This is an incredibly worrying time for all disabled people and their families across Wales. There are only 63 days left before the Welsh Independent Living Grant is due to end, leaving individuals at the mercy of cash-strapped Local Authorities who seem intent on cutting vital support packages across the board with no guarantee that further cuts will not follow.
The fact that this neo-liberal policy is still being forced through by a Welsh Labour Government is unbelievable: frankly, it makes it even worse. I always thought that I would be protected from the brutality shown by the Tories in Westminster, because I live in a land governed by a social, democratic party. Unfortunately, the Party that I know and love seem to have lost their way under the previous leadership, which is why I was overjoyed by your election victory to become our new First Minister.
I am confident that Welsh Labour is now travelling in the right direction towards a socialist future which you championed during the Leadership Hustings. In an interview with the BBC you also said the following about the future of the Welsh Independent Living Grant:
…”if an independent evaluation “shows the new system is not working as well as the old one then I would be prepared to reverse it because this is money intended for a very specific number of people for a very specific purpose”.
The deep-dive that was recently undertaken by the Welsh Government, to analyse the performance of Local Authorities relating to the WILG transition, is full of errors and quite frankly not worth the paper it is written on. How can an investigation into the circumstances surrounding the end of WILG be conclusive without having consulted disabled people who will be affected? My comrades dismantled the deep-dive results in our recent meeting with Deputy Health Minister, Julie Morgan AM.
The closure of the Welsh Independent Living Grant is such a destructive move to disabled people’s rights and I do not believe that a progressive Party such as ours should be going down such an avenue.
#SaveWILG campaigners have presented the Deputy Health Minister with an 80 page dossier of evidence against the closure of WILG. In addition, we have the backing of Welsh Labour members who overwhelmingly voted in favour of the Clwyd South motion to save WILG at Conference in April 2018. I believe you pledged to listen to the voices of members during the Hustings and they have certainly been vocal on this subject. We have also had support from Jeremy Corbyn, Shadow Chancellor John McDonnell, MP’s such as Chris Williamson, Ian Lucas and Chris Ruane. Film Director Ken Loach also supports our campaign.
Criticism of Welsh Government policy on Independent Living has also been made by the United Nations Convention on the Rights of People with Disabilities (UNCRPD):
However, various disability organisations in Wales had advocated setting up a national independent living scheme in Wales as aligning with a citizen directed system of support rather than the approach now adopted by the Welsh Government.
We recommend that the CRPD Committee asks:
Can the Welsh Government explain:
How it reached a decision to move all ILF recipients to normal social care provision from 31 March 2019, rather than setting up a national independent living scheme?
How it will ensure protection for article 19 rights of those formerly eligible for the Independent Living Fund after 31 March 2019?
I do not believe Welsh Labour should be having to defend themselves against the UN as I know your personal intentions are to ensure universal equality throughout Wales, but now is the time to take positive action and start listening to Welsh Labour members and disabled people and their families.
Personally, I have been treated abysmally by my Local Authority. I find myself in the position of having to teach my social worker about the Social Services and Well being Act. I am not being allowed to use my Direct Payments to meet my Personal Outcomes as described in the SSWBA and feel this vindicates my insistence on the need to maintain the tripartite system when deciding on and funding future care provision.
The reassessment process – which was originally due to end by September 30th 2018 and shows no sign of being completed soon – is really having a negative impact on my physical and mental health. When I first met with my social worker at the end of November 2018, she laughed when I suggested that I would need 24/7 support. She declared that no one in Wrexham gets such a thorough level of support [whether they require it or not?]. She said that even if we applied for such levels of care and support, that the panel would not accept such a request. This is a total departure from what the SSWBA promises. There is definitely no co-production going on and Local Authorities seem to be treating disabled people as a burden.
Without the overnight support I need to fully function in society, I have to stop drinking at 8pm at night, get ready for bed at 10pm and cannot wear my hand splints or use my leg supports during long and uncomfortable nights. I often find myself having to call on my 68-year-old father to assist me in the night, even though he lives a 10 minute drive away and has arthritis in both hands.
As Tanni Grey-Thompson said on Wales Live (23/01/19), it will cost the Welsh Government more in the long term to push ahead with this strategy of devolving funding to Local Authorities. It just makes no sense whatever way you look at it. Disabled people and their families never wanted such a situation to develop as was indicated in the original consultation that took place during 2015/16. I have been asking to see the consultation documents since October 2017, but I keep being directed towards a summary document. We all know that a summary can be manipulated and edited to suit the publishers. If the summary is accurate why can I not access original consultation responses?
It is often claimed by the Welsh Government that the original stakeholder group were united in agreement with the closure of WILG and the transferring of funds to local authorities.This is quite simply untrue. The members of the stakeholder group that I have spoken to have stated their frustrations with the whole process: “I disagreed with one side of the room almost continuously,“ and “I would be amazed to see minutes of a meeting where all participants agreed that passing this WILG over to the local authority beyond the ring-fenced period was the way forward.” Others have said “I used to go home from all these stakeholder groups thinking we had agreed certain things to discover that was not what had been recorded.” and other activists argue that many officials and civil servants do not actually “know what Independent Living means – they still think ‘independent’ means managing without support”.
It would greatly assist me in understanding Welsh Government’s decision making process on this issue if the minutes of all of the meetings of the stakeholder advisory group can be provided, and I will submit a Freedom of Information Act request if necessary.
I could go on and on, but time is against me and I would merely be repeating much of what can be read in my attached dossier of evidence. At over 80 pages long, I believe it is a comprehensive guide as to why the Welsh Independent Living Grant should be maintained indefinitely. The dossier includes information of the success of the Independent Living Schemes set up in Scotland and Northern Ireland that shows the lack of imagination shown by the Welsh Government compared to our neighbours.
Please note that this letter is written with the deepest respect towards yourself and your cabinet members. I am a loyal Welsh Labour supporter and I have belief in the 21st Century socialism that you intend on developing. The problem is that we cannot wait any longer and the changes need to be made immediately. There is no sense in a proud socialist Government copying the exact same model rolled out by the Conservative Party in Westminster. Moreover, if the original decision was wrong then your team needs to have the courage to simply reverse it. Tinkering with the detail in a bid to spare the blushes of your predecessors is just not acceptable: in fact it’s morally dishonest.
I know that you are extremely busy with Brexit and other pressing concerns, but disabled people with high care and support needs across Wales are in need of your leadership now. I look forward to meeting you again in the near future and should you require any more information from the #SaveWILG campaign, please do not hesitate to contact me.
Wishing you strength and solidarity
Nathan Lee Davies
WAG is devolving the funds and responsibility for former Independent Living Fund (ILF) recipients to 22 local authorities. Many of these authorities are not Labour controlled, many are already strapped for cash and the money that is due to be transferred hasn’t been ringfenced for the benefit of current WILG recipients…
Under the ILF, recipients received an independent third person who was involved in negotiating care packages along with the Local Authority. This was a great source of support to people with high care and support needs and is something that needs to be re-established. Sole reliance on local authorities is dangerous and lessons should be learned from England where funds have been distributed to local authorities since 2015 with disastrous effects.
The money from the WAG is a clear (transparent) amount specific to WILG recipients. However, it is currently planned for this money to be paid to local authorities under the Revenue Support Act and could therefore be subsumed into other projects while local authorities try to cut back on our specific care package provision.
Why should former WILG recipients have to fight for the care package they need, not simply to exist, but to be able to live a decent and fulfilled life? This is an impossible task for the vast majority of recipients who live with conditions such as learning disabilities, cerebral palsy or Friedreich’s Ataxia.
The families of former WILG recipients will inevitably suffer as they will find themselves trying to fill the gaps in care provision not covered in the new “reduced” care package provided by the local authority.
Our care package is essential to our existence, it is not a privilege: Why would a civilised society put us through this misery? It is a human right to be treated fairly and equally with everyone else, so why are we being squeezed into this disadvantageous position by our own Labour government. They have got this wrong, but there is still time for them to revisit this decision and retain the WILG…
Motion 4 to save WILG was overwhelmingly passed at the Welsh Labour Conference in Llandudno during April 2018, but Minister for Children and Social Care Huw Irranca-Davies has since stated that he would not rethink the policy “in its entirety”. This has transformed the #SaveWILG campaign from a quest to protect independent living for vulnerable individuals to exactly that plus a fight to preserve Party Democracy. The will of our members MUST be listened to.
The Welsh Government tried to defend their actions by claiming they had acted in accordance to the instructions of a stakeholder group. I have spoken to several members of the advisory group who DID oppose LA provision. Surely, this calls into question the basis for the Minister’s decision. There’s been a total lack of imagination on the part of the Welsh Government in terms of creating an independent living plan that all local authorities must buy into. This would be a guarantee of ensuring equity across Wales
We are constantly being told that it is unfair that only a certain percentage of the population receive WILG and that this creates a two-tier system throughout Wales. I would suggest that the WAG should look to the fine example of ILF Scotland and roll out such a system to all disabled people with high care and support needs in Wales.
This motion has cross-party support with Plaid Cymru, and even UKIP & Conservative AMs lending support and fighting against this proposal. Welsh Deputy Leader candidate Julie Morgan AM also supports the campaign and has called for an “urgent enquiry” re scrapping WILG. We have had support from English MPs like Chris Williamson, many AMs, officials etc. The film director Ken Loach (pictured below) also supports the campaign, as do many other high-profile cultural figures like the poet & musician Atilla The Stockbroker, comedian & campaigner Mark Thomas, esteemed Welsh footballers like Joey Jones, Mickey Thomas, Wayne Phillips and so many more people from all sorts of backgrounds.
Support disabled people and their families
WILG – Because we’re worth it
HOW YOU CAN HELP?
We are urging our comrades to get involved in the important campaign in a number of ways. Please see below how you can support our postcard campaign and spread memes across social media and email to raise awareness. There are also a number of campaigns being planned over the next few months and details will be posted on my blog.
The main people that we need to convince to change direction are First Minister Carwyn Jones, Minister for Children and Social Care Huw Irranca-Davies and all of the candidates in the Welsh Labour Leadership Election. The key emails are:
First Minister Carwyn Jones: Carwyn.Jones@gov.wales or Tweet @fmwales
Minister for Children and Social Care Huw Irranca-Davies: DS.MinCandSC@gov.wales or Tweet @huw4ogmore
Mark Drakeford AM: Mark.Drakeford@gov.wales or Tweet @wgcs_finance
Other emails will be published once we have a full list of candidates running in the meantime you can contact your local AM and anyone connected to the Welsh Government.
For more information please contact Nathan Lee Davies at firstname.lastname@example.org There is also a dedicated Facebook page to Save the Welsh Independent Living Grant and Twitter users should follow @nathanleedavies
Continue reading for further supporting evidence on why saving this grant is so crucial for 1,300 disabled people and the democratic future of the Party we all believe in.
Take part in our postcard campaign in a number of ways. We would like to encourage people to print the image below and pose for a selfie while holding it to show your support and help raise awareness of our campaign. You can share it on Facebook, Twitter, SnapChat or Instagram using #SaveWILG.
Alternatively, you can contact me for one of the 500 cards I have had printed with a special message to Children and Social Care Minister Huw Irranca-Davies. There are also cards to be sent to First Minister Carwyn Jones and blank cards that can be sent to the Leadership Candidates who must realise that if they want our support they must publicly support our campaign. You can also send these postcards to your local AM to encourage them to argue our case in the Senedd.
To be shared on social media or sent to your AM via email.
Button badges – Only £1
Wear one of our badges with pride to help raise awareness and raise much-needed funds to propel the campaign forward. Contact me to make a purchase and I will make sure the badges get to you quickly and safely.