Coronation Street

Not Enough Hours in the Day #SaveWILG

I am sick of this.  It is 2018 and I am still being treated like a second class citizen.  I have a progressive condition of the nervous system which is accelerating at quite a rate, yet I still have the same amount of inadequate care and support hours  that I did in 2010 when I first began independent living.  Life is a struggle at the moment and on top of this stress, I am having to campaign wisely to Save the Welsh Independent Living Grant (WILG) plus lead the protests against the proposed Blue Badge charges in Wrexham town centre.

Furthermore, I have a #SaveWILG art exhibition starting at Theatre Clwyd in Mold on Wednesday 24th January and a community awareness day in Wrexham on Saturday 3rd February.  I am throwing myself into all this work in order to help disabled people live independently throughout Wales because I will always fight for what is right and stand up (!) for what I believe in. Bloody principles…

Having to do this with the extra pressures of time limitations is especially difficult.  How do I get across to you the difficulties of coping alone without the necessary assistance?  Unless you spend some time in my shoes it is difficult for you to comprehend the frustration that I face.  I will try to produce a short explanatory documentary one day, but for the best I come up with in a written timetable of my day.

20.01.18

00:00 – I’ve been in bed for two hours now after having to leave an engagement party, for a close friend, earlier than I would have wished if I could live my life without the shackles of limited care hours provided by Wrexham Social Services. I am writing on my laptop computer, but before my PA left he forgot to plug the computer into the socket.  I have just been told that I have 13 minutes left before the battery drains and the computer shuts down.  This is most annoying as all I need to do is switch the power on at the wall. Of course I cannot reach the plug and cannot call for help as no one is working at this hour.

02:00 –  Woke up needing to pass urine after drinking post 20:00, which is my usual cut-off time for fluids. I have an issue with urgency. When I want to go, I want to go but with me I have to take the time to raise my profiling bed, pull my light cord if it hasn’t fallen out of reach, tried to grab my urinal with spasticated hands and then breathe a sigh of relief. Finally if all goes to plan. Unfortunately, during recent months the plan has been coming together less often. This is not a nice admission for a 40-year-old man to have to make, but I am wanting people to realise the distress and discomfort that disabled people are having to put up with as cruel local authorities focus on budgets and ideological austerity that benefit the few at the expense of the many. Lying in your own piss is not fun and can cause skin irritation not to mention the demoralisation and embarrassment of spending countless hours pickling yourself in urine.

04:00 – I wake up shivering and thinking as it is impossible to find any comfort in a wet mattress. It does not help that I am restricted to one position at night and I cannot turn over unassisted. I decide that I will try to call my 68-year-old Father to ask for his help in changing the bed and restoring some comfort. However, my mobile phone has got wet and will not  function at all. I reach for my landline but my dexterity lets me down again and I drop the phone on the floor. I am now unable to contact anyone and will be forced to remain cold and sore until the morning shift arrives at 9:00.

06:00 – I am squinting at the clock on the other side of the room. I think it is 06:00 – only three hours of discomfort and helplessness left. My legs are aching as they are bent at the knees and I cannot straighten them myself. If only I had the support of a carer. When I asked for 24 hour care recently my social worker laughed at me and said that a lot of people think they are entitled to 24 hour care but no one in Wrexham receives such a package of support. She said she could put my request to panel but that they would almost certainly deny my please. I am not asking for the world. Just the opportunity to live in society on an equal footing to everyone else. I know I am better than the one, but at the same time I know that no one is better than me.

08:00 – The central heating has kicked in and I have just woken up in a sweat. I could do with opening the windows or maybe turning the heating down, but I cant do anything while I am stuck in bed unable to contact anyone.

09:00 – The cavalry has arrived. I immediately get out of bed with assistance and take a shower. This instantly improved my mood and I look forward to the day ahead, although I wish I could wash away the embarrassment as easily. Showering is a two person job and can take up to two hours to perform the whole task from bed to wheelchair including toileting and dressing. At 11:00 I can finally start reclaiming my dignity.

12:00 – After breakfast, the telephone rings. The person on the other end of the phone does not understand my voice as my speech is sometimes slurred due to my progressive disability. My PA is able to communicate for me. This is also the case with writing emails. In 2013, I wrote my first book. Over 500 hundred pages in length and something that I am very proud of, but there is no way I could do this now as writing a simple tweet can take me 30 minutes or more. The frustration is unbearable as my mind is as sharp and alert as ever but my body is keeping it prisoner.

13:00 – My PA is due to leave in 1 hour, so I am rushing through my emails trying to make sure everything is done in time as I will be left alone until 19:00. I am concentrating on emails though I am conscious that the ironing pile is building up and the floors could do with mopping. On week days, I have to fit in these emails around housework, appointments and meetings. There really is not enough hours in the day, thanks to Wrexham council…

15:00 – I have now been on my own for over an hour so I have already missed a telephone call and dropped a bottle of water on the kitchen floor where it will have to stay until 19:00. A delivery driver has just knocked on the door to deliver a parcel. This was rather embarrassing for me as usual because when my PA leaves me at 14:00, he or she has to leave my jeans undone so I can reach the crown jewels when I need to use the toilet. This is just another example of the lack of dignity I have to endure when I am left alone.

16:00 – I am rather peckish. I have plenty of food in the cupboards but I cannot reach the snacks that I crave. Even if I could, I would be unable to open the packaging due to my lack of dexterity. I suppose this stops me from becoming a fat bastard. Every cloud…

18:00 – I have just spotted some mail that I must have received earlier, but I cannot open it until later when a PA arrives. They will also have to mop the bathroom floor as I accidentally spilt some urine. My urinal tends to fill up between 14:00 and 19:00 making it heavy and difficult to handle. There are also a couple of books littering the living room floor as my dexterity will not allow me to flick through the pages of a book.

19:00 – The TV goes on and I watch soap operas about people having worse lives than me. This makes me feel semi normal for a minute until they start going on about family. I have a strong and supportive family through biology but I have not built one of my own. I subject myself to emotional turmoil and beat myself up for not achieving more with my life. This simple fact is that there is not enough hours in my day thanks to the irresponsible fascists promoting ideological austerity at Wrexham council. For example, there was recently a job opportunity for a Disability Liaison Officer at Wrexham AFC – that was built for me. I would have been perfect for this position, but could not apply as I simply cannot dedicate enough time to the club that I love, especially when I am alone without support between 14:00 and 19:00. It has also been suggested by my local MP that I should run for election to the local council. This would be one way of changing things and I would relish the challenge, but it is something that I cannot even entertain due to my lack of care and support. This clearly goes against everything set out in the Social Services and Well-being Act as I cannot begin to achieve my goals and aspirations, but the council cannot give a flying fuck about this and would undoubtedly breathe a sigh of relief at the news that I will not be running for public office.

21:00 – Coronation Street is over for another night. My friends were going out to celebrate someone’s birthday tonight. I was invited but as my friends met at 18:00 I could not join them. Another missed opportunity. I just have time to fire off a few emails, take my medication and brush my teeth before it is time to get entangled in my sling and hoisted into my half empty bed like a good little boy.

23:00 – Each night I take my laptop computer to bed in the hope that I will receive some exciting emails. Unfortunately, this is rarely the case unless you count the latest ramblings from Vox Political or Squawkbox. The difficulty is that when I am in bed I have to be in the right position to type. I often slip down the bed and end up in an impossible position. There have been times where I have had to call my Dad to help me save my laptop from falling on the floor, because it has slipped out my grasp and I cannot recover it safely. I usually stay up until 1:00 trying to type or watching TV as I struggle to sleep comfortably for reasons that I have outlined above. If More4 start showing repeats of Father Ted then I know it is getting late and time for sleep. I will venture into the land of nod just as soon as Dougal and Ted perform My Lovely Horse.

 

 

Introducing Robyn

I have decided to name my mannequin Robyn. This was decided on after asking my friends on Facebook to come up with their own suggestions. There were a whole host of suggestions from Roxanne to Gertrude, but in the end I decided to follow the advice given by my friend, Ted Eames.

His suggestion was Rita Racecourse as he thought I should keep with the Wrexham AFC theme that is prevalent throughout my bungalow. I totally agree with the Football connection, but I could not name my new friend after an ageing newsagent in Coronation Street. All that was left to do was to think of an alternative name that is associated with the club I love.

Commercial manager Christian Smith came up with the idea of changing the club’s nickname to enhance it’s marketing potential in 2001.  The club had been called the Robins – not because of the red and white kit – but after Ted Robinson, who had given 50 years service to Wrexham Football Club as player coach and secretary.  Smith explained the change: “The Robins doesn’t say a great deal about Wrexham AFC.  We should trade more on our Welsh identity”  The new nickname that was eventually was the Red Dragons.

All this sounds too much like a cunning marketing ploy with total disregard for historical context.  It’s the type of thing I hate.  Some people would say that I am stuck in the past, but I prefer to think of myself as a traditionalist with respect for forgotten heroes.

Anyway, in my choice of name for my mannequin, the spirit of Ted Robinson lives on (albeit in a more attractive, sexier form with the ‘i’ replaced with a ‘y’ to give it a feminine touch).

 

My Racecourse – Mark Thompson

Nathan Lee Davies is a key member of the Wrexham Disabled Supporters Association, who is right behind our My Racecourse campaign. Despite a debilitating condition he does all he can to contribute to Wrexham AFC’s success. He has agreed to pen for us a series of short stories over the summer detailing what the Racecourse means to fans and former players alike. As Euro 2016 approaches, Nathan talks to matchday programme contributor Mark Thompson about international football at the Racecourse, quiz nights with former managers and Christmas carols with television soap stars.

12/05/73

Wales v Scotland

Home International Tournament

Racecourse Ground

Result: 0-2

Wales: Sprake, Rodrigues, Thomas, Hockey, England, Roberts, James, Mahoney, Toshack, Yorath (Davies 69), Evans (O’Sullivan 78)

Scotland: McCloy, McGrain, Donachie, Graham, Holton, Johnstone, Dalglish (Macari 84), Stanton, Parlane (Stein 80), Hay, Morgan

Goalscorer: Graham (60, 70)

Attendance: 18,682

With Wales about to play in their first major tournament since 1958 – or more accurately 1976 – I’ve been in a reflective international mood. I’d like to focus on my first international match at the Racecourse back in 1973 when Wales played Scotland in the Home International Tournament.

It was Wales’ first game since a 2-0 win over Poland at Ninian Park, which got the World Cup ’74 qualifying campaign off to a cracking start.  At school – Rhosddu Juniors – lots of my classmates were talking about a ‘new era’ having started for Wales. This was the first time I’d heard that phrase, but as a long-suffering Welshman it was certainly not the last.

The day of the match was overcast and a bit chilly while I was charged 10p to gain access to the Kop through the Boys turnstile.  My pal Neil Roberts and I were amongst the first in the ground.  After an abortive attempt to climb a floodlight pylon, we pottered down towards the Tech End in search of some pre-match entertainment.  We lingered on the terrace that became known as the Yale Paddock, but in those days it was just the terracing in front of the New Stand.  Once at the Tech End we sat on the wall behind the goal with our legs tucked in behind the advertising hoardings and watched the terraces filling up with Scotsmen behind us.  They all seemed to have those yellow flags with a red lion on them – AKA the Royal Standard of Scotland – not the traditional Saltire.  I remember us shouting “Get a dragon on them” with ridiculous bravado.

It was goalless at half-time. Unlike the football, the half-time entertainment was terrific. It comprised of a display by police dogs catching criminals. This got us warmed up for the second half, but our enthusiasm and excitement were soon extinguished…

As we were right next to the goal we had an excellent view of Wales goalkeeper Gary Sprake going down in instalments as Arsenal’s George Graham side-footed past him to put Scotland 0-1 up.  Ten minutes later, Graham scored his second goal as Scotland won 0-2.  After these goals I spent the rest of the game eating my packet of Spangles.

At the final whistle we ran on the pitch and I managed to secure an autograph from Rod Thomas of Swindon. Oh the glamour.

The following Tuesday, Wales lost 0-3 to England at Wembley. Wales’ new era looked a lot like the old one.

***

‘My Racecourse’ memories don’t have to be about matches attended. I vividly recall football quizzes from early/mid 1980s in the old Wrexham AFC Social Club. They were also held in the upstairs bar at the Centenary Club.

Usually I was on a team with former Chief Executive Dave Roberts, which was a very luck break as he has a thorough knowledge of football trivia.  Quizmaster Dave Davies also held quizzes where the competitors entered as individuals.  In one of them, I finished with the same score as manager Bobby Roberts. It was strangely satisfying to know exactly as much about football as the Boss.  I bumped into Bobby recently in Leicester and he told me that the Wrexham job was the most difficult of his career.

***

Of course, ‘My Racecourse’ memories don’t have to be about football. For example, I recall a Christmas carol concert in 1976 that featured Coronation Street actor Peter Adamson – AKA Len Fairclough – as the star guest.

Earlier that same year, the Racecourse held a ‘Festival of Entertainment’, culminating in people riding round the pitch on horseback dressed as characters from Planet of the Apes.  Trust me, it happened. I was there and not on drugs. Honest.

***

Over the summer months, Nathan Lee Davies hopes to compile a series of articles about our treasured Racecourse memories. We hope that this will promote the My Racecourse brand by showing how much this venue means to so many people and illustrate that it can be used by all of the community to create more memories in the future.