First Minister Mark Drakeford

Disability News Service: Welsh government ignores social care funding crisis… in independent living action plan #SaveWILG

The following is an article written by John Pring on his excellent Disability News Service website. This can be accessed by clicking here. 

I have been put in a difficult position following the publication of the Welsh Government’s new framework on independent living – Action On Disability – The Right to Independent Living.

I have been extremely critical of this new legislation, but I want to make it very clear that this is a separate issue to my WILG campaign. I will be forever grateful to the Welsh Government for listening to campaigners and acting decisively. Our new First Minister and the Deputy Minister for Health and Social Services deserve particular praise for their hard work and determination to protect a vulnerable section of society.

However, I hope both Mark Drakeford and Julie Morgan can appreciate why I  have to speak out against the new framework due to the lack of consideration of social care. I am a proud member of the Labour Party and fully support the vast majority of the party’s policies, but I reserve the right to be critical of specific programmes and will campaign to improve them.

***

The Welsh government has completely ignored the social care funding crisis in a new action plan aimed at ensuring disabled people’s right to independent living.

A public consultation process with disabled people and disability organisations led to “multiple calls” for increased social care funding.

But the final version of the Labour government’s framework and action plan on the right to independent living – which includes 55 actions – says nothing about the funding crisis or the need for more spending on adult social care.

This contrasts with its 2013 framework, which it replaces and which included lengthy sections on access to social care, direct payments and personalised support.

In discussing the engagement process, which took place in 2017, with further engagement late last year on a draft version of the framework, the document says: “We heard that cuts to social care provision have led to lower allocations for Direct Payments which means disabled adults and young people are becoming increasingly isolated and impact to their well-being compromised.”

It also admits that there were “multiple calls for increased funding for health and social care” during that process.

But despite those calls, not one of the 55 actions in the plan mentions social care funding, or the need to address the cuts.

Instead, the action plan details wider measures around independent living, including: barriers to employment; recruitment of disabled apprentices; a review of funding for housing adaptations; collecting evidence on disability poverty; and improving access to health services.

It also includes a planned review of the disabled students’ allowance system; a pledge to improve understanding of the social model of disability across the Welsh government; and action on access to public transport.

There is also a pledge to introduce a scheme in Wales to provide financial support for the extra costs of disabled people seeking election to local councils, to match schemes in Scotland and England.

Nathan Lee Davies, a leading disabled campaigner who has helped secure concessions from the Welsh government on the impact of the closure of the Independent Living Fund (ILF), said the omission was “bemusing” and appeared to be a “major step backwards”.

A spokesperson for the Welsh government refused to comment on the failure to mention cuts to social care funding in the action plan.

But Jane Hutt, the Welsh government’s deputy minister and chief whip, who has responsibility for equality issues, said in announcing the new framework that “supporting people to live their lives in the way they choose is the right thing to do”.

She said the framework sets out how the government was fulfilling its obligations under the UN Convention on the Rights of Persons with Disabilities (UNCRPD).

But the failure of the action plan to suggest any measures to address the funding crisis and cuts to support suggests the Welsh government could be in breach of the convention’s article 19.

Article 19 says that governments signed up to the convention should take “effective and appropriate measures” to enable disabled people to live in the community with “full inclusion and participation”.

Despite this omission, the framework pledges to “work for continuous improvement in how Wales fulfils its obligations with regard to [UNCRPD] and the Rights of the Child”.

There is also no mention in the document of ILF, and the Welsh government’s decision to close its interim Welsh Independent Living Grant (WILG) scheme, which it had been running as a stopgap with UK government transition funding since ILF closed in June 2015.

WILG closed on 31 March 2018, when the £27 million a year funding provided by the UK government to maintain support to former ILF recipients transferred to local authorities in Wales.

Because of the WILG closure, Welsh local authorities are now solely responsible for meeting the support needs of all former ILF-recipients.

More than 1,200 former ILF recipients will now have their needs met through council funding, while 50 of them have requested an independent assessment of their new support package, a process being funded by the Welsh government following a campaign led by Davies over concerns about post-WILG support.

A Welsh government spokesperson said: “The Welsh Independent Living Grant was introduced as an interim measure to support people who received payments from the UK government’s Independent Living Fund which closed in 2015.

“Our new framework focuses on the future of independent living in Wales, and what Welsh government can do to support disabled people going forward.”

Davies said: “On the face of it the new framework that has been introduced by the Welsh government, following a lengthy consultation process, is as bemusing as it was when [the draft version] was originally launched last year.

“It seems as if I wasted my breath at two consultation days as many of the failings of the framework that I highlighted have failed to be addressed in a [document] that does not seem to address the needs of disabled people with high support needs.

“Social care does not seem to be addressed at all. This is an absolutely bizarre situation when discussing a framework supposedly designed to promote independent living for disabled people.

“Not one of the 55 actions in the action plan mentioned social care funding, which is extremely worrying.”

He added: “After achieving success with the #SaveWILG Campaign – where former ILF recipients have been offered the opportunity of an independent assessment if they disagreed with the decision of the local authority, all funded by the Welsh government – it was hoped that this would signal a change in attitude going forward.

“The dynamic brand of 21st century socialism introduced by first minister Mark Drakeford has delivered positive change that deserves to be recognised.”

But he said the new framework and action plan “seems like a major step backwards”.

He added: “It just seems that the socialist values that the Welsh government demonstrated with their reaction to the WILG campaign have not been utilised in the new framework.

“It does not sit well with me to criticise this new [document], but the fact that it seems to blatantly flaunt the UNCRPD article 19 is a major cause for concern.

“It would be very easy for me to ignore this as WILG recipients have now been protected, but as a disabled activist I remain vigilant to the needs of my disabled brothers and sisters across Wales.

“All disabled people with high support needs should be able to access adequate social care and I will not rest until justice prevails for those in need.”

Rhian Davies, chief executive of Disability Wales (DW), who led the national steering group on the framework, welcomed its publication, particularly “the renewed commitment to implementation of the [UNCRPD] and consideration of options to incorporate this and other UN treaties in Welsh law together with a stronger focus on the social model of disability and proposals to tackle the disability employment gap and support disabled people to take up positions in public life.”

But she added: “Some aspects of the action plan are stronger and more developed than others, often in those areas where disabled people have been closely involved in informing and influencing policy.

“With regard to social care, there appear to be relatively few initiatives cited in the action plan compared with other policy areas.

“Key issues raised during the consultation are omitted, including low take-up of direct payments, provision of advocacy services, WILG developments and the impact of austerity on social care as a whole.

“We understand that the action plan is a work in progress so DW will continue to press for these issues to be addressed, including through Welsh government’s Disability Equality Forum which plays a vital role in monitoring implementation of the framework.”

Welsh Labour Will Campaign to Remain

This morning I received an email from Mark Drakeford, the First Minister of Wales, outlining his party’s approach to the Brexit shenanigans. I thought I would share this below.

I have lots going on at the moment, as I am still waiting on my WILG assessment and am in the midst of a staffing crisis. My stress levels are through the roof, and I have decided not to attend the first session of the counselling course that I was due to begin tonight. However, I do not live in a bubble and I realise that this Brexit palaver needs to be put to bed as soon as possible, so that politicians can get to work on the multiple problems that have been ignored in the face of all this Euro nonsense.

I am not sure what exactly is my position on the Brexit debate. I just want to see the back to it all, but believe in Mark Drakeford and  his political acumen. Therefore, I am sharing his opinions.

*** 

Dear Nathan,

Given the dramatic and worrying events in Westminster recently, I thought this would be a good time to write to you personally to set out the Welsh Labour Party’s position on Brexit.

Welsh Labour believes that Wales’ best interests will only be served by remaining in the European Union.

We campaigned for a remain vote in the 2016 referendum and nothing we have seen or learned in the three years’ since has changed our minds.

Any type of Brexit – even the softest possible – will cause potentially irreparable damage to Wales and its economy. This is because Wales is heavily dependent on manufacturing and agri-food and 60% of our exports go straight to the EU.

We will support all the efforts our colleagues in Westminster are taking to prevent the no deal Brexit, which the Prime Minister and the Tory government is hell-bent on pursuing.

Labour has made an unequivocal commitment to put the Brexit decision back to the people.

In that referendum, we, as Welsh Labour, must and will campaign to remain in the EU.

Yours in solidarity,
Mark Drakeford AM
Welsh Labour Leader and First Minister

The People Must Make the Final Decision on Brexit

I am sharing the following email that I received as a Labour Party member, from our First Minister, Mark Drakeford. Throughout the email, Drakeford puts forward views that are necessary to get us out of the impossible situation that has been created by the Tories in Westminster.

***

Dear Nathan,

I know that over the past few days you will have seen many reports in the press around Brexit and our Welsh Labour Government’s view on what should happen next. And I wanted to write to you directly to explain how our position has evolved.

Since 2016, when Wales voted – narrowly – to leave the European Union, the Welsh Government has argued for a form of Brexit which would, as far as possible, protect Welsh jobs and the Welsh economy. Our Labour colleagues in Westminster have done the same – most recently in negotiations with the UK Tory Government.

However, the collapse of the talks between Theresa May and Jeremy Corbyn and the current election for a new leader of the Conservative Party changes all that. The Tory leadership race is rapidly becoming a contest between harder and harder forms of Brexit – hugely increasing the very real danger of a no-deal Brexit that would be catastrophic for our nation. Recognising that, means we have to re-think how we approach Brexit in Wales. I believe the chance to do the sort of deal I have always advocated – a deal that would protect Welsh jobs and the Welsh economy – is now at an end. That is why my view, and the view of the Welsh Labour Government, is that going back to the people and asking them for their verdict is the best way forward. The final decision on Brexit must now be made by the public in a referendum. And, for the avoidance of any doubt, a Welsh Labour Government would campaign in such a vote for Wales to remain in the EU.

I am delighted that following last week’s election, Jackie Jones will sit in the European Parliament, and I know she will be a brilliant Welsh Labour MEP. But there is no hiding the fact that last week’s results were clearly deeply disappointing for our Party. Over the coming weeks and months, I want to take every opportunity to get out across Wales and hear from as many of you as possible. I know that many of you have passionate, differing, and sincerely held views, and I believe that the diversity of our membership is a strength, not a weakness. We are – and always have been – a broad church, but we are united by our belief in social justice and the firm conviction that we achieve more together than we do alone. In these turbulent and polarised times, it is more important than ever to remember that and act accordingly.

Best wishes,
Mark Drakeford
Welsh Labour Leader and First Minister

Disability News Service: ‘Delight’ over breakthrough on Welsh independent living scheme closure

The following article is taken from the Disability News Service website and was written by John Pring. I am taking no credit for the writing of this article and urge readers to visit the Disability News Service website. You can do so by clicking here. 

***

Disabled campaigners have welcomed measures that aim to address concerns over the imminent closure of the Welsh government’s independent living grant scheme.

Julie Morgan, the deputy minister for health and social services, has written to council leaders to ask for an immediate “pause” in the closure programme and its replacement with a system of council-funded support.

There will now be new independent assessments for any former recipients of the Welsh Independent Living Grant (WILG) scheme who are unhappy with the new support packages allocated by their local authority.

The new measures came just two weeks after Nathan Lee Davies (pictured), who has led the campaign to save the WILG scheme, sent an 80-page dossier of evidence about the closure to Welsh Labour’s new leader and first minister, Mark Drakeford.

Davies told Drakeford in an open letter accompanying the dossier that closing WILG would leave disabled people with high support needs, like him, “at the mercy of cash-strapped Local Authorities who seem intent on cutting vital support packages across the board with no guarantee that further cuts will not follow”.

He sent his letter with just two months to go until the interim WILG scheme was due to close.

Now Morgan has announced a pause in the transition to the new system.

WILG was set up – with UK government funding – as an interim scheme following the UK government’s decision to close the Independent Living Fund in June 2015.

The Welsh government is now closing WILG for good and transferring the funding to local councils, and by April the 22 local authorities were due to be solely responsible for meeting the support needs of all former ILF-recipients in Wales.

But in a written statement to assembly members, Morgan said she had considered the evidence and decided there needed to be a “change in direction” because her government’s own review had shown a significant variation in how support packages were being cut by different councils.

Morgan said that all WILG recipients who were unhappy with their new care and support package and would like a second opinion would now be offered an independent assessment.

These assessments will be funded by the Welsh government, which will also pay for any resulting additional hours of support.

The government said that the new assessments would “acknowledge the historical entitlement of former ILF recipients”, while Morgan told assembly members in a written statement that there would be “no financial barrier [so]no-one need have less favourable care and support than they had under ILF”.

Morgan, who praised Davies and his fellow campaigners, said: “It is paramount that people’s ability to live independently is not compromised by changes to the care and support provided for people previously in receipt of the Welsh Independent Living Grant.

“These changes will ensure that is the case and deliver a consistent level of care and support across Wales.

“While the majority of former ILF recipients are receiving the same or more care as they were previously, a significant number have experienced a reduction in hours of support.

“There is also considerable variation in the reductions in support.

“I have therefore written to local government leaders to request a pause of the transition with immediate effect in order to bring in the revised arrangements.

“This is a significant change of approach that ensures that the needs of former WILG recipients will be fully met, and that resources are no barrier to a full package of care and support.”

Davies, who was celebrating his birthday on the day of the announcement, said it was “the perfect 42nd birthday gift”.

He said later in a statement: “I would like to place on record my delight at the breakthrough we have made.”

He added: “It is a pleasure to be working with our new first minister Mark Drakeford and his revamped cabinet that differs substantially from the previous regime.

“Welsh Labour have now successfully re-branded themselves and are moving forward with a clear vision of creating a society based on 21st century socialist ideas.

“There is still some work to be done with Welsh Labour on the new arrangements to support disabled people to live independently.

“I am confident that this work will be carried out constructively and add to the ‘clear red water’ that Welsh Labour are once again setting between themselves and Westminster.

“The fact that the party that I am proud to be a member of, has listened and acted appropriately is really encouraging and gives me hope for the future.”

Disability Wales praised Davies’s campaigning work and the Welsh government for “listening and responding to the evidence” and added: “This is really welcome news for Welsh disabled people who had lost vital support after the ILF closed.”

Essential Viewing: Wales Live

PLEASE WATCH THIS. APOLOGIES FOR THE LENGTH OF TEXT, BUT PLEASE READ & SHARE THIS (via copying and pasting or going to Clwyd South Labour Party Facebook page if you can’t share from here. Thank you).

Video is from approx 8mins 35 secs in.

Another superb report about the Save the Welsh Independent Living Grant – WILG campaign by the BBC’s Paul Martin, who again puts his UK-level colleagues to shame by showing how journalism should be done.

With Plaid securing a debate on WILG on Wednesday in the Assembly, we at Clwyd South Labour Party & Labour for Wrexham join our MPs Susan Elan Jones MP & Ian Lucas in calling on the Welsh government, OUR party, to finally make the change that absolutely NOBODY (apart from seemingly some Cabinet Ministers), ANYWHERE-inside or outside Labour-is against!

Both Mark Drakeford AM & Julie Morgan, Assembly Member for Cardiff North are good people, who we campaigned, phonebanked, door-knocked & supported passionately during their respective campaigns; both have been openly supportive of what we are trying to do.

So, if anyone is in doubt as to how important this is, or why it is ESSENTIAL that the Welsh Independent Living Grant with a confirmed TRIPARTITE (recipient, Local Authority, WAG-with WAG controlling admin & money) system is saved, then let us present evidence in addition to expert opinion:

-via FOI, VERY clearly, without a shred of doubt, the evidence in black & white shows that the current system implemented last year is failing lots of people. Demonstrably so. We have pages and pages of evidence and reports that prove that, putting all emotional pleas to one side, NOT keeping WILG with Tripartite is demonstrably worsening the lives of many, while as Dame Tani Grey-Thompson says, the inevitability of it costing MORE by NOT doing this!

Add to this we have plenty of evidence of what happens when the WILG equivalent is kept as in Scotland & Northern Ireland (very successful) V when it is scrapped, hence WILG to begin with, in England-i.e. Terrible results for the most vulnerable. Not surprising given this is, no matter how it is dressed up & accepting it was not the original intention, very clearly a Neo Liberal policy-the antithesis of what we stand for in Labour.

-NONE of the recipients are creating a two-tier system. WAG is. Both at the initial stage-their choice, but also now with the wildly differing results from Local Authorities. THAT is a two-tier system! Also, the number of recipients is only going DOWN, so if WAG do not think it is obvious that THE most vulnerable people in Wales deserve their direct protection (Tripartite), then we would love to know why.

-Democracy: We are very pleased to see Mark Drakeford re-emphasizing how we are a democratic, member-led party in Wales. Therefore, we expect, obviously, that the vote at Welsh Labour conference 2018 is upheld and that we keep WILG with a Tripartite system. Otherwise, as one of the first acts of the new administration, it’s not exactly a good look if the largest ever defeat for WL is ignored given the committed stance on democracy!!! Many would question what the point of conference motions are if this is ignored.

-Total unanimous support to Save the Welsh Independent Living Grant – WILG from the following:

The Labour Party membership inside & outside Wales

Labour MPs inside & outside Wales and AMs, Councillors etc in Wales

The Leader of the Labour Party at UK level Jeremy Corbyn

The Shadow Chancellor John McDonnell

Welsh Labour Grassroots- The Home for Momentum in Wales

Unite the union

Baroness Tani Grey-Thompson

The UN

The Official UK-wide Disability Group for Labour who also passed our motion

ALL other political parties in Wales. ALL!

Every single Constituency Labour Party (CLP) in Wales that we have had direct contact with, and many we haven’t

Wrexham FC, Ken Loach, Mark Thomas, Atilla The Stockbroker, Joe Solo & MANY other cultural icons

Do we need to go on? We repeat, we have faith in both Mark Drakeford & Julie Morgan to do the right thing as they are good Socialist people. IF, and we say IF, this is a failure of consensus politics, then annoy those objecting in your cabinet. Not the most vulnerable people in Wales. IF this is being stopped by the egos of others, because OBVIOUSLY it is not based in evidence, is it?!, then I am afraid WE, because WE are Labour, MUST stand up to anyone wishing to block what is an ABSOLUTE NO-BRAINER!!!

To be clear-our campaign will only heap praise on Mark Drakeford, Julie Morgan & Welsh Labour if they secure what is ethically, economically, politically & procedurally the right thing to do. We will praise them for listening and PROVING this new administration is a listening one, that it is very much a Socialist one, and very much an administration that respects democracy. It will be a statement of intent. It will, to quote Rhodri Morgan, show “Clear red water” between the Tories in Westminster & Labour in Wales. Nathan & the campaign has done everything by the book, jumping EVERY admin/democratic hurdle.

Now with this democracy-centred, inclusive, Socialist administration in addition to all the glaring, factual evidence, NO OPPOSITION either internally or externally, the UK Leader & Shadow Chancellor, the UN, Welsh MPs & AMs, THE CONFERENCE VOTE etc etc…This really is VERY easy to do from every conceivable angle-morally, politically, economically, PR-wise etc. It should be like shooting fish in a barrel.

We want to be proud to continue the fight to oppose social injustice. The average life expectancy of someone with lead campaigner Nathan Lee Davies‘s condition, is 35 years old. Tomorrow-Tuesday 12th February 2019-is Nathan’s 42nd birthday. To quote Nathan himself:

“I do not want to be using what precious time I have left fighting against the hierarchy of the party I love and campaign for. But I will if I have to. Please don’t make me.”

On behalf of the campaign, please do not make us have to, either. Do the right thing. You are good, decent people who we are proud to campaign for & defend daily. Yes, no one says your job is easy-far from it. But this decision is. PLEASE, before the party we love gets exposed in the Assembly on Wednesday, PLEASE LISTEN. THANK YOU!

WALESPOSTCARDFRONT001

Disability News Service: Last-ditch appeal to new Welsh First Minister over independent living scheme #SaveWILG

A disabled campaigner has sent an 80-page dossier of evidence to the new first minister of Wales in a last-ditch bid to persuade him to abandon plans to close the Welsh government’s independent living grant scheme.

Nathan Lee Davies has written to Mark Drakeford with just two months left until the planned closure of the Welsh Independent Living Grant (WILG), which was itself set up as an interim scheme following the UK government’s decision to close the Independent Living Fund in June 2015.

Davies, who has led the Save WILG Campaign, told Drakeford in an open letter this week that closing WILG would leave disabled people with high support needs “at the mercy of cash-strapped Local Authorities who seem intent on cutting vital support packages across the board with no guarantee that further cuts will not follow”.

He said that local authorities “seem to be treating disabled people as a burden”.

Davies points out in the letter that Drakeford had promised – during his successful campaign to lead the Welsh Labour party last year – that if an independent evaluation of the WILG closure showed the new system “not working as well as the old one” then he would be “prepared to reverse it”.

WILG was set up by the Welsh government – with UK government funding – as a short-term measure to support former ILF recipients when the fund was closed in June 2015.

But the Welsh government is now closing WILG and transferring the funding to local councils, and by April the 22 local authorities will be solely responsible for meeting the support needs of all former ILF-recipients in Wales.

Davies said the “deep dive review” of cases in which WILG recipients were having their support cut was “full of errors” and had failed to consult the disabled people who will be affected.

He pointed to his own experience at the hands of his local authority, Wrexham council, which he said had treated him “abysmally”.

Davies, who has a life-limiting condition, said that the process to reassess his support needs, due to end in September 2018, had still not been completed and was having “a negative impact” on both his physical and mental health.

He described how his social worker had laughed when he suggested he needed 24-hour support and told him that no-one in the borough received that level of support.

He said that the lack of overnight support in his current social care package meant he had to stop drinking at 8pm at night and get ready for bed at 10pm, and often had to call his 68-year-old father to assist him in the night, even though he lives a 10-minute drive away and has arthritis in both hands.

The dossier, which has already been shared with the deputy health and social services minister Julie Morgan, includes a description of a day in his life, from last January, showing the poor level of support he already receives – even before the closure of WILG – and the pain and indignity this exposes him to, as well as the lack of choice and control in his life.

Davies says: “It is 2018 and I am still being treated like a second class citizen.

“I have a progressive condition of the nervous system which is accelerating at quite a rate, yet I still have the same amount of inadequate care and support hours that I did in 2010 when I first began independent living.”

He updated this by posting a new blog yesterday, showing that little had changed in the last year.

In the dossier, he warns the Welsh Labour party: “I do not want to spend the last days of my life completely unnecessarily fighting against the party I have defended and campaigned for across many years.

“But I will if I have to. Please don’t make me.”

The dossier also includes a letter from a director of Disability Wales, Trevor Palmer, in which he says the planned WILG closure has “created serious disruptions” to his life, with local authority “incompetence and lack of understanding” that has led to his support package being “substantially” reduced.

A Welsh government spokesperson said: “We believe that disabled people’s ability to live independently should not be compromised by any changes to the way in which support is arranged for those people who previously received payments from the WILG.

“The first minister has just received Mr Davies’ open letter regarding the WILG and will carefully consider the detailed points it makes.

“He has asked the deputy minister for health and social services to consider what further action may be necessary to ensure disabled people in receipt of the WILG are not adversely affected by this change.

“The deputy minister has provided Mr Davies and the National Assembly’s petitions committee with details of the deep dive review.

“She also met Mr Davies at his home to hear his concerns and discuss the issues raised in his dossier.”

He said the deep dive review had seen the 22 Welsh local authorities audit all cases where they intended to cut the WILG element of people’s support.

This found planned reductions in about 157 cases, and increases in support in a similar number, out of 1,174 people.

He claimed that the cuts had taken place because “some people had developed a need for healthcare rather than social care while some, due to their support being provided in a different way or being of a different type, had a reduced need for care overall”.

He accepted that two questionnaires, commissioned from the All Wales Forum of Parents and Carers of People with Learning Disabilities, had had a low response rate, but he said that responses to it “have been positive about the way assessments have been undertaken and the outcomes people have received”.

Charlotte Walton, Wrexham council’s head of adult social care, said: “We cannot comment on any individual’s care and support needs.

“However we do not accept the allegations being made.

“We have carried out all of the WILG reviews in a person centred and inclusive manner and working with the individual recipients of the fund [has]enabled them to achieve positive outcomes from the reviews.”

Davies said he would now push for a meeting with the first minister.

He said: “I am not going anywhere and will continue to fight this until justice is served.”

Picture: Nathan Lee Davies with Labour leader Jeremy Corbyn

Closure  of the Welsh Independent Living Grant #SaveWILG

The following article was taken from the excellent blog by Luke Clements – a Professor of Law at Leeds University and a Solicitor. 

We really appreciate all the support from Luke Clements and the formidable Ann James in our bid to #SaveWILG. Let’s hope the Welsh Government actually listen to the mounting critics of their decision to close WILG.

***

A case of Wales following in the footsteps of England?

While attention is focused on the countdown to leaving the European Union, one should not lose sight of the impending closure of the Welsh Independent Living Grant (WILG) which has been earmarked for the 31 March 2019.  The impact of the closure is already being felt by people who have transitioned from the WILG to Local Authority funded care and support.

A strenuous and valiant campaign to # SaveWILG has been led by Nathan Davies.

The sustained #SaveWILG campaign has gathered momentum in the final weeks before the proposed closure and has been given greater impetus by a letter from the Deputy Minister for Health and Social Services.  In this letter Julie Morgan, sets out the outcome of the Deep Dive Review that was put into place by the previous Minister to evaluate the process and outcomes of the re-assessment of WILG recipients who have been re-assessed for Local Authority Services. The letter notes that 157 disabled people (of the 1,174 people who have been re-assessed – i.e. 13%) have suffered a reduction in their care and support provision.

The Minister has since met with representatives of the #SaveWILG Campaign Group who have presented her with a dossier of evidence to reconsider her decision.

The BBC Wales Live news item https://www.bbc.co.uk/iplayer/episode/b0c0x936/bbc-wales-live-23012019(at 8 minutes 40 seconds) has highlighted the impact on disabled people who have been reassessed and the impact on carers. The long term costs of leaving disabled people with high level care needs with insufficient support was highlighted by Tanni Grey Thompson who supports the continuation of central government funding.

Nathan Davies on behalf of the #SaveWILG  has written an impassioned open  letter  to the First Minister for Wales https://nathanleedavies.wordpress.com/2019/01/28/open-letter-to-first-minister-mark-drakeford-savewilg/  in which he sets out the deep concerns of disabled people who have been moved to local authority care and support, reminding him that during the campaign for the office of First Minister, and in response to a question from the BBC he said,

“… if an independent evaluation shows the new system is not working as well as the old one then I would be prepared to reverse it because this is money intended for a very specific number of people for a very specific purpose”.

One must reluctantly come to the conclusion that the Welsh Government is following in the footsteps of England, albeit three years later.  The closure decision has given scant consideration to the evidence from England on the effect of closure on disabled people and their carers and Wales has been prepared to continue along a trajectory that risks destabilising the established care and support  of WILG recipients.  A critical analysis of the intended closure of the WILG can be found by clicking here.

The Deep Dive Review, referred to by the current Minister for Health and Social Services, was intended to be an independent audit of the process, impact and outcomes of assessing WILG recipients for transition to local authority services. Embedded in the review was the possibility of reversing the decision. If not it was merely a cosmetic exercise.

The detail of the Deep Dive Review has not been made public as yet. There is neither information as to whether local authorities provided each previous recipient of WILG with independent advocacy nor if they offered a carers assessment to relevant carers.

It is an indictment of a review which was supposed to give reassurance to disabled people about the veracity of the evaluation of the process of transition to local authority services, that disabled people were not consulted about their experience of the process  and their satisfaction with the outcomes.  Local Authorities representatives were however consulted and provided reassurance to the Minister that no major implementation issues had come to light.

The letter from the Minister to the #SaveWILG campaign notes that some of the previous recipients of WILG are no longer eligible for social care and have been moved to NHS Continuing Health Care.

Unlike in England, recipients of NHS Continuing Health Care are prevented by statute from having a Direct Payment to arrange care and support. This is a significant impediment to independent living and yet this has not been attended to in legislation (although in England this barrier has been removed).

It now rests with the Minister of Health and Social Services to reverse the decision to close the Welsh Independent Living Grant and to offer a clear view on how Wales will meet the needs of disabled people with complex needs.

The case note R (CWR) v Flintshire County Council(2018) is a salutary reminder of the experience of a disabled person in need of care and support in Wales under the Social Services and Wellbeing (Wales) Act 2014 and illustrates the understandable fears of disabled people when being assessed for care and support.

The case is also a clear reminder that it is possible to effectively challenge unfair, unlawful or irrational decisions by local authorities.