Captain Courageous Keeps Up the Fight

I was shocked and saddened to read about Fernando Ricksen and his battle with Motor Neurone Disease.

The former Glasgow Rangers captain featured on an ITV News report that I found very difficult viewing due to his admirable determination in the face of tragic injustice. 

Of course, this situation causes to me to think of my own condition, and while I do not want to measure my circumstances against the unfortunate positions of others – it is not a bloody competition – I can’t help relating and empathising in some small way with Fernando.

This is not the time, nor the place, to discuss the frustrations of living with Friedreich’s Ataxia, but I wanted to send my love and support to Fernando and his family during this tough time. I do hope that the world of football can help to fund research into MND and give hope to future individuals suffering from this cruel condition.

I encourage all readers to donate to MND Connect and help Fernando make a difference during the precious time he has left. The work that the Dutchman is doing now will be of greater value to society than any of his achievements on the football field.

Keep fighting Fernando…

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This image is used without the permission of the owner. It was found on Google images and I am taking absolutely no credit for the image above. If the photographer comes forward he/she would be fully credited for their excellent shot. 

Part -Time Position Available

I am in search of new staff to work alongside me as a personal assistant. This is a fulfilling role that gives you the chance to make a difference to someone else’s life. I am looking for someone who is punctual, reliable, a team player and can be flexible. Word processing skills and a full driving licence are also essential.

There are between 12-15 hours available, though there is the potential for more hours to cover holidays and sickness. This is an ideal opportunity for a student looking to gain experience in in social care sector or anyone who wants to put their time to good use.

Drop me a line via the Contact page, Facebook or Twitter. Good luck.

***

Rate of Pay: Flat Rate: £9.50 per hour  – Weekly Hours: To be discussed at interview.

About the employer:

This post is to support a sociable 42-year-old man living in the Wrexham area. He uses a wheelchair and lives with Friedreich’s Ataxia. Subsequently he requires support to remain independent. An intelligent author and disabled activist with a good sense of humour, he remains ambitious and adventurous. He enjoys company and likes to go out socialising.

Summary of duties:

To provide support to access various social and recreational activities. You must therefore have a clean driving license. You will need to support with his personal care, including toileting, washing, dressing and preparing meals. He is a very creative individual and requires support to develop his ideas. Due to his poor dexterity he struggles to type quickly – as a writer this is most frustrating – therefore you should have good word-processing skills.

A full driving license is also required as he often attends meetings throughout the North Wales and North West area.

Support with gardening and household tasks.

The post will include 5.6 weeks paid annual leave (pro-rata)

Police records check funded by the employer will be required.

The person they are looking for:

The ideal person will have a good sense of humour and should also display plenty of energy, initiative and enthusiasm. In addition, applicants should be patient and trustworthy with a flexible and empathetic attitude. A positive attitude and clear understanding of confidentiality is essential. Promoting the independence of the client will be the main focus for any support.

You must be reliable, friendly, flexible and punctual.

Times Required:

The specific hours that need covering at the moment are Friday mornings 08.30-15.00, and Thursday mornings 08.30-10.30.

Holiday and Sickness Cover is also available.

 

WLG/Momentum AGM #SaveWILG

At the weekend I travelled to the Welsh Labour Grassroots/Momentum AGM in Llandrindod Wells. It was a positive meeting that proved very productive. The opportunity to mix with fellow comrades from across Wales is always welcome as we attempt to build upon our strong Socialist foundations.

At the end of the meeting, I asked Adam Samuels – my first port of call whenever presented with challenges throughout the #SaveWILG campaign – to say a few words about the need to alert WILG recipients to the opportunity in front of them. After doing this, he passed me the microphone.

Since 2013 I have been noticing increased difficulties when speaking to large audiences. I tend to get very anxious and struggle to get my words out clearly while my chest tightens. In addition, as people listen to the verbal gems that can be heard beneath the increasingly slurred speech, I find that I have no control over my hands or arms. It is almost like an out of body experience, and very frightening. Friedreich’s Ataxia, mixed with general anxiety does not make a good combination…

Anyway, I must have been intelligible, as after waffling on for a couple of minutes my comrades were kind enough to give me a standing ovation. It was truly appreciated and meant the world to me to receive such a reaction from socialists I admire deeply. I had been talking about how the remarkable levels of support that I have received throughout the #SaveWILG campaign had kept me motivated and determined to succeed. I could not have continued to fight without the help and assistance that I received from others.

I really wish I had been able to soak up the ovation, rather than battling with my body in an attempt to remain conscious. It is a really scary situation but my genetic condition is obviously getting worse. Such health concerns were not present when I began the campaign, but the fight has taken so much out of me. This is why it is important that as many WILG recipients as possible, benefit from the opportunity to work with an independent social worker and ensure they are able to live the lives they choose based on what they actually need, rather than local authority budget restraints.

With the campaign drawing to a close – don’t get me wrong, I am still keeping my eye on the ball – I am wondering what to do next. I have several irons in the fire, but first of all I need to concentrate on my body to try to make sure I am around to help other campaigns for a good while yet.

 

Disability News Service: Appeal to hundreds across Wales to seek independent assessments of support needs #SaveWILG

The following article was written by John Pring and appears on the excellent Disability News Service website, which can be accessed by clicking here.

***

A disabled campaigner is encouraging hundreds of recipients of support through the Welsh Independent Living Grant (WILG) scheme to consider taking up the government’s offer of an independent re-assessment of their care package.

The Welsh government announced in February that it was pausing the closure of the WILG scheme – and its replacement with a system of council-funded support – following a campaign by disabled activists and allies.

Julie Morgan, the Welsh government’s deputy minister for health and social services, then wrote last month to all WILG recipients to tell them they could ask for a reassessment of their care package if they were unhappy with the outcome of their local authority’s assessment of their post-WILG needs or if that assessment had not yet taken place.

And she assured them that the Welsh government would pay for the independent assessment and any extra care and support they might need as a result.

Morgan has now written to Nathan Lee Davies, the WILG recipient who led the campaign to halt the closure of the scheme, updating him on the government’s progress.

She told him that only 26 WILG recipients had so far requested a re-assessment, across 10 local authorities.

Morgan said in her letter: “It is important that those people who wish to have an independent assessment are able to access it, but this is also in the context of the large number of people who we know are content with their new arrangements.”

Davies believes about 1,300 disabled people are eligible for a re-assessment, and fears that many WILG recipients are being held back from requesting a re-assessment.

He is now calling on all those WILG recipients who are not happy with their care and support package to ask for an independent assessment.

Davies, who has himself requested an independent assessment, said: “I started this campaign four years ago, after a social worker warned me that without the WILG my hours of support would be reduced from 86.5 hours a week to just 31 hours per week.

“I would be unable to maintain any quality of life without a substantial increase in my support and any reduction would leave me struggling to exist rather than living the life that I choose.

“The use of an independent social worker allows me to be assessed purely on my physical and mental needs.

“I feel that social workers from local authorities are under pressure from their managers to reduce costs, whatever the consequences.

“Assessments are therefore skewed from the outset and I fear that a number of WILG recipients are not receiving the support they deserve.

“Let’s not forget that all WILG recipients are disabled people with high support needs.

“This means that many need a strong network of people around them to give them the confidence to press for improvements.

“The fact that only 26 people have asked for a reassessment suggests that many WILG recipients are being held back by a combination of inertia, lack of support and advice and a sense of ‘better the devil you know’.

“I feel that an independent service will provide people with disabilities with greater security for the future.”

He added: “The government have listened to campaigners, reviewed the evidence and acted accordingly to ensure people get the support they deserve to live independently within their local communities.

“WILG recipients and their families need to investigate the opportunity that is in front of them to help ensure they have piece of mind for the long term future.”

WILG was set up – with UK government funding – as an interim scheme following the UK government’s decision to close the Independent Living Fund in June 2015.

The Welsh government is now closing WILG for good and transferring the funding to local councils, and by April the 22 local authorities were due to be solely responsible for meeting the support needs of all former ILF-recipients in Wales.

But Morgan announced the “change in direction” in February because a government review had shown a significant variation in how support packages were being cut by different councils.

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Press Release: DPAC’s latest research shows the cruelty of Universal Credit

The following article was taken from the DPAC website and can be accessed by clicking here. 

***

In response to the DWP’s lies trying to minimise the negative impact of Universal Credit (UC), by commissioning unbranded BBC documentaries and media articles highlighting UC success stories, Disabled People Against Cuts (DPAC) has compiled a damning record of UC systemic and catastrophic failures.

This record draws on local and national press and media articles, government and research reports.   While the DWP bleat that UC is unfairly vilified the reality is that UC had always been a disaster for claimants and has already wasted millions of pounds.

It has now reached a point where it is unable to adapt to claimants’ complex circumstances, and is forcing people with the least resources into further poverty, homelessness, and hunger.  These failures are driven by ideology. Making claimants wait for their first payment on the pretext that this mirrors the circumstances of working people is another DWP fairytale.

Experts who have looked at UC have also identified design, management and IT issues which cannot be solved by tweaking the system.

This is why DPAC is calling for UC to be scrapped. It has become a social security system, which not only does not offer security, but actively undermined people’s ability to cope with the hazards of life.

So far DPAC activists have already removed many thousands of copies of the Metro and will continue to do so whenever a lie about UC is printed. RMT and UNITE members are monitoring each days’ delivery of Metros to help us with this.

We are also calling for a boycott of Reach newspapers which have also in many cases published and republished one case study of one Job Centre manager saying UC works well. Reach’s Director, Helen Stevenson, is coincidentally a former non-executive director of DWP.

Download the Report:

DPAC Report – Hunger Debt Homelessness Crime Prostitution and Suicide – Universal Credit Media Articles – May 2019

Notes for Editors

Disabled People Against Cuts (DPAC) are a campaign group fighting for the rights of disabled people www.dpac.uk.net @dis_ppl_protest

https://www.disabilitynewsservice.com/second-newspaper-group-could-be-targeted-over-universal-credit-articles/

Intergenerational worklessness is a lie.

https://www.jrf.org.uk/report/are-cultures-worklessness-passed-down-generations

 

The same DWP propagandist Reach Media articles –over and over again

https://www.chroniclelive.co.uk/news/uk-news/universal-credit-why-actually-great-16279017

https://www.plymouthherald.co.uk/news/uk-world-news/universal-credit-good-thing-helps-2866016

https://www.walesonline.co.uk/news/world-news/universal-credit-why-actually-great-16279017

https://twnews.co.uk/gb-news/why-universal-credit-is-actually-a-great-idea

https://www.latest-news-headlines.eu/local/leicester

https://www.bristolpost.co.uk/news/uk-world-news/why-universal-credit-actually-great-2870686

https://www.cambridge-news.co.uk/news/uk-world-news/universal-credit-why-actually-great-16279017

https://www.birminghammail.co.uk/news/uk-news/universal-credit-why-actually-great-16279017

https://www.gloucestershirelive.co.uk/news/uk-world-news/why-universal-credit-actually-great-2870686

https://www.dailypost.co.uk/news/uk-world-news/universal-credit-why-actually-great-16279017

https://www.gazettelive.co.uk/news/uk-world-news/universal-credit-why-actually-great-16279017

https://www.manchestereveningnews.co.uk/news/uk-news/universal-credit-why-actually-great-16279017

https://www.grimsbytelegraph.co.uk/news/uk-world-news/why-universal-credit-actually-great-2870686

https://www.derbytelegraph.co.uk/news/uk-world-news/why-universal-credit-actually-great-2870686

https://www.coventrytelegraph.net/news/uk-world-news/universal-credit-why-actually-great-16279017

https://www.hulldailymail.co.uk/news/uk-world-news/why-universal-credit-actually-great-2870686

https://www.belfastlive.co.uk/news/uk-world-news/universal-credit-why-actually-great-16279017

https://www.lincolnshirelive.co.uk/news/uk-world-news/why-universal-credit-actually-great-2870686

https://www.stokesentinel.co.uk/news/uk-world-news/why-universal-credit-actually-great-2870686 

https://www.getreading.co.uk/news/uk-world-news/universal-credit-why-actually-great-16279017

https://www.kentlive.news/news/uk-world-news/why-universal-credit-actually-great-2870686

https://www.liverpoolecho.co.uk/news/uk-world-news/universal-credit-why-actually-great-16279017

https://www.leeds-live.co.uk/news/uk-world-news/universal-credit-why-actually-great-16279017

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#SaveWILG Update: Letter from Julie Morgan

I received the following letter from the Deputy Minister for Health and Social Services to update me on the progress of WILG assessments.

It makes for interesting reading. I will be writing in response to this letter soon, but for now I think it is important to make sure that everyone is fully informed of their rights.

Thanks to Julie Morgan as ever for her sterling work in making the independent assessments, a reality.

*** 

Dear Nathan

Following my letter of 18th of April to former recipients of the Welsh Independent Living Grant (WILG) regarding their ability to have an independent care assessment, I thought I would provide you with a brief update.

All local authorities have now have confirmed that they have circulated my letter to their former WILG recipients.  Clearly people will need time to consider whether to have an independent assessment.   I have asked recipients to let their local authority know their intentions by 14th June.  To date, I understand that twenty-six former recipients have expressed an interest in having an independent assessment of their care needs.  These are spread across ten authorities.

This number may well increase over the next three weeks.  It is important that those people who wish to have an independent assessment are able to access it, but this is also in the context of the large number of people who we know are content with their new arrangements.

As regards to the sourcing [of] the independent assessments, the tender process is about to close.  The bids we receive will be evaluated against bidders’ ability to meet quality and timeliness criteria, including to ensure the appropriate standard of social workers for the assessments are recruited.  This is with a view to a contract being agreed in early June, with the practical arrangements being finalised during June, for the assessments themselves to commence from July.

I trust this is helpful.  Please feel free to communicate this information to your network of former WILG recipients.

Yours sincerely

Julie Morgan AM
Deputy Minister for Health and Social Services

WALESPOSTCARDFRONT001

Access As A Political Issue

The following article is essential reading for all Wrexham AFC supporters, and in particular WST board members who have sat on a resolution which was overwhelmingly passed by club owners, and made little, meaningful progress on binding commitment.

More Than A Left Foot

Why Access Is A Political Issue?

Introduction

Since 2010 disabled people through
campaign networks such as Disabled People
Against Cuts have been at the forefront of the fight against Austerity, yet the
experience of disabled activists within the political arena still mirrors that
of disabled people in wider society where we
find ourselves excluded from or marginalised within activities. DPAC’s Paula
Peters expresses disabled people’s frustration when she writes:

“We are
not getting the support from large sectors of the Left that we should have.
Many ignore our access needs on marches [and within] meetings on a regular
basis. The amount of times meetings are held in inaccessible buildings with no
lifts, etc.”

A key slogan of the
Disabled People’s Movement has always been ‘Nothing About Us, Without Us’ –
recognising how nondisabled people in a variety of capacities disempower
disabled people by making decisions on our behalf or simply…

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