Disabled activist ‘is fighting for his life’ as he hands petition to Welsh government

THIS ARTICLE ORIGINALLY APPEARED ON THE DISABILITY NEWS SERVICE WEBSITE AND WAS WRITTEN BY JOHN PRING.

A disabled activist has handed in a petition of hundreds of signatures that calls on the Welsh government to reverse its decision to close its version of the Independent Living Fund (ILF).

Nathan Lee Davies (pictured) says he is fighting the decision to scrap the Welsh Independent Living Grant (WILG) because he is terrified of the prospect of his cash-strapped local authority taking over full responsibility for providing his care package.

He has been told that without WILG his own care package would be reduced from 86.5 hours to just 31 hours a week.

He says that such a cut would put an end to all his current community activities, including his involvement with Wrexham Glyndwr University, Wrexham football club, Disabled People Against Cuts, FDF Centre for Independent Living, and the Care and Social Services Inspectorate Wales.

He is also writing two books, and a blog, and is working with Disability Arts Cymru to create a performance and exhibition of his poetry.

He told Disability News Service (DNS): “I cannot cope with such a limited number of hours per week. This is why I am fighting with every fibre of my being.

“It really is a case of life or death. I have no interests in merely existing. I want to live.

“Without help and support I would be unable to do any of this work that involves me in the community.”

The Labour-run Welsh government announced last November that, after a two-year transition period, it would transfer all of the £27 million-a-year provided by the UK government to support former ILF-users in Wales directly to councils.

There will be no new Welsh ILF – even though such a scheme has been set up in Scotland – and no continuation of the interim WILG scheme the Welsh government has been running as a stopgap to “ensure continuity of payments to recipients” since the Department for Work and Pensions closed ILF in June 2015.

Funding for WILG will now transfer to local authorities during 2018-19, with all former ILF-recipients in Wales having their support needs met solely by their local authority by 31 March 2019.

Since the Welsh government’s announcement, Davies has been campaigning to persuade it to reverse the decision, including setting up the petition – which has now been signed by more than 500 people online and in person – and collecting photographs of supporters holding one of his campaign postcards.

He said: “The current system allows users the security of depending on receiving their funding from three different ‘pots’ – WILG, local authorities and our own personal contribution.

“This gives us a sense of security and ensures that we cannot be dictated to as mere passive recipients.

“Instead, all parties have to be in agreement about what will benefit the individual the most.

“This is something worth fighting for.”

But instead of this three-tier system, he said, the Welsh government had now “sold disabled people down the river.

“They are washing their hands of all responsibility for social care to former ILF recipients and transferring the pressure onto local authorities.”

A Welsh government spokeswoman told DNS in a statement: “Organisations that represent disabled people who have been recipients of the Independent Living Fund, recommended that their future support would be best provided through local authority social care provision, with consistent arrangements in place to support disabled people in Wales.”

But Disability Wales, which was part of the stakeholder advisory group the Welsh government consulted, has made it clear to DNS that it did not support passing funding to local authorities.

The Welsh government added: “We would be surprised if Disability Wales were suggesting that certain disabled people in Wales should have their support needs met in a different way to other disabled people.”

Davies said he believed the Welsh government had listened only to the local authorities on the advisory group.

He has been supported by the north-east branch of the Labour left-wing grassroots campaign Momentum and the Unite union in Wales.

But he said he was disappointed that Disability Wales – the national association of disabled people’s organisations in Wales – had not supported his campaign.

Miranda Evans, policy and programmes manager for Disability Wales (DW), said they were not able to support the petition – which is critical of the Labour party in Wales – because it was too party political.

But she stressed that DW’s preferred option was for a new Welsh independent living scheme – a Welsh version of ILF – that would protect those currently receiving WILG funding and would also be open to new members.

DNS has seen DW’s response to an early consultation on the Welsh government’s plans, and it makes it clear that none of DW’s members or the other disabled people it had consulted about the future of WILG were in favour of handing the funding directly to local authorities, and had instead “expressed strong opposition” to this.

It also stressed that such an option was “totally unacceptable to existing ILF recipients, their carers and other disabled people”.

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Going for Gold

According to Wikipedia, Tanka (短歌, “short poem”) is a genre of classical Japanese poetry and one of the major genres of Japanese literature.

A Tanka consists of 5 lines and 31 syllables. Each line has a set number of syllables see below:

Line 1 – 5 syllables
Line 2 – 7 syllables
Line 3 – 5 syllables
Line 4 – 7 syllables
Line 5 – 7 syllables

This is my 126th poem of 2017 and I am well on my way to putting together a collection of poems to reflect the struggles of disabled people in 21st century Britain. I would like to publish these poems in a book to be released in 2018, and I am close to finding a team of illustrators to help me add images to my words and create the type of book that I envisage.  I am speaking with students from Glyndwr University who are interested in collaborating with me on this exciting project. Two of the talented artists who have agreed to illustrate my work are Julie Rogers-Owen and Heather Wilson. Samples of their work can be found by clicking on their names. There areother artists involved but I do not have links to their work at the moment. I hope to rectify this soon.

Now that I’m a star

A campaigning tour de force

Who fights the good fight

Does this allow me access

To your naughty pleasuredome?

 

A Man In Demand

According to Wikipedia, Tanka (短歌, “short poem”) is a genre of classical Japanese poetry and one of the major genres of Japanese literature.

A Tanka consists of 5 lines and 31 syllables. Each line has a set number of syllables see below:

Line 1 – 5 syllables
Line 2 – 7 syllables
Line 3 – 5 syllables
Line 4 – 7 syllables
Line 5 – 7 syllables

This is my 125th poem of 2017 and I am well on my way to putting together a collection of poems to reflect the struggles of disabled people in 21st century Britain. I would like to publish these poems in a book to be released in 2018, and I am close to finding a team of illustrators to help me add images to my words and create the type of book that I envisage.  I am speaking with students from Glyndwr University who are interested in collaborating with me on this exciting project. Two of the talented artists who have agreed to illustrate my work are Julie Rogers-Owen and Heather Wilson. Samples of their work can be found by clicking on their names. There are other artists involved but I do not have links to their work at the moment. I hope to rectify this soon.

After so many short poems I am itching to write a longer verse that is not restricted by the number of syllables permitted. I now have the confidence to take on this challenge that has been inspired by the poetry of John Cooper Clarke. I am also worried that I am beginning to repeat certain phrases and feel that I need to work from a fresh palate. I will still be producing Tanka and Haiku poems, but feel the time is right to explore other forms of poetry.

Just to clear things up

Only my legs are defunct

Open to offers

But make sure you act quickly

I would hate you to miss out

Trip to the Senedd

Earlier this week, I travelled to Cardiff to handover my #SaveWILG petition to the petitions committee at the Senedd. It was a productive day in which I garnered many new contacts across the political spectrum and I received much support that gives me the energy I need to continue this fight now that I am actually getting somewhere.

 

 

The petition will now be considered at the next meeting of the petitions committee on October 3rd. As I understand it, Ministers will be asked for their opinions and views on the subject and I then have the right to reply. It is great to be involved in this democratic process and I am very proud of the work that my comrades and I are doing towards our aim for a equal and inclusive society for all.

Please excuse me for cutting this blog short, but I have much to do and very little time in which to do it. When your week is only 86.5 hours long, there really isn’t enough hours in the day…

Help needed on Twitter #SaveWILG

I am requesting help on Twitter to get the message across to Assembly Members across Wales that there is still time to reverse the awful decision to close WILG and transfer all responsibilities for Independent Living to local authorities.

A list of AM Twitter handles can be found below along with a suggested Tweet and electronic postcards and memes that can be attached to Tweets for greater impact. Even if you only manage to Tweet a handful of AMs, this could make a real difference to disabled people across Wales.

Thanks for your support.

***

SUGGESTED TWEETS:

Disabled ppl with high care and support needs are in search of your support to maintain Independent Living for all. #SaveWILG

On Wednesday, @nathanleedavies will be in Cardiff to handover the petition to #SaveWILG https://www.assembly.wales/en/gethome/e-petitions/Pages/petitiondetail.aspx?PetitionID=1216

These Tweets should be accompanied by some of the many postcard photographs, electronic postcards and memes.

***

David Melding @DavidMeldingAM

Lynne Neagle @lynne_neagle

Gareth Bennett AC/AM @GarethBennettAM

David Rowlands AC/AMVerified account @DavidRowlandsAM

Hefin David AC/AM @hef4caerphilly

Caroline Jones AC/AM @carolineUKIP

Dr Dai Lloyd AC/AM @DaiLloydAM

Carl Sargeant AM @Carl4AandD Michelle Brown AM @MishBrownAM

Carwyn Jones AM/ACVerified account @AMCarwyn

Joyce Watson AM @JoyceWatsonam

Nathan GillVerified account @NathanGillMEP

Neil Hamilton AC/AMVerified account @NeilUKIP

John Griffiths AM @JGriffithsLab

Vikki Howells AM @VikkiHowells

Ann Jones AM @ann_jonesam

David Rees @DavidReesAM

Neil McEvoy AM @neiljmcevoy

Ken Skates AMVerified account @KenSkatesAM

Dafydd Elis-Thomas @ElisThomasD

MickAntoniw AM @MickAntoniw1

Jayne Bryant AM @JBryantWales

Mike Hedges @MikeHedgesAM

Julie James AMVerified account @JulieJamesAM

Rebecca Evans AMVerified account @RebeccaEvansAM

Eluned Morgan @Eluned_Morgan

JaneHutt AMVerified account @JaneHutt

Rhianon Passmore @rhi4islwyn

Elin Jones @ElinCeredigion

Vaughan Gething AMVerified account @vaughangething

Mark Drakeford AMVerified account @MarkDrakeford

Mark Isherwood AMVerified account @MarkIsherwoodAM

Angela Burns @AngelaBurnsAM

Mohammad Asghar AMVerified account @MohammadAsghar

Lesley GriffithsVerified account @lesley4wrexham

Nick RamsayVerified account @NickRamsayAM

Andrew RT DaviesVerified account @AndrewRTDavies

Simon ThomasVerified account @SimonThomasAC

Huw Irranca-DaviesAMVerified account @huw4ogmore

Russell George AMVerified account @russ_george

Rhun ap IorwerthVerified account @RhunapIorwerth

Julie MorganVerified account @JulieMorganLAB

Sian Gwenllian AC/AM @siangwenfelin

Janet Finch-SaundersVerified account @JFinchSaunders

Lee Waters AMVerified account @Amanwy

Alun DaviesVerified account @AlunDaviesAM

Jeremy Miles AC/AMVerified account @Jeremy_Miles

Jenny Rathbone AMVerified account @JennyRathbone

Mark Reckless AMVerified account @MarkReckless

Dawn Bowden AM @Dawn_Bowden

Llyr Gruffydd AC/AM @LlyrGruffydd

suzy daviesVerified account @suzydaviesam

Darren Millar AMVerified account @DarrenMillarAM

Steffan LewisVerified account @steffanlewis

Adam PriceVerified account @Adamprice

Hannah Blythyn AM @hannahblythyn

Kirsty WilliamsVerified account @Kirsty_Williams

LeanneWoodVerified account @LeanneWood

Bethan Maeve AM/ACVerified account @bethanjenkins

 

 

Memory Match – 13-10-01

Throughout the 2017/18 football season I will be contributing to the Wrexham AFC matchday programme. I will be penning a feature called Memory Match, a look back at classic Wrexham games from the past that I will share in this blog over the coming months.

This is the third successive season that I have been writing the Memory Match column. Indeed, when I have written a Memory Match for every Football League season I would like to compile all the columns into a book that will reflect the rich history of my beloved football club.

13-10-01

Wrexham v Queen’s Park Rangers

League Division Two

Racecourse Ground

Result: 1-0

Wrexham: Rogers, Whitley, Holmes, Ferguson, Hill, Roberts, Gibson, Faulconbridge, Trundle, Blackwood, Thomas

Goalscorer: Blackwood (43)

Queen’s Park Rangers: Day, Bignot (Perry), Bruce, Palmer, Forbes, Askar, Bonnot, Connolly (Wardley), Griffiths (M’Bombo), Thomson, Rose

Attendance: 4,474

After parting company with Brian Flynn and his assistant Kevin Reeves, there was a new man in charge as we prepared to face Queen’s Park Rangers at the Racecourse Ground. Denis Smith was given the responsibility to end a dismal run of only one win in the opening 8 League games, including the 5-0 humiliation at Prenton Park that signalled the end of the Flynn era.

Smith, who had managed York, Sunderland and Oxford, was delighted with his appointment. “I think you’ve got something here to be proud of. It’s exceptional here. I’ve been at other clubs and never had training facilities like these. From a manager’s point of view, that’s where I do my day to day work and to have something like Colliers Park, and a stadium like the Racecourse, is brilliant. There’s no money, and I don’t think that’s a secret, so what we have got to do is either generate it, or I’ve got to use the contacts I’ve got. Very rarely in my career have I had money to spend. I’m here for football, and finance doesn’t come into it.”

Wrexham gave debuts to Jim Whitley and on-loan Keith Hill from Cheltenham Town, who was partnered at the heart of defence by Steven Roberts in the absence of Captain Brian Carey. Rangers included a familiar face in former Reds favourite Karl Connolly.

Both sides created few clear cut openings in the first half as Hill and Roberts looked a particularly strong unit at the heart of the defence.

Lee Trundle’s tenth minute effort was well kept out by Hoops goalkeeper Chris Day while at the other end Kristian Rogers saved from Leroy Griffiths.

The 43rd minute winner came when Blackwood ran onto Stephen Thomas’ neat through ball and he calmly side footed past Day. It was a crucial time to score and we hung on to this lead in the second half despite being reduced to 10-men just after the hour mark when Thomas was shown a red card for a second bookable offence.

Denis Smith said: “I hope the fans can match my passion. I think they would be insulted if I claimed to have more passion than them and I doubt that I have.

“I’m very pleased. I thought we deserved to win. We worked hard, we defended well, our goalkeeper had very little to do and we created chances, so you can’t ask a great deal more than that.

“But it’s just a start of a very hard battle ahead. We’ve won one little skirmish and there’s a lot of work to do in the future. We can’t say, we’ve won one game let’s retire. There’s a lot of work to be done.

“The back four were superb and Michael Blackwood, apart from scoring, had worked so hard. He did things today I didn’t think he was capable of, but he has got to go out and do it again next week.”

Referring to Steve Thomas being sent off he said: “The first booking was unlucky because it was a 50-50 ball, but for the second he was standing on the ball and you can’t do that.”

***

Wrexham finished the season in 23rd position and were relegated despite a 5-0 victory on the final day of the season against bottom of the pile Cambridge United. This was a memorable afternoon for Lee Jones who scored all five goals – only the second Wrexham player to achieve this feat. The other was Tommy Bamford against Carlisle United on 17th March 1934.

It was also a poor show in the Cups with first round defeats against Hereford United (1-0) at Edgar Street in the FA Cup and Hull City (2-3) at the Racecourse in the Worthington Cup.

Distant Dreams

According to Wikipedia, Tanka (短歌, “short poem”) is a genre of classical Japanese poetry and one of the major genres of Japanese literature.

A Tanka consists of 5 lines and 31 syllables. Each line has a set number of syllables see below:

Line 1 – 5 syllables
Line 2 – 7 syllables
Line 3 – 5 syllables
Line 4 – 7 syllables
Line 5 – 7 syllables

This is my 124th poem of 2017 and I am well on my way to putting together a collection of poems to reflect the struggles of disabled people in 21st century Britain. I would like to publish these poems in a book to be released in 2018, and I am close to finding a team of illustrators to help me add images to my words and create the type of book that I envisage.  I am speaking with students from Glyndwr University who are interested in collaborating with me on this exciting project. Two of the talented artists who have agreed to illustrate my work are Julie Rogers-Owen and Heather Wilson. Samples of their work can be found by clicking on their names. There are other artists involved but I do not have links to their work at the moment. I hope to rectify this soon.

After so many short poems I am itching to write a longer verse that is not restricted by the number of syllables permitted. I now have the confidence to take on this challenge that has been inspired by the poetry of John Cooper Clarke. I am also worried that I am beginning to repeat certain phrases and feel that I need to work from a fresh palate. I will still be producing Tanka and Haiku poems, but feel the time is right to explore other forms of poetry.

Running the same race

To capture your golden heart

Starting from the rear

Lesser men overtake

You disappear into dust