Clwyd South

Open Letter to First Minister Mark Drakeford #SaveWILG

Dear Mark

This is an incredibly worrying time for all disabled people and their families across Wales.  There are only 63 days left before the Welsh Independent Living Grant is due to end, leaving individuals at the mercy of cash-strapped Local Authorities  who seem intent on cutting vital support packages across the board with no guarantee that further cuts will not follow.

The fact that this neo-liberal policy is still being forced through by a Welsh Labour Government is unbelievable: frankly, it makes it even worse. I always thought that I would be protected from the brutality shown by the Tories in Westminster, because I live in a land governed by a social, democratic party. Unfortunately, the Party that I know and love seem to have lost their way under the previous leadership, which is why I was overjoyed by your election victory to become our new First Minister.

I am confident that Welsh Labour is now travelling in the right direction towards a socialist future which you championed during the Leadership Hustings. In an interview with the BBC you also said the following about the future of the Welsh Independent Living Grant:

…”if an independent evaluation “shows the new system is not working as well as the old one then I would be prepared to reverse it because this is money intended for a very specific number of people for a very specific purpose”.

The deep-dive that was recently undertaken by the Welsh Government, to analyse the performance of Local Authorities relating to the WILG transition, is full of errors and quite frankly not worth the paper it is written on. How can an investigation into the circumstances surrounding the end of WILG be conclusive without having consulted disabled people who will be affected? My comrades dismantled the deep-dive results in our recent meeting with Deputy Health Minister, Julie Morgan AM.

The closure of the Welsh Independent Living Grant is such a destructive move to disabled people’s rights and I do not believe that a progressive Party such as ours should be going down such an avenue.

#SaveWILG campaigners have presented the Deputy Health Minister with an 80 page dossier of evidence against the closure of WILG. In addition, we have the backing of Welsh Labour members who overwhelmingly voted in favour of the Clwyd South motion to save WILG at Conference in April 2018. I believe you pledged to listen to the voices of members during the Hustings and they have certainly been vocal on this subject. We have also had support from Jeremy Corbyn, Shadow Chancellor John McDonnell, MP’s such as Chris Williamson, Ian Lucas and Chris Ruane. Film Director Ken Loach also supports our campaign.

Criticism of Welsh Government policy on Independent Living has also been made by the United Nations Convention on the Rights of People with Disabilities (UNCRPD):

However, various disability organisations in Wales had advocated setting up a national independent living scheme in Wales as aligning with a citizen directed system of support rather than the approach now adopted by the Welsh Government.

We recommend that the CRPD Committee asks:

Can the Welsh Government explain:

How it reached a decision to move all ILF recipients to normal social care provision from 31 March 2019, rather than setting up a national independent living scheme?

How it will ensure protection for article 19 rights of those formerly eligible for the Independent Living Fund after 31 March 2019?

I do not believe Welsh Labour should be having to defend themselves against the UN as I know your personal intentions are to ensure universal equality throughout Wales, but now is the time to take positive action and start listening to Welsh Labour members and disabled people and their families.

Personally, I have been treated abysmally by my Local Authority. I find myself in the position of having to teach my social worker about the Social Services and Well being Act. I am not being allowed to use my Direct Payments to meet my Personal Outcomes as described in the SSWBA and feel this vindicates my insistence on the need to maintain the tripartite system when deciding on and funding future care provision.

The reassessment process – which was originally due to end by September 30th 2018 and shows no sign of being completed soon – is really having a negative impact on my physical and mental health. When I first met with my social worker at the end of November 2018, she laughed when I suggested that I would need 24/7 support. She declared that no one in Wrexham gets such a thorough level of support [whether they require it or not?]. She said that even if we applied for such levels of care and support, that the panel would not accept such a request. This is a total departure from what the SSWBA promises. There is definitely no co-production going on and Local Authorities seem to be treating disabled people as a burden.

Without the overnight support I need to fully function in society, I have to stop drinking at 8pm at night, get ready for bed at 10pm and cannot wear my hand splints or use my leg supports during long and uncomfortable nights. I often find myself having to call on my 68-year-old father to assist me in the night, even though he lives a 10 minute drive away and has arthritis in both hands.

As Tanni Grey-Thompson said on Wales Live (23/01/19), it will cost the Welsh Government more in the long term to push ahead with this strategy of devolving funding to Local Authorities. It just makes no sense whatever way you look at it. Disabled people and their families never wanted such a situation to develop as was indicated in the original consultation that took place during 2015/16. I have been asking to see the consultation documents since October 2017, but I keep being directed towards a summary document. We all know that a summary can be manipulated and edited to suit the publishers. If the summary is accurate why can I not access original consultation responses?

It is often claimed by the Welsh Government that the original stakeholder group were united in agreement with the closure of WILG and the transferring of funds to local authorities.This is quite simply untrue. The members of the stakeholder group that I have spoken to have stated their frustrations with the whole process: “I disagreed with one side of the room almost continuously,“ and “I would be amazed to see minutes of a meeting where all participants agreed that passing this WILG over to the local authority beyond the ring-fenced period was the way forward.”  Others have said “I used to go home from all these stakeholder groups thinking we had agreed certain things to discover that was not what had been recorded.” and other activists argue that many officials and civil servants do not actually “know what Independent Living means – they still think ‘independent’ means managing without support”.

It would greatly assist me in understanding Welsh Government’s decision making process on this issue if the minutes of all of the meetings of the stakeholder advisory group can be provided, and I will submit a Freedom of Information Act request if necessary.

I could go on and on, but time is against me and I would merely be repeating much of what can be read in my attached dossier of evidence. At over 80 pages long, I believe it is a comprehensive guide as to why the Welsh Independent Living Grant should be maintained indefinitely. The dossier includes information of the success of the Independent Living Schemes set up in Scotland and Northern Ireland that shows the lack of imagination shown by the Welsh Government compared to our neighbours.

Please note that this letter is written with the deepest respect towards yourself and your cabinet members. I am a loyal Welsh Labour supporter and I have belief in the 21st Century socialism that you intend on developing. The problem is that we cannot wait any longer and the changes need to be made immediately. There is no sense in a proud socialist Government copying the exact same model rolled out by the Conservative Party in Westminster.  Moreover, if the original decision was wrong then your team needs to have the courage to simply reverse it.  Tinkering with the detail in a bid to spare the blushes of your predecessors is just not acceptable: in fact it’s morally dishonest.

I know that you are extremely busy with Brexit and other pressing concerns, but disabled people with high care and support needs across Wales are in need of your leadership now. I look forward to meeting you again in the near future and should you require any more information from the #SaveWILG campaign, please do not hesitate to contact me.

Wishing you strength and solidarity

In hope…

Nathan Lee Davies
#SaveWILG campaign

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Support from Plaid Cymru #SaveWILG

I am pleased to announce that the Clwyd South Plaid Cymru constituency party officially support the #SaveWILG campaign.

We want  to collect as much support from local constituency groups as possible, regardless of your political persuasion. If you feel that your constituency could help play a part in the #SaveWILG campaign, then please do not hesitate to get in touch. The time to act is now for the sake of disabled people with high care and support needs across Wales.

There are postcards, badges and other resources available to any constituency party who would like to get involved on whatever level. We look forward to hearing from you soon.

Official Supporters so far: Clwyd South CLP, Wrexham CLP and Clwyd South Plaid Cymru CP.

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Open letter to Minister for Children and Social Care Huw Irranca-Davies #SaveWILG

Following the BBC Wales Live programme last night, I took it upon myself to write an open letter to Minister for Children and Social Care Huw Irranca-Davies about the issues discussed.

If the Welsh Government think we are just going to go away quietly then they can think again…

***

National Assembly for Wales
Cardiff Bay
Cardiff
CF99 1NA

10 May 2018

Dear Huw Irranca-Davies

WELSH INDEPENDENT LIVING GRANT

As you are aware, the Welsh Labour Party conference overwhelmingly passed a Clwyd South motion urging support for the Welsh Independent Living Grant (WILG). Support for that motion came from a very wide spectrum of Labour Party opinion including AMs, MPs, CLPs and Trade Unions.

I am writing to ask you to urgently encourage the Welsh Assembly to support the retention of the Welsh Independent Living Grant (WILG).

Freedom of Information requests to Local Authorities clearly show that there are real difficulties appearing in the transition process, highlighted in startling inconsistencies in 19 of the 22 responses received at the time of writing.

Passing responsibility for social care wholly onto the shoulders of confused and cash-strapped local councils will result in an unfair postcode lottery to mirror the appalling situation in England and drag Disability Rights back 30 years. It doesn’t have to be this way…

I have a real problem with your assertion that the stakeholder group were united in agreement with the closure of WILG and the transferring of funds to local authorities. This was quite simply not the case and I request that you should provide evidence in support of your claims.  Was a vote held in the stakeholder advisory group? If so, on what date, what was the result, and can the minutes of that meeting please be provided?

The members of the stakeholder group that I have spoken to have stated their frustrations with the whole process: “I disagreed with one side of the room almost continuously,“ and “I would be amazed to see minutes of a meeting where all participants agreed that passing this WILG over to the local authority beyond the ring-fenced period was the way forward.”  Others have said “I used to go home from all these stakeholder groups thinking we had agreed certain things to discover that was not what had been recorded.” and other activists argue that many officials and civil servants do not actually “know what Independent Living means – they still think ‘independent’ means managing without support”. 

It would greatly assist me in understanding Welsh Government’s decision making process on this issue if the minutes of all of the meetings of the stakeholder advisory group can be provided, and I will submit a Freedom of Information Act request if necessary.

Finally, I would specifically request a meeting with to discuss matters relating to the WILG and the future prospects of those who have benefitted from the WILG.

Yours sincerely

Nathan Lee Davies
Disabled Activist and Author
@nathanleedavies
https://www.facebook.com/SaveWILG/
https://nathanleedavies.wordpress.com/

Open letter to First Minister Carwyn Jones #SaveWILG

Following the BBC Wales Live programme last night, I took it upon myself to write an open letter to First Minister Carwyn Jones about the issues discussed.

If the Welsh Government think we are just going to go away quietly then they can think again…

***

National Assembly for Wales
Cardiff Bay
Cardiff
CF99 1NA

10 May 2018

Dear Carwyn Jones

WELSH INDEPENDENT LIVING GRANT

As you are aware, the Welsh Labour Party conference overwhelmingly passed a Clwyd South motion urging support for the Welsh Independent Living Grant (WILG). Support for that motion came from a very wide spectrum of Labour Party opinion including AMs, MPs, CLPs and Trade Unions.

I am writing to ask you to urgently encourage the Welsh Assembly to support the retention of the Welsh Independent Living Grant (WILG).

Freedom of Information requests to Local Authorities clearly show that there are real difficulties appearing in the transition process, highlighted in startling inconsistencies in 19 of the 22 responses received at the time of writing.

Passing responsibility for social care wholly onto the shoulders of confused and cash-strapped local councils will result in an unfair postcode lottery to mirror the appalling situation in England and drag Disability Rights back 30 years. It doesn’t have to be this way…

I have a real problem with the assertion by  the Minister for Children and Social Care that the stakeholder group were united in agreement with the closure of WILG and the transferring of funds to local authorities. This was quite simply not the case and I request that he should provide evidence in support of these claims.  Was a vote held in the stakeholder advisory group? If so, on what date, what was the result, and can the minutes of that meeting please be provided?

The members of the stakeholder group that I have spoken to have stated their frustrations with the whole process: “I disagreed with one side of the room almost continuously,“ and “I would be amazed to see minutes of a meeting where all participants agreed that passing this WILG over to the local authority beyond the ring-fenced period was the way forward.”  Others have said “I used to go home from all these stakeholder groups thinking we had agreed certain things to discover that was not what had been recorded.” and other activists argue that many officials and civil servants do not actually “know what Independent Living means – they still think ‘independent’ means managing without support”. 

It would greatly assist me in understanding Welsh Government’s decision making process on this issue if the minutes of all of the meetings of the stakeholder advisory group can be provided, and I will submit a Freedom of Information Act request if necessary.

Finally, I would specifically request a meeting with to discuss matters relating to the WILG and the future prospects of those who have benefitted from the WILG.

Yours sincerely

Nathan Lee Davies
Disabled Activist and Author
@nathanleedavies
https://www.facebook.com/SaveWILG/
https://nathanleedavies.wordpress.com/

Open letter to Carolyn Harris MP #SaveWILG

The following letter has been sent to the Deputy Leader of Welsh Labour, Carolyn Harris MP. Thanks to Keith Sinclair for his assistance in the writing of this message.

***

Dear Carolyn,

Congratulations on your election as Deputy Leader from all at the #SaveWILG campaign. I would also like to thank you personally for your recent email sent following your victory. Within that message you stated that you would “be a voice for members – and I will”. 

Furthermore, you promised that you would “do all I can to empower, promote and enable women, BAME members and those who’ve not been involved before to take leadership roles in our party – and I will”.

I write to you as a disabled member of the party who is keen to promote and enable the role of disabled people in Wales. I am sure this is another key minority group full of untapped potential that you wish to empower and enable. To this end, I would ask you to urgently encourage the Welsh Assembly to support the retention of the Welsh Independent Living Grant (WILG).

As you are aware, the Welsh Labour Party conference overwhelmingly passed a Clwyd South motion urging support for WILG. A very wide spectrum in support for our motion came from Labour Party AMs, MPs, CLPs and Trade Unions.

I would specifically request a meeting with your good self to discuss matters relating to WILG, specifically the future prospects of those who have benefited from it.

I look forward to hearing from you soon.

Nathan Lee Davies
Disabled Activist and Author
@nathanleedavies
https://www.facebook.com/SaveWILG/
https://nathanleedavies.wordpress.com/

 

Activist celebrates after Welsh Labour backs independent living campaign #SaveWILG

Taken from an original article by John Pring on the Disability News Service website:

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A disabled activist who has campaigned to save the Welsh Independent Living Grant (WILG) is celebrating after the Welsh Labour annual conference voted to back his campaign.

Nathan Lee Davies has led a campaign to force the Labour-run Welsh government to reverse its decision to scrap the grant, which was introduced to support disabled people with high support needs in Wales to live independently after the UK government closed the Independent Living Fund in 2015.

An estimated 1,300 people in Wales receive support through the WILG scheme.

And this week, at their annual conference, members of Welsh Labour voted in favour of a motion that called on their government to maintain WILG, at least until the next Welsh assembly elections in 2021.

Before the vote, Davies had also secured support from Labour’s UK leader, Jeremy Corbyn, who posed for a picture holding one of the campaign’s “WHERE THERE’S A W.I.L.G. THERE’S A WAY” tee-shirts.

After the vote, Davies posted a blog in which he described his “emotional day” following a victory he said was “key for disabled rights across Wales and throughout the UK”.

He added: “We should all rejoice while remembering the fight is far from over as we need to ensure Welsh Labour listen to the will of their members.”

Davies has previously described his terror at the prospect of his cash-strapped local authority taking over full responsibility for providing his care package, having been told that without WILG his own care package would be reduced from 86.5 hours to just 31 hours a week.

He has described the campaign as a “life or death” fight.

He told Disability News Service yesterday (Wednesday) that the passing of the motion was “obviously the high point of our ever-growing campaign” but that it “does not mean that we have succeeded in securing WILG”.

He said: “We must continue with our campaign and ensure the Welsh government listen and act upon the wishes of their members.

“One thing is for sure, we won’t rest until we preserve and improve the Welsh Independent Living Grant.”

He thanked the cross-party and union support for his campaign – including the “wonderfully supportive” Clwyd constituency Labour party, which proposed the motion – and the other recipients of WILG.

He particularly praised members of Welsh Labour Grassroots – which represents the Momentum movement in Wales – who he said had “worked tirelessly to ensure independent living remains an option for those with high care and support needs”.

Davies is hoping that the Welsh government – which will have a new first minister in the autumn after Carwyn Jones announced that he would be standing down – will now reverse its decision to scrap WILG.

A spokeswoman for Welsh Labour said: “As with all motions passed at conference, this will now be considered by Welsh Labour’s policy process ahead of the next assembly elections.”

The Welsh government announced in 2016 that, after a two-year transition period, it would transfer all the £27 million-a-year provided by the UK government to support former ILF-users in Wales directly to councils.

It decided there would be no continuation of the interim WILG scheme it had been running as a stopgap since the Department for Work and Pensions closed ILF in June 2015, and would not set up a new Welsh ILF, even though such a scheme had been set up in Scotland.

All the £27 million-a-year funding is set to be transferred to Welsh local authorities this year, and they will be solely responsible for meeting the support needs of all former ILF-recipients by 31 March 2019.

The Welsh government’s new Social Services and Wellbeing Act is supposed to provide new rights for people to access a re-assessment of their support at any time, with local authorities under new legal duties to support independent living.

It believes that this is a more progressive system than the one operating in England.

But Davies has said previously that the decision to transfer the £27 million to councils and close WILG meant the Welsh government had “sold disabled people down the river” and was “washing their hands of all responsibility for social care to former ILF recipients and transferring the pressure onto local authorities”.

Hustings arranged for the benefit of the disabled community in Wrexham

After a lot of communication via Facebook and Twitter with local candidates for the forthcoming Welsh Assembly elections, Sheila Meadows OBE and I have organised a hustings for recipients of the Welsh Independent Living Grant to listen to the prospective party plans for independent living and help them decide who to vote for on May the 5th.

Below I have copied the flyer that Sheila and I wrote that is to be emailed to those affected in Wrexham and Clwyd South. We are hoping that the meeting will be well attended as we have had confirmation that a number of prominent local politicians will be attending. Those that have been invited include Carrie Harper and Mabon Ap Gwynfor of Plaid Cymru, Alan Butterworth and Duncan Rees of the Green Party, Lesley Griffiths and Ken Skates of the Labour Party and Andrew Atkinson of the Welsh Conservatives.

The flyer reads as follows:

Future of WILG (Previously ILF)

 

Independent living is at risk for disabled people across Wales. In the run up to the May 2016 Assembly elections we have managed to arrange a meeting with local candidates about how they, and their party, plan to support disabled people if elected. 

Meeting to be held at:

Maesgwyn Community Centre

Lilac Way, Wrexham,

LL11 2BB 

Monday 25 April – 1:30-3:00pm

 

The Welsh Independent Living Grant (WILG) will remain in place until March 2017. A total of £27 million will continue to be transferred from the Westminster Government to Wales until 2020. How this sum of money will be administered is anyone’s guess. Should Wales establish their own Welsh Independent Living Fund to provide long-term security? Perhaps you accept the funding should come via the Local Authority but require assurances over ring-fencing? Whatever your standpoint, this is our chance to meet, discuss the issues and question the politicians that will influence our lives over the next political term. Don’t miss your opportunity to be heard…

If you have a question that you want to put to the candidates, or for us to feed back to the Welsh government, email your questions to either Sheila Meadows (sheilamdow@aol.com) or Nathan Lee Davies (nathandavies01@hotmail.com).

We look forward to seeing you all on 25 April at Maesgwyn Community Centre.