16. I have been asking to see the consultation documents since October 2017, but I keep being directed towards a summary document. We all know that a summary can be manipulated and edited to suit the publishers. If the summary is accurate why can I not access original consultation responses?

It is often claimed by the Welsh Government that the original stakeholder group were united in agreement with the closure of WILG and the transferring of funds to local authorities.This is quite simply untrue. The members of the stakeholder group that I have spoken to have stated their frustrations with the whole process: “I disagreed with one side of the room almost continuously,“ and “I would be amazed to see minutes of a meeting where all participants agreed that passing this WILG over to the local authority beyond the ring-fenced period was the way forward.”  Others have said “I used to go home from all these stakeholder groups thinking we had agreed certain things to discover that was not what had been recorded.” and other activists argue that many officials and civil servants do not actually “know what Independent Living means – they still think ‘independent’ means managing without support”.

It would greatly assist me in understanding Welsh Government’s decision making process on this issue if the minutes of all of the meetings of the stakeholder advisory group can be provided, and I will submit a Freedom of Information Act request if necessary.

I could go on and on, but time is against me and I would merely be repeating much of what can be read in my attached dossier of evidence. At over 80 pages long, I believe it is a comprehensive guide as to why the Welsh Independent Living Grant should be maintained indefinitely. The dossier includes information of the success of the Independent Living Schemes set up in Scotland and Northern Ireland that shows the lack of imagination shown by the Welsh Government compared to our neighbours.

Please note that this letter is written with the deepest respect towards yourself and your cabinet members. I am a loyal Welsh Labour supporter and I have belief in the 21st Century socialism that you intend on developing. The problem is that we cannot wait any longer and the changes need to be made immediately. There is no sense in a proud socialist Government copying the exact same model rolled out by the Conservative Party in Westminster.  Moreover, if the original decision was wrong then your team needs to have the courage to simply reverse it.  Tinkering with the detail in a bid to spare the blushes of your predecessors is just not acceptable: in fact it’s morally dishonest.

I know that you are extremely busy with Brexit and other pressing concerns, but disabled people with high care and support needs across Wales are in need of your leadership now. I look forward to meeting you again in the near future and should you require any more information from the #SaveWILG campaign, please do not hesitate to contact me.

Wishing you strength and solidarity

In hope…

Nathan Lee Davies
#SaveWILG campaign

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