ILF

Statement from #SaveWILG Campaign at the #Right2IL Campaign launch

On April 25th, the #Right2IL Campaign was launched in Parliament. Unfortunately, I could not be there so I wrote the following which was read out by my good friend and comrade, Ellen Clifford.

Apparently, the message was well-received. I am looking forward to playing my part in the fight for the rights of disabled people to be recognised.

More about the #Right2IL campaign can be read here. 

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“Good afternoon to everyone and apologies that I cannot be present today. As a disability activist who has spent the last 4 years campaigning for the protection of independent living for former ILF recipients in Wales, I feel that it is important to contribute to the meeting. I believe that it is essential that disabled people in Wales are also represented in the creation of any independent living scheme that we campaigned for.

The Welsh Independent Living Grant was given to former ILF recipients as a temporary measure while future arrangements were discussed. In November 2016, the Welsh Government announced they would be scrapping the grant and transferring all funds to local authorities. This could not be allowed to happen and we have campaigned tirelessly and imaginatively to push the Welsh Government into making a u-turn. Independent Social Workers and extra funds have been promised by the Welsh Government to ensure former ILF recipients can remain in their local communities.

Even though the #SaveWILG campaign has been a success in protecting the rights of former ILF recipients, the Welsh Government are not planning to extend these rights to disabled people who missed out on the ILF. Our campaign has produced a positive result for approximately 1,300 of us, but this does not mean we can forget about those who never received the Welsh Independent Living Grant. We do not believe any disabled people with high support needs should be purely at the mercy of cash strapped local authorities. 

The tripartite system that the ILF established – between recipient, local authority and independent social worker – should be something that we all receive. I would welcome the opportunity to be part of the ROFA campaign and share the skills and tactics that we have built up during our successful campaign. Please do keep in touch and let me know  how the people of Wales can get involved. There may be a different legal system in Wales to contend with, but I believe that any Welsh Political Party – with the possible exception of Plaid Cymru – would welcome the opportunity to work with the UK Government to protect disabled people with high support needs.

My contact details are as follows:

Twitter: @nathanleedavies

Facebook: https://www.facebook.com/nathanleedavies

Website: https://nathanleedavies.wordpress.com/ 

Many thanks for allowing me to be part of your discussion and let us hope that this is the beginning of a new campaign that will result in justice for disabled people and their families. 

Solidarity to you all. 

Nathan”

BBC Report: Wales disability support cuts: Care to be re-assessed in July #SaveWILG

Elderly man in wheelchair

Re-assessments of severely disabled people unhappy with their care packages will not begin before July.

The Welsh Independent Living Grant has ended with councils funding care for more than 1,000 people receiving it.

In February, the Welsh Government announced anyone unhappy with their new council care package would be offered independent re-assessments.

Plaid Cymru said the wait was “way too long”. The Welsh Government has been asked to respond to the criticism.

In response to a Freedom of Information request, the Welsh Government told BBC Wales it has set aside up to £60,000 to pay an independent organisation to do the reassessments.

It anticipates the contract will be awarded by the end of June and re-assessments will begin in July.

£2.4m per year has also been budgeted, “for planning purposes”, to cover the potential costs of any increased packages.

157 people out of 1,174 assessed by their councils by the end of last year had had their support reduced.

There have been big regional variations, with cuts most common in Wrexham, Newport and Ceredigion.

Julie Morgan

The WILG was introduced in Wales to replace the UK-wide Independent Living Fund (ILF), which was closed down by the UK government in 2015.

In a letter to ex-WILG recipients, Deputy Minister for Social Services Julie Morgan said their “patience” would be appreciated.

“I do not want people to be waiting for an independent assessment,” she said.

“However, it is important to organise these independent assessments properly, so that they meet the required standards.”

Plaid Cymru’s social justice spokeswoman Leanne Wood questioned whether the reassessments were necessary.

“Initially many of these people were given an award for life and going through a reassessment process is extremely stressful,” she said.

“Particularly if you have a condition that everybody knows is not going to improve, it’s only going to deteriorate.

“So putting people through those reassessments is potentially problematic but at the same time this does need to be resolved quickly.”

‘Irresponsible’

Nathan Davies, a Labour member and founder of the Save WILG campaign, said the wait was “inconvenient” but criticised the previous Welsh Labour Government, led by Carwyn Jones, which made the initial decision to transfer the responsibility to councils.

“The fact that they [the current Welsh Government] are having to do this work now is because the previous neo-liberal regime did not listen to our campaign team and disregarded the evidence that we presented.

“The fact that we are having to endure an uncomfortable few months is totally down to them and a number of irresponsible local authorities.”

You can see more on this story on the BBC Wales Live programme at 22:30 BST on Wednesday BBC One Wales, and then on BBC iPlayer

A National Independent Living Support Service #Right2IL

The following article was taken from the Disabled People Against Cuts (DPAC) website and can be read in full by clicking here. 

The Reclaiming Our Futures Alliance, a network of  disabled people and our organisations in England, is asking for support for a bold new vision for independent living* for the future. (* The phrase ‘independent living’ is not about disabled people doing things on our own, it means having choice and control over our own lives, being included in the community and having the same chances to take part as other people.)

The social care and mental health systems are currently in crisis and as a result disabled people’s rights to an adequate standard of living, to dignity and inclusion and to equal participation in society are being taken backwards.

In its present state, the system is not fit to respond to current needs, let alone predicted greater needs in the future. Disabled people’s experiences of support are subject to a post code lottery and differ considerably depending upon impairment.

Disabled people and our organisations are calling for a better system guaranteeing consistent levels of adequate support. This will not only benefit us and our families but will strengthen wider society, save costs in other areas and produce social and economic benefits.

Our vision of a national independent living support system is set out in the position paper “Independent Living for the Future” which you can download above or below for the easy read version.

Please sign up in support using the form at the end of this page and help us reclaim disabled people’s futures by making our vision a reality. [The form is published on the DPAC website and can be found by clicking here]

NILSS-1-218x300

Download report here: NILSS_final

Sadly, I couldn’t attend Thursday’s meeting at the Houses of Parliament, but Ellen Clifford of DPAC kindly read out the following message on my behalf:

“Good afternoon to everyone and apologies that I cannot be present today. As a disability activist who has spent the last 4 years campaigning for the protection of independent living for former ILF recipients in Wales, I feel that it is important to contribute to the meeting. I believe that it is essential that disabled people in Wales are also represented in the creation of any independent living scheme that we campaigned for.
 

The Welsh Independent Living Grant was given to former ILF recipients as a temporary measure while future arrangements were discussed. In November 2016, the Welsh Government announced they would be scrapping the grant and transferring all funds to local authorities. This could not be allowed to happen and we have campaigned tirelessly and imaginatively to push the Welsh Government into making a u-turn. Independent Social Workers and extra funds have been promised by the Welsh Government to ensure former ILF recipients can remain in their local communities.

Even though the #SaveWILG campaign has been a success in protecting the rights of former ILF recipients, the Welsh Government are not planning to extend these rights to disabled people who missed out on the ILF. Our campaign has produced a positive result for approximately 1,300 of us, but this does not mean we can forget about those who never received the Welsh Independent Living Grant. We do not believe any disabled people with high support needs should be purely at the mercy of cash strapped local authorities. 

 

The tripartite system that the ILF established – between recipient, local authority and independent social worker – should be something that we all receive. I would welcome the opportunity to be part of the ROFA campaign and share the skills and tactics that we have built up during our successful campaign. Please do keep in touch and let me know  how the people of Wales can get involved. There may be a different legal system in Wales to contend with, but I believe that any Welsh Political Party would welcome the opportunity to work with the UK Government to protect disabled people with high support needs.

Many thanks for allowing me to be part of your discussion and let us hope that this is the beginning of a new campaign that will result in justice for disabled people and their families. 

 
 Solidarity to you all. 
 
Nathan”

Wrexham man’s disability campaign will lead to thousands of lives being improved

The following article was taken from the Leader Live website. I am claiming no credit for writing this article which also appears in the Leader newspaper. 

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Improvements have been made to the way care is delivered for more than 1,000 disabled people in Wales to help ensure they get the support they need to live independent lives.

Local Assembly Member, Lesley Griffiths, has welcomed the Welsh Government’s latest announcement and congratulated Wrexham resident, Nathan Lee Davies, who headed a strong campaign and made representations to the Deputy Minister for Health & Social Services, Julie Morgan AM, on the matter.

Concerns regarding the Welsh Independent Living Grant (WILG) were initially raised when it was announced the responsibility for the scheme, which had been introduced after the abolition of the Independent Living Fund (ILF), was to be passed onto local authorities to manage from April this year. Nathan feared the changes would have a detrimental effect on his wellbeing and initiated the ‘Save WILG’ campaign.

The hard work has paid off as under the latest proposals, additional measures have been put in place to ensure nobody who was once in receipt of WILF, and its predecessor ILF, misses out as a result of the changes. An independent social work assessment will be offered to all former ILF recipients who are unhappy with their new care and support package and would like a second opinion.

The Welsh Government will provide additional funding to local authorities for the cost of the workers to carry out these independent assessments and additional care hours that may result from the assessments.

Lesley Griffiths AM said: “It was vitally important that people who previously received payments from the Welsh Independent Living Grant were not negatively affected by the transition. These latest measures will help ensure the new system is implemented properly, assuring levels of care and support throughout Wales are delivered consistently.”

“There’s no doubt the Save WILG campaign made a real difference. Having met with Nathan a number of times, it was always clear to see the extra stress and anxiety this was causing him. I am pleased to have helped facilitate the Minister’s meeting with Nathan in Wrexham and I hope all the individuals who feared they were going to be adversely affected are happy with the outcome.”

The £27m Welsh Independent Living Grant (WILG) was originally set up in 2015 following a decision by the UK coalition Government to close the Independent Living Fund.

Welsh Government consulted with partners to develop a long term strategy. A two-year transition period began in April 2017 in which all former ILF recipients in Wales who were now in receipt of payments under WILG would have their care needs assessed by their local authority to ensure a care plan was agreed and support package put in place.

While the transition period resulted in the majority of recipients being satisfied with the new arrangements, some former ILF recipients, who had not been subject to a care assessment since 2015, were concerned by the change in approach, with the reassessment causing tension in some cases.

The announcement by the Welsh Government aims to address the inconsistencies, with evidence suggesting the variation between local authorities warrants a change in direction and the Welsh Government has written to local government leaders to request a pause of the transition with immediate effect in order to bring in revised arrangements.

Disability News Service: ‘Delight’ over breakthrough on Welsh independent living scheme closure

The following article is taken from the Disability News Service website and was written by John Pring. I am taking no credit for the writing of this article and urge readers to visit the Disability News Service website. You can do so by clicking here. 

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Disabled campaigners have welcomed measures that aim to address concerns over the imminent closure of the Welsh government’s independent living grant scheme.

Julie Morgan, the deputy minister for health and social services, has written to council leaders to ask for an immediate “pause” in the closure programme and its replacement with a system of council-funded support.

There will now be new independent assessments for any former recipients of the Welsh Independent Living Grant (WILG) scheme who are unhappy with the new support packages allocated by their local authority.

The new measures came just two weeks after Nathan Lee Davies (pictured), who has led the campaign to save the WILG scheme, sent an 80-page dossier of evidence about the closure to Welsh Labour’s new leader and first minister, Mark Drakeford.

Davies told Drakeford in an open letter accompanying the dossier that closing WILG would leave disabled people with high support needs, like him, “at the mercy of cash-strapped Local Authorities who seem intent on cutting vital support packages across the board with no guarantee that further cuts will not follow”.

He sent his letter with just two months to go until the interim WILG scheme was due to close.

Now Morgan has announced a pause in the transition to the new system.

WILG was set up – with UK government funding – as an interim scheme following the UK government’s decision to close the Independent Living Fund in June 2015.

The Welsh government is now closing WILG for good and transferring the funding to local councils, and by April the 22 local authorities were due to be solely responsible for meeting the support needs of all former ILF-recipients in Wales.

But in a written statement to assembly members, Morgan said she had considered the evidence and decided there needed to be a “change in direction” because her government’s own review had shown a significant variation in how support packages were being cut by different councils.

Morgan said that all WILG recipients who were unhappy with their new care and support package and would like a second opinion would now be offered an independent assessment.

These assessments will be funded by the Welsh government, which will also pay for any resulting additional hours of support.

The government said that the new assessments would “acknowledge the historical entitlement of former ILF recipients”, while Morgan told assembly members in a written statement that there would be “no financial barrier [so]no-one need have less favourable care and support than they had under ILF”.

Morgan, who praised Davies and his fellow campaigners, said: “It is paramount that people’s ability to live independently is not compromised by changes to the care and support provided for people previously in receipt of the Welsh Independent Living Grant.

“These changes will ensure that is the case and deliver a consistent level of care and support across Wales.

“While the majority of former ILF recipients are receiving the same or more care as they were previously, a significant number have experienced a reduction in hours of support.

“There is also considerable variation in the reductions in support.

“I have therefore written to local government leaders to request a pause of the transition with immediate effect in order to bring in the revised arrangements.

“This is a significant change of approach that ensures that the needs of former WILG recipients will be fully met, and that resources are no barrier to a full package of care and support.”

Davies, who was celebrating his birthday on the day of the announcement, said it was “the perfect 42nd birthday gift”.

He said later in a statement: “I would like to place on record my delight at the breakthrough we have made.”

He added: “It is a pleasure to be working with our new first minister Mark Drakeford and his revamped cabinet that differs substantially from the previous regime.

“Welsh Labour have now successfully re-branded themselves and are moving forward with a clear vision of creating a society based on 21st century socialist ideas.

“There is still some work to be done with Welsh Labour on the new arrangements to support disabled people to live independently.

“I am confident that this work will be carried out constructively and add to the ‘clear red water’ that Welsh Labour are once again setting between themselves and Westminster.

“The fact that the party that I am proud to be a member of, has listened and acted appropriately is really encouraging and gives me hope for the future.”

Disability Wales praised Davies’s campaigning work and the Welsh government for “listening and responding to the evidence” and added: “This is really welcome news for Welsh disabled people who had lost vital support after the ILF closed.”

Wales disability support cuts: ‘Second opinion’ offered by ministers

The following article is taken from BBC News online. I am not taking any credit for the article and the original piece can be accessed by clicking on this link. 

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Severely disabled people unhappy with their care package will be offered independent assessments, say ministers.

The Welsh Independent Living Grant (WILG) is being scrapped with councils taking over funding care for the more than 1,000 people receiving it.

Previous social care minister Huw Irranca Davies had insisted there would be “no losers” due to the changes.

But, in October, BBC Wales discovered around 100 of the 600 recipients reassessed had lost some support.

The research was conducted by the Wales Live programme.

On Tuesday, the Welsh Government said anyone wanting a “second opinion” could have an “independent social work assessment” and the move to the new system would be put on hold while new arrangements are put in place.

Plaid Cymru said the Welsh Government should “admit it has got this one wrong from the very beginning”.

Announcing the change in policy, Deputy Health and Social Services Minister Julie Morgan said: “It is paramount that people’s ability to live independently is not compromised by changes the care and support provided for people previously in receipt of the Welsh Independent Living Grant.

“These changes will ensure that is the case and deliver a consistent level of care and support across Wales.

The WILG was introduced in Wales to replace the UK-wide Independent Living Fund (ILF), which was closed down by the UK government in 2015.

“While the majority of former ILF [Independent Living Fund] recipients are receiving the same or more care as they were previously, a significant number have experienced a reduction in hours of support,” said Mrs Morgan.

“There is also considerable variation in the reductions in support.

“I have therefore written to local government leaders to request a pause of the transition with immediate effect in order to bring in the revised arrangements.

“This is a significant change of approach that ensures that the needs of former WILG recipients will be fully met, and that resources are no barrier to a full package of care and support.”

Julie Morgan
Image captionJulie Morgan campaigned for a change in the system as a backbencher

Mrs Morgan also announced that the Welsh Government would provide additional funding to councils for the cost of the workers to carry out these independent assessments and additional care hours that may result from the assessments.

The independent assessments will be consistent with people’s agreed “wellbeing outcome” and acknowledge the historical entitlement of former ILF recipients, she added.

Plaid Cymru’s Leanne Wood said the Welsh Government should “admit it has got this one wrong from the very beginning”.

“After the proposed changes are filtered through, we should thankfully have a situation where no disabled person has lost out on care.

“However, we will be spending considerably more money on administration and reviews to get to this point than if the Welsh Government had just adopted the Scottish and Northern Ireland approach of retaining the fund – as we argued for at the time.”

Huw David, Welsh Local Government Association social services spokesman, said: “In a time of austerity, any additional funding for social care is to be welcomed and I am pleased to see a commitment of extra investment from Welsh Government that will help to ensure the needs of former WILG recipients are fully met.

Local authorities would continue to work with ministers to address any concerns about the new system, he added.

Presentational grey line

Analysis

By Wales Live reporter Paul Martin

With an acknowledgement a “significant number” of people have had support cut, a guarantee of independent re-assessments, and extra cash for any increased care packages, this adds up to a pretty big shift.

It puts new Social Services Deputy Minister Julie Morgan at odds with her predecessor Huw Irranca Davies who had said the new council-run system would be fairer and that there would be “no losers.”

There are questions now about how easy this change will be, and how much it will cost.

But “Save WILG” campaigner Nathan Lee Davies – who won significant support at Welsh Labour conference – described it as “the perfect 42nd birthday present”.

Disability News Service: Last-ditch appeal to new Welsh First Minister over independent living scheme #SaveWILG

A disabled campaigner has sent an 80-page dossier of evidence to the new first minister of Wales in a last-ditch bid to persuade him to abandon plans to close the Welsh government’s independent living grant scheme.

Nathan Lee Davies has written to Mark Drakeford with just two months left until the planned closure of the Welsh Independent Living Grant (WILG), which was itself set up as an interim scheme following the UK government’s decision to close the Independent Living Fund in June 2015.

Davies, who has led the Save WILG Campaign, told Drakeford in an open letter this week that closing WILG would leave disabled people with high support needs “at the mercy of cash-strapped Local Authorities who seem intent on cutting vital support packages across the board with no guarantee that further cuts will not follow”.

He said that local authorities “seem to be treating disabled people as a burden”.

Davies points out in the letter that Drakeford had promised – during his successful campaign to lead the Welsh Labour party last year – that if an independent evaluation of the WILG closure showed the new system “not working as well as the old one” then he would be “prepared to reverse it”.

WILG was set up by the Welsh government – with UK government funding – as a short-term measure to support former ILF recipients when the fund was closed in June 2015.

But the Welsh government is now closing WILG and transferring the funding to local councils, and by April the 22 local authorities will be solely responsible for meeting the support needs of all former ILF-recipients in Wales.

Davies said the “deep dive review” of cases in which WILG recipients were having their support cut was “full of errors” and had failed to consult the disabled people who will be affected.

He pointed to his own experience at the hands of his local authority, Wrexham council, which he said had treated him “abysmally”.

Davies, who has a life-limiting condition, said that the process to reassess his support needs, due to end in September 2018, had still not been completed and was having “a negative impact” on both his physical and mental health.

He described how his social worker had laughed when he suggested he needed 24-hour support and told him that no-one in the borough received that level of support.

He said that the lack of overnight support in his current social care package meant he had to stop drinking at 8pm at night and get ready for bed at 10pm, and often had to call his 68-year-old father to assist him in the night, even though he lives a 10-minute drive away and has arthritis in both hands.

The dossier, which has already been shared with the deputy health and social services minister Julie Morgan, includes a description of a day in his life, from last January, showing the poor level of support he already receives – even before the closure of WILG – and the pain and indignity this exposes him to, as well as the lack of choice and control in his life.

Davies says: “It is 2018 and I am still being treated like a second class citizen.

“I have a progressive condition of the nervous system which is accelerating at quite a rate, yet I still have the same amount of inadequate care and support hours that I did in 2010 when I first began independent living.”

He updated this by posting a new blog yesterday, showing that little had changed in the last year.

In the dossier, he warns the Welsh Labour party: “I do not want to spend the last days of my life completely unnecessarily fighting against the party I have defended and campaigned for across many years.

“But I will if I have to. Please don’t make me.”

The dossier also includes a letter from a director of Disability Wales, Trevor Palmer, in which he says the planned WILG closure has “created serious disruptions” to his life, with local authority “incompetence and lack of understanding” that has led to his support package being “substantially” reduced.

A Welsh government spokesperson said: “We believe that disabled people’s ability to live independently should not be compromised by any changes to the way in which support is arranged for those people who previously received payments from the WILG.

“The first minister has just received Mr Davies’ open letter regarding the WILG and will carefully consider the detailed points it makes.

“He has asked the deputy minister for health and social services to consider what further action may be necessary to ensure disabled people in receipt of the WILG are not adversely affected by this change.

“The deputy minister has provided Mr Davies and the National Assembly’s petitions committee with details of the deep dive review.

“She also met Mr Davies at his home to hear his concerns and discuss the issues raised in his dossier.”

He said the deep dive review had seen the 22 Welsh local authorities audit all cases where they intended to cut the WILG element of people’s support.

This found planned reductions in about 157 cases, and increases in support in a similar number, out of 1,174 people.

He claimed that the cuts had taken place because “some people had developed a need for healthcare rather than social care while some, due to their support being provided in a different way or being of a different type, had a reduced need for care overall”.

He accepted that two questionnaires, commissioned from the All Wales Forum of Parents and Carers of People with Learning Disabilities, had had a low response rate, but he said that responses to it “have been positive about the way assessments have been undertaken and the outcomes people have received”.

Charlotte Walton, Wrexham council’s head of adult social care, said: “We cannot comment on any individual’s care and support needs.

“However we do not accept the allegations being made.

“We have carried out all of the WILG reviews in a person centred and inclusive manner and working with the individual recipients of the fund [has]enabled them to achieve positive outcomes from the reviews.”

Davies said he would now push for a meeting with the first minister.

He said: “I am not going anywhere and will continue to fight this until justice is served.”

Picture: Nathan Lee Davies with Labour leader Jeremy Corbyn