Help Needed on Social Media #SaveWILG

I am requesting help on Social Media to get the message across to Assembly Members across Wales that there is still time to reverse the awful decision to close WILG and transfer all responsibilities for Independent Living to local authorities.

A list of AM Twitter handles can be found below along with a suggested Tweet and electronic postcards and memes that can be attached to Tweets for greater impact. Those of you who are not on Twitter can use Facebook to send messages, postcards and memes to AMs or you can email them using their addresses that can be found on this mailing list. 

It is also still not too late to show your support for the #SaveWILG postcard campaign. You can download and print postcards below or get in touch with me and I will send you a few hard copies.

Even if you only manage to contact a handful of AMs, this could make a real difference to disabled people across Wales.

Thanks for your support.



Disabled people with high care and support needs are in search of your support to maintain Independent Living for all. #SaveWILG

Wales voted Labour. Don’t copy Tory policy and damage independent living 4 disabled people #SaveWILG

This is the impact of closing the ILF in England  https://www.gov.uk/government/publications/independent-living-fund-post-closure-review #SaveWILG

Welsh Labour: Don’t copy Tories in Westminster. Protect independent living 4 disabled people #SaveWILG

These Tweets should be accompanied by some of the many postcard photographs, electronic postcards and memes.


David Melding @DavidMeldingAM

Lynne Neagle @lynne_neagle

Gareth Bennett AC/AM @GarethBennettAM

David Rowlands AC/AMVerified account @DavidRowlandsAM

Hefin David AC/AM @hef4caerphilly

Caroline Jones AC/AM @carolineUKIP

Dr Dai Lloyd AC/AM @DaiLloydAM

Carl Sargeant AM @Carl4AandD Michelle Brown AM @MishBrownAM

Carwyn Jones AM/ACVerified account @AMCarwyn

Joyce Watson AM @JoyceWatsonam

Nathan GillVerified account @NathanGillMEP

Neil Hamilton AC/AMVerified account @NeilUKIP

John Griffiths AM @JGriffithsLab

Vikki Howells AM @VikkiHowells

Ann Jones AM @ann_jonesam

David Rees @DavidReesAM

Neil McEvoy AM @neiljmcevoy

Ken Skates AMVerified account @KenSkatesAM

Dafydd Elis-Thomas @ElisThomasD

MickAntoniw AM @MickAntoniw1

Jayne Bryant AM @JBryantWales

Mike Hedges @MikeHedgesAM

Julie James AMVerified account @JulieJamesAM

Rebecca Evans AMVerified account @RebeccaEvansAM

Eluned Morgan @Eluned_Morgan

JaneHutt AMVerified account @JaneHutt

Rhianon Passmore @rhi4islwyn

Elin Jones @ElinCeredigion

Vaughan Gething AMVerified account @vaughangething

Mark Drakeford AMVerified account @MarkDrakeford

Mark Isherwood AMVerified account @MarkIsherwoodAM

Angela Burns @AngelaBurnsAM

Mohammad Asghar AMVerified account @MohammadAsghar

Lesley GriffithsVerified account @lesley4wrexham

Nick RamsayVerified account @NickRamsayAM

Andrew RT DaviesVerified account @AndrewRTDavies

Simon ThomasVerified account @SimonThomasAC

Huw Irranca-DaviesAMVerified account @huw4ogmore

Russell George AMVerified account @russ_george

Rhun ap IorwerthVerified account @RhunapIorwerth

Julie MorganVerified account @JulieMorganLAB

Sian Gwenllian AC/AM @siangwenfelin

Janet Finch-SaundersVerified account @JFinchSaunders

Lee Waters AMVerified account @Amanwy

Alun DaviesVerified account @AlunDaviesAM

Jeremy Miles AC/AMVerified account @Jeremy_Miles

Jenny Rathbone AMVerified account @JennyRathbone

Mark Reckless AMVerified account @MarkReckless

Dawn Bowden AM @Dawn_Bowden

Llyr Gruffydd AC/AM @LlyrGruffydd

suzy daviesVerified account @suzydaviesam

Darren Millar AMVerified account @DarrenMillarAM

Steffan LewisVerified account @steffanlewis

Adam PriceVerified account @Adamprice

Hannah Blythyn AM @hannahblythyn

Kirsty WilliamsVerified account @Kirsty_Williams

LeanneWoodVerified account @LeanneWood

Bethan Maeve AM/ACVerified account @bethanjenkins





Don’t forget there are still plenty of badges available for you to wear with pride to help to spread awareness. Simply get in touch if you would be interested in showing your support by purchasing a badge.




Badges and an update #SaveWILG

Its all go with the #SaveWILG campaign. I now have Save WILG badges available at £1 each to help fundraise for the cause. There are many costs involved with running such a campaign as we are planning to stage fundraising events, print leaflets and stage an art exhibition about the importance of independent living for disabled people.


If anyone would like to support the campaign by purchasing and wearing a badge please get in touch with me via the contact page or on Twitter or Facebook.

I would like to ask my friends at Disabled People Against Cuts if they would like to create any submissions of artwork, in any form, for the planned exhibition  at  Theatr Clwyd in Mold, North Wales during the week beginning January 16th, 2018.

I am hoping to frame many of my postcard photographs for the exhibition so I am also asking as many of you as possible to post with one of my Save WILG postcards and agree to take part in the exhibition. If you have already posed for a picture then you can ask your friends or family members to do the same. I really want to push this and show the depth of support for this campaign that is out there.

There will be more updates in the near future with plenty of exciting events in the pipeline as we attend to salvage independent living for all disabled people.

Thanks for your support.



Silenced by Disability Wales

As I write this blog, I am feeling quite insulted as I have just received an email from the good people at Disability Wales who have sent me the agenda for their annual conference in Cardiff. It makes for interesting reading – not because of what it includes, but rather because of what it does not mention.

Of course, there are many important topics up for discussion with some excellent speakers – as well as Carl Sargeant AM. There is no doubt that this will be a well-organised and informative day, but to my mind there is one key issue that is missing from the agenda.

I received an email many moons ago, advising me that Disability Wales could not support my #SaveWILG campaign because of some political bias. This was disappointing and frustrating as I think that everything is political to a certain degree and I have made every effort to make my campaign about the future of independent living in Wales and beyond, rather than focusing on the failures of any political parties.

My campaign has been going really well without the support of Disability Wales. I have had my petition discussed by the Petitions Committee in the Senedd and they have agreed to the following :

  • Consider the petition further in the context of the budget announcement due later that afternoon; and in the meantime
  • Write to the Minister for Social Services and Public Health to share the concerns of the petitioner and ask:
    • whether she will publish the results of the public consultation and minutes of the stakeholder group as requested by the petitioner;
    • whether an Equality Impact Assessment of the decision was carried out and can be provided to the Committee and petitioner; and
    • for her views as to whether the planned transitional arrangements will ensure that the aims of the Social Services & Wellbeing (Wales) Act will have been put into practice by local authorities before the planned closure of the Welsh Independent Living Grant.

This has all been achieved by me and my comrades so to be airbrushed from the main platform for disability activism in Wales is quite an insult. It is especially annoying as the reason that my campaign could not be supported by DW is so that they do not upset their funders even though my campaign is in the interests of DW members. I believe something’s are worth fighting for and I will continue fighting for my principles no matter who I disagree with.

I hope everyone enjoys the DW Conference and that the day is a success, but members should remember that they will not hear the voices of all disabled activists in Wales. If anyone who attends wants to contribute to the #SaveWILG campaign, please do get in touch via Twitter, Facebook or the Contact page.

You are invited to the following event:

Annual Conference and AGM 19th October 2017


Event to be held at the following time, date and location:

Thursday, 19 October 2017 from 09:30 to 15:30 (BST)

Orbit Centre
Rhydycar Business Park
CF48 1DL
United Kingdom

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During 2017, the review of the Framework for Action on Independent Living and the UN’s examination of the UK and Welsh Government regarding implementation of the Convention on the Rights of Disabled People has provided a timely focus on whether policies and provision in Wales deliver on disability rights and equality.

Furthermore, as arguments over ‘hard’ and ‘soft’ Brexit rage, what impact will it have on disabled people and following the outcome of the General Election, where does it leave the UK Government’s austerity agenda?

Disability Wales’s Annual Conference Defending our Rights: Challenging Attitudes explores these questions and issues with the assistance of a panel of expert speakers and round-table discussions.

  • Find out how Welsh Government proposes to take forward its commitment to disabled people’s rights from the Cabinet Secretary for Communities and Children, Carl Sargeant AM
  • Hear how Access Consultant Dan Biddle challenges work place discrimination and barriers to employment
  • Learn about the EHRC’s approach to tackling discrimination faced by disabled people from Ruth Coombs, the new Head of Wales
  • Be inspired to campaign for change by leading disability rights activist Tara Flood from the Reclaiming our Futures Alliance
  • Network and exchange ideas with fellow DW members, stakeholders and supporters.
  • Be the first to preview DW’s new website as a tool for sharing information, resources and expertise on disability rights and equality

Annual Conference and AGM

Defending our Rights: Challenging Attitudes


9.30am:     Registration & Refreshments

10.15am:   Welcome and Scene Setting

                             Rhian Davies, Chief Executive

10.30am:   Personal Perspectives

Dan Biddle, Managing Director, Nationwide Access Consultants Ltd

10.45am:   Campaigning for Change

                             Tara Flood, Reclaiming our Futures Alliance

11.00am:   Regulating our Rights

                             Ruth Coombs, Head of Wales, EHRC

11.15am:   Panel Discussion

11.30am:   Break

11.45am:   Round Table Discussions

12.20pm:   Driving Forward Disability Rights

Carl Sargeant AM, Cabinet Secretary for Communities and Children

12.45pm:   Summary

1.00pm:     Lunch

2.00pm:     Website Launch

                             Demonstration: Promo Cymru

2.30pm:     AGM and Project Presentations      3.30pm:         Close

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We hope you can make it.

Disability Wales

Job Opportunity

I am excelling with my current care team, but more cover is needed for this small and friendly team.

Drop me a line via the Contact page, Facebook or Twitter. Good luck.


Female Personal Assistant (Sex Discrimination Act Section 7 (2) (b) (ii) applies, Wrexham (0103)
Rate of Pay: Weekdays £7.56 per hour – Weekend Enhanced £10.04
Weekly Hours: TBC

About the employer:

This post is to support a sociable 40-year-old man living in the Wrexham area. He is wheelchair-bound and lives with Fredrichs Ataxia. Subsequently he requires support to remain independent. An intelligent Author and disabled activist with a good sense of humour, he remains ambitious and adventurous. He enjoys company and likes to go out socialising.

Summary of duties:

To provide support to access various social and recreational activities. You must therefore have a clean driving license.You will need to support with his personal care, including toileting, washing, dressing and preparing meals. He is a very creative individual and requires support to develop his ideas.

Support with gardening and household tasks.

The post will include 5.6 weeks paid annual leave (pro-rata)

Police records check funded by the employer will be required.

The person they are looking for:

The ideal person will have a good sense of humour and should also display plenty of energy, initiative and enthusiasm. In addition, applicants should be patient and trustworthy with a flexible and empathic attitude.A positive attitude and clear understanding of confidentiality is essential. Promoting the independence of the client will be the main focus for any support.

You must be reliable, friendly and punctual.

Times Required:

A variety of hours are available to cover Mornings, Evenings and Weekends. To be discussed at interview.

Holiday and Sickness Cover is also available.

Introducing Robyn

I have decided to name my mannequin Robyn. This was decided on after asking my friends on Facebook to come up with their own suggestions. There were a whole host of suggestions from Roxanne to Gertrude, but in the end I decided to follow the advice given by my friend, Ted Eames.

His suggestion was Rita Racecourse as he thought I should keep with the Wrexham AFC theme that is prevalent throughout my bungalow. I totally agree with the Football connection, but I could not name my new friend after an ageing newsagent in Coronation Street. All that was left to do was to think of an alternative name that is associated with the club I love.

Commercial manager Christian Smith came up with the idea of changing the club’s nickname to enhance it’s marketing potential in 2001.  The club had been called the Robins – not because of the red and white kit – but after Ted Robinson, who had given 50 years service to Wrexham Football Club as player coach and secretary.  Smith explained the change: “The Robins doesn’t say a great deal about Wrexham AFC.  We should trade more on our Welsh identity”  The new nickname that was eventually was the Red Dragons.

All this sounds too much like a cunning marketing ploy with total disregard for historical context.  It’s the type of thing I hate.  Some people would say that I am stuck in the past, but I prefer to think of myself as a traditionalist with respect for forgotten heroes.

Anyway, in my choice of name for my mannequin, the spirit of Ted Robinson lives on (albeit in a more attractive, sexier form with the ‘i’ replaced with a ‘y’ to give it a feminine touch).


Name the Mannequin


This is the new lady in my life – a six foot plastic mannequin. She was a gift from friends for my 40th birthday and I have been busy giving her a new look. This is rather an apt look for the little strumpet as she has proven quite a handful since I moved her into my bedroom…

Anyone who knows me, will know that I am rather indecisive so I am asking my readers for help in naming my new friend.

Please comment below or send me a message on Facebook or Twitter. I will announce the winner on the site in the near future.

Message to disabled people regarding Owen Smith MPs Leadership bid

I have copied this statement from Liza Van Zyl, a disability rights activist who has highlighted the Tory-lite mantra of Owen Smith MP who wants to get Labour elected at any cost, even if this means morphing into a right-wing media whore with no substance. Surely victory without principle is no victory at all?

‘Owen Smith needs to be challenged robustly on his position on the Work Capability Assessment and on his commitment to disabled people’s rights. I was a Labour Party activist who had no choice but to resign from the party after a very unpleasant encounter with Mr Smith. I am recounting it now because I believe it is very important that his views are robustly challenged if he stands for the Labour leadership.

On Saturday 7th March 2015 I attended a Labour meeting in Pontypridd at which the guest speaker was Owen Smith MP, then shadow secretary of state for Wales. When questions were invited from the floor, I asked Mr Smith why, given that the Work Capability Assessment (WCA) has been responsible for a great many more deaths than the Bedroom Tax, Labour had pledged to scrap the Bedroom Tax but had said nothing about pledging to scrap the WCA. Mr Smith replied that Labour could not pledge to scrap the WCA because this would make Labour appear weak on benefits in the eyes of the media and compromise Labour’s general-election chances.

I posted this on Facebook and a journalist took it up and posted the story online. Subsequently the journalist was threatened with legal action by Mr Smith if he did not take the story down. I was very intimidated by the prospect of defending myself in court, and I had no money for a legal defence. In addition my Labour colleagues were terribly keen to maintain good relations with Mr Smith and would probably have backed Mr Smith and not me if it came to a court case (one of them had even contacted the journalist and briefed against me). So I asked the journalist to pull the story and I deleted references to it on Facebook.

I am publicising this incident now because I am very concerned about Mr Smith’s attitude toward disabled people and particularly to his views that the deaths of disabled people are less important than Labour’s “tough on benefits” standing in the right wing press. If he threatens me with legal action again it will be incredibly stressful and will probably exacerbate my disability-related ill-health. But I believe it is important that Mr Smith’s attitudes to the WCA and to disability rights (and freedom of speech!) be robustly challenged if he stands for the Labour leadership. And because we should be able to discuss things that profoundly impact on us, like the WCA, without being intimidated into silence by threats of legal action. I will provide more details to journalists who can contact me at lvanzyl55@gmail.com

Appalling behaviour by a candidate for the leadership of a supposed DEMOCRATIC SOCIALIST PARTY

Let’s be clear that New Labour are just as dangerous to disabled people, and the disadvantaged in general, as it was Gordon Brown’s administration that kick-started the closure of the Independent Living Fund (ILF) in 2009. They closed this fund to new applicants and did not have a alternative plan to allow disabled people to employ PAs and live in their communities independently. The Tories eventually closed ILF in 2015 and left disabled people fighting for their rights.

Who was the most prominent MP campaigning alongside disabled people against their oppressors? Jeremy Corbyn of course. Says it all really and it is up to us to make sure that British politics has a true left-wing alternative to the repressive right…