Support from Plaid Cymru #SaveWILG

Over the past few weeks I have been speaking with the good folk at Plaid Cymru, who have now been selected to ask a question about WILG to the First Minister at the Senedd on Tuesday at 13:30. The question has been tabled by Llyr Gruffydd AM and is composed as follows:

Will the First Minister make a statement on support for claimants of the Welsh independent living grant following its cessation?

I look forward to seeing how the First Minister responds to this question and any follow up questions that Llyr Gruffydd AM has prepared. While I don’t like talking about the end of WILG, I think that Plaid’s tactics are spot on here and the question should lead to an interesting series of responses.

I have received a link where you will be able to view the questions being put to the First Minister. You can access the link here.

This is brilliant news as it keeps the #SaveWILG campaign firmly in the spotlight and we are currently working on other ways that we can protest as we enter Spring. If you have any ideas of ways we can urge the Welsh Government to reconsider the appalling decision to close the Welsh Independent Living Grant, please get in touch.


PRESS RELEASE Disability coalition calls for talks with prime minister over ‘human catastrophe’

A coalition of disabled people’s organisations has today written to the
Prime Minister urging her to meet with them to discuss the deteriorating
quality of life experienced by millions of disabled people in the UK. 

The call comes exactly six months since the United Nations’ damning
report on the UK Government’s implementation of the Convention on the
Rights of Disabled People (CRDP).

The report, published last August, made a number of recommendations
but disability organisations which gave evidence to the UN say that the Government is not taking the urgent action required

 The coalition has highlighted five areas of particular concern:
1.   The failure to fully implement the 2010 Equality Act.
2.   The lack of joined up working across the 4 nations of the UK.
3.   The lack of resources to ensure disabled people are included in their communities.
4.   The continuing gap in employment opportunities for disabled people.
5.   The right of disabled people to an adequate standard of living and social protection.

Rhian Davies, Chief Executive of Disability Wales said:
“Six months on from the UN Disability Committee’s damning verdict on the UK Government’s failure to protect and progress Disabled people’s rights, things continue to get worse not better for Disabled people. The Government appears to be maintaining its position of blanket denial that there is anything wrong, dismissing our lived experience, the UN findings and failing to act on any of the recommendations put forward in the Committee’s Concluding Observations. This state of affairs cannot continue. Disabled people’s organisations from across the UK are calling on the Government to recognise the very serious concerns identified by the UN Disability Committee and to use the Concluding Observations as an opportunity to begin working with, not against Disabled people, so we can get our rights, inclusion and equality back on track.”

Welsh Government has responded to the UN’s Concluding Observations through continuing dialogue with disabled people and our organisations through the ongoing review of the Framework for Action on Independent Living. While we need to see progress towards completing and implementing the revised Framework, we are encouraged by Welsh Government’s ongoing commitment to tackling barriers to independent living.

However, as a devolved nation, it is not possible to entirely mitigate the impact of UK austerity policies so we join forces with our sister organisations across the UK in calling for urgent action from the Prime Minister in our quest to safeguard disabled people’s human rights in Wales.”

The Coalition members include:
Disability Wales, Disability Rights UK; Inclusion Scotland;;  Disability Action Northern Ireland; Reclaiming Our Futures Alliance; Disabled People Against Cuts; Black Triangle; Alliance for Inclusive Education; British Deaf Association; People First (learning disability); National Mental Health System Service Users Network; UK Disabled People’s Council; Equal Lives; Inclusion London.


Rt. Hon Theresa May M.P.
Office of the Prime Minister
10 Downing Street,
London SW1A 2AA

 28th February 2018

 Dear Prime Minister

United Nations Convention on the Rights of People with Disabilities

We are a coalition of disabled people’s organisations, led and controlled by disabled people, who, following our participation in the UN’s examination of the implementation of the Convention on the Rights of People with Disabilities (CRPD) have come together to promote the Convention.

We are writing to draw your attention to the fact that the examination by the U.N. of the U.K.’s implementation of the CRPD was concluded in Geneva six months ago and that, to date, there appears to have been no response from HM Government. In its Concluding Observations, a number of areas for action were identified.

Among these, the UNCRPD committee particularly highlighted five significant areas of concern:

1.    the many gaps in safeguards and rights for disabled people including unimplemented sections of the Equality Act 2010, the lack of resources to ensure the Equality Act is implemented, and the need to enshrine the CRPD into U.K. law as we leave the E.U. 

2.   the lack of joined up working between the four nations of the U.K. and the need for a fully resourced action plan to implement the CRPD across the U.K. 

3.   our right to independent living and to be included in the community. 

4.   our right to employment and

5.   our right to an adequate standard of living and social protection.

Further the U.N. committee recognised that the U.K. has previously been seen as a leader on disability rights by many countries around the world and therefore has a ‘special obligation’ to set world leading standards on the treatment of disabled people and their inclusion in society.  Sadly, the committee concluded that the UK’s leading position has been lost.

We note that during the two-day hearing in Geneva, 23 and 24th August, the U.K. Government delegation gave a commitment to continuing the dialogue on how disabled people’s rights can be realised in the U.K. and specifically how engagement might be improved.  In the spirit of Article 4.3 of the Convention, general obligations involvement of disabled people and their representative organisations we are willing, and indeed expect, to work with you on progressing disabled people’s rights across the whole spectrum covered by the Convention from access through to being included in the community and being able to realise our ambitions and potential.

We should therefore like to request a meeting with you and your officials to discuss:

1.   How government is implementing the UNCRPD committee’s concluding observations and

2.   How Government plans to work with organisations led by disabled people monitoring and implementing the Convention.

We trust that the Government will embrace the need to be more proactive in promoting and implementing disabled people’s rights and inclusion in society. We look forward to hearing from you further and working with government on an action plan to complete the implementation of the rights of disabled people detailed in the CRPD which was ratified by the U.K. in 2009.  Our expectation is that the U.K. will once again be seen as a leader in implementing the human rights of disabled people by all countries across the world.

Yours faithfully

Kamran Mallick – CEO Disability Rights UK
Dr Sally Witcher OBE – CEO Inclusion Scotland
Rhian Davies – CEO Disability Wales
Patrick Malone – Disability Action Northern Ireland
Eleanor Lisney – Reclaiming Our Futures Alliance
Dr Terry Riley – British Deaf Association
Tracey Lazard – CEO Inclusion London
Linda Burnip – Disabled People Against Cuts
John McArdle – Black Triangle
Tara Flood – CEO Alliance for Inclusive Education
Anne Novis – UK Disabled People’s Council
Mark Harrison – CEO Equal Lives
Dorothy Gould – National mental health system Survivor Users Network
Andrew Lee – CEO People First learning disability

Help Needed on Social Media #SaveWILG

I am requesting help on Social Media to get the message across to Assembly Members across Wales that there is still time to reverse the awful decision to close WILG and transfer all responsibilities for Independent Living to local authorities.

A list of AM Twitter handles can be found below along with a suggested Tweet and electronic postcards and memes that can be attached to Tweets for greater impact. Those of you who are not on Twitter can use Facebook to send messages, postcards and memes to AMs or you can email them using their addresses that can be found on this mailing list. 

It is also still not too late to show your support for the #SaveWILG postcard campaign. You can download and print postcards below or get in touch with me and I will send you a few hard copies.

Even if you only manage to contact a handful of AMs, this could make a real difference to disabled people across Wales.

Thanks for your support.



Disabled people with high care and support needs are in search of your support to maintain Independent Living for all. #SaveWILG

Wales voted Labour. Don’t copy Tory policy and damage independent living 4 disabled people #SaveWILG

This is the impact of closing the ILF in England #SaveWILG

Welsh Labour: Don’t copy Tories in Westminster. Protect independent living 4 disabled people #SaveWILG

These Tweets should be accompanied by some of the many postcard photographs, electronic postcards and memes.


David Melding @DavidMeldingAM

Lynne Neagle @lynne_neagle

Gareth Bennett AC/AM @GarethBennettAM

David Rowlands AC/AMVerified account @DavidRowlandsAM

Hefin David AC/AM @hef4caerphilly

Caroline Jones AC/AM @carolineUKIP

Dr Dai Lloyd AC/AM @DaiLloydAM

Carl Sargeant AM @Carl4AandD Michelle Brown AM @MishBrownAM

Carwyn Jones AM/ACVerified account @AMCarwyn

Joyce Watson AM @JoyceWatsonam

Nathan GillVerified account @NathanGillMEP

Neil Hamilton AC/AMVerified account @NeilUKIP

John Griffiths AM @JGriffithsLab

Vikki Howells AM @VikkiHowells

Ann Jones AM @ann_jonesam

David Rees @DavidReesAM

Neil McEvoy AM @neiljmcevoy

Ken Skates AMVerified account @KenSkatesAM

Dafydd Elis-Thomas @ElisThomasD

MickAntoniw AM @MickAntoniw1

Jayne Bryant AM @JBryantWales

Mike Hedges @MikeHedgesAM

Julie James AMVerified account @JulieJamesAM

Rebecca Evans AMVerified account @RebeccaEvansAM

Eluned Morgan @Eluned_Morgan

JaneHutt AMVerified account @JaneHutt

Rhianon Passmore @rhi4islwyn

Elin Jones @ElinCeredigion

Vaughan Gething AMVerified account @vaughangething

Mark Drakeford AMVerified account @MarkDrakeford

Mark Isherwood AMVerified account @MarkIsherwoodAM

Angela Burns @AngelaBurnsAM

Mohammad Asghar AMVerified account @MohammadAsghar

Lesley GriffithsVerified account @lesley4wrexham

Nick RamsayVerified account @NickRamsayAM

Andrew RT DaviesVerified account @AndrewRTDavies

Simon ThomasVerified account @SimonThomasAC

Huw Irranca-DaviesAMVerified account @huw4ogmore

Russell George AMVerified account @russ_george

Rhun ap IorwerthVerified account @RhunapIorwerth

Julie MorganVerified account @JulieMorganLAB

Sian Gwenllian AC/AM @siangwenfelin

Janet Finch-SaundersVerified account @JFinchSaunders

Lee Waters AMVerified account @Amanwy

Alun DaviesVerified account @AlunDaviesAM

Jeremy Miles AC/AMVerified account @Jeremy_Miles

Jenny Rathbone AMVerified account @JennyRathbone

Mark Reckless AMVerified account @MarkReckless

Dawn Bowden AM @Dawn_Bowden

Llyr Gruffydd AC/AM @LlyrGruffydd

suzy daviesVerified account @suzydaviesam

Darren Millar AMVerified account @DarrenMillarAM

Steffan LewisVerified account @steffanlewis

Adam PriceVerified account @Adamprice

Hannah Blythyn AM @hannahblythyn

Kirsty WilliamsVerified account @Kirsty_Williams

LeanneWoodVerified account @LeanneWood

Bethan Maeve AM/ACVerified account @bethanjenkins





Don’t forget there are still plenty of badges available for you to wear with pride to help to spread awareness. Simply get in touch if you would be interested in showing your support by purchasing a badge.




Memory Match – 19-09-90

Throughout the 2017/18 football season I will be contributing to the Wrexham AFC matchday programme. I will be penning a feature called Memory Match, a look back at classic Wrexham games from the past that I will share in this blog over the coming months.

This is the third successive season that I have been writing the Memory Match column. Indeed, when I have written a Memory Match for every Football League season that Wrexham AFC enjoyed,  I would like to compile all the columns into a book that will reflect the rich history of my beloved football club.



Wrexham v Lyngby

European Cup Winner’s Cup First Round, First Leg

Racecourse Ground

Result: 0-0

Wrexham: Morris, Phillips, Beaumont, Owen, Williams, Sertori, Copper, Flynn (Hunter), Preece, Worthington, Bowden

Lyngby: Rindom, Kuhn, Wieghorst, Gothenborg, Christiensen, Larsen, Helt, Schafer, Christensen, Rode (Andersen), Kuhn

Attendance: 3,417

Season 1990/91 saw Brian Flynn decide to give youth a chance as there was no relegation to the non-league doldrums this season. An array of young talent was waiting in the wings, with players such as Phil Hardy, Waynne Phillips, Gareth Owen and Chris Armstrong all bidding to carve out a successful career in football.

Flynn said “I am getting the praise for these youngsters,, but it is Cliff Sear and his excellent team who have brought them all on over the last four years”. The new man in charge was fairly confident of a productive season and was only looking upward before the season began.

“Every club starts equal, so at this stage it is anybody’s guess who will win promotion.”

After an appalling start to the season, with only one win in the opening ten league games it quickly became clear that we weren’t going to be challenging at the right end of the table. What we needed was a distraction and progress in the League Cup certainly provided that. After beating York City over two legs, we faced Everton in the second round. We were demolished 0-5 at the Racecourse and thumped 6-0 at Goodison Park, but in hindsight these defeats proved valuable lessons for our inexperienced squad.

Another distraction came in the European Cup Winners’ Cup, where we were drawn against Danish Cup winners Lyngby. The first-leg at the Racecourse was instantly forgettable to my teenage eyes, but I do remember getting my programme signed by Chris Armstrong. That was about the sum of the excitement.

Kevin Reeves was more than happy with the goalless draw that we had earned: “The most pleasing thing is we never conceded a goal. If we get a scoring draw over there, then it’s obviously a big bonus to us.” Our defensive display was helped by the fact that Flynn chose to play Mike Williams, who had been out of action for nine months.

The Town had achieved more than expected already. It was seen as fanciful to hope that they could capitalise on this result, especially as we had to contend with the fact that we were restricted to four ‘foreign’ players thanks to a new UEFA ruling. This meant that experienced players such as Vince O’Keefe, Andy Thackeray, Nigel Beaumont, Sean Reck and Andy Preece all had to be left out of Flynn’s plans. We were given little chance and Danish newspapers predicted a landslide.

Competing in Europe for the fifth time, Lyngby included four full Danish international players on their books, and almost took the lead after only two minutes. Mark Morris managed to turn a Hasse Kuhl header onto the bar. In the resulting scramble, Morris did well to keep out Michael Gothenburg’s shot.

Only 11 minutes had passed when Wrexham won a free-kick that player-boss Flynn floated across. Jon Bowden nodded on and Chris Armstrong buried a header past Jan Rindom, to send the 400 travelling Wrexham fans into rapture.

Lyngby continued to press for the remainder of the game, but Wrexham defended gallantly and benefited from Morris being on top of his game, especially when making a one-handed save to deny John Helt. Thankfully, Fleming Christian missed a second half sitter with a wayward header.

After the match, Flynn said: “I’m very proud of all my players. They have done Wrexham and Welsh football proud, and once again we have kept up the club’s fine tradition in Europe.”


The second round saw the Robins drawn against Manchester United in a tie that we lost 5-0 on aggregate. The Red Devils went on to lift the trophy that season after beating Barcelona in the final.

In Search of Staff…

I am in search of new staff to work alongside me as a personal assistant. This is a fulfilling role that gives you the chance to make a difference to someone else’s life. I am looking for someone who is punctual, reliable, a team player and can be flexible.

Drop me a line via the Contact page, Facebook or Twitter. Good luck.


Female Personal Assistant (Sex Discrimination Act Section 7 (2) (b) (ii) applies, Wrexham (0103) Rate of Pay: Weekdays £7.56 per hour – Weekend Enhanced £10.04 Weekly Hours: TBC

About the employer:

This post is to support a sociable 41-year-old man living in the Wrexham area. He is wheelchair-bound and lives with Fredrichs Ataxia. Subsequently he requires support to remain independent. An intelligent Author and disabled activist with a good sense of humour, he remains ambitious and adventurous. He enjoys company and likes to go out socialising.

Summary of duties:

To provide support to access various social engagements and planned activities. You must therefore have a clean driving license. You will need to support with his personal care, including toileting, washing, dressing and preparing meals. He is a very creative individual and requires support to develop his ideas. He requires help with communication issues such as help to write emails, blogs and reports while also accessing social media. Subsequently, potential candidates should possess excellent typing skills.

Support with gardening and household tasks.

The post will include 5.6 weeks paid annual leave (pro-rata)

Police records check funded by the employer will be required.

The person they are looking for:

The ideal person will have a good sense of humour and should also display plenty of energy, initiative and enthusiasm. In addition, applicants should be patient and trustworthy with a flexible and empathic attitude. A positive attitude and clear understanding of confidentiality is essential. Promoting the independence of the client will be the main focus for any support.

You must be reliable, friendly and punctual.

Times Required:

A variety of hours are available. Please see below:

Monday 8.30-10am and 15.00-18.30pm (5hrs)

Tuesday 8.30-10am (1.5hrs)

Wednesday 8.30-10am (1.5hrs)

Thursday 8.30-15.00pm (6.5hrs)

Friday 8.30-10am and 15.00-18.30pm (5hrs)

Sunday 9-10.30am (1.5hrs)


Holiday and Sickness Cover is also available.


Theme Tune #SaveWILG

What my #SaveWILG campaign is in need of is a theme tune. I hit upon this idea while watching TOTP2 in bed the other night. Tears for Fears were featured in this addition from 1985 and they were preforming their classic hit Everybody Wants to Rule the World.

Without permission, I have took it upon myself to change the words to this popular hit, in order to make it fit with the campaign. If anyone is interested in recording this song I would be happy to contribute to recording costs as I think it would be a really effective way of raising awareness. I am getting carried away with myself now, but I really like the new lyrics that I have created.

Anyway, see for yourself with the video of the Tears for Fears boys posted below, so you have no excuse not to sing along. I have also added a few paragraphs from Wikipedia about Tears for Fears. I do hope there are no copyright issues over the use of this tune as I am giving the writers full credit and not claiming any credit for myself.

I hope you like my new version.

Everybody Wants to Save the WILG

Independent lives
Its our human right
Justice is our goal
We will claim it

Fighting for your children’s future
Turn against bloody Welsh Labour
Everybody wants to save the WILG

It’s my own campaign
Writing to the press
 Postcards in the mail
Badges on my chest

Help me beat the politicians
Principles will last forever
Everybody wants to save the WILG

Local councils just can’t be trusted
Causing deaths as
 Their plans come falling down
When they do, we’ll be right here for you

So glad you’re so supportive
So sad they will not listen
Everybody wants to save the WILG

We can’t stand this indecision
 Minister’s show a lack of vision
Everybody wants to save the WILG

Say that you’ll never, never, never, never cut it
One promise, why believe it?
Everybody wants to save the WILG

Help me beat the politicians
Principles will last forever
 Everybody wants to save the WILG

From Wikipedia:

Tears for Fears are an English pop rock band formed in Bath in 1981 by Roland Orzabal and Curt Smith. Founded after the dissolution of their first band, the mod-influenced Graduate, they were initially associated with the new wave synthesiser bands of the early 1980s but later branched out into mainstream rock and pop, which led to international chart success. They were part of the MTV-driven Second British Invasion of the US.[8]

Their debut album, The Hurting, released in 1983, reached number one on the UK Albums Chart, while their second album, Songs from the Big Chair, released in 1985, reached number one on the US Billboard 200, achieving multi-platinum status in both the UK and the US.[9][10] Their second album contained two Billboard Hot 100 number ones: “Shout” and “Everybody Wants to Rule the World“‘, the latter winning the Brit Award for Best British Single in 1986.[11]

Smith and Orzabal parted company in 1991, after the release of their third platinum-selling album The Seeds of Love (1989). Orzabal retained the Tears for Fears name, releasing the albums Elemental (1993) and Raoul and the Kings of Spain (1995) before he and Smith re-formed as Tears for Fears in 2000 and released an album of new material, Everybody Loves a Happy Ending, in 2004. Since 2013, the duo have been working on their seventh album.[12] Tears for Fears have sold over 30 million albums worldwide.[13]

YouTube Videos

Way back in 2013 I found a time to create a few YouTube videos that I would like to share with you now.

This was before I began my activism work when I could find time to express myself in whatever way I wanted. One of these videos is a promotional film for Every Silver Lining has a Cloud (enjoy the tension before the music starts) as the other two are just a combination of songs and artists that I like.

As a technophobe, I am proud that I have managed to create these videos. They are nothing to write home about, but the fact that I put them together with a bit of determination showed me that anything was possible and that if I could do this then other things were within my grasp and nothing is impossible.

Who knows? maybe, if this #SaveWILG campaign ever ends I will get another chance to make a YouTube video. I wouldn’t hold my breath but in the meantime enjoy these videos.