Independent Living Fund

Letter from Ian Lucas MP

I received this letter from my MP Ian Lucas who has been extremely supportive of my #SaveWILG campaign. He was trying to find out information about how the closure of the Independent Living Fund (ILF) has affected disabled people. He wanted me to see the response he received – printed below – from Sarah Newton MP, Minister for Disabled People, Health and Work as it looks as if the Government is shifting responsibility for ILF  to local authorities who will now carry the can.

Thank you to Ian for his continued support. Together we will fight for justice for all disabled people against an obviously heartless Government…

Dear Ian

Thank you for your email of 2 November to my predecessor concerning the Post Closure Review of the Independent Living Fund (ILF).

As you are aware, the responsibility for the ILF has been devolved to local authorities. Central Government does not monitor individual authorities’ assessment of need. At the point of closure of the ILF, 94 per cent of users were also receiving support from local authorities. This duplication of support indicated that there would be a rationalisation of awards , therefore, it was expected that some awards would be reduced to rectify this.

The aim of the post closure review was to provide a qualitative assessment of the experiences of the closure of the ILF in England, as perceived by its former recipients and local authority staff within adult social services department.

This qualitative research comprised in-depth interviews with 50 former ILF users. The ILF closed in 2015 and the interviews took place between August and September 2016, therefore providing a more accurate idea of the immediate impact of ILF closure on recipients. Conducting research of this type is challenging. Many ILF users have mobility or communication difficulties or are vulnerable, which means that interviews are time consuming and can only be conducted by specially trained interviewers.

The Department fulfilled its obligations by publishing the findings of the interviews, but we would not publish the individual interviews themselves for Data Protection reasons.

We have also published the equality analysis that was conducted prior to the closure of the ILF, which can be accessed using the following link: https://www.gov.uk/government/publications/closure-of-the-independent­ living-fund-equality-analysis

I can assure you that the Department is not seeking to withhold information on present payments to former ILF recipients. As indicated in the answer to your recent Parliamentary Question, the Department does not in fact hold this information. I suggest that you seek the information from individual local authorities.

Sarah Newton MP

Minister for Disabled People, Health and Work

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Letter from Huw Irranca-Davies AM

I am sharing this letter from Huw Irranca-Davies  AM to Lesley Griffiths AM concerning my #SaveWILG campaign. There are many, many issues that I would like to pick up from this email, but I am biting my lip until we can arrange a meeting with my MP and Huw Irranca-Davies himself.

I hope this can be in one of the 24 days before Christmas, so that I can discuss my concerns and enjoy the festive break but I am not holding my breath and am preparing for my 8th consecutive Christmas of concern and worry over the future of Independent Living for disabled people in 21st century Britain.

Seasons Greetings…

***

Lesley Griffiths AM
Assembly Member for Wrexham
Lesley.Griffiths@assembly.wales

 

14- November 2017

Dear Lesley

Thank you for your letter to Rebecca Evans AM on behalf of your constituent, Mr Nathan Davies, outlining his ongoing concerns regarding the Welsh Independent Living Grant (WILG). I am replying as policy on social care in Wales now forms part of my Ministerial portfolio.

I have agreed to meet Mr Davies and his MP, Ian Lucas, and my Diary Secretary is arranging for this to take place as soon as is possible.

In relation to Mr Davies’ comments about Wrexham County Borough Council, my officials have been in contact with the authority to ascertain the latest position. I am aware that Wrexham initially had social worker vacancies which impacted upon its ability to undertake future support reviews of WILG recipients and reviews of those receiving social care more generally. This seems to have occurred in Mr Davies’ case.

Wrexham County Borough Council now informs us that it has recently recruited additional social workers to undertake reviews of those receiving social care from the authority, thereby releasing more experienced officers to undertake future support reviews of its WILG recipients. Recipients will be contacted individually by the authority to enter into a dialogue as to the wellbeing outcomes they wish to achieve to live independently and to agree the future support they require to achieve these. The authority intends to complete as many of these support reviews as possible within this financial year, with those not able to be completed by then as soon as possible in next financial year. Whenever a WILG recipient’s support review is completed, their payments under the WILG will not cease until a package of care to deliver the future support they require is in place.

One public consultation on the way in which former recipients of the Independent Living Fund should be supported in the future was held. This ran from October to December 2014 and asked for views on the principle of four potential options to provide support. A summary of the responses received and the conclusions reached was published in March 2015. Stakeholders, including recipients, were informed of this at the time and until recently this summary appeared on the Welsh Government’s website (only being removed as part of a wider updating of our website). I attach a copy of the consultation summary published in 2015 together with a copy of the information letter on this which officials sent to local authorities at the time for them to provide to recipients. I would be grateful if you would provide these to Mr Davies as part of your response to him.

As regards Direct Payments, I understand Wrexham County Borough Council currently operates around 200 such payments to adults to enable them to have control over the care and support they obtain to meet their wellbeing outcomes. The authority is not aware of any operational issues affecting the delivery of these, although accepts that some individuals experience difficulties with recruiting appropriate staff or with securing the care they need from support providers. To ensure their practice is current and appropriate, it has held discussions with officers from Flintshire County Council relating to a collaborative approach to delivering Direct Payments in the region.

If Mr Davies has specific concerns regarding his care package or his Direct Payments from the authority, I understand that Sheila Finnigan-Jones, Service Manager for Disability Services, is happy to meet him to discuss these. Her contact details are:

Tel: Wrexham (01978) XXXXXX E-mail: Sheila.finnigan-jones@wrexham.gov.uk

Huw lrranca-Davies AC/AM

Y Gweinidog Gofal Cymdeithasol a Phlant Minister for Children and Social Care

Former ILF Recipients in Greater Manchester

With thanks to Brian Hilton.

On Manchester Radio recently there was a feature on what has happened to former ILF recipients in Greater Manchester.

BBC Radio Manchester submitted FOI to all 10 Greater Manchester authorities asking what had happened to the care support of former ILF recipients. The results revealed that 42% of former ILF recipients had had their care reduced since the closure of the ILF.

The item was revisited through the show (see iPlayer link below) and featured a former ILF recipient called April from Stockport who had had her 62 hours a week care reduced  by 38 hours a week. She can’t go out, urinates in a bottle and has a lift in her house that she is unable to use.

In one of the segments they interviewed John Roust (Chief Executive – Greater Manchester Health & Social Care Partnership) who said they had set up a “Personalisation Team” to look at how social care recipients can better utilise and have more control over the care they receive. One example he gave was recipients pooling their resources. An interesting aside is that John Roust has a disabled daughter, so said he had a personal and professional interest in this issue.

In another section they interviewed Jackie Driver (Chair – Breakthrough UK) who said that cuts were seriously affecting disabled people’s wellbeing. Also, said that Greater Manchester Devolution presented us with an opportunity to address such issues.

The segments were featured at

24 minutes

1 hour and 11 minutes

2 hours and 10 minutes

2 hours and 42 minutes

Here is the iPlayer link if you want to have a listen: http://www.bbc.co.uk/programmes/p04v9nhq

Letter from Minister for Social Services and Public Health to the Chair of the Petitions Committee

David J Rowlands AM

Chair

Petitions Committee National Assembly for Wales

SeneddPetitions@assembly.wales

21 August 2017

Dear David,

Thank you for your letter seeking my views on a petition submitted to the Petitions Committee by Nathan Lee Davies in relation to the closure of the Welsh Independent Living Grant.

As Mr Davies outlines in his petition, the Welsh Government put in place in 2015 the Welsh Independent Living Grant (WILG) with local authorities to enable them to maintain payments to recipients in Wales of the Independent Living Fund (ILF). This was following the closure at that time of the ILF by the UK Government. We introduced this grant to ensure continuity of support in the short-term for recipients. This was to help them meet the additional costs of living independently in the community in a similar manner to the financial support they received from the ILF. This arrangement was to provide time for us to consider the most appropriate way to provide support to recipients in the longer-term, so as continue their ability to live independently.

As Mr Davies indicates, to assist with our consideration of what that longer-term support should be a stakeholder advisory group had been established. This had representation from the organisations which represent and act for disabled people in Wales (such as Disability Wales and the Dewis Centre for Independent Living), representation from local authorities and some recipients themselves. The majority of the representatives on the advisory group were, as Mr Davies says, from the third sector or had themselves received payments from the ILF. This was because we wanted advice from those who fully appreciated the outcomes disabled people seek and what they required from the arrangements we were to put in place to support their independent living.

The advisory group considered a number of potential options to provide support in future to those who used to receive payments from the ILF. These ranged from perpetuating the WILG indefinitely, or for a set period of time, to establishing similar arrangements in Wales to that of the ILF outside of local authorities’ provision, to having support provided in future through local authorities’ social care. The advisory group considered the advantages and disadvantages of each option in terms of its effectiveness to support former recipients and its fit with supporting the larger group of disabled people in Wales who had been excluded by the UK Government from receiving support from the ILF (as it had in 2010 closed the ILF to new entrants).

I am not sure why Mr Davies thinks the advisory group wished to keep the WILG. On the contrary, overall it accepted that the arrangements we had put in place through the WILG could only ever be temporary while a longer-term solution was found. After considering the potential options in the light of the issues I set out above, the advisory group on balance favoured the option of future support being provided by local authorities as part of their social care provision. None of the members of the advisory group opposed this recommendation.

The advisory group favoured this option as it matched the future support former recipients would receive with that being provided generally to disabled and older people in Wales. This is through our new person-centred ethos for social care being delivered through the Social Services and Well-being (Wales) Act 2014. The Act came into effect from April last year and changes the way people’s needs are assessed and the way support is delivered. People now have more of a say in the well-being outcomes they wish to achieve and the care and support they require to deliver those outcomes. This is similar to the ethos behind the original establishment of the ILF. The Act also contains stronger powers to keep people safe from abuse and neglect.

The advisory group also saw this option as the way forward as it removed the inequitable two-tier approach which currently exists to supporting disabled people in Wales, with some receiving only support from their local authority, while others can receive this as well as dedicated payments from the WILG.

It is also important to note that prior to the advisory group’s considerations we undertook a public consultation on a number of possible options to provide support in future. While it is true that the majority of those who responded favoured arrangements in Wales similar to those of the ILF, this was not the option favoured by all recipients who responded. Indeed the vast majority of recipients did not respond to the consultation at all. Nevertheless, my officials did contact those in the Scottish Government to establish the basis of the dedicated support arrangements for former ILF recipients in Scotland and the possibility of those arrangements being extended to Wales.

While ILF Scotland could administer and make payments on behalf of the Welsh Government, it became clear it would not be in a position to do this for a considerable period of time. In addition, it required significant set-up and operating funding to administer our payments, totalling in the first year of operation well over £1 million with annual operating funding in excess of £0.750 million. Such funding would have needed to be top-sliced from the overall funding available to support former recipients in Wales, thereby substantially reducing the funding available for their support itself. On this basis we did not believe that these arrangements would be acceptable given the reduction in support to which it would lead, or that they provided good value for money. Overall the advisory group shared this view and was keen that already limited funds were not used disproportionately on establishing and maintaining separate arrangements to provide support.

Consequently, I accepted the stakeholder advisory group’s advice to have support to former ILF recipients in Wales provided in future by local authorities as part of their social care provision. To put this into place the advisory group also recommended that there should be a two year transitional period, whereby in the first year authorities establish all recipients’ desired well-being outcomes and agree with them the support they require to achieve these. In the second year recipients would transfer over to receiving all of their support from their local authority, with their payments under the WILG ceasing at the point at which this occurred. I also accepted this recommendation in full, with as a result the transitional period commencing from 1 April this year and due to conclude on 31 March 2019.

Clearly those who wished to see a different option chosen will be disappointed with the decision taken. However, that decision did not ignore the advice of the representatives of disabled people in Wales on the stakeholder advisory group but was fully in accordance with it.

Yours sincerely,

Rebecca Evans AC/AM

Gweinidog Iechyd y Cyhoedd a Gwasanaethau Cymdeithasol

Minister for Social Services and Public Health

 

Disabled activist ‘is fighting for his life’ as he hands petition to Welsh government

THIS ARTICLE ORIGINALLY APPEARED ON THE DISABILITY NEWS SERVICE WEBSITE AND WAS WRITTEN BY JOHN PRING.

A disabled activist has handed in a petition of hundreds of signatures that calls on the Welsh government to reverse its decision to close its version of the Independent Living Fund (ILF).

Nathan Lee Davies (pictured) says he is fighting the decision to scrap the Welsh Independent Living Grant (WILG) because he is terrified of the prospect of his cash-strapped local authority taking over full responsibility for providing his care package.

He has been told that without WILG his own care package would be reduced from 86.5 hours to just 31 hours a week.

He says that such a cut would put an end to all his current community activities, including his involvement with Wrexham Glyndwr University, Wrexham football club, Disabled People Against Cuts, FDF Centre for Independent Living, and the Care and Social Services Inspectorate Wales.

He is also writing two books, and a blog, and is working with Disability Arts Cymru to create a performance and exhibition of his poetry.

He told Disability News Service (DNS): “I cannot cope with such a limited number of hours per week. This is why I am fighting with every fibre of my being.

“It really is a case of life or death. I have no interests in merely existing. I want to live.

“Without help and support I would be unable to do any of this work that involves me in the community.”

The Labour-run Welsh government announced last November that, after a two-year transition period, it would transfer all of the £27 million-a-year provided by the UK government to support former ILF-users in Wales directly to councils.

There will be no new Welsh ILF – even though such a scheme has been set up in Scotland – and no continuation of the interim WILG scheme the Welsh government has been running as a stopgap to “ensure continuity of payments to recipients” since the Department for Work and Pensions closed ILF in June 2015.

Funding for WILG will now transfer to local authorities during 2018-19, with all former ILF-recipients in Wales having their support needs met solely by their local authority by 31 March 2019.

Since the Welsh government’s announcement, Davies has been campaigning to persuade it to reverse the decision, including setting up the petition – which has now been signed by more than 500 people online and in person – and collecting photographs of supporters holding one of his campaign postcards.

He said: “The current system allows users the security of depending on receiving their funding from three different ‘pots’ – WILG, local authorities and our own personal contribution.

“This gives us a sense of security and ensures that we cannot be dictated to as mere passive recipients.

“Instead, all parties have to be in agreement about what will benefit the individual the most.

“This is something worth fighting for.”

But instead of this three-tier system, he said, the Welsh government had now “sold disabled people down the river.

“They are washing their hands of all responsibility for social care to former ILF recipients and transferring the pressure onto local authorities.”

A Welsh government spokeswoman told DNS in a statement: “Organisations that represent disabled people who have been recipients of the Independent Living Fund, recommended that their future support would be best provided through local authority social care provision, with consistent arrangements in place to support disabled people in Wales.”

But Disability Wales, which was part of the stakeholder advisory group the Welsh government consulted, has made it clear to DNS that it did not support passing funding to local authorities.

The Welsh government added: “We would be surprised if Disability Wales were suggesting that certain disabled people in Wales should have their support needs met in a different way to other disabled people.”

Davies said he believed the Welsh government had listened only to the local authorities on the advisory group.

He has been supported by the north-east branch of the Labour left-wing grassroots campaign Momentum and the Unite union in Wales.

But he said he was disappointed that Disability Wales – the national association of disabled people’s organisations in Wales – had not supported his campaign.

Miranda Evans, policy and programmes manager for Disability Wales (DW), said they were not able to support the petition – which is critical of the Labour party in Wales – because it was too party political.

But she stressed that DW’s preferred option was for a new Welsh independent living scheme – a Welsh version of ILF – that would protect those currently receiving WILG funding and would also be open to new members.

DNS has seen DW’s response to an early consultation on the Welsh government’s plans, and it makes it clear that none of DW’s members or the other disabled people it had consulted about the future of WILG were in favour of handing the funding directly to local authorities, and had instead “expressed strong opposition” to this.

It also stressed that such an option was “totally unacceptable to existing ILF recipients, their carers and other disabled people”.

Letter from Rebecca Evans AM

Yesterday I received an email from Ian Lucas MP who shared the response to his letter to Rebecca Evans AM about my WILG campaign.  His letter can be read here.  The response he received can be read below and it is most disappointing.

Instead of being disheartened by this response, it has given me and my comrades extra impetus for the fight ahead.  There are so many points that Evans has made here that are just quite simply unfair and discriminatory.  It is time to ramp up the pressure on Evans and her cronies in Cardiff.  We can not stand by and let this happen in 21st century Britain.

I am overwhelmed with the support I am getting from the north Wales public and this is really appreciated as it gives me the strength to carry on with the fight for all WILG recipients – the majority of who I are not even aware that this fight is going on.

I could write pages in response to this letter, but I do not have the time at the moment.  My time is better spent on the struggle to achieve liberty and justice for the disabled community.

Here is the letter from Rebecca Evans AM:

25 August 2017

Dear Ian,

Thank you for your letter on behalf of your constituent, Nathan Lee Davies regarding the decision to provide support in future to former recipients of the Independent Living Fund (ILF) through local authorities’ social care.

Following the closure of the ILF in 2015 by the UK Government, we put in place interim arrangements with local authorities to ensure continuity of support for former recipients in Wales through our Welsh Independent Living Grant (WILG). This has worked well and I understand Mr Davies has been receiving payments from Wrexham County Borough Council under this to continue to help him meet the costs of living independently.

These arrangements were put in place while we considered how support in the longer term should be provided. To assist with that consideration a stakeholder advisory group was established. This had representation from the organisations which represent and act for disabled people in Wales (such as Disability Wales and the Dewis Centre for Independent Living), representation from local authorities and some recipients themselves.

The advisory group considered a number of potential options to provide future support. These ranged from perpetuating the WILG indefinitely or for a set period of time, to establishing similar arrangements in Wales to that of the ILF outside of local authorities’ provision. The advisory group considered the advantages and disadvantages of each option in terms of its effectiveness to support former recipients and its fit with supporting the larger group of disabled people in Wales who had been excluded by the UK Government from receiving support from the ILF following its closure to new entrants in 2010.

In light of these issues the advisory group on balance favoured the option of future support being provided by local authorities as part of their social care provision. It did so because this option matched the future support former recipients would receive with that being provided generally to disabled and older people in Wales. This is in keeping with our person-centred ethos for social care being delivered through the Social Services and Well-being (Wales) Act 2014. This is similar to the ethos behind the original establishment of the ILF.

The advisory group also saw this option as the way forward as it removed the inequitable two-tier approach which currently exists to supporting disabled people in Wales, with some receiving only support from their local authority while others can receive this as well as dedicated payments from the WILG.

I accepted the stakeholder advisory group’s advice in full. I appreciate that Mr Davies and others who wished to see a different option chosen will be disappointed with the decision taken and will be apprehensive about the future. However, to ensure a smooth transition in recipients’ support, all local authorities were issued with detailed guidance. This covered how authorities were to prepare and undertake the care assessments necessary to identify what recipients need to continue to live independently. It also covered the resultant agreement of the future care package a person required and provided clear advice that a person’s payments under the WILG should not cease until that care package was in place.

As part of our monitoring of local authorities’ preparations for this transition, all authorities have recently confirmed that they have plans in place to implement this change, with the majority having commenced their care assessments. In a small number of cases recipients have already had these, agreed a future care package and have transferred to receiving their support from their local authority. Most authorities are, therefore, confident of completing the care assessments they need to undertake in 2017-18.

In the case of Wrexham I understand it has a plan in place to implement this change and that care assessments have begun. I am aware, however, that completion of this to time is dependent on the authority creating additional social worker capacity. I understand the authority has secured funding but has yet to fill vacancies. In view of this, officials are maintaining a watching brief on the situation.

In view of Mr Davies’ and your concerns I am happy to meet with both of you, and one or two other recipients, to discuss the implementation of this change further, although I do not intend to revisit the decision for the reasons outlined above. Would you please arrange for your office to contact my Diary Secretary, to agree a mutually convenient date for this. His contact details are:

Tel No. 03000 259461

E-mail: DS.MinSSandPH@gov.wales

Rebecca Evans AC/AM

Gweinidog Iechyd y Cyhoedd a Gwasanaethau Cymdeithasol

Minister for Social Services and Public Health

 

Support from Ian Lucas MP #SaveWILG

I am pleased with how the #SaveWILG campaign is going so far as I’ve had plenty of media coverage, a good response to my postcard campaign, solidarity and support from Welsh Labour Grassroots and now I have had support from Ian Lucas MP, totally justifying the efforts I made to help him get re-elected in June.  He has written to Rebecca Evans AM to voice his concerns over the closure of WILG and to ask for a meeting between her good-self and recipients.  I have copied the letter below with permission from Ian Lucas.

This has made me think… If other people could write to their local MP and highlight the worrying WILG situation, then any further letters like the one below will only serve to increase the pressure on the Welsh Government and make them think twice about their decision to close WILG.  This would be great wherever you live as a letter from an MP outside of Wales would be just as effective.  Thanks for your support.

Anyway, here is the letter from Ian Lucas:

Rebecca Evans AM
Minister for Social Services and Public Health
Welsh Government
5th Floor
Tŷ Hywel
Cardiff Bay
CF99 1NA

14 August 2017

Our Ref: ZA19750

Dear Rebecca,

I am writing on behalf of a constituent, Mr Nathan Lee Davies who recently contacted me regarding the Welsh Government proposal to transfer administration of the Independent Living Fund to local authorities.

Nathan is a beneficiary of the fund with whom both Lesley Griffiths and I have worked over a number of years on disability issues. Nathan suffers from Friedreich’s ataxia, a disease that causes progressive damage to the nervous system. We have participated together in consultation events on ILF and discussed the fund with other recipients at consultation events, some of which were organised by the Welsh Government.

I am acutely aware that the UK Government has passed responsibility for the difficult decisions relating to the future of the ILF to the Welsh Government and I do not envy you the decision you have been asked to make. However, I am very concerned indeed, having discussed the issue in depth with Nathan, at the decision to transfer administration of the scheme to local authorities.

Neither of us believe that our Council has either the capacity or expertise to carry out this function and this decision is causing real concern to Nathan and other recipients of the scheme.

I would be very grateful if you would agree to meet with Nathan, me and other recipients of the scheme to discuss their concerns.

I look forward to hearing from you.

Yours sincerely,

Ian Lucas MP