England

Writing to local newspapers…

I have written the following letter to a number of local newspapers across Wales, urging the Welsh Government to reconsider their decision to close the Welsh Independent Living Grant (WILG).The campaign for justice continues…

If you wish to write a letter in support of this campaign, use the following emails:

This is the email that I fired off in the hope that people will read it and take notice of what is going on. It is worth a go.

 

I am writing as a recipient of the Welsh Independent Living Grant (WILG) and a disability activist who intends on asking Welsh Labour to reconsider their decision to close WILG as of April 2019. This payment was introduced to help people who previously claimed from the UK government’s Independent Living Fund (ILF), which closed in 2015.

WILG was due to run until the end of March 2017, but Social Services Minister Rebecca Evans said in November that funding would continue for another year.

The annual £27m fund will then transfer directly to local authorities during 2018-19 so they can meet the support needs of all former ILF recipients by 31 March 2019.

Something needs to be done as our disabled friends in England have suffered under a similar system that has seen local authorities being solely responsible for their care and support since 2015. This cannot be allowed to happen in Wales as well. Disabled people must organise themselves and demand to be listened to.

The Welsh Government said the decision was taken on stakeholder advice. The majority of representatives on the stakeholder group were third sector or citizens who didn’t want WILG scrapped. The key point is that the advice of disabled people was ignored.

This is the time to fight back as Welsh Labour are basking in the glory of Jeremy Corbyn’s success in the recent General Election. The prevailing mood has changed and Welsh Labour have apparently made a significant shift to the left. Surely, Welsh Labour will want to distance themselves from a decision that mirrors the one made by the Tory Government in 2010?

It should also be remembered that closure of WILG is not inevitable as is proved through the formation and success of the Scottish Independent Living Fund; which also works to support the Northern Ireland ILF.

Furthermore, the hugely popular Labour Party Manifesto outlined plans to set up a national care system to exist independently of local authorities. This is exactly the time that the Labour Party should be united on such issues against the Tories. We must question why Welsh Labour are not playing their part in the changing political landscape?

They will no doubt argue that we should give the Social Services and Well-being (Wales) Act a chance to succeed. However, this idealistic act needs hefty investment and resources to ensure it is a success – with no sign of any of the necessary improvements to our infrastructure that the success of the Act depends on. This may indeed be the time for a revolutionary change in the way social care is delivered, but such a transformation could take a decade or more and WILG recipients do not deserve to be treated like guinea pigs when their high care and support needs require long-term stability and structure. 

Indeed, eventually it should be our aim to set up an Independent Living Fund for Wales so that no disabled person should have to suffer the same uncertainty and isolation as WILG recipients are now experiencing. We can only begin to believe that true social justice and equality for all is possible if Welsh Labour revisit their WILG decision…

There are a number of ways that WILG recipients, family members and personal assistants can help to make a difference. Those concerned can sign the petition that has currently received almost 250 signatures, take part in the postcard campaign that is being orchestrated across social media and put pen to paper to their local AM. To find out more about these projects, please contact Nathan Lee Davies at nathandavies01@hotmail.com or search Facebook for the Save the Welsh Independent Living Grant (WILG) page. Twitter users can find me on @nathanleedavies or you can find all the information about this campaign on my blog at https://nathanleedavies.wordpress.com/

Thank you for your time.

Nathan Lee Davies, Wrexham

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Briefing on the Welsh Independent Living Grant (WILG)

Briefing on the Welsh Independent Living Grant (WILG)

Background:

The Welsh Independent Living Grant (WILG) was introduced by Minister for Health and Social Services, Mark Drakeford AM to help people with high care and support needs who previously claimed from the UK government’s Independent Living Fund (ILF), which closed in June 2015. More than 1,500 people are helped by the scheme across Wales.

The grant was only ever meant to be a short-term measure as Mark Drakeford wanted to give further thought to three longer-term options to identify which one might best deliver effective support, despite the difficult financial position.”

These options included the possible extension of current arrangements, a potential arrangement with the body set up in Scotland to provide payments to former ILF recipients there to do the same for Welsh recipients and, as in England, to transfer the funding to local authorities in Wales to bring ILF recipients within the arrangements for providing care and support set out under the Social Services and Well-being (Wales) Act 2014 for disabled people more generally.

Substantial time and money was spent on a consultation that overwhelmingly showed support for either a partnership with the Scottish ILF or a continuation of WILG – anything rather than distribute the funds solely to local authorities and end the reliability of three-way funding between government, local authority and personal contribution…

 

November 2016:

The new Minister for Health and Social Services, Rebecca Evans AM, decided that the £27 million-a-year provided by the UK government to support former ILF-users in Wales will be passed directly to councils.

There will be no new Welsh ILF – even though such a scheme has been set up in Scotland – and no continuation of the Welsh Independent Living Grant (WILG) scheme the Welsh government has been running as a stopgap since the fund closed in June 2015.

Instead, Evans said that funding for WILG would continue in its current form through 2017-18, but would transfer to local authorities during 2018-19. All former ILF-recipients will have their support needs met solely by their local authority by 31 March 2019.

In addition, the Welsh government has not yet made it clear whether the funding it will transfer to local authorities during 2018-19 will be ring-fenced for former ILF-recipients, or even for social care spending.

 

Why we oppose this decision: 

The Welsh Government said the decision was taken on stakeholder advice. The majority of representatives on the stakeholder group were third sector or citizens. Disabled people, their families and support workers didn’t want WILG scrapped and the key point is that our advice was not accepted.​

It should also be remembered that closure of WILG is not inevitable, as is proved through the formation and success of the Scottish Independent Living Fund; which also works to support the Northern Ireland ILF.

Furthermore, the hugely popular Labour Party Manifesto outlined plans to set up a national care system to exist independently of local authorities.

This is exactly the time that the Labour Party should be united on such issues against the Tories. We must question why Welsh Labour are not playing their part in the changing political landscape?

Indeed, eventually it should be our aim to set up an Independent Living Fund for Wales so that no disabled person should have to suffer the same uncertainty and isolation as WILG recipients are now experiencing. We can only begin to believe that true social justice and equality for all is possible if Welsh Labour revisit their WILG decision.

In a written statement in February 2016, Mark Drakeford AM said: “The level of recurrent funding being transferred to the Welsh Government from the UK Government to meet this responsibility is flat-lined at £27 million per year. This is sufficient to be able to maintain recipients’ payments at the same level as when the ILF was closed. There is, however, no scope to fund a change in a person’s needs or for any changes in the cost of the support they require. Neither does this transfer include any element for the administration or set-up costs associated with the arrangements to provide support we operate in Wales. Such costs would have to be top-sliced from the £27 million per year thereby reducing the level of the payments we were able to afford. As a result, this level of transfer greatly restricts the options we are able to consider for providing support to recipients in the longer term.”

To an extent, we sympathise with this situation and recognise that funding difficulties have their roots in Westminster. However, a strong government should provide for and protect those they represent, instead of washing their hands of responsibility of those in need while passing the buck to over-stretched local authorities and frittering millions on harebrained schemes such as north Wales metro. People should be prioritised over profit.

Welsh Labour will no doubt argue that we should give the Social Services and Well-being (Wales) Act a chance to succeed. However, this idealistic act needs hefty investment and resources to ensure it is a success. At the moment, there is no sign of any of the necessary improvements to our infrastructure that the success of the Act depends on. This may indeed be the time for a revolutionary change in the way social care is delivered, but such a transformation could take a decade or more and WILG recipients do not deserve to be treated like guinea pigs when their high care and support needs require long-term stability and structure.​

 

Call Out To Welsh Independent Living Grant (WILG) Recipients

I am writing as a recipient of the Welsh Independent Living Grant (WILG) and a disability activist who intends on asking Welsh Labour to reconsider their decision to close WILG as of April 2019. I would like to hear from other WILG recipients in the hope of holding a series of public/virtual meetings to discuss how we can best oppose this closure and create a pressure group to support each other through this worrying time.

The WILG was introduced to help people who previously claimed from the UK government’s Independent Living Fund (ILF), which closed in 2015.

More than 1,500 people are helped by the scheme.

It was due to run until the end of March 2017, but Social Services Minister Rebecca Evans said in November that funding would continue for another year.

The annual £27m fund will then transfer directly to local authorities during 2018-19 so they can meet the support needs of all former ILF recipients by 31 March 2019.

Something needs to be done as our disabled friends in England have suffered under a similar system that has seen local authorities being solely responsible for their care and support since 2015. This cannot be allowed to happen in Wales as well. We must organise ourselves and demand to be listened to.

The Welsh Government said the decision was taken on stakeholder advice. The majority of representatives on the stakeholder group were third sector or citizens. But they didn’t want WILG scrapped and the key point is that our advice was not accepted.​

This is the time to fight back as Welsh Labour are basking in the glory of Jeremy Corbyn’s success in the recent General Election. The prevailing mood has changed, Teresa May has ended austerity and Welsh Labour have made a significant shift to the left. Surely, Welsh Labour will want to distance themselves from a decision that mirrors that made by the Tory Government?

It should also be remembered that closure of WILG is not inevitable as is proved through the formation and success of the Scottish Independent Living Fund; which also works to support the Northern Ireland ILF.

Furthermore, the hugely popular Labour Party Manifesto outlined plans to set up a national care system to exist independently of local authorities. This is exactly the time that the Labour Party should be united on such issues against the Tories. We must question why Welsh Labour are not playing their part in the changing political landscape?

They will no doubt argue that we should give the Social Services and Well-being (Wales) Act a chance to succeed. However, this idealistic act needs hefty investment and resources to ensure it is a success – with no sign of any of the necessary improvements to our infrastructure that the success of the Act depends on. This may indeed be the time for a revolutionary change in the way social care is delivered, but such a transformation could take a decade or more and WILG recipients do not deserve to be treated like guinea pigs when their high care and support needs require long-term stability and structure.​ 

Indeed, eventually it should be our aim to set up an Independent Living Fund for Wales so that no disabled person should have to suffer the same uncertainty and isolation as WILG recipients are now experiencing. We can only begin to believe that true social justice and equality for all is possible if Welsh Labour revisit their WILG decision…

WILG recipients who wish to help make a difference should contact nathandavies01@hotmail.com

Further reading is available below:

http://www.bbc.co.uk/news/uk-wales-politics-38385381?SThisFB

http://www.disabilitynewsservice.com/welsh-government-has-sold-disabled-people-down-the-river-on-post-ilf-plans/

The 20 Tour: Signed Stoke City shirt

I was delighted to receive a signed Stoke City shirt in the post this morning. This is my first piece of memorabilia that I have collected for my tour of Premier League football grounds in support of Level Playing Field.

The shirt was kindly donated by former Wrexham AFC goalkeeper and current Stoke City coach Eddie Niedzwiecki. I really appreciate his support and I am looking forward to collecting more such items from the country’s biggest clubs to auction when my journey around England and Wales (providing Swansea City survive) comes to an end.

I am currently working on a JustGiving page, but I am not sure when to launch it. The sooner the better I suppose…

 

The 20 Tour

After much thought I have decided to change the nature of this tour.  Instead of traipsing around all 92 grounds in one season I will now focus purely on the grounds of the Premier League clubs.  This will decrease the pressure on me and allow me to spend more time at each ground.  I will not try to watch a match at all the grounds, but I do want to bask in the architecture of these differing stadiums and collect memorabilia to auction at the end of my tour.

The charity that I have chosen to benefit from my expedition is Level Playing Field – the working name of National Association of Disabled Supporters. Instead of spending time trying to explain the nature of this registered charity I will share their guiding principles that can be found on their excellent website at www.levelplayingfield.org.uk

Guiding Principles

Level Playing Field (LPF) believe that being a disabled person is a social issue and that an individual only becomes disabled because of the social, attitudinal and environmental barriers that the individual faces (this is known as the social model of disability).

Our efforts are focussed on removing these barriers in all sports. LPF and its members will know they have succeeded when all fans can enjoy an equal experience at live sports events:

  • all stadia and sports venues are fully accessible and inclusive;
  • all customer and/or fan services are equal and inclusive;
  • disabled people are seen as customers with a commercial value


We are guided by the following principles:

  • Anti-discrimination – so that disabled people do not face discrimination arising from poor or misinformed practice.
  • Equality of opportunity or making things fairer – for disabled people in every aspect of their contact with sports clubs and venues.
  • Increasing the independence and choices that disabled people have.
  • Individual needs / Diversity – recognising that a disabled person is an individual who, like all others, has his or her own needs, abilities, human rights and responsibilities.
  • Integration/inclusion – such that services are made accessible to disabled people and offer choice.
  • Involvement in decision-making – so that disabled people, and/or their advocates, are consulted before decisions which affect them are made.
  • The social model of disability explains that it is social and physical ‘barriers’ that cause ‘disability’ not impairments.

LPF is working to remove the barriers that currently exclude disabled people. These barriers can be:

  • prejudice and stereotypes
  • the way things are organised and run
  • little or no access to information, buildings and transport

To download a PDF of the Guiding Principles with footnotes please click here.

 To download a PDF copy of the LPF Governing Constitution click here.

I think you now get an idea of why I have chosen to support this charity. As a disabled person, I know that attending a football match every weekend and having involvement with like-minded fans through a DSA (Disabled Supporter’s Association) can make a big difference to people’s lives.  I want the money raised through this project to make a real difference by giving others the opportunity to attend matches and feel the same sense of inclusion that I feel every time I visit the Racecourse.

I recently wrote an article for the April edition of When Saturday Comes that touched upon the inadequate disabled facilities at Premier League football grounds.  If this tour can help to make clubs think about their responsibilities to supporters then it will have been a success.

There is much planning to be done. Fortunately, I recently discovered Roadrunner Motorhomes which provides fully accessible accommodation on wheels.  It boasts a ceiling track hoist, profiling bed, toilet and wet room, which is all I need to make this epic adventure a reality.  I have booked the motorhome for the first week in October.  This will be ideal for visiting clubs based on the south coast and maybe a few more once I have worked out which are the best campsites to stay in.

For more information see: www.roadrunnermotorhomes.webs.com

I also need to set up an online sponsorship page for all you kind people to support me on my tour of England and Wales.  In addition I will also be booking the few hotels with the necessary equipment needed to transfer me from wheelchair to bed.  This will be needed in order to visit the London clubs and those based in south Wales and the North East.

This venture will cost me a pretty penny at a time that disabled people are disproportionately feeling the full force of austerity measures. Subsequently, any individual or company that would like to help out with petrol costs, hotel fees and food bills then please do get in touch.

So, this is my latest escapade. There is much to organise and at times it is overwhelming, but if the money I raise helps just one disabled person attend football more regularly – subsequently increasing their sense of- self-worth – then it will have been a worthwhile venture.

Memory Match – 08-01-66

Throughout the 2016/17 football season I will be contributing to the Wrexham AFC matchday programme. I will be penning a feature called Memory Match, a look back at classic Wrexham games from the past that I will share in this blog over the coming months.

08-01-66

Wrexham v Barnsley

League Division Four

Racecourse Ground

Result: 6-3

Wrexham: Beighton, Wall, Lucas, Smith, Turner, Powell, Lloyd, Griffiths, Webber, McMillan, Campbell

Goalscorers: Webber (3, 1 pen), McMillan (3)

Barnsley: Hill, Parker, Brookes, Jackson, Swallow, Addy, Hayes, Bettany, Kerr, Ferguson, Hewitt

Goalscorers: Kerr, Hewitt, Hayes

Attendance: 4,149

Jack Rowley, former Manchester United and England centre-forward and ex-manager of Plymouth Argyle and Oldham Athletic, became Wrexham’s ninth post-war manager and the third in less than 12 months. He was appointed in January 1966 after Billy Morris had been sacked in October 1965.  Cliff Lloyd had acted as caretaker manager in the interim period.

Speaking to Ron Chaloner in the Leader, Rowley said: “I am a strong one for discipline.  If the players are told to start training at 10am I want them there then – not at five minutes past.”

Rowley’s first game in charge against Barnsley looked tough on paper as the Yorkshire side were in the top ten while the Reds only had two clubs below them in the league. Subsequently, Rowley demanded “nothing less than 100% effort” and he wasn’t to be disappointed.

Unfortunately, there seems to be some confusion over the afternoon’s goalscorers.   Our local newspaper claims that Webber scored four goals and McMillan two, our official history books suggest  that Webber only got a hat-trick,  McMillan scored twice and we profited from an own goal while the English Football Data Archive suggest that Webber and McMillan both scored hat-tricks.  It’s confusing.  What I do know for sure is that we won the game convincingly.

Somehow, I had to solve such a glaring inconsistency, so I spoke to none other than Sammy McMillan himself. He assures me that he definitely scored a hat-trick that afternoon and tells how debutant John Lloyd – son of former caretaker Cliff Lloyd – talks about this match as a popular after dinner speaker, recounting tales of a double hat-trick in his first of only two games for Wrexham.

According to the information at my disposal from the Leader, it seems that things didn’t start well as a rare lapse by David Powell enabled Dick Kerr to strike a beauty from 20 yards after six minutes to put the visitors ahead.  However, just five minutes later Arfon Griffiths was tripped from behind in the penalty box and Webber converted the spot kick.

On 34 minutes, Barnsley re-took the lead when Dick Hewitt despatched a hard cross-shot from the left.  This was the beginning of a breathless period of play that saw Wrexham equalise on 39 minutes through McMillan.

Things got even better for the resurgent Reds in the 42nd minute when Webber ran nearly half the length of the pitch and blasted Wrexham 3-2 in front from 20 yards.  Our jubilant fans were still celebrating this spectacular goal when Webber proceeded to beat two men and slammed in the fourth goal, completing his hat-trick.

Seven minutes into the second half the home side increased their lead, though controversy surrounds this goal in particular. The Official Handbook credits this goal to Barnsley defender Eric Brookes, but the Leader states that his teammate Brian Jackson was responsible.  I believe that this is the goal that should be credited to McMillan as he and John Lloyd are both adamant that no own-goals were scored that afternoon in line with the statistics provided by the English Football Data Archive.

Such was Wrexham’s superiority at this point that Ron Chaloner believed Jack Rowley must have possessed a magic wand. However, Barnsley were by no means finished and their lively forwards continued to test Graham Beighton who was finally beaten in the 68th minute through a fine shot from Joe Hayes.

The final thrill of an action packed afternoon saw McMillan score his third with just two minutes remaining to leave the fans chanting “We want seven”.

***

Jack Rowley’s prediction that we would climb the league table before the end of term proved to be unfounded as we won only one game in the last thirteen of the season to finish rock bottom for the first time in our history. Fortunately, we were comfortably re-elected and lived to fight another day.

As long as we beat the English

stereophonics-1000-2

I should be on cloud nine. Wales have reached the semi-finals off Euro 2016 and I have tickets to watch Stereophonics performing at the Racecourse. I didn’t think anything like this would happen in my lifetime, but why did it have to happen now when my thirst for celebration is so low?

A lot of things are going on at the moment. Obviously, I am still gutted about Brexit and the consequences that this will undoubtedly have on my life, the implosion of the Labour Party over the future of their democratically elected Leader is also a cause for concern, while the progression of my genetic disease is causing great concern.

To be honest, I would have sooner have seen the UK remain in the EU and Wales suffer humiliation in qualification. This is something that I am used to and I am at a loss to know what to do when Wales are playing so well. Oh, how I long for the days of shit Welsh football under Bobby Gould when at least I could move about easier on crutches and throw a pint glass at the TV when we lost 5-0 in some Eastern European country. I cant even hold a glass nowadays.

My crippled body does frustrate me, but I think that the worse thing about living with a disability is the loneliness that it brings. Everyone seems to be partnered up except me and all of my best friends live hundreds of miles away (maybe that’s why they are still my friends). On top of this my best mate in Wrexham has just put his house on the market and is planning a move to the Wirral.

Apologies for being so glum when everyone else is so happy, but that’s the way it is at the moment. After all, it was the Stereophonics who said:

“As long as we beat the English, we don’t care”

We didn’t and I do care, but I just don’t feel like celebrating at the moment…

***

I just got back from the gig. It was a satisfactory way to spend a Saturday. I thought the second support act, Pretty Vicious, were the outstanding performers of the day. I was a little disappointed in the Stereophonics as I feel they were better on the previous three occasions that I have seen them.

I was impressed with the massive stage erected in the Racecourse Ground and it was a good atmosphere, but I was again hindered by Ataxia, especially in terms of my hearing. I did not like having to watch couples canoodling and am uncomfortable with joining in with a compulsory mass celebration. Individualism is what I was missing.

I wish I could stop thinking and just relax, but then I wouldn’t be me.